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kamakya

HealingWell Forum
>
Member Profile
Display Name
kamakya
Profile Created
1/13/2014 1:06 PM
Last Seen
2/2/2022 7:57 PM
Total Posts
425

Last 50 Posts

Humira causing Psoriasis

My daughter is taking Humira for Crohn's and it is helping her crohn's symptoms. For the last 8 months, she has been getting psoriasis, which is getting worse, and the GI and dermatologist told us...

2/1/2022 1:38 PM

Psoriasis
Humira causing Psoriasis

My daughter is taking Humira for Crohn's and it is helping her crohn's symptoms. For the last 8 months, she has been getting psoriasis, which is getting worse, and the GI and dermatologist told us...

2/1/2022 1:24 PM

Ulcerative Colitis
Humira causing Psoriasis

My daughter is taking Humira for Crohn's and it is helping her crohn's symptoms. For the last 8 months, she has been getting psoriasis, which is getting worse, and the GI and dermatologist told us...

2/1/2022 1:22 PM

Crohn's Disease
Is Uceris safer than steroids

Is Uceris taken short term till the time some other immuno supressant like Entyvio kicks in?...

9/10/2017 3:05 PM

Ulcerative Colitis
Cavities in every teeth

I don't eat any sugar or sugary food. I went to a dentist for a regular cleaning and they said I have cavities in almost every teeth. Why is this? Is this connected to UC?...

9/3/2017 6:46 PM

Ulcerative Colitis
Qing dai time taken for remission

I started Qing Dai from yesterday. I would like to know after how many days did you see positive improvement and blood and symptoms stopped? 1> After how many days did you see symptoms improving? 2>...

9/3/2017 4:38 AM

Ulcerative Colitis
Qing Dai lab tested enema

ANyone tried this method?...

8/26/2017 4:49 PM

Ulcerative Colitis
Help for my son with colitis

Are you trying TCM or Ayurveda?...

7/28/2017 7:27 AM

Ulcerative Colitis
Qing Dai lab tested enema

Has anyone tried enema method?...

7/24/2017 4:41 PM

Ulcerative Colitis
Qing Dai lab tested enema

Am I ordering the right product? https://1stchineseherbs.com/qing-dai-fen-indigo-polygonum-tinctorium-pwd-1lb-lab-tested/...

7/24/2017 2:40 AM

Ulcerative Colitis
Qing Dai lab tested enema

I saw Qing Dai and this vendor claims it is lab tested and free of all heavy metals. https://1stchineseherbs.com/qing-dai-fen-indigo-polygonum-tinctorium-pwd-1lb-lab-tested/.Is this the right...

7/22/2017 6:10 PM

Ulcerative Colitis
Allopurinol addition to Imuran

Would you advice it instead of remicade?...

Yesterday 9:47 AM

Ulcerative Colitis
Allopurinol addition to Imuran

Has anyone added Allopurinol to Imuran and got remission?...

Yesterday 9:07 AM

Ulcerative Colitis
Has Rifaximin got remission for crohns/colitis

Very confused. My wife who was the donor was tested 3 times . We had 2 fts with clinical trails and many many at home. Now it is not working....

3/24/2016 4:48 PM

Ulcerative Colitis
Has Rifaximin got remission for crohns/colitis

My DD was in remission for one year after FMT. Now any number of FMT is not helping her and blood is coming every day. Our next option is remicade. Has anyone had good success with Rifaximin in...

3/24/2016 6:31 AM

Ulcerative Colitis
Liquid magnesium citrate

Are there any safe alternatives? I saw liquid mag citrate lemon flavor but very scared about citric acid if it will make my condition even worse....

3/1/2016 6:27 PM

Ulcerative Colitis
How to read ubiome raw data

Are there any website where I can upload my ubiome raw data and extract more information...

9/24/2015 11:12 AM

Ulcerative Colitis
counting success stories with fts (continued)

My daughter is now in remission for last 9 months and her ESR reduced substantially last week...

9/15/2015 9:49 AM

Ulcerative Colitis
Best place to buy ultimate flora probiotic

Which is the best place cost wise to buy ultimate flora probiotic?...

9/3/2015 5:28 AM

Ulcerative Colitis
Surgery in a few hours, not doing well mentally

Did you try FMT before surgery? My daughter is in remission for last 7 mths because of FMT...

8/24/2015 5:37 AM

Ulcerative Colitis
ubiome kit is 50% off today

ubiome kit is 50% off today with promo code 10HUMAN50. If anyone is interested please use this code....

8/14/2015 6:25 AM

Ulcerative Colitis
Home made lactose free milk

I have been buying store bough organic lactose free milk and it has become very pricey. Which brand of lactase enzymes do you guys use?...

8/13/2015 10:24 AM

Ulcerative Colitis
VSL3 enema

Have not tried aloe vera enema. Did it know it even existed....

8/12/2015 10:04 AM

Ulcerative Colitis
VSL3 enema

This for my son who has SIBO and severe constipation (do not confuse for my daughter who is currently in remission after FMT and has colitis). last few times when we tried different probiotic brands...

8/12/2015 7:31 AM

Ulcerative Colitis
Hair Loss

My daughter had same issue and her GI recommended biotin and that seemed to have helped her a lot....

8/12/2015 7:12 AM

Ulcerative Colitis
counting success stories with fts (continued)

gary, Is there a test to check for DAO enzyme? I think it is affecting my son who is having SIBO IBS C type symptoms....

8/12/2015 5:23 AM

Ulcerative Colitis
Best probiotic for constipation and increase gut transit time

SCD yogurt made from Dannon makes his burping horrible....

8/11/2015 8:53 AM

Ulcerative Colitis
Best probiotic for constipation and increase gut transit time

I have tried aloe vera gel with no success. My Son has SIBO C and so has to follow low fodmap diet....

8/11/2015 7:41 AM

Ulcerative Colitis
Best probiotic for constipation and increase gut transit time

This is for my son who does not have colitis and has severe constipation. Is there a probiotic which is good and works for consitpation. If you know any low fodmap constipation remedy also please...

8/11/2015 7:09 AM

Ulcerative Colitis
Evaluating Safety and Efficacy of Herbal Treatment in Ulcerative Colitis

My daughter is currently in remission because of FMT. I just came across this CT and was thinking of this as backup option. We are not eligible because of age. I just thought if stanford hospital is...

8/8/2015 5:38 PM

Ulcerative Colitis
Evaluating Safety and Efficacy of Herbal Treatment in Ulcerative Colitis

https://www.clinicaltrials.gov/ct2/show/NCT02442960?recr=Open&cond=colitis&cntry1=NA%3AUS&rank=42 Stanford hospital is doing some clinical trial with herbal supplements based on traditional chinese...

8/7/2015 12:12 PM

Ulcerative Colitis
Ordered Second Ubiome Kit Today

Any idea how to reduce unclassified bacteria?...

8/7/2015 7:14 AM

Ulcerative Colitis
Ordered Second Ubiome Kit Today

Gary, My son's ubiome results came (he does not have colitis). His firimuctes is high and bacteriodetes is very low. However, he has severe constipation. Will GSE work for him? 1Firmicutes 63.71%...

8/6/2015 11:51 AM

Ulcerative Colitis
Ordered Second Ubiome Kit Today

Is taking DAO supplement safe in long run?...

8/5/2015 12:25 PM

Ulcerative Colitis
counting success stories with fts (continued)

Tx a lot Bloom93. Your advice at right time was god sent for us. She is still on Pentasa and 6MP (even though this combination before FMT did not help her much). Her GI does not want to remove them....

7/23/2015 10:10 AM

Ulcerative Colitis
counting success stories with fts (continued)

My daughter is in remission for last 7 months after FMT. Just wanted to update everyone....

7/21/2015 5:38 PM

Ulcerative Colitis
kutaja (Holarrhena Antidysenterica)

Instead of just pure kutaj, you can consider Diarcare (Himalaya product). It is available in all organic stores in US. Diarcare has kutaj,bael,musta which care considered must for colitis as per...

5/1/2015 10:49 AM

Ulcerative Colitis
kutaja (Holarrhena Antidysenterica)

kutajaristam which is made mostly of kutaj with few other herbs is one of the main things prescribed by ayurveda doctors for colitis. Only banyan botanicals has pure kutaj in US. if you need a...

4/30/2015 6:12 AM

Ulcerative Colitis
counting success stories with fts (continued)

She is still on 25Mg of Aza and 2G of Pentasa daily. She was on these drugs before her FMT and her doc does not want to take her out of these drugs yet. We have stopped FMT last few weeks as of now....

4/10/2015 5:14 AM

Ulcerative Colitis
counting success stories with fts (continued)

Want to share my daughter's status. We started FMT in middle of Dec last year. For the 1st time her ESR has come as normal. She still has abdominal pain some days. As of now, no blood and very well...

4/8/2015 10:27 AM

Ulcerative Colitis
Post FMT confused for next decision

Tx for ur info....

2/20/2015 5:48 PM

Ulcerative Colitis
Post FMT confused for next decision

Can you please also share brand name/pharmacy of these medicines. Who is ur ayurvedic doctor? I will keep this as my back plan....

2/20/2015 5:35 PM

Ulcerative Colitis
Post FMT confused for next decision

Based on your comment it appears that ayurveda has helped her a lot.I would be very interested to know your ayurvedic source/doctor. Which ayurvedic medicines is she currently taking? I may take that...

2/20/2015 5:08 PM

Ulcerative Colitis
Post FMT confused for next decision

OurStorywithIBD I was actually curious to know ayurveda treatment that you had followed for ur daughter. Infact, when my daughter was 1st diagnosed one of the first posts that I had come across was...

2/20/2015 2:09 PM

Ulcerative Colitis
Post FMT confused for next decision

Today morning her energy level is back to normal. Yesterday evening she was very tired and slept entire evening complaining of pain. Wish there was some X ray type and I can see what is happening...

2/20/2015 8:15 AM

Ulcerative Colitis
Post FMT confused for next decision

She was on Aza for 6 months before FMT. She always had abdominal pain rite from her crohns colitis diagnosis.She does take safe starches in form of fermented Idli and mung beans. We had followed very...

2/20/2015 7:53 AM

Ulcerative Colitis
Post FMT confused for next decision

Tx Katmom My wife who is the donor was tested thoroughly as the initial FMT was a clinical trial done at a major hospital. The last 2 months have been a huge roller coaster for us. We have seen some...

2/20/2015 6:33 AM

Ulcerative Colitis
Post FMT confused for next decision

The pain scale is between 2-5. Pancreatitis I thought would be unbearable....

2/20/2015 4:09 AM

Ulcerative Colitis
Post FMT confused for next decision

We have been doing FMT for last 2 months. My daughter's stools are very well formed with no blood and frequency is either once or twice a day. She is on very strict SCD diet with very minor...

2/20/2015 3:23 AM

Ulcerative Colitis
Kamkaya

Thanks Bloom93. How about her ESR and CRP before and after FMT? Even my daughter eosinophils are very high and is coughing a lot....

2/8/2015 2:05 PM

Ulcerative Colitis
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