Sorry to hear of your current problems. Curious to know, what will be your treatment plan going forward. Is your GI recommending a transition to another anti-TNF? Hope you feel better soon. Keep us...
Nicky, Wouldn't Stelera be covered by the Trillium health benefit?...
Certainly not interested in getting into politcal debates on a support forum. There's other discussion boards more suitable for that sort of thing. As for you're reference to Health Canada. They are...
Thanks EP, I was (somewhat aware of the partial effectiveness of one dose. The issue seems to be how long that protection lasts. There some speculation out there that states that the reason for the...
Thanks for the replies, Our GP has recommended 2 weeks after an infusion. As @labradorite stated, there's no scientific answer for this. Hopefully no issues with it. She's booked in and getting the...
For those that have opted for the vaccine, and are currently on an anti-TNF, was there a recommendation as to what point between infusions would be best for getting the vaccine?...
Good that you're getting updated scopes, but make sure to specify that they need to take biopsies to confirm a diagnosis....
It sounds more like Crohn's to me now. You really need to get a better and more proactive GI. Doesn't sound like you're getting the best medical care right now. If it does turn out to be Crohn's,...
Curious as to which anti-TNF you're taking? Also, what is your GI's input on this? Is he/she recommending a switch to another med at this point? Any chance of a flawed test or a repeat test? Tough to...
Since your pursuing diagnostics, then it would indicate that you're having other symptoms going on. If you could relate what other issues you've been having then it might make it easier to give some...
Thanks for the replies Gentlemen, I'll certainly get checked out and go from there. Very likely at least a routine exam, and PSA and go from there....
I really don't think my wife will opt for any meds again. She just didn't have a good experience with anything that she tried. A previous poster did suggest CBT, and listed a webite that I've shown...
I've been a long time HW member, but from the Crohn's forum. I noticed the Prostate Cancer forum after checking some of the other support forums available. I don't have Prostate cancer that I'm aware...
Thanks everyone for the replies. Some very helpful hints and resource suggestions as well. I'll get her to check out cbt4panic, (@KM2018). She walks everyday, and is now doing jigsaw puzzles. Seems...
First time poster, but coming over from the Crohn's forum. Just really looking for some basic advice I guess. My Wife has always battled anxiety. Now in her early 50's and along with menopause, her...
Probably best to get some updated diagnostics at this point. What about eating some foods that might increase motility? Might try some steamed vegetables, low fiber fruits etc....
With good scopes, and your other test all coming up fine, then I wouldn't suspect anything sinister. Could be viral, or something off that you injested. You might try a very bland diet for a week or...
Thanks again Ladies, She has been on a couple of rounds of antibiotics in the last year. Strep and an abscessed wisdom tooth. She's been on and off with probiotics. She doesn't seem to feel that they...
Thanks Susie, As a Father, I can't get too personal, but far as I know, no birth control pills at the moment. Good info none the less, thanks for replying....
Thanks Clo, I'll pass this on to her. Although, I think she's actually trying to avoid simple sugars as a start....
I would recommend that you try a low residue diet at this point. It's a very common dietary approach for those awaiting a diagnosis. It's not a very healthy approach to eating, but it's mainly to...
I think I've posted about this issue in the past. My Daughter seems to keeps getting recurrent yeast infections. Seems to almost monthly. The pills do clear things, but it's getting tedious for her...
Hi Curlymom, and welcome to HW. You are roughly my Daughters age, and even have similar symptoms. As @straydog mentioned you really are in need of the standard tests for Crohn's, which are upper and...
Thanks for the replies all, Haven't spoken to her GI as of yet, sort of taking a wait and see. Should have mentioned that we're in Canada....
My Daughter was given a letter at her infusion center today explaining that due to the pandemic, there may be supply issues upcoming with Remicade. As a result, they would have to resort to using a...
No expert here, and I'm in Canada, so unfamiliar with medical/surgical procedures in the U.S. Outside of a diagnostic, I would think that dilation being a procedure would require a waiver to be...
No expert here. From what I understand about HS, it is similar to other autoimmune diseases in that it's punctuated by intermittent flare-ups. As far as I know, there is no certainty regarding the...
Glad that you were able to get the vaccine. Moderna does seem to be easier to keep stable. I'm in Ontario as well, and the supply issues on both vaccines have been a big concern. I think the...
Might need a little more information regarding your current dietary plan. While most Crohn's sufferers battle weight loss, there are many that have difficulty with losing weight. I'm guessing that...
Hi Lois, Welcome back to HW. I'm sorry that I don't remember you right off. Perhaps you were active here before I came onboard. Regardless, I'm sure many here can benefit from your experiences....
I don't think you're presenting with typical Crohn's symptoms. Although, since you're having digestive issues, I would certainly opt for a colonoscopy, just for the peace of mind. IBS would be my...
Minnie, As @straydog said, I believe a short course would mean a daily 5mg taper. Not sure of the starting dose, but whatever it might be, you would likely taper at a rate of 1 pill a day. Not sure...
I would press your GI further, explaining your concerns again. Although, when they suggest a short course, I'm thinking 7-10 days, with a daily taper. You shouldn't have the issues you've had in the...
Merry Christmas to everyone at HW!!!...
Totally agree with @scifigal. You need to get to the hospital now. There should be some sort of on call GI. It does sound to me like you might be in need of a resection at this point, but until you...
I'm sorry that you're going through a painful time. Unfortunately, I think the only answer is to get some accurate diagnostics done, and proceed from there. I know that you seem to have terrible...
So sorry for what you're going through. I too have no experience with setons. Really hope you get some quick action to rectify your current situation. You might want to try the diplomatic approach...
Nothing worse than struggling with a diagnosis. Really hope you get the symptoms under control, and are able to move away from the Covid symptoms....
Upping the Aza would certainly be worth a try. Even with the risks you mentioned, I would strongly consider a biologic. Stelara is getting very good reviews. Even rivalling Remicade now. Hopefully...
A course of Prednisone may certainly help you. Be sure if taking it for more than a short course, to follow the descending dose for the full 8 weeks. Are you sure about the use of anti-TNF's in the...
If you've managed on only 50mcg's of Aza for the last nine years, then you've been doing really well. Your dosage does sound low, and am surprised you haven't been on any other maintenance meds along...
At least you won't have to fret for long. Anxiety issues are fueled from fear, and the fear comes from uncertainty. You'll get your answers in 10 days, and it will hopefully be very good news. Good...
I'm certainly no expert here, but would first discuss the likelihood of contracting C-diff with your GI/Dr. before considering anitiotics. From what I understand, it's more the repeated use of...
If weight gain is an issue, you might try to supplement your diet with calorie rich meal replacement drinks, like Ensure or Boost. There are many, many others in this category though. You'll need to...
A low residue diet isn't a diet that's meant to be followed as a long term alternative to a normal eating plan. The good side of going low residue, particularly for those with IBD is, it will give...
Definitely no expert here, but as I understand it, as long as you're not using live vaccines you should be fine. Start doing some research on that though....
Thanks so much for posting your story. You've obviously endured as much and more than most that are suffering with this disease. It does sound like you have been in good hands, and you've had...
Sorry to hear of your current troubles. I can't be of too much help. I can tell you that Remicade, does have the best track record for fistulizing Crohn's. An increase in your dosage might help. I...
Welcome to HW, Crohn's can be a very insidious disease. It can smolder it's way along over years causing damage, and ultimately serious damage, but not always obviously or overtly. Getting a...
I too would think you should resume Humira as soon as possible. A consult with your GI should be happening right away....