This is really interesting. I transitioned to vegan and now 75% raw vegan which has helped me considerably. That would totally explain why it helped...
I had a friend recommend this bc she said it coats the intestine and is supposed to be helpful for Crohn’s and UC. Has anyone tried it ?...
That’s awesome!! I hope you are able to connect!...
Anyone heard from Linda? If not, anyone able to email her to make sure she is ok?...
Congrats!!...
I got it after about 8 months on Humira. When I stopped Humira a few moths later, it went away and never returned....
Uber or Lyft! Just notify your provider ahead of time and make sure it is ok...
I hope she responds soon! I have followed her case since she started posting. It hit home for me. What happened to her was a magnified version of what happened to me upon my Crohn’s diagnosis. I am...
Has anyone heard from Linda? I hope her surgery went well....
Now, would someone please make a dandruff shampoo for our colon?!!!...
I tried one dose and felt it flare my symptoms up so I stopped...
Chances are the labs are right but the salads are tearing up your gut on the way out. You may be bleeding and not realize it, hence lower hemoglobin and increased CRP. You can be flaring and still...
Try adding LDN ( Low Dose Naltrexone). Look it up and do some research. I know several CD families that have used it for their children in conjunction with SCD diet with good success. I get my LDN...
How is everyone liking the generic version of Lialda? I just got my three month supply in but haven’t tried it yet bc I am using up the brand name I have on hand . Did you notice a difference ? Any...
Get well Ides! Crohn’s, the disease that keeps on giving... ugh. Was that the university of Washington in Seattle? I am not too far from there and considered going there for a second opinion...
Thank you!...
Need a GI in Portland Oregon or surrounding area of Hillsboro or Beaverton. Prefer someone that mixes eastern and western medicine . Bonus points for a female but willing to have a male GI if really...
I know this may be a long shot but it helped me so I will throw it out there. My disease was completely uncontrollable until I was finally tested for my vitamin D status several years ago. I was...
Hi there Gumby! Good to see you! I am putting along. My GI is sending me to an IBD specialist bc she wants to put me on the Stelera methotrexate combo but I am resisting. I will be moving across...
Thanks for your input. I may buy some to give it a try. I wish I knew what brand/type they used......
I am interested in your opinion of this. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5341015/#!po=0.595238...
I don’t know how to make a link live. This is fascinating stuff . Anyone have any experience with this? https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5341015/#!po=0.595238...
Thank you Owleyes! I ordered the Restore and it should be here soon. The megasporbiotic is now only available through certain providers but supposedly Just Thrive is exactly the same minus on strain...
I have an AIDs patient friend recommend these products after he said he suffered for years with CD symptoms after a cdiff infection . He claimed this healed his leaky gut and made a huge difference...
I have been on Lialda for many years. I had headaches in the beginning but I just needed to drink more water with it. It helped me considerably. Everyone is different so I hope it works well for you....
Exqualls, there is a LOT of information on this on the internet. I just did a search for it and pages of links came up. I opened one that is a site supposedly to a group specifically for this. You...
I am so glad you are on the mend exqualls! I have Crohn's disease and during one of my many stays in the hospital due to medication side effects or allergies , I had a hospitalist tell me that...
Has anyone heard from exqualls? I am very concerned for her and miss her posts. I am continuing to pray she is home recovering....
I have been on it for many years . No issues...
I am been following your thread exqualls and was upset to read your last post. You have been through so much... I am sending you my prayers and well wishes for you to get well and leave this chapter...
Wow! Mold is bad news. I would move immediately and cite health concerns about the mold in hopes you can get released from your lease without any issues. You should what someone just posted on the...
I have had good luck with lialda. I have been on it for many years and I credit it for stopping my major bleeding. I dont have any of those symptoms you are describing but did have headaches when I...
So sorry you are having to deal with that. As if its not bad enough to have crohns but then having to go through that BS after 20 years is pure hell. take extra care of yourself to try to avoid a...
Vitka, When my Vitamin D was 11, I was so very sick. My condition was classified as "fulminant" and I was being prepared to lose my entire colon. I was massively bleeding requiring multiple blood...
Have you been tested for your vitamin D status? This has been what I believe to be the most important thing I have had done to control my Crohn's. I was tested a couple years ago and was extremely...
Sorry to hear about your diagnosis. I had AVN in both femurs at the knee with surgeries about a year apart. I had partial collapse on the left . My orthopedic drilled my femurs and scraped out all...
Sci-fi, sorry you are having such a hard time.Hopefully you can get that test so they can pinpoint the problem. I am keeping you in my prayers! Any chance this could be from the Remicade? I wish I...
I got pancreatitis from apriso! Don't wait! Get checked today....
How much vitamin E does it call for?...
Thanks Exqualls! I am still doing great. I am very happy with my breast results and every time I hear of someone that has been diagnosed with breast cancer, I -am very sad for them but breath a sigh...
So sorry you have to deal with all that! I hate hospitals, period. Since you are so nauseated, how about just taking the Cipro and not the flagyl? Flagyl made me so sick but I could tolerate the...
Many news sites on my news feed are saying Paul Ryan will attempt to push his agenda to phase out Medicare in 2017. http://talkingpointsmemo.com/edblog/ryan-plans-to-phase-out-medicare-in-2017 I...
Tequila. There is an actual medical reason for this but I can't remember it but it is the only alcohol I can tolerate. Patron silver...
If you have any shortness of breath, get to an ER! A perforation is a life threatening emergency....
Gogirlysa, did you have your surgery?...
Cardio makes me flare after exercising for a few weeks . Happens to me every single time....
I take Florastor daily and tried the generic which made me flare. I immediately stopped it and started on the name brand and was fine after that so just use caution if you have an issue, it could be...
Just popped in to see what is happening on HW and saw your post. Ugh girlfriend!! You have been thru the ringer! I sure hope you get over the hump soon. Hugs! For once, I have been stable with...
As a 20 year Paramedic before being disabled by this DD and the medication side effects, I saw this treatment of not only CD patients but other "invisible" and visible diseases. I could tell you...