I'm sure there are others, but we can add to the list: NFL lineman Matt Light USA Olympic silver medal swimmer Kathleen Baker And a great article from 1st person perspective of NBA player Larry...
Longtime lurker here, pre-2003 forum reboot. That was way back before reboots were cool in Hollywood. I'm active here in spurts, but been gone a while. Glad to see so many usernames that I recognize...
DEC 205 UPDATE Ugh! Prices are continuing to skyrocket! I called a couple of pharmacies last night as I need my doc to call in a new script somewhere...getting quotes of $20 per 1mL vial. $20! Are...
Water can absolutely make a big difference! I think some of the negative reaction above may have come from using the word "cure" in your subject line. I try to drink at least three 16oz bottles a...
Have a GREAT beach trip! I'm 41 and had this disease for over 25 years. I'm not sure if it's slowing down or not. My body does seem to respond better based on what I eat, where in my earlier days of...
Not a good idea. Wouldn't you run out of medication when trying to taper down? If it did work, your doctor would continue to think that the 20mg approach worked....
I don't have any experience with NYC doctors. However, wondering if any information at the following links may help:...
pez927 - yes, the warning labels are scary. I've struggled with this decision in the past, also. I started taking Remicade in 1998. It was that drug plus the immunosuppresent purinethol. Took it...
My doctor (IBD specialist) tells me that food does not cause Crohn's disease. There is no known cause. Foods can make certain Crohn's symptoms worse. That list of foods is generally different for...
Click link to story: Wyoming's Larry Nance Jr. grows beyond a disease's constraints Very good and inspiring story about son of NBA player Larry Nance. The story outlines his path from high school...
How have you been feeling and recovering, Samantha?...
JAN 2015 UPDATE Went for my B12 refill earlier this week. I had 1 refill left on my Walmart order, so I just phoned it in. The prices changed substantially from 10 months ago, but overall the prices...
Samantha - I'm glad your surgery went well! Yes, the first couple of days after surgery, I was tired. You just had major surgery. You probably ate liquids for 2 days prior. Only eating liquids for a...
Hard to say with the information provided here. If you've had a change to your clinical symptoms, then it's worth a call to the GI's office, but I wouldn't push for any specific change until they've...
I've never heard of it, but I have used my kid's foot stool a few times. Anything to try different angles, but I cannot say that it definitively helped....
I hope everything went well!...
I went from Remicade to Humira, but also not directly. I was on Remicade from 1999-2006. I have been on Humira since 2011. No other biologics in between (was on 6mp and pentasa in between.) As far as...
Samantha - best wishes for an easy procedure tomorrow and a quick recovery! The waiting is the hardest part, but once you are there, everything will be fine. As far as what to pack, pretend you are...
I'm sorry to read all that you have been through. It sounds like you've got a difficult choice between a couple of not-so-great options: "Do you want this bad tasting medicine or do you want that bad...
There are many lists online if you Google "calcium without dairy". You could compare lists and see which foods appear on multiple lists. Did your doctor suggest any supplements, too? My doctor...
One thing that my doctor told me about these stats when I had surgery in 2011 is that these stats are backward looking stats. These are the average lengths of time between for folks studied in the...
You can Google "recurrence of Crohn's Disease after resection" and find a lot of various studies and information. The summary at the CCFA website provides a fairly broad response to your question:...
I have never been on Pentasa alone, but I was on a combination of Pentasa and purinethol for a little over 6 years. The real drag was taking so many pills a day & I would frequently forget or...
John307 said... I just wanted to know how bad it is to drink miralax once a day everyday? I was diagnosed with Chrons disease 6 months ago, I do not suffer from cramps, diarrhea or upset stomach. My...
pmedic said... It will never happen. Pharmeceutical companies are making Billions....why would they allow that income stream to dry up?? Sorry that is so negative but it is our world we live in where...
If you look at the second link below my signature, there is a thread from 2011 that gave a lot of good advice about surgery. I also shared my experiences of the week after while in the hospital. I'd...
Liv and Maddie's Benjamin King on Living with Crohn's Disease: 'It's Such a Personal Battle.' BY EMILY STROHM Five years after being diagnosed with Crohn's disease, Liv and Maddie actor Benjamin...
No, you are not a failure. I've experienced a lot of fatigue in my life,too. It's good that you have an appointment to see your doctor soon so that you can stay on top of this. In terms of fatigue,...
lamb61 said... Yep, I feel ya. I fried up some zucchini last night and my coworkers are paying for it today! I think I just tried to kill a couple of them. thank goodness they didn't call me out on...
JaSanne said... I'm so sorry about your encounter. One would think a trained professional would be more.......professional. I was once cursed out by a doctor years ago while I was having a...
Great, positive story. Thanks for sharing! I hope this continues to work for you for many years to come!...
I'm not on iron now, but have been in the past. Regular iron pills make me sick. At one time I was able to handle the Slow Fe (slow release iron pills). I've successfully been on those a few...
FYI - if B12 is something you would need again in the future, I found a way to get them for a lot cheaper via Walmart and an online discount card. I outlined it toward the end of this thread:...
Hi mmckenna - sorry that I hadn't responded sooner. I have not had any issues with the insulin syringes, however I inject subcutaneously not into the muscle. I originally used to use the larger gauge...
Matthew - I'm glad that you are feeling so much better and I hope that this plan continues to work for you. Thank you so much for sharing! You mentioned earlier in the thread that your GI would only...
I've been there and done that. I struggled with and still struggle with this sometimes. I would skip doses when feeling well or just plain forget or be inconvenienced. At one point I was supposed to...
Why were you tapered off 6mp if it was working for you?...
I don't have the experience with the specific pain meds you mention to comment on that. Are you walking a little more each day compared to the previous day? The nurses also had me out of bed and...
I agree with waiting until your new GI visit in April. If things get worse before then, could you be seen by your surgeon? Or call the surgeon's nurse to ask about miralax (or any other questions you...
Hi limegreencake – I posted in your surgery thread from a month ago and also wanted to respond to your new thread here while sharing my experience with surgery in 2011. I read that your surgery was...
Hi limegreencake, I responded to your new thread, but found this one and re-read your surgery story. Are you still on bed rest? How much are you getting up and moving around/walking each day? Which...
With respect to when the Crohns can come back: what Sooner said. Personal question - how is your bowel motility? After about a month post-op, I switched from having loose stools to constipation. I...
It took a while for my proper initial diagnosis 25 years ago. I was treated for parasites, stomach infections, and underwent a lot of barium x-ray tests including a barium enema. Once I got connected...
Welcome to the forum! Yes, I've had fevers before but not frequently. It's something my doctor always asks when I go in for a clinical visit. My fever has usually accompanied active intestinal...
Finally got a solution to this today! 1. Get a Healthcare Alliance discount card. (free online) 2. Get a prescription from your doctor. 3. Go to Walmart. (FYI - I am in NO way affiliated with either...
Remicade worked great for me (until it didn't.) It put me in remission and also helped with my perianal fistula. It's the only drug I've taken to completely shut off that drainage. Throughout the...
I was diagnosed with this disease 25 years ago this month. My longest bout of continuous remission was about 6 years while on Remicade + purinethol. Other bouts of remission included several at just...
Medications pre- or post-op are between you and your doctor, and ultimately the decisison should be yours. I think the general idea is to be on some sort of maintenance meds following surgery. My...
It is possible that Crohn's returned, but your severe pain may not be Crohn's. You should check in with your doctor, as I'm sure they'd want to see you. It could be an infection or perhaps a hernia...
My urgency is worse in the morning, and I know where the best places are to stop on the way to work. I also get nervous about it during meetings at work. Something that has helped me is to try to use...