Hello there......yes, I have stopped the Humira on my own with my doc's knowledge of course! I was on it for a year and developed sebborrheic dermatitis!! Along with fungal toe nails. I was insistant...
Well if you want to be honest here......I think that would apply for ANYONE in pain or discomfort from these stupid diseases!!!! Not just because we have Crohns.... Tess...
Hi everyone, I am a medical coder and work from home most of the time. It's wonderful, get up and go whenever you need to. If you can stand the job, coding, billing and transcription just to name a...
Hi Chalmers and welcome to the forum. I've been diagnosed with Crohn's for about 5 years now. I however have never ending constipation so when I do have diarrhea it's a welcome relief believe it or...
Aenea, I am so so sorry to hear this. If I were closer I would help you get to your appts. But Gumby is right, there are folks out there that volunteer or charge small fees to get you to your appts....
Hello Aenea, sorry to hear of you in the hospital again. Just remember with all the chemo and rad it gets worse before it gets better. Hopefully they have caught this in time and will stop it from...
Hello all.....well I did start the Humira. Two weeks ago today, had the second dose today. The first week I felt really good, but it didn't last long. Symptoms came back by the second week. So we...
Hi Aena, So sorry you have to go through so much. But this too shall pass, just hang in there. Keep a positive mind and attitude even though it's hard. I've decided to bite the bullet and try the...
Aenea, sorry to hear you're in the hospital, but it sounds like they've caught this early and hopefully can get you under control. I wish you all the best with this. I'll keep looking for updates...
You know I'm finding this post at a time when I'm hugely undecided here.....I was diagnosed with Crohn's, UC, IBD, you name it....it's all there in 2010. I am currently on Pentasa, 6mp and Linzess. I...
Mrsbugzy, thank you for that! I will try it. My problem lately is I have been snoring really badly at night and waking up often with a very dry mouth, so dry I have to drink water to get it moistened...
Krael, if you are constipated, which it sounds like you are, you need to clear it out with a good laxative or keep taking the Mirilax, and take it couple times a day. Once the bowels start moving,...
Krael, just to note here, if you have Crohn's, ibuprofen can irritate the bowels. I have found that. It makes me feel worse, so I don't use it! Hope you feel better. Tess...
Hi everyone, I don't to often reply to much here, but the pain in the lower back and hips, I can relate to. One it's the inflmmation going on in the bowels, but it can also be that you're deficient...
The baby wipes sooth the area though!! I use the Tucks pads. And usually white cloud, I try to find one that does leave the mess behind!!...
twbb, I can certainly understand your wanting to help yourself the natural way, as I want to do this too. I haven't looked at the websites you provided, but the more fiber I eat the more gassy and...
@40&crashing now that you mention it, yes it has been a little calmer since all of this started, but I am also a month into a new med. So I'm not sure I can honestly answer you here. This is...
Wow this thread is coming at just the right time here! I am 46 years old and my mother had a hysterectomy by 40, so I have no one to really ask about this! In October I had one of the heaviest...
I was recently put on 6mp also as I was recently diagnosed with UC. I read here on another thread to take Biotin. I have been doing that and not washing my hair every day as I used to. I am still...
Hi all, Wester New York here, I must clarify as there is more to NY than the Big Apple!! Then again, I feel like I'm on a slow ride to Hell and I really don't want to go there!! Tess...
Wow what a question!!! Hello everyone, I'm crossing over from the Crohn's forum for a visit here. In May 2011 I was diagnoses with Crohn's disease in the terminal ileum and told to take this med...
You're right it definitely does! I'm glad I found this site. We're all suffering from our own symptoms but we're not alone out there!...
I am in agreement with all of the above as well, but also ask for a thyroid check as a low functioning thyroid will do the same. Take care and feel better soon. Tess...
Sorry NCOT!! I was wondering how this was going for you. I guess not good! Hang in there as better days are coming!! We ALL have to believe that. Take care and have a good cry or something to releive...
Well, I can understand you wanting to vent!! I would too. I don't know how the Canadian medical system works, but find a GI doc to visit. Have you had a colonoscopy before or an Upper endoscopy? Not...
I'm sorry I don't know what to tell you about the pain, but there as got to be a cheaper medicine to start you out on. Ask your doctor about something else. Are you seeing a GI doc? They also have...
Hi DMons, I have to agree with the others. I too suffer from the constipation and bloating and it's not pretty, to put it mildly. I drink prune juice every morning and also use Miralax as needed and...
Hi there, I don't know a whole lot about this medication but my fiance took it for a few months for a condition called Hidradenitis. This did not work for him. In fact it dried him right up from the...
NCOT glad to hear you are feeling better! I must say I've had a similar situation going on myself this weekend. I was feeling very bloated and gassy, but then the gas stopped and the painful bloating...
Hi Mish, sorry to hear you are doing so poorly. These autoimmune diseases really suck! I have Crohn's and my husband has HS. I couldn't imagine having both. The biggest thing we have found so far for...
NCOT this sounds exactly like me!! I thought the NP at the doc's office was out of her mind. She insisted I was constipated. Well, I guess I was, because I added Miralax and it helped tremendously....
Well I guess I have to do some homework on probiotics. I'm still pretty new to this miserable disease and still learning! Thank you for the advice and info. I did also try the Dannon yogurt...
Probiotics did NOT work for me at all and in fact made things worse. I suffer from constipation and very seldom any diarrhea. Probiotics made it worse. They may work for you. All you can do is try...
Oh sorry, and no mine is NOT a UTI, I have been tested. Tess...
I am having the same issue right now. I have to go to a Urologist to have a cystoscopy done soon. This all started when I started a new med Lialda. I stopped taking the med for now and feel OK with...
Personally if I were you and feeling the way you do, I would insist that your stool be rechecked. First before anything else. Maybe it's just that and with a clear head visit the docs office and even...
Just this last Wed I started taking Lialda(Mesalamine). I am noticing all of a sudden that I have blood in my urine. Has this happened to anyone else? Of course I can't get a hold of my GI doc today...
Hammerman, the 6.4 is a blood test for Glucose, it's more of an accumulated test, which I am not a doctor, but this level is on the high side of normal. This test is used a lot with diabetics. Tess...
Hi there, I was recently diagnosed with Crohn's myself. I was diagnosed in 5/11 and have a follow up visit tomorrow with my GI doc. After reading these responses here, I just want to cry!! I don't...