Ides, I had a sigmoid bowel resection with permanent colostomy in October. My stricture was so severe hardly anything was passing through. I was pretty much on a liquid diet before my surgery. For my...
I don't wash or rinse out my pouch, but I use scented baby wipes to clean the opening/neck of the pouch. I find that the dampness of the baby wipe cleans well, and the light fresh scent helps with...
Have you tried barrier extenders? I used to get leaks all of the time until I used these. They adhere to the outer portion of your bag and abdomen, creating a "seal." There are many different brands...
Ipoop and Ides, thank you both so much for your thoughtful and informative replies. I see my GI tomorrow. I will let you know what decision we come to. Thanks again! Julie...
Hello everyone! I have been on Remicade for 11 years and finally developed antibodies. I did try Entyvio a couple of years ago but had adverse reactions to it. I had a large bowel resection with an...
Finn, I had a permanent colostomy 3 months ago. I find that I need to empty 3-4 times a day, and my output is more of a paste-like consistency. I need to use a one-piece drainable, so I don't need to...
Thank you all for taking the time to reply! I meet with the surgeon this Wednesday to discuss my surgical options. I will speak to him then about options for pain management and let you know what he...
Hello, everyone! I am new to this forum. I have had Crohn's disease for 11 years, and have an upcoming consult with a surgeon about bowel surgery with a colostomy. It will probably be all of my...
Cupcakespinkgal, thank you so much for sharing your story with me! It sounds like you have been through a lot, and I am so happy to hear that your quality of life is so good. I will keep you updated...
NiceCupOfTea and Clo2014, I cannot thank you enough for the wealth of information that you both gave me. Thank you so much for taking the time to write such honest, detailed responses. You have both...
It has been a long time since I have posted here, and I was always given such good advice. :-) I have had Crohn's for 11 years. I have been on Remicade, and over the years I have developed a...
I find Jello somewhat helpful. Just make sure it is nothing red. Good luck!...
Susan, I have no suggestions for you, but I just wanted to say CONGRATULATIONS!!! Blessings, Julie...
HOPEFULLY it's not Lyme Disease. The laboratory will analize it. In the meantime, keep checking the area for a "bulls-eye" rash. The best of luck to you! Blessings, Julie...
We could all save a lot of money and join a nudist colony, LOL!!!...
(((Donna))) Sending big hugs and prayers your way. I am so sorry for your loss. Pets are just amazing, and provide a special kind of love. I live alone and have a 14 year old cat. He's my best...
When I was on that high a dose of Pred, I had SO MUCH trouble sleeping. I made sure to take it as soon as I woke up in the morning. I've also heard of people splitting the dose, ie. 25mg in the...
You should definately contact your doctor first to confirm your dosage. With that said, I'm sure he means a total of 50mg's a day, not 100. Let us know the outcome. Blessings, Julie...
I hope I'm not posting too late. Sending big hugs and prayers your way! Blessings, Julie...
Maz, just checking in to see how you are doing. I see you haven't posted in a few days. I hope all is well. Blessings, Julie...
It sounds as if you are doing so well! Isn't it wonderful to have good days?! Cherish every moment, and have a wonderful week! Blessings, Julie...
"Do not worry about yesterday. Pick yourself up and start over. Make each day a beautiful, new beginning." Ralph Waldo Emerson...
(((Maz))) Just checking in to see if you are feeling any better today. You are in my thoughts and prayers for a speedy recovery. Let us know how you are doing. Make sure you try and get as much rest...
(((Maz))) Sending big hugs and prayers your way. You know the saying, "When it rains, it pours." First off, HAPPY BIRTHDAY!!! I hope you feel better soon, my friend. Blessings, Julie...
I only take Tylenol, with a couple of exceptions..... A year ago I developed Shingles, and my GI hesitantly let me take it for three days because the pain was horrific. Also, maybe a couple of times...
(((Ivy))) I hope everything works out for you. What type of surgical procedure are you having? The best of luck to you! Blessings, Julie...
George, thank you so much for the informative post. I've never heard of such a technique before. You may have an invention on your hands, lol! I'll need to google manganese permanganate, as I have...
It's great to see a post from you! I was wondering how you've been. As Spookyhurst stated, eating/craving ice is a symptom of iron deficieny. I am gad to hear you are doing so well!! I don't have an...
Diarrhea!...
What is a "short" colonoscopy without a prep? I've never heard of this before. Thanks! Julie...
Nanners, I take Xanax on a daily basis. However, when I need to take more because I am having severe anxiety/panic, I immediately grab a pen and paper and write down the time/dose. I do this so I...
Dreamer06, I'm sure people will soon come offering advice. However, here at Healing Well there is a separate forum just for Ostomy discussion. Maybe that will help. Good luck to you! Blessings, Julie...
Suzanne, thank you so much for the suggestion. It is so funny to read your reply, because I just got home from the grocery store and bought fruit bars, lol! Nanners, I am the same as you. I'll eat...
Thanks, Dave! It's a viscious cycle, lol! I figured I wouldn't get many responses to this thread because most of us have been on Pred and don't know how to control their hunger either, lol! I guess I...
Good morning, everyone! about a month ago I was in a severe flare with vomiting, diarrhea, and extreme nausea. I couldn't eat and could only tolerate liquids. It's been a long road, but I am slowly...
My actual Remicade infusion is run by an IV pump. It is exactly 2 hours from start to finish for the Remicade itself. I receive mine in an infusion clinic. From my understanding, Remicade is to be...
The first 15 minutes I am infused with Decadron, a steroid. Once the Remicade is started, it takes exactly 2 hours. By the time I arrive until the time I walk out the door is approximately 3 hours....
I have tried so many different types of anesthesia, and have bad reactions to them. My last four colonoscopies were done wide awake, and I left after it was over. It's no picinic........
Oohh boy, let's see..... A HUGE salad Hot wings with celery and blue cheese Corn on the cob with tons of butter Pistashios and Cashews...
My GI has me take a brand called Slow-FE. You can buy it at most stores. It is known to be slow released and gentle on the system. I haven't had any problems with it....
(((Nanners))) I am sending big hugs and prayers your way, my friend. I'm thinking of you. Blessings, Julie...
I just got a formal diagnosis of Fibromyalgia this past year........
Just wonderful........
Stef, thank you so much for the reply. My fever never goes above 100, and it's mainly at night. I have a call into my GI right now, and hopefully can get it Friday. They feel the fevers are from...
I'm still so sick, and the Crohn's is horrible. The doctors feel I am getting intermittent chills/fever from active Crohn's, and want me to get Remicade now, because I am so over due. I am desperate...
First off, thank you so much for all of the replies from th previous thread. It means more than you'll ever know. I became dehydrated again, so I spent the day in the ER with lots of IV fluids. The...
God bless all of you for the replies. I had to spend the day in the ER today for IV fluids. I'm exhausted. I'm too tired to type tonight. I can't thank you all for the responses, and wish I had the...
Oh, dear friends, I wish you all could have been in the hospital to hold my hand. I posted a longer post in the Crohn's forum, and it's hard for me to type because I can't stop crying. I am SO SICK....
I have been in the hospital the past three days for an upper respiratory infection and Crohn's flare. It was so challenging being in the hospital for me because my panic attacks are so severe. It was...
To update you all, I just got home from the ER, and was diagnosed with a bad sinus/upper respiratory infection. I HATE going to the ER, but I felt I put this off long enough. He prescribed...