I agree with Beave. I think yearly blood tests with inflammation markers and fecal calprotectin seems reasonable and then you can stretch the colonoscopy to every 3-5 yrs if you have no new symptoms....
I don't have as severe of issues as you are reporting, but I definitely have had my nights of stomach pain and nausea that don't seem related to a bowel obstruction and it has kept me up for half the...
great to hear! I'll have to try them if my shots don't get renewed. Thanks for sharing!...
Have you ever struggled with an eating disorder? I'm wondering if you have a sense of control when you don't eat? Your body needs nutrition in order to heal and function. Going 3-4 days with no food...
I'm at 335 after two years of monthly injections....still not great but I was in the 200 range prior to the shots...
Hi Erin, I am getting injections once a month and even with that I am low/normal range. I am planning to talk to my PCP about re-testing and possibly increasing the injections to twice a month...
Hi Jake, I'm sorry things have been so rough for you but I'm glad you are getting monitored at U of C. I was getting neurological symptoms from low B-12 before I started on my monthly B-12 shots. I...
Hi Jake, Sorry you are still without a plan you are comfortable with. This really is a frustrating disease! I am considered to be in remission, but like you, I have terrible motility problems. I use...
Hi Jake I'm glad to hear you liked Dr. Rubin. I suggest that you continue to see him until you have everything sorted out, even if it means driving two hours. Once you have everything stabilized (and...
Glad to hear the flex sig went well. Thalidomide is an interesting idea. Have you read up on it at all? I hope the dilation works well for you....
You can get Crohn's anywhere from your mouth to your anus. When is the last time you had a colonoscopy or CT? Do you think you might have a stricture in there?...
NCOT- The thought of a flex sig seems painful. I'm so sorry that after all you have been through that you can's straight up get Stelara. It's amazing actually! I hope you can get the energy to argue...
Jake, Good luck with everything and I'm glad you are getting better. I'll watch for your posts!...
Jake---I'm glad you are seeing Dr. Rubin and I'm curious to hear how your visit goes. He is very smart, and very thorough so I hope he has some answers for you. I have similar problems to you where I...
I'm home from the hospital. I'm doing ok but extremely bloated which is very uncomfortable. I'm wondering if this is normal and if it will resolve on its own? Last time I had a bowel obstruction it...