I was diagnosed with Hidradenitis Suppurativa (HS) 4 years ago. I was told then that this is another autoimmune disease that affects the skin and comes hand in hand with Crohn's. The dermatologist...
Thank you so much, Clo. Well, I couldn't continue the pred course as my heart rate got very fast. I'm getting better but I still get this stabbing pain in my back but I'm coping with it....
73 monte, thank you so much. Could you please explain more what is meant by a daily taper? How can I do this with 20 mgs of pred? Actually, they didn't say it was a short term course. I'm thinking of...
My Coronavirus symptoms deteriorated and though this is day 12 of infection, the chest doctor wants to put me on 20 mg pred. Asked my GI about his opinion esp that I'm now struggling with the...
Did you see a surgeon? Doesn't your GI suspect any perianal fistula? Normally, when I do have pus, this is because of my perianal fistula. See a colorectal surgeon first and if you are really...
Dear all, thank you so much. I really appreciate it. The first time, I think Remicade did its job and it went on well without me noticing I had mild viral pneumonia. This time, the strain is stronger...
I haven't been around in HW for a while as I had a lot of work to do. October 17, I got fever, diarrhea and a sore throat. Saw an ENT for the sore throat who immediately suspected COVID and ordered...
The results of the CT chest scan did not show any abnormalities. I haven't heard form my GI though. I still have this itching sore throat and earache + chest pain. It seems I've caught a bad cold. I...
73monte, thank you. The blood test work came back all negative except for the WBC which was a bit elevated to match the sore throat. My GI said we have to wait for the results of the CT chest and...
On which PPI is she?...
Deal all Thank you. Well, starting Friday night, I developed severe sore throat with earache and stabbing pain in neck. Saw an ENT doctor who examined me and listened to my symptoms and found I had...
Saw my GI today. Told him at the onset of my appointment that I have slight fever, only half a degree high, diarrhea and abdominal cramps. I mentioned that this is my norm. He said no even half a...
Liver test results came back normal (Sigh). I was really worried. Still I can't figure out why the B12 levels were extremely high. Had my infusion last week and as my GI ordered it was administered...
Hi NCOT, wishing you all the best today with the colonoscopy and hope the results of the COVID swab come back negative. You will be in my tlhoughts:/...
Hopefully it is what you mentioned 73monte. I don't feel I'm up psychologically to any new Crohn's gifts. I want everything that I've got + my perianal fistula and that's enough. Nothing more....
I posted earlier that my B12 levels were above 5000. Saw my GI yesterday and he ordered 4 tests for liver functions. I know that liver problems are one of the complications of Crohn's. Did anyone...
Well, Ambling my ESR tests were high and so were my calprotectin results. I have been suffering a lot lately so I feel it's so weird that my b 12 levels are that high. Every week, by Thursday, I feel...
73monte, haven't seen him my GI yet. Will ask for an appointment today....
Was having blood work and my B 12 levels came out. They are extremely high: above 5000. I'm used to having B12 injections every month or bi-weekly. When I read the causes of elevated 12 levels, I...
Noticed lately that when I weigh myself, I find that I have 2 extra kilos, however, my clothes did not get tighter and people comment that I have lost weight whenever they see me. So, a friend told...
Rootsmith, thank you so much for replying to both threads. My GI informed me in my last visit that the coming infusion will be the last chance for Remicade. He said I have to take pre-meds, and the...
Rootsmith, your post made me think why do GIs leave us Crohnies until our disease deteriorates? It took me 9 years until I had a confirmed diagnosis of Crohn's. The development of a perianal fistula...
73monte, you're right but the problem is that the contrast irritates my stomach no matter I'm given a Zofran injection prior to drinking it or not. The sweet taste of mannitol makes me unable to...
Yes that's the issue, Ambling. He can't understand that I can't stand mannitol and I keep throwing up for days after ingesting it. I too had before a CT with only water and things went on well. Now,...
Having been suffering for some months now. Saw my GI yesterday and discussed with him the impossibility of my swallowing mannitol for CT enterocolonography. I asked about MRE as you recommended and...
In April, I developed Corona virus symptoms of severe headache, vomiting, muscle ache and sore throat. I did not have any tests, btw. A Remicade infusion was due and I texted my GI who recommended I...
Thank you 73 monte. Texted my GI and he replied that I should postpone taking rifaximin at the time being and take only Imodium and antispasmodics. I feel that rifaximin made my symptoms better. I...
Developed lately these symptoms of severe cramps, rushing to the toilet, getting severe cramps while having a bm and then these cramps continue for not least than 30 minutes after the bm. Bms are all...
Thank you so much, Susie. What you mentioned is worth discussing with my GI. Things are not better. It seems I have to see him and discuss the option of either an MRE or an enteroscope to explore...
Exit 4, hope the new med gets more effective and all your symptoms improve and not only 50% of them. Well, both the infliximab trough and antibodies test showed that my body did not develop any...
@73 monte. Thank you very much for your encouraging words. I take Entocort now on a daily basis and I resumed taking Imuran and things are getting better in my terminal ileum. My relationship with my...
73 monte, thank you so much. It's a brilliant idea though the contrast they give caused me side effects before but I think I can ask my GI about pre-medication. I took it before in the form of an...
Well Susie, I feel I'm at a loss. I really wished to have it done but I can't tolerate this mannitol thing. I've had this type of CT a lot before and I wasn't forced then to swallow it. I can't...
The radiologist insisted I drink mannitol which I can't stand and throw up right away. Tried to convince me but I refused. I asked to cancel the CT enterocolonography and texted my GI asking to have...
Hi Randy Of course, I remember you. Sending you healing thoughts for your new battle. Hopefully, the side effect are just temporary and they clear once you finish the antibiotic course....
Both Infliximab trough level and antibodies results were out. Trough level: 9 and antibodies: 0.13. So what the heck has been going on in my intestines for 3 weeks. I spend sleepless nights because...
Thank you so much, Susie. I'm trying to read a lot and collect information before I talk to my GI....
I'm in the middle of a flare up. Took Remicade infusion on Wednesday and it caused immediate reaction. I talked about the reaction in a previous post. I don't want to be posting a lot but when should...
Thank you, 73 monte. It seems that Remicade has stopped working. Yesterday night, I statred to have skin rash. I texted my GI and he recommended I take dexamethasone injections today and tomorrow....
Thank you Susie Well the flare up lasted for more than 10 days. I think with all the reaction I had today infliximab is not suitable for me anymore. Will wait for trough and antibodies test results....
Started a flare up more than 10 days ago. Saw my GI on Monday and he was worried and ordered a CT enterocolonography. He pescribed Ketoprofen + Hyoscine Butylbromide injections upon need to control...
I started flaring up 3 days ago. The usual symptoms of diarrhea, nasty abdominal cramps and fatigue. The pain cannot be controlled easily and I take 2 antispasmodics + celebrex which do not seem to...
73monte, thank you. Well, it seems something was wrong with the last infusion. I had a delayed infusion reaction 5 days post infusion and my Crohn's is not well. The next dose is due in 2 weeks. I'll...
When is infliximab antibodies test done? Can it be done a day prior to the infusion or should it be on the same day?...
Saw my GI and he prescribed Prucalopride 1 mg before bedtime. It was only one tablet that I took. On the following day, although I had a bm, I started vomiting and then a flare up ensued. That was...
Hi Ambling After 13 years of having Crohn's, this is the first year that I add fibers to my food. All these years, I only allowed myself to eat low-residue fibers in addition to potatoes and bananas....
Around 3 months ago, I started to develop constipation. I used to suffer from diarrhea 7+ or sometimes even more bms/day that would necessitate I go to the hospital to take fluids That used to happen...
Straydog and Delta_hippo, thank you. Saw my GI as he requested. He kept asking about the rash and wanted to examine it but I told him that it was all over my body and not in a specific part and that...
Had my infusion last Tuesday. On Saturday night, I started to have skin rash all over my body even in my scalp. Texted my GI about the symptoms and he recommended I take a Dexamethasone injection +...
EruditePaul and Iam Curious, thank you. I tried before the OTC vitamin D 3 supplement and it did not boost my vitamin D levels. My GI told me then that these supplements provide vitamin anount that...