I forgot to mention around the same time, 2009, I gave up bread/pasta/white rice/high sugar. Though food doesn't make crohns worse or better. I do find it exacerbates symptoms in my body. When I eat...
Dusty desk, meant to mention I was taking Asacol for a bit while on drug in beginning. Only drug I take for crohns now besides infusion is Prilosec. :)...
Thank you all for your nice comments. When I was enrolled in the study I Never imagined that it would become "the" drug that was praised for putting many into remission. Doing research on it, I'm...
Hi all I joined this forum many yrs ago and hadn't been by to talk excpt an occasional lurk a few times a year. I really should of stopped by sooner to share my ongoing experience with a drug I've...
So I have been treated for anxiety/insomnia/depression now since 2005, more so in recent years. I am currently on Lexapro and Effexor with Atarax for bad moments and Ambien to sleep. I am getting...
I had this problem for over 3 years till I finally got a physiatrist. He finally listened and is qualified to know what works for each and every individual patient. He also has been trained in...
I live in Kentucky!!...
I know many of you have pain and use opiates, so what is the best way you have found to avoid constipation on opiates?...
Yeah I feel much better after reading all of your comments, so I really appreciate the feedback. I feel 100% better, except for some headaches, my pain is GONE. I feel like an entire new person. This...
thx Mikel...I have never been scared of a med prescribed before...I was taking 10-12 tabs a day, and they had stopped working. Do you think this was an appropriate step up?...
I just saw a new doc yesterday..pain mgmt. He took over all the pain issues from my primary care. I used to take pills for pain, but he has now switched me to 25mg Fentanyl patches. I am scared to...
I have ran a constant fever now for 2 1/2 weeks, night sweats too. I cannot get rid of it, it stays around 100 or 100.5. I do not have a cold or the flu. I have not even been going to the bathroom...
I have coffee everyday, and it does not effect me. I do not use sugar, just creamer though. Caffeine can be a stimulant I have heard, but I have never had issues with it. (ps: I do not drink any...
Pred makes me pour sweat...I hate it!!! I cannot stand summertime if on Pred...
I get so tired sometimes and I don't know if anyone else feels like this but when someone wants to argue, debate, etc...I just feel too dang worn out to engage. I barely have the energy to disagree...
I was denied twice, got an attorney and won. If you can get a doctor or GI to sign off that you are unable to work, then it is in the bag. It was well worth it. I do not know how i would work. Don't...
I think sometimes...maybe its in my head, but I think chewing stirs up those gastric juices which sets the digestive process in motion...causing crohn's to act up....kinda like right when you eat,...
oh that dang medical term....no "something" by oral....I forget basically NOTTA to eat or drink....I hate it!!! i always get paralytical bowel so they never let me eat anything Im lucky to get clear...
I have a psuedo obstruction constantly in the terminal ileum and have never had blood free stool in 5 years, the pain is horrible and makes me vomit. My GI is reluctant because he believes it will...
they NPO me everytime....so depressing!!!!! hate eating ice chips...
congrats, I remember the day I was awarded, I cried and thanked Jesus over and over...it was a God send!! What great news!!...
I just had to share. I don't get on this forum much anymore, normally when I feeling kinda sad and just wanna know I am not the only person going through this. I began my journey here back in 05...
makes me think of that song "pocket full of sunshine" she says, "theres a place that I go where nobody knows and the rivers flow and I call it home" I get in my car and turn that up and go to my...
I don't do the SCD but I created my own diet that has worked extremely well. Its similar in the fact that I cut out all white carbs, potatoes, and sugars. I do, however, eat WHOLE wheat foods. But no...
Well I finally get my Medicare on June 1st and thats my first appt with the colorectal. I have not had much success with my GI who has tried every drug out there to try. The pain persists and my...
I've been on TPN before , I'm underweight too and I have svt's like crazy...it is rather scary. Have they tried giving you any beta blockers? I was waking up in the mornings and my heart was beating...
oh yeah I forgot to update my med list...haven't had to take Lomotil in forever..lol...
Okay I've been living with Crohn's now for 5 years. I have accepted certain things but am questioning my doc lately. In Nov I was given an xray for severe left ab pain and no bowel sounds. They...
thank you all sooo much. I am going to make an appt 1st thing tomorrow and guess what I am bringing my husband with me. So if I tighten up and get scfared that I can sttill get out what I need to...
I guess there are so many ways to look at things..it is dreadly terrible and devastating but I think that God understands because he had to give up his son too. And his son was special too. So I dont...
hmmm..how does a toe get infected?? just for curiosity I mean I wore the boot fro 2 weeks like she said to do and they toldme 6 wks and it will be good....... but looking at it.....even in 2 more...
yeah on one I feel kinda loopy but on 2 watch out!! I feel sooo strange , just not sure its a drug i WANNA use unless Im dying..lol...
I have Passport which is medicade in KY. I have asked my primary care to refer me (need a referral) to a RA to no avail. I am almost positive I have AnkylosingSpondilitis which is related to Crohns...
feel weird or strange? like loopy, etc??...
Okay so Im on Humira, and I dont know if thats why but I broke my toe on Dec 21st (my fourth toe/metatarsel?) the third bone down in my toe and it won't heal. Its been 4 weeks and my toe looks like a...
aw sorry that happened to you, Ive been lucky and mine have all worked really good...hope you get some more soon! lord knows it always seems to be running out towards the 2 weeks...
/community/emoticons/cry.gif I feel so bad for her. And supposedly they septicemia is so bad and becomng more common in the United states! Im like they better figure out how to stop it so people...
I hear that! how lucky we are...hehe well I will probably make an appt on Monday to go have it checked out. guess with taking Humira we both should stay on top of any sort of little one no matter how...
God is good! Yay for you.....Im on your coat tails I hope...
are you having symptoms at all?? mine have been left flank pain sometimes under ribs sometimes back....sharp pain after peeing, but not everytime, nausea for 2 straight weeks!! and just tired...
while taking the medicine? specifically a uti or kidney infection? I think I could have one but the signs arent so clear. Don't wanna be an idiot and go to the doc for nothing...
thank you all...well my GI has decided to do another endoscopy and colonscopy this month, my next one was due in April. Im anxious to get the results!!...
My DH has been yelling at me and it doesn't help matters. One minute Im feeling fine, the next Im flaring again. This morning the pain was so bad I couldnt walk and it finally subsided. I could...
Have any of you have a problem with these and headaches? I have really big ones that are tender behind my ears...like 5-6 and are quite big. Ive also had a headache for days. Do you think they are...
nanners...I agree I think our nerves make the disease worse and we have that anticpating behavior-hard not to!! thats why Im trying theZoloft, my anxiety has gotten so bad I overanalyze everything...
I guess I should have told ya'll I drink nonalcholic drinks...lol thanks for all the suggestions---sometimes I feel like a diabetic with all the foods we have to avoid. :-)...
thank you beesting and cindy....I can tel a difference when I eat certain stuff..the bowels get louder and the cramping gets worse. Im already off meat and on fish and chicken, now I guess veggies go...
spiceman---I think thats kinda what happened too is that it was obstructed or like 3peppers said/partial obstruction and then when it passes i finally get relief. I just dont get how a CT can show my...
Okay so Ive been wondering this for sometime so I figured I'd ask some of you all. For example, I went out yesterday with my husband. I used to go out all the time, now rarely for these reasons. Went...
may i ask what they are?dont wanna sound stupid...