I’m stuck now. I don’t have any other option except wait and see. Yes, I read that Stelara would initiate remission once it starts working but at the same time, it’s a slow burner and takes up to a...
Thank you, Susie. Yes, I read a lot that it is a slow burner. Honestly speaking, I do regret it that I didn’t ask to be switched to Humira as it was an option. The positive effects reported about the...
Had my first loading infusion on February, 1st and the first SC injection on March, 1st. Ever since my last two Remicade infusions had caused me an allergic reaction (rash + itching, I have been...
Thank you, Susie. Well, I think that I ate one of the forbidden foods. When I was on Remicade, I used to allow myself to eat veggies. It seems I have forgotten that Remicade hasn’t been working for 2...
Took my first Stelara infusion last Wednesday. Of course, it won’t kick in now but I’m flaring up. Read that fatigue is one of the most common side effects. I have had fatigue and a headache for 5...
Thank you, Tom. Well, I don’t think it came up to the level of a stricture but yes I think inflammation is severer than any other time. Actually, things are starting to fall apart. My proctitis began...
Saw my GI recently and we agreed that I would start Stelara a month after last Remicade infusion. Still waiting for the approval. Meanwhile, I’m flaring up like crazy. This throbbing pain in the TI...
Thank you, Tom. Well, Remicade did not kick in quickly. It took me around 10 months to feel any improvement. Based on what you mentioned, I would then wait for months as well until Stelara starts...
Saw my GI and he decided we will switch to Stelara but we are still waiting for the approval. I have already started flaring up and returned to that uncontrollable throbbing pain I had in my TI for 9...
Jpnutritiofirst This kind of invisible inflammation is really hard. Mine is sometimes debilitating. The last MRI fistula I had showed dyssenergia, a weakness of the rectal muscle which means that...
Had my infusion on Wednesday. On the second day, I started to have itching but was hoping that the pred dose of 7.5 mg and Telfast would control it. On the third day, things became like crazy. I...
Well, I was hoping to find a similar experience here especially that it was here at Healingwell that I learnt how to divide either pred/Budesonide doses over the days to reach a slow taper. This is...
Yesterday, I was given a steroid injection and an Advil injection and things were Ok. Today, when their effect wore off, the itching was worse. Called my GI and he accepted to see me. He mentioned...
Thank you, Tom. Well actually I think it is of great relevance. Today, is day 18 post-infusion and day 10 of persistent allergy. I think that most probably my GI would not let me continue taking...
Managed to contact my GI. He mentioned that if I still don’t feel better, he doesn’t mind if the dermatologist adds more meds. When I asked him whether this indicates a problem with Remicade or not,...
Took my Remicade infusion 2 weeks ago. Last week, I developed skin rash on my abdomen and itching. Meanwhile, I developed uncontrollable watery diarrhea, contacted my GI who put me on rifaximin as...
Susie, thank you so much. My GI referred me to a doctor who is specialized in biofeedback. As I understood, she will first do some tests to confirm the diagnosis and then we will discuss the...
Hi Tom Sorry that your daughter is not feeling well. I have multiple stones in my gallbladder. They are very small. I was informed we need to remove it but when I refused, we agreed that I will be...
Apparently when my GI asked another radiologist to read my MRI, the radiologist informed him that I have dyssynergic defecation, which in simple terms, means that while I have a bm, my sphincter...
Thank you so much, Clo. Glad that you are well taken care of and that your CRS has a plan for you. Well, my CRS recommended I take levofloxacin every 3 months. I was waiting to ask my GI about it....
Hello everyone I really appreciate your response and enlightening feedback. I'm very glad to hear from all of you. I'm also very happy that the quality of your lives is better and hope it will...
The re-reading of the MRI pelvis came out and I have neither an abscess nor a sinus tract. My GI was right when he suspected the results. I have a problem with defecation. When I searched for it,...
Clo, thank you so much. That was very informative and illuminating. I had an MRI pelvis which results showed that I have an abscess and a sinus tract. For an unknown reason, my GI refused the results...
Hope you are all well. I know that you all suffered from some sort of a perianal disease like abscesses and fistulas. I’m really having hard time and my GI is still for Remicade though I developed...
Thank you, Susie. Well what made me think of changing Remicade altogether is the idea that both the abscess and sinus tract are on the left side, the same as that of the fistula which was claimed to...
Got the results of the MRI pelvis I had to rule out the fibrosis the colorectal surgeon told me about. It turned out to be a perianal abscess + a sinus tract. Is Remicade doing it’s job? I highly...
@Susie. I got your point. Actually, without claiming that I had very little improvement, it’s really the truth. I wake up from sleep because of severe rectal pain and abdominal cramps. Both my trough...
As you all know, I have been suffering from my rectum for almost a year now. Lately, things got worse. When I was administering Budesonide enema, I noticed there was a lump in the opening of my anus...
Wow!! This is really interesting! Fingers crossed. I have been on Remicade for almost 7 years, have no antibodies, too but Remicade failed to control my rectal inflammation and I’m seriously thinking...
I’m a Crohn’s patient for 15 years with stubborn proctitis. Developed January 2016 a perianal fistula and was put on a monthly dose of Remicade until the fistula healed in 2019. Ever since, my...
I know that not a lot of Crohnies suffer from this but proctitis has always been my real problem. The soreness of my throat forced me to postpone my Remicade infusion for a week. When I took Remicade...
@Clo. It’s true. Remicade lowers the antibody levels of the vaccines; that’s why my GI insisted that I take both Aztrazeneca for the first two doses and Pfizer as the booster....
I posted before that almost 2 weeks ago, I got a sore throat. Coronavirus PCR was negative. Saw an ENT doctor and he said I have severe inflammation in my throat and prescribed an antibiotic. My GI...
@Susie. It turned out I have severe throat inflammation, probably an infection + GERD. Was prescribed an antibiotic and my GI insisted on postponing my Remicade infusion for a week until I take the...
@ Sharon: Saw my GI. He insisted I take the antibiotic prescribed by the ENT. My Remicade infusion was due in two days. He postponed it for a week until my throat becomes better. All I can do at the...
I’m a Crohn’s patient and have suffered from GERD and gastritis for more than 24 years. I have been on Nexium 40 mg x 2, Baclofen 10 x 3 and Famotidine 40 mg x 1 for 15 years now. Since last Monday,...
@EruditePaul. Your remark is worth investigating. I’ll ask my GI about it next time I see him. The doctor who gives me Remicade infusions thinks that I could have some genes that attract Coronavirus....
Wishing you a speedy recovery, NCOT! So glad the surgery went on well!...
Since 2020, I’ve had several infections of coronavirus. This year only I got two infections: in January and in June, which coincided with Remicade infusion and the fever was persistent (39.5) and it...
Thank you all. Had the ultrasound and it didn’t show any malignancy (this is what my GI was suspecting). So, no changes in meds at the time being: Remicade infusions every 8 weeks and I’ll switch to...
Straydog and Clo, thank you. Forless than a month my GI was suspecting malignancy. Had the ultrasound and it showed nothing except for calcular gallbladder disease with many gall stones that rendered...
I posted that I’m having a problem with swallowing mannitol and even after my GI explained to the radiologist how difficult it is for me to tolerate it without throwing up incessantly, the...
I posted before. I’m a chronic Crohn’s patient, who was diagnosed in 2007 but only started Remicade in 2016 after I developed a perianal fistula. The fistula was claimed to have healed in 2019 and...
Dear all, thank you. Yes, it seems I have nothing to lose and I will give it a try. I read articles that say that it is as good as MRI and CT scans in detecting inflammation and measuring wall...
Things have deteriorated lately. This excruciating pain of the intestines persists and of course it is accompanied by sometimes diarrhea and vomiting/nausea. So, when I saw my GI almost 2 weeks ago,...
NCOT Wishing you best of luck. You have been through a lot lately and hope things will be better “on the other side”. Praying for you....
Thank you so much, Tom. I will....
Both 73monte and Homeboy, thank you. Well, I have been struggling with both my intestines and colon. Lately, diarrhea and vomiting increased so my GI decided that I should have an MR Enterography....
I had a colonoscopy more than two weeks ago and I suffered a lot from abdominal pain after the procedure. The biopsy results were out and I have TI ulcer. I developed lately TI pain which I have...
Thank you Susie. Well, no, we haven’t agreed on changing the infusion schedule yet. It is just this time that I take it week 7. After both Infliximab trough level and antibody tests are out, we will...