Hi It's been a while since I've been on here. I have Crohn's and it's active in my rectum and perhaps stomach/duodenum and a few spots in my colon. Hasn't been too bad during pregnancy. I am 36 weeks...
Hi I recently posted my difficulty getting off Zoloft. With the idea in mind of trying to conceive a second child, have an appointment with the GP who prescribed the antidepressant to me (after I was...
We chose not to vaccinate our child. Her aunt and grandma had bad reactions to vaccines (aunt developed asthma immediately). I feel my health deteriorated after a "required" (it wasn't, they just...
Hi I thought while I was here asking about my sister in-law's suicide, I'd ask you all something else: What is the general consensus about quitting SSRI's, particularly Zoloft? I was prescribed...
Hello Does anyone know if an adjustment or two in someone's Celexa dose could actually be enough to make them take their own life? We just lost a family member...she had a history of major depression...
Olive (or anyone else), what is CPI?...
I had been very, very tired for months before and after my Crohn's dx. I started Low Dose Naltrexone and find I have a much steadier and higher amount of energy during the day. I also started Zoloft...
Hello Ozonehole, I'm sorry that the LDN didn't help you. I have heard that you need to give it a good chunk of time, but if the sleep disturbances were that bad I don't blame you for stopping. I've...
I have been taking Zoloft for about 2 months now. I felt I needed something to cope with everything that's happened this year. I think I like it. I take 50 mg a day and have from the start. I did...
So glad you are doing so well, Ingrid! I believe my blurry vision is abating. I still have some, so it's hard to say 100%. But it seems like there are fewer times each day when I have to squeeze my...
Hi Is that the same thing as mesalamine rectal suspension enemas? If so I am taking those nightly too, and have been for nearly 2 weeks. Cause of my RX was a feeling of fullness in rectal area, and...
Yes, please keep us posted! I've been on LDN for a month now and can certainly say that it has helped my energy. Sleeping disturbances abated after a week or so for me, though I still have very vivid...
Thanks for that info, Dave. I am glad to learn you have recovered some of your vision, but sad that you had to dive back into the Prednisone to do it. How are you doing now? I've been on LDN for...
Browyeyedgirl, thank you SO MUCH for that information. I really appreciate it. I had no idea that I could perhaps get help from P & G for Asacol. njmom, I also have colon inflammation. Proctitis,...
Sorry to hear of the other problems. No need, as we say here on the island - no need!...
Sorry you are going through this. I know this is probably common knowledge but I wanted to share that I had a bad reaction to taking oral iron. Good luck with dealing with all of this - Jamie...
Anyone smarter 'n me wanna translate that last one?...
So...for you, a slightly elevated ASCA IgC is the only indicator of Crohn's - am I reading this right?...
Hi and welcome. I had intense hunger 24/7 for a few months and an endoscopy showed I had chronic inflammation of the antral gastric mucosa. When I pushed on my stomach there, the hunger sensation...
I got mine from Dr. McCandless. She may be in Africa now/she's doing a trial on LDN for HIV in Mali. She did a remote consultation and had her pharmacy in Savannah, GA ship me the drug, already as...
I'm skinnier than others in my family. I'm about 118 now, I guess. Down to 114 a month or so ago due to stress from diagnosis and not being sure what to eat. I'm 5'-6". I had really dark circles...
Wow - bursitis of the butt...and more? I'm so sorry to learn that, Ides. Best wishes for this info leading to your feeling better soon - Jamie...
I am scrutinizing the small print on mine and it's really bizarre the things it tells you. If I'm reading mine correctly, I have a-typical Crohn's markers, and I have manifestations that are more UC....
Dr. McCandless is wonderful! I was so fortunate to have had Brenda at ldnproboards direct me to her. I did the transdermal cream for a week or so just to make sure the 4.5 dose was tolerable, and...
I am self employed and JUST last month got onto a plan that covers prescription drugs. Previously I had been on the "catastrophic" plan which covers everything but drugs, pretty much. That plan was...
Congratulations!!!!...
Keah, that is an amazing finding for you. Thank you for sharing what you learned. Wikipedia (not the best source, I know) says: "It is estimated that roughly one in every 300-400 people is affected...
Hi EMom I started LDN a week or so (?) after Ingrid. I was only recently diagnosed with mild Crohn's and hence it is difficult to chart my reaction. Here are some of the things that have happened...
I had a common experience, I guess. After explaining my horrid back/buttock/pelvis/abdominal pain to my GI, that it kept me up at night and that it was interfering with my work and that it had been...
What I find so interesting is that some prebiotics are allowed on the diet I'm on and some (most, I am thinking) are forbidden....
I've been on it a few months now and agree it's hard to follow but I think it's worth a try. One of the criticisms I read of the diet is that it is hard to discern on which subset of Crohn's suffers...
I feel for you so much. You have gotten lots of great advice and I don't really have anything to add, just my sympathy. I can certainly relate to what you wrote about the disease being "on the...
Thanks once again, pf4. Yikes. No wonder they call it C "difficile". I know I just had a stool sample taken for this which came back negative. But from this article it sounds like if I had it I sure...
I agree that this can be so hard to conclusively diagnose, but what does everyone think of the Prometheus blood test? I don't think my diagnosis would be Crohn's at this point except that I was given...
Thanks pb4. I am not entirely sure I understand prebiotics. You? I know I consume a lot of fructose since I eat a lot of fruits, But other prebiotics (such as FOS) are specifically forbidden on SCD....
I don't know either of you well but, Vicky, I feel your melancholy. And Belleenstein, I felt myself saying "yes" to the heartfelt response you gave and I (and probably many others) think I needed to...
I did not see 3 articles, just one. Were there 3? I thought it was interesting in the one I read that people with UC had more definitive allergies than those with Crohn's; at least that's how I...
http://www.pecanbread.com/new/scdfoods1.html#intro This is a staged diet for kids with autism, who also use the SCD. It lists squash as a Stage 2 food, which means it may be pretty easy on you, if it...
I have that, I just learned, after trying to get a diagnosis for nearly 2 years. It was my first symptom. My left first rib is visibly swollen and has been for a year and a half, so I assume I will...
Dave D, how did your scleritis come on? I KNOW my eye problems are related to my disease and I KNOW the Opthalmologist was wrong in saying I am just getting older and my vision problems are related....
Hi Ingrid I'm so glad you're still feeling well. I hope you keep posting your progress here too. Yours is so much easier to analyze since you were more symptomatic when you started the LDN. I didn't...
4.5 mg, transdermal cream. Applied at 10pm (2 hours ago) I just wanted to share my experience for what it's worth. Of course I have no reaction to share yet but wanted to give my baseline status:...
Not on purpose, lol. They couldn't sedate me with 4 Verseds! I had taken a Percocet the day before and apparently this was to blame. I had such a bad withdrawal headache (I think I was addicted to...
Along the line of what Ingrid said, I have read a quote by Elaine Gottschall, author of "Breaking The Vicious Cycle", stating that the use of probiotics can actually do harm unless you are...
I know I have "proctitis" and some "interesting patches" in my colon. And I know I have "chronic inflammation" in my stomach and "irritation" of the duodenum. Other than that, lol......
I Googled it and read a bit. Never heard of it. Hey, if it helps, I won't knock it. We had a friend who was into "Touch For Health Kinesiology" or something like that and he would do that muscle...
I agree that medications are there to help us and especially to get us out of bad flares. For sustained health, however, I saw right away that there are many people who have had good luck with...
I believe Turmeric helps me quite a bit for inflammation. I stir 1 whole tsp in 1/2 cup of grape juice and drink it down. It's really not too bad this way. Days that I don't do this I feel the...
Ingrid is right, no steroids with LDN, though I have read that short term for bad flares if they occur may be OK. There is a lot of room for interpretation about LDN, apparently. Also, may I ask why...
I mistakenly took a Percocet the day before my C. They couldn't put me under, even with 4 Verseds! I never thought about it, but the Percocet probably was still taking up some of the opioid receptors...