Hello everyone. I saw the surgeon yesterday. But I backed out of trying to get hospital transport after phoning the number my friend gave me and hearing the words 'ambulance service' in the...
Congrats on your remission! I must look into Xeljanz - I'm impressed that it worked so well after 4 failed biologics. I hope it carries on working for a long, long time....
If spiders in your home really bring you good luck, I should have won the lottery by now <_<. At least bookshelf bro never returned. Maybe he read my post on the.... world wide web :p A friend of...
I should add, I've had several MRI scans where I've not thrown up! The prep doesn't usually make me sick - I think it was because I was quite ill at the time and the nurse made me really chug it down...
Sara - Thanks! To be honest, "urgent" is a word with many meanings on the NHS. It could be something as simple as the surgeon forgetting to book a routine appointment (oops) and turning it into an...
Hi folks After much tooing-and-froing between the local pharmacy and the GP surgery, I did get my pain meds (enough for 4 weeks). It certainly did wonders for my exercise levels, as the only way of...
Depending on whether it's a morning or afternoon colonoscopy, I can eat up until midday or 5pm the day before. Can't drink anything red, purple or blue, but can drink yellow, green or orange. This...
Songlady, I didn't know you had cancer. I'm glad it's treatable, but I do hope the lower dose of chemo has far fewer side effects. I never found Bentyl to help either, so I'm going to look up the med...
Hey folks :p I'm still at my mum's house. Fortunately there's plenty of space and we get along well, so there's been no clashes. I will have to go back to my own flat at some point but right now I'm...
Dorri - Yeah, 10 is low enough to give me symptoms of anaemia (breathlessness upon exertion, restless legs, tiredness), although at the moment I can't tell what's anaemia and what's post surgery...
Tylenol is a mild painkiller. In my experience it is useless for abdominal discomfort but if you're running a low grade fever or mild headache, it can be good for that. The mesalamine suppositories...
My haemoglobin fell from 13 just before surgery to under 8 after surgery, and they were thinking of giving me a blood transfusion. But then it rose back up to 10 and they thought that was fine and...
Lol, just need to be able to fly now. That would certainly compensate for not being able to drive for 6 weeks. Thanks CC! PS: I'm enjoying eating decent food again. Been having soft boiled eggs for...
Metamucil is soluble fibre, which is gentler than insoluble fibre. You really don't want to be taking the latter during a flare up, but soluble fibre should not harm you. However, it's also unlikely...
I'd give it a few more days, then get in touch with your GI if the watery diarrhoea doesn't go away. Generally speaking, changes in bowel habits should be investigated. Sometimes gastrointestinal...
Kiiiiind of. I have a memory of lying there at peace in the recovery room, knowing that I could lie there for hours without having to worry about needing the bathroom. Then the sedation wore off >_>....
Thanks Flowers and Clo. I did feel better today, although the continuing pain is dragging me down a bit - I'm rationing my oxy as there is so little of it. Tried to temporarily register with my mum's...
Thanks straydog. I'll try to keep my chin up >.>...
Correct :p To be honest, getting out of there was so stressful I'm still feeling the after effects of it. Had to wait unti 6:30pm before I could finally call a taxi and get the hell out of there. On...
Thank you all. Genuinely. I've just had lunch and probably won't be out of here until 6pm, lol. Seriously, the wait for the discharge letter and the medication is eternal in a hospital - don't...
Honestly I never found a good solution to this problem. I'm English and I ordered Calmoseptine from the US especially, but I was a bit disappointed with it. It was soothing in the aftermath but it...
Damo, you are starting to sound like You-Know-Who's mirror image, what with you trying to control what people can talk about. Alternative treatments are not my jam personally, but such discussions...
Ahaha, you posted literally a few minutes before I did, so I didn't see this until now. Believe me, nothing like that has happened before and I don't suppose will again! But if you want to try your...
Hey folks. I'm in here for one more night. I did get discharged today but there was a lot of uncompleted stuff, so they recommended I stay for tonight. My prescription is done, but I still need the...
Clo - I am glad you've had the surgery and are recovering. I hope you don't mind though when I say that I hope I never, ever, ever get a kidney stone. Some of your descriptions made me wince so much,...
Well guys, after a totally rubbish day I've had an upgrade, ahahaha. I've been transferred to the private wing of my NHS hospital, and now I have my own room, toilet and shower, TV, bland scenic...
Thank you, Dorri. Sending hugs back to you. I just wrote a long update on the UC forum and am far too tired to reprise it here - I refer you to my surgery thread on the UC board if you are interested...
Hello folks. Dreadful few days. This is the first day I've felt well enough to update. Hard to describe. Just endless dogsick nausea alomgside searing 10/10 pain attacks lasting for hours. In...
Thanks FlowersGal. I forgot to mention that I did take a walk with the physiotherapist therapist today. I went to the bathroom to brush my teeth. Had to take it slowly but it was most welcome....
Oh gosh, that was a gruelling day... >.> The good news is that my stoma has started working and the bag was fairly full when the nurse changed it. I did another change a few hours later. It wasn't...
@FlowersGal - I was thinking gas pain too. But it gets so bad - like 8 out of 10 sometimes. And moving in bed in bed is extremely painful. Virtually no output. I'm hoping that what happened to Clo...
Guys, I am sorry to be depressing again but it's nearly 2am, and I have a knife like pain in the lower right abdomen that morphine isn't touching and a moderate fever of 37.9C. (For me that is quite...
Thanks FlowersGal. Yeah, morphine is a double edged sword for me. It can go from making you feel euphoric to sick as a dog in two heartbeats. Small bit of good news. A nurse brought me a Fortisip...
Hello everyone! I can't get WiFi but I can get 4G >_>. The surgery went very smoothly apparently. No complications and no adhesions, which is good. But holy crap, the second day has been absolutely...
Hi Dorri, I remember you too! How's the Crohn's nowadays? Thank you for your good wishes. I'm in hospital but still waiting for surgery - it's 9am and I've been here since 7am. Really, really tired...
Been in hospital since 7am and still waiting for surgery. It is only 8:43am, to be fair, but I'm bored >_>. (And very, very tired from lack of sleep. I swear I did not worry this much for my first...
It just seems like your friend needs to see a more specialist doctor at this point, since general doctors aren't able to find anything. A haematologist might not even be the right doctor, but they do...
Clo - I'm packing today. My mum is coming over to me because we need to do a few things in town first, then we're going back to her place. Unfortunately the bus she was gonna get never arrived, so...
I'm surprised your friend can even function at a haemoglobin level of 6. If iron/blood transfusions aren't raising it, then there must be another cause of the anaemia besides iron deficiency....
100% agreed with CC on this. It's bad in the UK too: doctors have got more and more puritannical about meds to the point where most people can't get any strong medication at all. I get the dangers of...
Clo - The two spiderbros are still there - I am starting to become almost fond of scaryspiderbro >_>. He is much more timid than cellarspiderbro, and will retreat if there's an unexpected noise or if...
Hi folks :p I appreciate the kind thoughts and hope that you all are doing as well as can be. I will let you know how surgery goes. If I can't get internet on the ward, I might have to wait until I...
It's sad to see, as despite my anger at having a stoma, this board was a huge help to me in the past. Ironically enough, after a reversal lasting for seven years, I've decided to go back to an...
Between catastrophically unsafe toilet seats and spiders camping out next to my toilet, my bathroom is no longer a safe space :'-(...
Do you remember me? Of course you do, I'm a hot liquid drink with milk and no sugar :p This is going to be a brief post, as I'm tired, but I just wanted to stop by and say hello and see how everyone...
The new doctor sounds so, so much better than your old doctors. Medical treatment should not vary this much from doctor to doctor, or hospital to hospital, but so often there's huge discrepancies in...
Thanks folks. Saw the stoma nurse yesterday. That went fine. She marked the spot where my new stoma would be - basically the exact same spot as my old stoma. Still negative for Covid :skull: I bought...
Wow, that is even more impressive. I wasn't very consistent with CBD oil when I tried it. If I can find my old bottle (hopefully this stuff doesn't have an expiry date), I might give it another go....
@minnietoty and beave - Thank you both. @Clo - I had my stoma surgery done in 2015 too. The surgeon didn't remove my rectum for two reasons: 1) I was stuck on a high dose of pred that I couldn't...
Congrats! Those are some impressive results. I can buy CBD oil without needing an expensive private prescription, but by law it can't have any THC. And without the psychoactive THC component it seems...