Hello, My husband was recently seen at a Pain Management Clinic for Crohn's/abdominal pain. They offered to do a Superior Hypogastric Block. I am leary about him having this done; has anyone had this...
Hi all, My husband has been going to physical therapy and there is another PT who is specialized in "Fascial mobilization." The way it was described was a gentle, specific manual therapy to encourage...
Jenn4dex, Can you elaborate on your symptoms and treatment? Are you using Miralax? And is your stool actually formed or is it still loose? The peculiar thing with my husband is his stool is pretty...
Labradorite~ Yes you did which is why I am researching this quite a bit. Can you tell me more about the dilation procedure (how long did it take, outpatient vs. inpatient, how long it took to see...
Hi everyone... Just reading through all of your posts. I am wondering if my husband could have a stricture. Full workup at Mayo with traditional colonoscopy showed no active Crohn's, but he is in...
Well, he still has Crohn's, it just isn't "active" right now. Doesn't explain his abdominal pain after eating though. LKH, I will let you know how it goes being off of these for awhile!...
Does gabapentin help with your abdominal pain at all?...
sweetbabyray, My husband has been dealing with anemia for the past year. His hemoglobin goes down to 8, he gets 2 doses of Feraheme, then it stays up for a few months. He just saw a hematologist and...
My husband is going through something similar... Katie did you get any answers?...
Cholestyramine increases trigylcerides. It may be helpful to start Fish oil...
Did any of you use long term Lomotil or Imodium (like, for years)? What happened when you went off of them?...
Has anyone tried gabapentin for pain management of abdominal pain?...
Gi doc at mayo suspects paradoxical constipation because all procedures and tests showed no active Crohns...
My husband has been on Imodium and Lomotil every single day for YEARS. Recently, his GI doc recommended stopping these. Anyone else have a similar story on how it went when stopping these...
Chronie1985: That is interesting.... So was the surgery to remove adhesions? Or was it actual narrowing of your bowel that was corrected?...
His pain is right below his sternum and lower right quadrant; worsened by eating....
chronie1985 can I ask what state you are in? Also, what did the surgery for scar tissue removal entail?...
Labradorite, What another autoimmune issue you were diagnosed with? You said a soft tissue disease?...
My husband just had the million dollar workup at Mayo for his Crohns pain. All procedures show no active CROHNS which is great..... but why has he been hospitalized twice this month due to abdominal...
Thank you for the thought about Remicade. I will bring that question to the hematologist and gastroenterologist. He is missing the part where the large and small intestines meet........
That is my beef with our GI right now....yes, my husband has anemia and we will "fix" it with supplemental iron. But why does his hemoglobin keep dropping?!!...
Have you all seen a hematologist? What did they say/do for you all?...
He had EGD, colonoscopy, and MR enterogrophy all showing no inflammation. Just some gastritis. Not a high calcium diet, not Vegan....
Hi All, 18 year history of Crohn's for my husband, currently on Remicade. He's had anemia in the past requiring iron infusions. This spring, he had a round of iron infusions because his hemoglobin...
He cannot do milk that makes him sick............
Hi all, My hubby has Crohns and is in remission but keeps losing weight. Any recommendations on Ensure drinks? What flavor /what to mix in? Or ther options? Thank you!...
Hi All, Currently at the Mayo for my husband's Crohn's. Their preliminary thought (before all tests are back) is that he has pelvic floor dysfunction with the muscles surrounding the rectal area....
Anyone had luck or bad luck with this? How much do you ingest?...
My husband was on 10mg/kg every 4 weeks for almost a year but it really didn't help......
Hey all, Anyone out there use supplements exhibiting anti-TNF properties had success?...
Just read an article online about a woman in the UK who "cured" her Crohn's with tree bark.... Any thoughts/experiences with this? Thanks!...
Hi all! My husband's primary care provider placed him on a Butrans patch to help with pain control in Crohns. Is anybody else on this? Of course it made his diarrhea much better but I am worried...
My husband has Crohn's and we both got to a breaking point with how to deal with his disease. We kept saying, if it weren't for Crohn's, our marraige would be perfect! However, the Crohn's isn't...
Do you HAVE to use the yogurt on this diet or can it be left out completely? My husband hates yogurt......
I realize there are a lot of posts on this, but we are soon going to start the SCD diet. My husband FINALLY agreed to do it!! My concern over this is the yogurt making process. It seems very time...
My husband just had a remicade 'level' the day before his infusion was due. It was 44 and his gi wants it below 20. First off, I wasn't aware of any remicade reference ranges. Secondly, has anyone...
yes dr. lucas in pinehurst nc...
wow that's extremely helpful...We actually live in Pinehurst, NC so going to UNC is totally doable. Which GI doc do you recommend seeing?...
Hi all, So all of my husband's tests for his gut pain are negative.....colonoscopy, ct scan, labs are all clear. He's on remicade for his Crohn's but still has severe gut pain. Our GI doc wants him...
This damn disease will take it's toll on anybody---you are not alone in how you feel! Just know that there are other medication options out there....whatever you do, don't give up! There is always...
My husband has severe Crohn's and tried Gluten free diet for about 5 months and found no relief.... So it's back to that damn drawing board... For some people it helps though!!...
Hi all, My husband's Crohn's has got him to a dark place over the past few months. He has been dealing with the disease for 13 years, has been on several medications, and over the past 9 months has...
Has anyone tried plain codeine 15mg every 6 hours to help control diarrhea and pain? I have read some other forums about this and am curious about results. My husband is absolutely miserable.......on...
My husband' Crohns is getting bad again... Already failed Humira and Entocort. Now he has been on Remicade for the past year and a half but it seems to be losing its "luster." I'm guessing our next...
Hi all! Wondering if many of you out there have been diagnosed with elevated triglycerides.... My husband's HDL and LDL are fine but his triglycerides are 360. He does eat a lot of sweets since that...
My husband recently was told by someone to check out this "Ultimate Aloe Juice" to drink to help with 'stomach problems.' Has anyone heard of this or tried it??? It seems like a gimmick to me since...
My husband has crohns and has decided to do a trial of gluten free to see if it helps his symptoms. It has been three days and he days his stomach feels very weird/upset. I am wondering if you can...
Yes let me know how the no sugar goes!...
I would like to know how many crohns patiens have found relief from a gluten free diet.... Any tips/comments/ideas are welcomed! It just seems that crohns HAS to have a dietary link.... Can't hurt to...
He is on vitamin d tablets and b12 injections. I actually have hinted around the idea of a gluten free diet with my husband and he is not too keen on it. His "safe" foods are mostly carbs so it's...