I'm very happy for you. Something you don't need, but please continue to take prevention measures to make sure you won't get it? My sister had to also take a Covid test last Thurs, due to symptoms of...
Nice to see you Nanners, I remember you from a few years back and it was a pleasure to read your posts and responses. I've noticed many of our HealingWell regulars are no longer visiting here, but...
I'm on Lansoprazole, but I've been on Pantoprazole in the past which made me very nauseous. As for the diarrhea or looser stools, it is listed as an adverse affect of PPI's, saying it may cause...
Hi Miranda, nice to see you on here. Been thinking of you. Glad your test for Covid came back negative. I don't come on the boards often, but read up once in a while. Been MIA and having it pretty...
Thank you for passing this on. Am I reading this right, does it mean I will have to self inject every 2 weeks instead of every 2 months? I hardly have any fat or muscle and if it's as painful as...
Doctor told me today that a self injectable formulation of Entyvio to do at home is coming here to Canada? Has anyone tried this already? If so, how did it go for you? Think I will be happy to lose...
Thank you, I was doing just that at my Family Doctor, but I felt he felt intimidated when he asked me what do I want them for? He was charging me a fee and I don't know why, I just quit asking for my...
Thanks , I hope the rescheduled infusion goes smoothly as well. I've started extra hydrating today and will continue till my infusion, and hope my veins will show up more this time around. I wish...
Well,I had tried infliximab years ago. The doctor wanted to put me back on, so he sent me back for all the preliminary tests I needed beforehand. I changed my mind about the treatment, but he got...
Thank you, and they did notify me later this afternoon, and my appt is for Wed. Just a couple days over a month from my last infusion, but now between then and the next one originally pre-scheduled...
Oh no, your veins too? they did try the hot pack they just couldn't get the proper vein to get the IV flowing, but I will keep in mind to drink extra. They contacted me today, they changed their name...
Actually Imodium has helped to slow diarrhea down and without pain, but I have to say I still have BM's that aren't very normal, Not much comes out of me, so don't know where it's going, maybe my...
Sparkleplenty ,just wondering if it works for you because your body has a greater need for magnesium, and milk of magnesia fills that deficiency? Just a thought. Perhaps your doctor recommended that...
Thank you. I can't recall using milk of magnesia, but I have used products such as Pepto bismal, kaopectate, charcoal, probiotics, L-glutamine and several others I also used metamucil and Citrucel,...
Well, I am on entyvio as well and while I can't relate to continuous headache, can certainly relate to the fatigue. I find myself napping or should I say just laying back and resting and next thing I...
Hey all of you sure sound like me with your symptoms. Thank you Susie, you've been through so much too, all of you have? I was questioning the amount removed as well, thinking I didn't have enough...
sparkleplenty and others, do you think there is still hope for me remaining on entyvio, and that it may still kick in and work on the diarrhea, and I will feel the affect. I will be going on 5 months...
Thanks 1+1=2, straydog and sparkleplenty 1+1=2 I'm not ruling out FMT just yet, though I think I will wait till more studies are done on it specifically for crohn's and the doctor brings it up to...
I feel for you, having to have gone through the avoidance after surgery, well just because we have surgery doesn't always shut down the inflammation and crohn's in another area. Especially after they...
I found a little bit of information about our FMT Trial Study. It was being done last year.by a Gastroenterologist and a Research doctor at our local University, Not much info comes up on it at this...
1+1=2, thank you so much for the information. As I was reading your story, I was brought to tears because it is so similar to mine, and I think you even had it worse than I? The 20 FMT pills you had...
Thanks,. Well I am at the full 4 months, my doctor feels since Entyvio isn't systemic so my joint pain and runny nose issue isn't from that? I'm hesitant to tell him anything new because he will just...
Besides having FMT's are you on any other treatments? Are the treatments done in a doctor's office or clinical setting. is it just a one time treatment or you have to go more than once? That is...
Thank you so much for the reply. I was to see the GI last week, and he told me my CRP markers are coming down, but seriously I don't feel better and have been crapping up a storm and he says Entyvio...
Thank you Susie...
I figured it was a prescription? I have to visit the GI in little over a week so will ask him for it. Think I would prefer the ointment, my aim will be better than the spray, LoL Is it expensive?...
I read on this forum that lidocaine helps with the rectal swellings and splits and itching of peri-anal crohn's?. Is this stuff sold OTC? I went to Wal-Mart pharmacy today and asked for it, and she...
GI is monitoring my blood levels, including CRP levels, but he never mentions if they are okay or not? I've asked myself more than once how they can be normal if I feel this bad? I would like to...
Thank you, it's nice that someone is listening. I looked up Takeda the drug manufacturer today, and they say results can be seen as early as 6 weeks or up to 14 weeks (3 and half months) I am almost...
I've been on Entyvio since beginning of March, still no change, still have diarrhea, and a general ill feeling through out. I'm almost into my 4th month. Is it ever going to help? I have not been...
You are right, I could be flaring which to me means that entyvio hasn't kicked in yet? My other problems could be the result of a flare and a depressed immune system and have nothing to do directly...
Thank you, I'm glad the doctor put you on entocort. When flaring while waiting for the medicine to help, isn't it possible that more damage is being done to the intestine, and more scar tissue is...
It's 2 months since I had my first Entyvio fusion. I've had 3 so far and will have my 4th in mid June. With the first 2 fusions, I was okay, outside of a short fever and nasal drip. Since the 3rd...
Thank you, well I'm at about 5 weeks, so way too early in the game to tell. I have another infusion next week, then nothing for 2 months. Let me ask, does this medicine work in between, like is it...
Thanks I'll check into it, just incase I need another treatment, but I wonder if it is covered in Canada? Will see what I can find on it?....
Had 2 infusions, will have another in 3 weeks and I feel nothing, Diarrhea sits at 12-14 runs. No appetite and nasal congestion and some pain in the gut area.. I do have more perianal burning...
Good question, I've had blood work done but I don't recall anything specific on the Lab sheet about antibodies for JC Virus. The Entyvio people are slow to get back to me, but I wanted to find out...
I'm being put on entyvio, but I do have concerns about the PML possible side effect brought on by the JC virus, it scares me. Are any tests taken during treatment to ensure the immune system is...
I'm sorry you are going through this. I would think it over good, as you say it is a once a month injection so if you do have undesirable side effects, it's not like you can quit it immediately?...
Wishing you loads of luck, my prayers and lots of hugs....
It's definitely not a rash, it's a cut or split in the skin about a 1/4 inch or slightly more . Questran used to work wonderfully for me, but since my multiple surgeries, I now have trouble passing...
Crohn's arthritis could be several types of arthritis combined. I get mid back pain but it usually is associated with a crohn's flare and clears when the inflammation is treated. . My joint pain...
Just fissures? I'm going through this right now and nothing seems to help it. I suffer from fissures, although one GI said a small fistula, the others haven't mentioned it. When I go, at times, it...
Poor you, I can relate, been there many a time. It could be IBS along with the crohn's? I get spasms of painful and uncomfortable gas, and that keeps me nauseous a great deal of time. When I go, I...
Maybe you can get your answer from a pharmacist, they know quite a bit. Dulcolax is pretty gentle and I worried about the same thing, that it would be too harsh, but it wasn't at all? But best to ask...
I was given both, and for me both were very gentle. The ducolax is said to be gentle with overnight relief. Suppose to take 12 hours to move through. I think they gave it to me for extra measure to...
I went to order the doctor approved evidekel extract oil high in CBD and low in THC, and since the legalization in Canada on Wed, it went up from $125 to $150 plus taxes....
My doctor submitted a request for medicinal CBD oil since it is still illegal in our Province. It can be derived from more than one source. The cheaper one is not the same as the oil extracted from...
Hi NCOT, just reading on some of your past posts (not all,) that I missed in Jan and beginning of Feb while I was in the hospital recovering. I take it that there has been some improvement since...
Yes, that's true, lettuce can cause gas and bloat and belching. I never knew this before and was surprised when I found out. With crohn's, sometimes it's hard to connect any one food with flares? I...