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What's next?

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Display Name
What's next?
Profile Created
4/9/2012 9:46 AM
Last Seen
4/23/2019 9:42 AM
Total Posts
234

Last 50 Posts

bad bloating, period for weeks, constipation, crohns

So now my bms seems pretty normal but im also eating a lot less. Any food besides liquid seems to be bothering me now. Some more then others but even the bland boring stuff does i just dont get as...

4/16/2019 9:42 AM

Crohn's Disease
bad bloating, period for weeks, constipation, crohns

My doctors said they now dont want me on any otc meds except tyelnol as needed. They prescribed me budesonide ec capsules, a new birth control pill, and b12 shots weekly. So we will see if any of...

4/12/2019 6:23 PM

Crohn's Disease
bad bloating, period for weeks, constipation, crohns

I was thinking blockage too and ive never had this bad bloating before. Its new for me. My stomach goes back and forth from completely flat (im skinny) to looking 5 months pregnant. Some days arent...

4/8/2019 5:16 PM

Crohn's Disease
bad bloating, period for weeks, constipation, crohns

Ive used miralax to prep for my last 2 colonoscopies but not for anything else. I recently used a mild laxative for 1 day and then they had me use a stool softner for a few days. Then i had about a...

4/8/2019 4:40 PM

Crohn's Disease
bad bloating, period for weeks, constipation, crohns

So i haven't been on here in a few years but I've been managing decent for a while. Im not saying I was great but everything seemed to stay the same so I always knew what i had going on. Well for the...

4/8/2019 5:12 AM

Crohn's Disease
Anyone here gone to the Mayo or Cleveland Clinic?

Have you contacted both about insurance information? I was scheduled for the mayo clinic and the day before they called me and canceled because they changed their insurance policy and would no longer...

8/25/2014 7:12 PM

Crohn's Disease
Is it really Crohn's

My brother started remicade at 15. It worked amazing for him and he gained the weight to where he should have been. He went from barely any pain to a severe case quick. He had surgery and started...

8/25/2014 7:08 PM

Crohn's Disease
How do you answer when people ask about working?

So I stopped work in jan due to multiple health issues. If you look at me I LOOK healthy and I'm skinny. On the inside it's another story. Looks can be deceiving. When I'm out somewhere and someone...

7/14/2014 3:48 PM

Crohn's Disease
I've decided to apply for disability

I applied the end of jan too. I applied online. I filled out as much as I could think of online. I wrote what medications and vitamins I tried, what I'm on currently, what the Side effects are of...

6/5/2014 9:43 AM

Crohn's Disease
Ana question

Humira, then remicade, now cimiza....

4/12/2014 11:44 AM

Crohn's Disease
Mayo visit coming up

You guys have given me a little hope. I have my appt in May now instead of April due to family issues. I've never had much help with doctors in the past so I feel like I may be going there and will...

3/27/2014 10:13 AM

Crohn's Disease
Mayo visit coming up

Heading to the mayo clinic soon, will this be a waste of my time?...

3/19/2014 10:50 PM

Crohn's Disease
Ana question

So my Ana went from 1:160 to 1:320 and the pattern changed? Any ideas why or what it could be? Or gas anyone had an Ana positive and the doctors just said it was from crohn's?...

3/19/2014 10:45 PM

Crohn's Disease
I need a laugh---anyone got any really bad jokes for me?

My sons favorite is -----where does a cow like to go on a Friday night? To the moooovies. :-) Good luck with everything. I know its hard to deal with our health issues plus normal issues. I feel like...

2/25/2014 8:41 PM

Crohn's Disease
Gave in and quit my job

Thank you for your support. It's nice to know that others that have similar issues feel the same way I do. I'm not working and I'm still having trouble with how tired I am all day. I'm going to a...

2/25/2014 8:32 PM

Crohn's Disease
Lupus from Remicade Question

I wAs on humira for 3 months in early 2012. I had a bad reaction to it. My Ana is still positive. They still won't say I have lupus. But my Ana has been positive every 6 months when it has been...

2/15/2014 9:57 AM

Crohn's Disease
Gave in and quit my job

I hate that I had to but I have 2 kids and it was to the point to where I would get home from work feed them and put them to bed. I would be to tired to do almost anything else. My house turned into...

2/11/2014 6:41 AM

Crohn's Disease
Gave in and quit my job

Just couldn't do it anymore, I gave up/ gave in and quit my job. I've had a little over a week off and I feel so tired all day. I just can't believe how I was making it working. I feel like I gave up...

2/10/2014 8:53 PM

Crohn's Disease
Obama Care Srewed me Over!

I skipped the Obama care website and went to the state's website....

2/10/2014 8:49 PM

Crohn's Disease
Obama Care Srewed me Over!

Try applying for medicaid for your state and make sure when you apply that you let them know you have medical issues that cause high medical bills frequently. If they approve it, they will back pay 3...

2/10/2014 8:48 PM

Crohn's Disease
Mom informed me I look horrible lol

my doctor hasn't done any of those tests. and i'm really sick. I actually quit my job because i can't keep working right now because of how sick i keep getting. So once i'm better i can look for...

1/24/2014 8:23 AM

Crohn's Disease
Mom informed me I look horrible lol

So now I'm down to 101lbs, the inflammation did not show up in my colonoscopy but I'm going to the bathroom over and over again. Went to the walkin clinic and almost passed out so they called an...

1/23/2014 11:57 AM

Crohn's Disease
Crohn's and flu (not stomach flu)- when do u call the doc?

I'm sorry I didn't type much of a response back. I'm just not feeling good and can't stay on a computer long. (I sent the last response but didn't want you guys to think I was being rude)....

1/20/2014 11:46 AM

Crohn's Disease
Crohn's and flu (not stomach flu)- when do u call the doc?

Thanks guys. I have a doc appt Wednesday morning....

1/20/2014 11:44 AM

Crohn's Disease
Crohn's and flu (not stomach flu)- when do u call the doc?

I was sick for a week. I think that May have been a bad cold. Yesterday was the first day I started to feel like I was getting over it. Today woke up way worse with my entire body aching but my back...

1/19/2014 11:20 AM

Crohn's Disease
Mom informed me I look horrible lol

So I ran into my mom last night. (Last time I seen her was Christmas). She said "you've lost so much weight, you look horrible." I said oh, thanks! Lol so Christmas I was down to 103lbs. I don't know...

1/15/2014 8:30 AM

Crohn's Disease
I think I need a sick day... What do I do?

They weren't. I took a Friday off home sick. Then went in Monday sick. Tuesday I got there and got very dizzy, passed out and laid on the floor for a while before someone came to pick me up. Then I...

1/15/2014 8:17 AM

Crohn's Disease
I think I need a sick day... What do I do?

my brother had his first flare at 16. His case is a more severe case than mine. But i have additional problems that he doesn't have so i dont know maybe it ends up a drawal. But he had his first...

1/14/2014 5:47 AM

Crohn's Disease
Humira Lupus and Prometheus ADA

I had all of the same problems with humira. I had a positive Ana test (on more than 1 occasion) over the last 2 years. Doctor still won't officially say its lupus. I stopped the medication 2 years...

1/6/2014 8:14 PM

Crohn's Disease
What would be the best blood tests for fatigue?

My doc couldn't figure mine out and ended up running a crazy amount of blood tests. My vitamin d was low so I had to take 2 months of supplements. I also had a low coq10 and a positive Ana. So...

1/6/2014 8:10 PM

Crohn's Disease
Malnutrition and disability question

Thank you for the help. It really does make me feel better. I was waiting all day Friday for 2 different doctors to call me back and neither did. So I'll be on the phone tomorrow with the gi to find...

1/5/2014 5:39 PM

Crohn's Disease
Malnutrition and disability question

Yeah. I'm really considering leaving. I get to sit but it's up and down. I can go to the bathroom when I want but only if I'm not in the office with a client. I can be in the office multiple times a...

1/5/2014 12:21 PM

Crohn's Disease
Are oral pain meds ineffective for anyone else?

I'm so sorry your going through all of this. I don't have a resistance to pain medications. But instead I just have bad reactions to medications. Many medications they have me try I'm the one that...

1/5/2014 8:09 AM

Crohn's Disease
Malnutrition and disability question

I hang missed to many days due to all of the firings at work this last year. We've been extremely short staffed. But I did miss a Friday recently then came in on Monday even though I was sick....

1/5/2014 8:03 AM

Crohn's Disease
Malnutrition and disability question

Thanks for the reply. I'm managing the best I can now. I'm still working but it really gets hard and i get nothing done at home. My house is a wreck because I force myself to work 40+ hrs a week then...

1/3/2014 7:55 PM

Crohn's Disease
Have you developed Lupus from either Remicade or Humira?

I have not been diagnosed with lupus but I have many of the symptoms. I have been off of humira for over a year and the symptoms just keep getting worse. I won't be surprised when they diagnose me...

1/3/2014 7:49 PM

Crohn's Disease
Malnutrition and disability question

Yeah I'm just wondering if that would show that I meet the listing. Like I said my medical chart is pretty lengthy but hopefully it doesn't come to that anyway. Problem is I'm still loosing weight...

1/1/2014 1:06 PM

Crohn's Disease
Malnutrition and disability question

I'm curious about an ssdi listing. Has anyone qualified because of malnutrition due to their bmi being to low? Listing 5.08 says: 5.08 Weight loss due to any digestive disorderdespite continuing...

1/1/2014 9:37 AM

Crohn's Disease
Colonoscopy tomorrow

The doctor took some biopsies and said they would call me. But I think I was the last one then the took a 2 week vacation for the holidays. So the nurse will be back tomorrow and the doc will be back...

1/1/2014 7:55 AM

Crohn's Disease
Colonoscopy tomorrow

So I stopped drinking that prep with a lot left. I was worried I didn't drink enough but I was cleaned out enough. I'm still waiting on biopsy results but after the doc said it looked a lot better...

12/29/2013 8:53 PM

Crohn's Disease
Colonoscopy tomorrow

Yeah, that's what I did last time. I forced myself to drink until it was yellow water with nothing else. They told me it was fine. But I still haven't even started going yet. LAst time I did the same...

12/19/2013 5:24 PM

Crohn's Disease
Colonoscopy tomorrow

I can't drink this whole gallon of prep. Am I the only one? I'm only about 1/2 way and I'm hungry but i just can't drink anymore. I feel so full. It was like this last time too. I wasn't able to...

12/19/2013 5:12 PM

Crohn's Disease
I think I need a sick day... What do I do?

So I ended up taking last Friday off. I wasn't feeling good and neither was my son. I worked Monday. Then Tuesday I went in and passed out. I was dizzy for 1/2 hour too. They sent me home because I...

12/19/2013 5:06 PM

Crohn's Disease
I think I need a sick day... What do I do?

So I've been feeling sick all week. I have my colonoscopy next Friday so it's pretty pointless to go into the doctor until then. I felt so bad today. If I eat anything I go to the bathroom multiple...

12/12/2013 7:57 PM

Crohn's Disease
Crohns and Life Insurance

I'm 26. I've been denied a couple times. I've given up looking for the time being. No one will insure me....

12/11/2013 6:49 PM

Crohn's Disease
Doctor can't figure it out

I forgot that I even had lupus in my signature. Lol. I'm going to reword it a little to say testing for lupus. The rhemutologist said everything is pointing to lupus but hasn't officially put it in...

12/11/2013 6:47 PM

Crohn's Disease
Doctor can't figure it out

I've thought about it. Same with my rheumatologist. But I feel like I'd be starting over. They just can't find anything to make me feel better. I not want to go to someone new and be like, ok I've...

12/9/2013 7:10 PM

Crohn's Disease
Doctor can't figure it out

So I feel worse and worse but I manage it. I'm use to not feeling well and I know how to make it through the day, at least for now. But the doctor still can't figure out why I get joint pain, fevers,...

12/9/2013 6:58 PM

Crohn's Disease
Humira - Pen or Syringe?

I used the pen because it was easy but it hurt more than most needles did. I would push the button, then wait for about 10 seconds for all the medication to go in then you could let go. But it did...

12/4/2013 7:06 PM

Crohn's Disease
For Females - How's your Crohn's around your period?

Mine is worse then too....

10/25/2013 4:59 PM

Crohn's Disease



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