I started SCD as an alternative to starting Humira/Remicade during a bad flare-up, and I felt remarkably better within a month, and achieved remission within three months. I am currently at almost...
Crohn's is one of those diseases that manifests differently in everyone (with some main shared symptoms of course), and everyone has different things that work for them. I have encountered the exact...
I have definitely had thin BMs before. Sometimes I can't help but look at it and thing "toothpaste coming out of a tube" just based on how long and thin those suckers can be. The likelihood of you...
I think Imuran tends to reduce my overall energy level, but I am still able to exercise almost everyday on top of my part-time job plus sundry household chores. So it isn't like a huge slap to my...
Kazbern mentioned bananas in smoothies, and I thought I would add that you could puree just about anything (steamed veggies, fruit, cooked rice) and then mix it with water/milk/broth. I don't know if...
Is it anything like restless leg syndrome, only in the shoulder muscle? I get stuff like that sometimes and all I can do is wait it out and try to get it to just freaking stop already! I am not on...
Am I correct in assuming the "malignancy" is referring to the special cancer risk that the FDA put a warning out about? Thanks for sharing! I love seeing new research....
I agree with Kazbern. Plus how cool is it to have a camera moving through you taking photos of you insides!? In all seriousness, though, I am sorry you are still having to deal with no diagnosis. For...
Randy - I am so sorry that you have another ulcer, and especially sorry that it cut your vacation short. I hate that you can finally get the time and be healthy enough for vacation, only to have your...
Alright, I looked up green powder and some of the main "superfood" ingredients, and here is my thinking: Firstly, I took a class on Algae (way more interesting than you might think) and the professor...
Well, I am technically in remission but I still get sharp pains randomly throughout my intestines, and growliness is still quite common. I would say to keep an eye on it (classic and super unhelpful,...
You might try going to a dermatologist instead, and see if there is something amiss skin-wise. My eyelids will get super sensitive sometimes, especially to air blowing on them, but no redness or...
I have no experience with LDN but I wish you the best of luck. I am so, so sorry you are having such an utterly terrible time. I offer you an internet hug, and the hopes that you will soon start...
Sounds like you are on the right track then! I am four months into the diet, and have been able to add rice back into my diet (!!!!!). My inflammation got lowered dramatically, bleeding stopped,...
Hahaha Crohnie :) We could both be right! Also you should look Labradorite (the mineral) up, because it really is gorgeous. It is a lot like opal but is dark instead of light. Also my user name is...
I had a real jerk for a GI my first time in, and immediately started doing research online for GI's in my area. I ended up going in to see the GI that gave my father-in-law a colonoscopy and really...
Really! I did not know that, thanks for telling me :) I feel like I learn one thing with this disease, and then it turns out that fact is wrong and now this is right etc. I am very glad mesalamines...
My fiance feels that SCD alone is what put me in remission and that I shouldn't be on the Imuran, but I am leery of going off of it. Humira is an even more extreme case, where the side-effects and...
Hey UCHater, welcome to the forum. I am deeply sorry you are suffering. I agree with Kazbern about the 6mp versus mesalamine. The mesalamines are supposed to target the small intestines, if I am...
I agree with Stereo - B-Vitamins are really the only non-stimulant that will help boost your body's energy levels. Try to keep your vitamin levels up and that should help a little bit. For me,...
I would go for something like Fage, or even the danactive/activia type yogurts. I also take VSL capsules but they can be expensive and you might want to try the store-bought kind first to see if you...
Breaking the Vicious Cycle by Elaine Gottschall. It is the founding book of the diet. There is also a website. Cookbooks: Recipes for the Specific Carbohydrate Diet by Raman Prasad Grain-Free Gourmet...
Awesome! Congratulations! And I totally agree with you about the sun : )...
Is your doctor not telling you? Mine had me on 9mg for 2 months then I just stopped, no problem....
I don't know the answer to your question, but I can offer support. You are very strong, you have already been through a lot and you can handle anything that comes your way. Just keep telling yourself...
That sounds like a very difficult choice. It seems to me that one should strive for as few surgeries as possible in one's lifetime since they probably start to incur all sorts of damage. At the same...
Are you having any other symptoms? Anything new in your diet? To me, it either sounds like you still have inflammation and the loosening of the stools (sounds like a movie name or a band name, huh?)...
When I first started my period I remember my mom saying I was lucky that mine was so even, and that she was jealous. So yeah, I think it is just normal menstrual cycle stuff :) If you end up having...
Congratulations on finding not only someone else who has Crohn's that you can relate to, but also one who holds your respect as well as the respect of your classmates! Have fun on the B-Ball trip!...
I have drainage in the back of my throat (mucous) all the time, so it could indeed be that you have some excess mucous buildup in your sinuses that is getting drained down your throat. You can try...
I have not had that problem, and it sounds like your topmost epithelial layer/hair follicles are exceptionally sensitive. I would go ahead and call your doctor, or maybe try some cortisone cream?...
I gained about 15lbs in my stomach region pretty much only, much like you describe. I have changed my diet, I don't consume more calories than I use (1500-1800), and I exercise as well. Still, I have...
Money, I am so very, very sorry. All I can really do to help you is offer my support, and I offer that fully. Don't cancel your vacation yet, because that will add even more stress and if it all...
It seems like there are several points of crossover between the two diseases, and you make a very astute observation with it. I have experienced the fatigue, the memory-ineffecacy (yeah I just made...
Gosh, that sounds horrible. Have you talked to your doctor about this?...
Ugh, housing is the worst. It was always my least favorite thing about school. I think that the director will be very helpful, and will sort stuff out so just relax until then. No need to stress out...
Seconded. I have only been on Budesonide for my Crohn's, and it is far far gentler on your system. I have taken pred for major sinus infections in the past, and it always makes me gain weight and...
Hey cfs, I want to second what Roni said above, and also discuss some of my personal experiences with diet. SCD has really worked for me, but man is it hard. The cravings for starchy, yeasty, warm...
Is there any way for you to summarize the article for those of us without an account, please?...
Hopefully some more people will weigh in, but I guess if not then you kind of have an answer there too (ie no one has had the pain so they feel they have nothing to add). I hope it is easily remedied...
There really are people out there who can deal very well with a sick significant other. I understand how very nerve-wracking it is to open up to somebody, especially with this disease. One thing you...
Thanks for the heads up! I did my childhood favorite - blue koolaid, and that was ok for the first half of the dosing, but towards the end made me very nauseous and made me vomit once. I will try the...
My anatomy isn't great, but maybe it has something to do with your kidney? How severe is it?...
For what it's worth, my gyno said that pregnancy whilst on Imuran was fine as long as you keep a close eye on your health. I have also had two GIs tell me that it is fine. I think that the main idea...
I think you should see a rheumatologist or at least your PCP if your pain is worsening. That isn't normal or healthy. I cannot believe your GI is being so lax about this!...
What if you dissolve potassium in a glass of water or juice and drink it? Maybe that will facilitate it entering the blood stream before you can pass it out!...
It sounds like you have an abscess to me. I really think you need to see a doc stat, so try looking for doctors who do pro bono work. I know of a local charity who brings in a doctor once a week for...
Gosh, that sounds really awful. I have taken two, eight-week rounds of 9mg of Entocort and never had muscle aches like what you are describing. I had a lot more headaches, that were also more severe...
I am so sorry you are in so much pain Brent. The only thing that I can think of is something along the lines of severe arthritis pain, akin to the rheumatoid variety. You might want to contact a...
I have had friends who will have monster periods for weeks on end, and they are completely healthy. Hormones can do weird things to the menstrual cycle! I would definitely let your doctor know about...