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scifigal2k

HealingWell Forum
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Member Profile
Display Name
scifigal2k
Profile Created
5/14/2012 6:59 AM
Last Seen
Today 11:01 AM
Total Posts
3589

Last 50 Posts

Recurrent yeast infections?

Is she on a probiotic? That might help balance things. Has she been on antibiotics a lot in the past? When I get frequent yeast infections, it's because of antibiotics. There's also the possibility...

2/5/2021 1:50 AM

Crohn's Disease
UC, Chron's, IBS or something else?

Some of those supplements are probably aggravating things more than they're helping. And I say that with all due respect to supplements and natural/Eastern treatments. My uncle is a doctor of Chinese...

2/2/2021 10:32 AM

Crohn's Disease
Loosing Weight

Ummmm, not necessarily. I walked 6 miles per day for an entire year, ate 1500 health calories, and never lost any weight. At all. Or inches. My metabolism has been shot because my body has yo-yo'd...

1/23/2021 3:37 PM

Crohn's Disease
Anus pus

As we have told you in several other posts that you seem to ignore, you need a new doctor. As I explained in a previous post, CRP is not infection - that's WBC. CRP is inflammation....

1/2/2021 6:06 AM

Crohn's Disease
Happy Holidays

Happy holidays!! ❤❤❤...

12/28/2020 5:31 PM

Crohn's Disease
Lonely

You NEED to go to the hospital. Period. And find a new GI doctor....

12/23/2020 4:54 PM

Crohn's Disease
Pain & infection 1 years till now

You can get a CT scan that is IV contrast. You really just need to find a new doctor....

12/23/2020 4:53 PM

Crohn's Disease
Pain & infection 1 years till now

I'm confused - CRP doesn't usually mean infection, that's WBC. CRP is for inflammation. At this point I would have gotten a new GI and gone to the hospital....

12/23/2020 4:34 AM

Crohn's Disease
Wrong diagnosis after 13 years

I was originally diagnosed with UC until I got an abscess that turned into a fistula. Honestly, other than the use of mesalamines sometimes working for UC and not Crohn's, there's not a huge...

12/23/2020 4:31 AM

Crohn's Disease
Uti

Oh good, glad you got treated! You should be just dine with those two! Good luck!...

12/10/2020 6:45 PM

Crohn's Disease
Uti

I've had lots of bouts of c. diff and had to have a FMT to get them cleared up because I became resistant to all abx. This was only a month or two after FMT were approved by the FDA. I also avoid abx...

12/5/2020 7:28 PM

Crohn's Disease
Has anyone participated in a drug study?

I haven't, I'm sorry. :( I wish you luck! Please let us know how it goes!!...

11/20/2020 7:19 PM

Crohn's Disease
Long post... need advice... fistula issues

Stevo, glad you're moving forward with it! This article might help you in the section about cancer. https://www.medicalnewstoday.com/articles/remicade But like straydog said, your surgeon shouldn't...

11/14/2020 3:33 PM

Crohn's Disease
Long post... need advice... fistula issues

I'm not sure why you think upping the Remicade dose and cancer are connected....do you have a history of cancer or something? I've been on 10 mg/kg every 6 weeks for over 6 years now (8 total on...

11/9/2020 5:45 PM

Crohn's Disease
Crohn's and reflux?

My PPI helps with my Crohn's symptoms....

10/22/2020 4:28 AM

Crohn's Disease
First time seton drain questions

Keeping it clean and dry is the best bet. Actually, if stool comes through, don't worry about washing it out too thoroughly - that might cause more damage and introduce other bacterias since you...

10/18/2020 11:31 AM

Crohn's Disease
First time seton drain questions

Depends on how large the fistula is - think of it like a tunnel. So if it's a narrow tunnel, only diarrhea or a very small amount of stool should be able to come out. Otherwise it should come out...

10/17/2020 9:42 AM

Crohn's Disease
Seton has been replaced causing pain while waiting several months for house flap surgery

Yeah, any kind of surgery in that area, even just to replace a seton, is always going to be painful. How recently was it? Why are you doing the flap surgery? You had the seton for 10 years, so it...

10/17/2020 9:41 AM

Crohn's Disease
Wisdom teeth?

Oh yeah, probiotics are great to help balance things out. I strongly recommend Florastor, which is yeast-based and is the most effective. It's a bit expensive though. So if you get a different...

9/20/2020 5:23 AM

Crohn's Disease
Wisdom teeth?

So I had the same issue with my wisdom teeth - they were impacted on the top because they grew in slightly crooked but I had braces, so they couldn't actually come in and grew back up and attached to...

9/19/2020 6:30 PM

Crohn's Disease
Seton advice and help please

I had a seton off and on for my RV fistula. So if your fistula is filled and just needing ot heal over, then you shouldn't need a seton. A seton is there because the skin on the outside heals before...

9/13/2020 6:29 AM

Crohn's Disease
Does this sound like chrons to you?

I was going to bring up c. diff. as a probability. It's also possible to get post-infectious IBS. That's basically like PTSD for your gut after having stomach issues. I really don't think it's...

7/24/2020 7:40 PM

Crohn's Disease
General Support / someone to listen.

Another idea for being without health insurance is to see if you can get into a medical trial of some kind. You may be given the placebo instead of the med, but usually all expenses are covered in...

7/24/2020 7:35 PM

Crohn's Disease
a lot of pain

You need to contact your doctor - sounds like azathioprine is not effective for you....

7/6/2020 2:07 PM

Crohn's Disease
Arthritis or what the heck?

Do NOT take ibuprofen which was recommended above. NSAIDs are NOT good for Crohn's AT ALL. I have arthiritis in my back, and it doesn't feel like what you're describing. It sounds more like my...

6/25/2020 5:26 AM

Crohn's Disease
Is Remicade used anymore? Are similar drugs being substituted?

I've been on Remicade for 8 years and am still on it. I don't know any GIs or insurance companies that prescribe biosimilars. No one has tried to get me to switch....

6/12/2020 2:55 PM

Crohn's Disease
Treatment for stricture

Not an easy decision. They may not do a surgical procedure for it since it's surrounded by inflammation, and dilating it could make things worse if it's not just scar tissue. Good luck!...

6/1/2020 4:39 AM

Crohn's Disease
Treatment for stricture

Okay, just wanted to make sure you were being treated properly! Strictures are either from inflammation in one area or from scar tissue. Singe you were dilated sounds like scar tissue. Usually that...

5/28/2020 2:21 PM

Crohn's Disease
Treatment for stricture

You haven't said if you're on anything to maintain your UC. I actually imagine that you diagnosis should switch to Crohn's since an abscess is often a sign of CD instead of UC. What kind of...

5/26/2020 2:33 PM

Crohn's Disease
TCM for Crohn's

My uncle is a doctor of Chinese Medicine and an acupuncturist. He's very quick to promote a combination of both Western and Eastern methods of treatment....

5/21/2020 2:39 PM

Crohn's Disease
Long Term Remicade Use, Efficacy and Side Effects

I've been on Remicade for 10 years now, and tomorrow will be having my 3rd Remicade baby (via c-section). I strongly urge you to stay on Remicade for as long as it is working. It is NOT a cure and...

5/14/2020 6:11 AM

Crohn's Disease
happy bday IDES!

Happy birthday, Ides! I was thinking about it earlier this week, but then in the chaos of COVID-19 cancelling everything in my life (all the kids' homeschool activities), I completely lost track of...

3/15/2020 3:53 PM

Crohn's Disease
New pain

It also sounds like it could be a pancreas issue, too....

3/1/2020 5:35 AM

Crohn's Disease
Do you get your small intestine checked during a flare?

So I would call your GI before doing the prep - I've had multiple MRIs and never once done a prep for it. Having stool in there can sometimes be helpful to see where things might be backed up, etc....

3/1/2020 5:34 AM

Crohn's Disease
About Remicade

Remicade doesn't "mask" arthritis, but it is used to treat it. Some people with just arthritis and no Crohn's at all use Remicade and Humira to treat....

2/21/2020 5:46 AM

Crohn's Disease
Remicade not working after a decade

It's such a hard balance. But there's no guarantee that you won't be just as susceptible to viruses even without the MTX....

2/16/2020 4:17 PM

Crohn's Disease
Remicade not working after a decade

I've been on Remicade for 8 years without any extra immunosuppressants. When I was first diagnosed, it was with UC so I was put on mesalamine and imuran. They never really worked, and then they gave...

2/15/2020 11:32 AM

Crohn's Disease
Need Input: I've had a fever for over two weeks....

I would also take a look at your WBC. And a UTI rarely causes a fever unless it's turned into a kidney infection, in which case Bactrim is not strong enough. On another note, though, I had the same...

2/6/2020 12:05 PM

Crohn's Disease
8 weeks pregnant with baby #3

Thanks! We're now at 22 weeks, and things have been going well. Typically, Crohn's will stay the same throughout your pregnancy as it was when you got pregnant. If your Crohn's is active, then it...

1/30/2020 6:32 AM

Crohn's Disease
I'm starting Stelara (again)

That is so fantastic to hear NCOT!! Fingers crossed it's effective for you this time around. Please keep updating us!...

1/21/2020 5:50 PM

Crohn's Disease
Only symptom of Crohn’s is fissures

I'm so sorry, dorri. That sounds really miserable. Hopefully the new GI will have some helpful information. I know that pred isn't considered good as a long-term treatment, but I feel sometimes like...

1/6/2020 3:23 PM

Crohn's Disease
Where did your crohns joint pain begin?

I think you should ask to see a rheumotologist. It's pretty common to get Crohn's-related arthiritis. What medications are you on?...

1/5/2020 7:23 PM

Crohn's Disease
Only symptom of Crohn’s is fissures

Dorri, have you tried taking a bile-binding oral medication? Or tried oral probiotics? Since pred helps, it sounds like it's either the skin has issues, or the stool itself has something in it that's...

1/5/2020 7:22 PM

Crohn's Disease
Upper stomach pain?

It actually sounds more like an ulcer or pancreatitis....

1/2/2020 6:30 PM

Crohn's Disease
Remicade not working after a decade

Good luck! That's the dose and frequency I've been on for the last 5 years or so of the 7 years I've been on Remicade. :)...

12/27/2019 7:37 PM

Crohn's Disease
Remicade not working after a decade

And just because you have a flare doesn't mean the Remicade has stopped working entirely. I had to go to 10 mg/kg every 6 weeks, and even then I'll flare on occasion if I get a bad cold, eat...

12/26/2019 8:23 PM

Crohn's Disease
Horrible Pains On Remicade - Any Solutions?

I'm not entirely certain about the your response on anxiety - I have fibro and I don't have anxiety. I only have pain issues as well, and I'm 99% certain that it's from pain meds (IV dilaudid during...

12/21/2019 6:08 AM

Crohn's Disease
Strictures in the Small Intestine

Strictures aren't necessarily from inflammation - they could be from scar tissue where there was damage that has since healed. As for low iron, like others have mentioned, it's fairly common and...

12/19/2019 8:31 PM

Crohn's Disease
Horrible Pains On Remicade - Any Solutions?

Have either of you tried medication for fibromyalgia, like gabapentin? Fibro doesn't have any tests to diagnose - it's mostly when everything else comes back negative....

12/17/2019 6:10 AM

Crohn's Disease
When do you become a candidate for TPN?

What meds have you tried for the gastroparesis?...

11/17/2019 4:37 PM

Crohn's Disease
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