I use Sure Seals all the time and always get a week before changing. I swim all I want and even use the Hot tub for limited amounts of time. Dave (look here)...
Fort Myers....
I tried Remicade and later Humira. They both became toxic wastes of time. I finally gave in and scheduled surgery... Too late because before I could do it, I had a stroke! So, after getting in shape...
I have been dehydrated several times. Once I lost 20+ LBS. It took about 20 saline IV's to bring me back. The month prior to my ileostomy surgery, my diarrhea was out of control so I started tintures...
I have had IBD for over 30 years. Finally, on 1-14-11 I gave in and had the total surgery. Nothing since. Should have done it 10 years ago. Dave D...
I stretched over the side of my golf cart to shag a ball and while I did not hear it, I still felt a rib on my right side let go. That's what 30 some years of Prednisone does for you. Hurts like hell...
I've been on this for about 15 months to help control the diarrhea. I've been taking it at night(4g) after I have finished having anything to eat and it really works. However, apparently I haven't...
You guys have really bummed me out! After all, I have only been sick for 30 years; been cut on about a dozen times; and take....let's see, a dozen meds every day and now you tell me it's incurable?...
Scleritis…Continued I think most all of the eye issues are related in that they are autoimmune. Posterior Scleritis is probably the most dangerous and since it can leave you blind as it did with me...
New thread started entitled "Scleritis." Dave D...
Polish Dan asked me on another thread so I thought that since it was a new subject, it should be a new thread: The sclera is the white part of the eye. Scleritis is inflammation of that area....
schoolbusdriver, I would continue my meds just as your Dr. has ordered. But if you start to vomit in addition to the diarrhea, you will dehydrate very quickly. Keep your Dr. informed and be prepared...
Making a small tab in say a corner by folding it over is a great idea! Sort of like when I finish using pastic or scotch tape I'll fold the end over sticky side to sticky side so I know it won't...
I have taken it and it works but be careful. First of all, it tastes terrible and I waited too long to start taking it and it caused me to almost immediately vomit and due to my already dehydrated...
I have used the Sure Seals now to extend my wafer time to 1 week since it is most convenient to change the outfit every Sunday AM., after my morning shower. However, with my heavy output I still end...
I suffer from short bowel syndrome and have in the past been dehydrated to the point of kidney (renal) shutdown. Here are my remedies: Only sip fluids. never gulp. Banana for breakfast. Learn to...
Yep. That's right. Flying a comuter airliner from Omaha to Houston, I was the first to use the single head. I had a full bag and it sat in a big sticky pile and there was not a blue water to flush it...
I swear by Sure Seals too. Here is the cheapest price I have found: [color=#008000>bestbuyostomy.com[/color] Dave D...
Thanks Stripey.We have talked before. Last Sunday after emptying 10 bags. I saved myself with 2 Vicadins, my last resort after the Sandostatin, Questran, Immodium(8), and Lomotil (8). Vicadin is an...
I had my end ileo (permanent) done on 1/14/2011. I had gigantic output from the getgo passing 3 litres per day. My surgeon, gastro, and hematolgist put me on Sandostatin to slow the gut right away...
After "mountains" of Prednisone I was up to 270 lbs. I'm 6'2". The surgeon said I should lose the weight to decrease the time on the operating table was more important than how the wafer would fit....
Equestrian Mom Thanks for the advice. I ordered a sample. Dave D...
Another UC wife Thanks for the quick response. I do use the Sur Seals. But when the wafers begin to leak and stool gets trapped under the seal, in about a day or so the underskin starts to burn, so I...
Went to the E.T. nurse yesterdayand we believe we found a solution to at least part of my leakage problem. I'm pretty badly herniated at the stoma. It sticks out on a big round mound maybe an inch or...
When I had my J-pouch(s) I obstructed 5 times and yes it was at a gut splice from the original surgery. My advice is avoid any foods that might constipate you, including meds like Cipro and Flagyl,...
I share the same experience but I'm on some really potent diarrhea preventing drugs, Questran and Sandostatin in addition to the usual Lomotil and Immodium. Since I eat nothing after 6:00 PM I...
Lay on your back and relax. If you are wearing a hernia belt, loosen it a bit. I get those sharp pains as well. However, be weary of a burning pain. Dave D...
I had a wound vac my last surgery in 2006. For me it was painless and healed much quicker than this wound. This wound on me is also close to my stoma and I have to wear small wafers or trim the...
Starting day 3 on the same wafer! The trick was doing the change standing up! Dave D btw, summerstorm, big breasts aren't all bad. However, I don't remember why....
Thanks you two for your informative "Been there," comments. Diarrhea has plagued me for some time. Before the end ileo surgery in Feb. I was hospitalized with renal shutdown and low blood pressure...
I have had several temp ostomies before but now I have a perm. My output has been so much, I require Sandostatin shots in addition to Questran, Metamucil, Imodium, and Lomotil. The problem is that...
I keep a squirt bottle with water nearby to squirt the residual stool back into the bag, then put the plastic clip on. Dave D...
During the years that I had my J-pouch(s) I discovered that when I sat down apparently there was a kink in my gut not allowing it to fully empty. My surgeon at the time said this was comion. So,...
It would seem to me if he is still having BM's and no pain, blood, or fever, you would be safe to wait until next week. Sounds like he may have had a partial blockage that cleared itself. Any of the...
Originally western Nebraska. Now Ft Myers, FL....
I have been on the 3 a day fast acting shots for about 3 weeks, then have been on the 28 day delayed release generic version for nearly 2 months. My problem is about midnight it loses its potency and...
Pam222, Are you still on Sandostatin? If so I need some advice. Dave D...
Ditto Suebear's response about the ET nurse. I'm anything but an expert although I have had 3 loop ostomies before. If you are having burning skin problems you should probably use a seal like Eakin...
I just bought Hydrogen Peroxide at Walgreens for my first try. It's on sale. 16 oz cost me only 50 cents even! Side note: I tucked my Convatec Invisaclose bag over my seatbelt on my way home. I...
pswift520 said... There is no smell if you use peroxide everytime you empty. Greatest thing I have found so far. Just a capful in your pouch when you empty and your good to go. Sometimes I do admit I...
Last night I noticed stool color between the plastic bag snap ring and the outer paper tape. It seemed OK so I did not change it. Bad mistake! about 4 hours later while sleeping it leaked out both...
ucfree, Thanks for the offer but not big enough. Dave D...
After my Perm Ileo surgery, my surgeon requested I wear an elastic surgical waistband during recovery to keep my guts in. I have been using 9" wide binders with a 3" hole cut for my ostomy. I have...
New convert from 2 failed J--pouches here. I sure like the filters in the bag but after only a day or so, the seem to plug then back to the old way of venting. Anybody? Dave D...
I've had IBD for 30 years and three temporary ostomies, the last of which was in 2005. Now it's time to do away with my J-Pouch for good. My questions are: What new has come on the scene as far as...
Boy, you guys are sure hitting home with me. I was originally diagnosed with Ulcerative Colitis and had a total colectomy with a J-pouch which is the standard cure for UC since UC confines itself to...
My bad times really started wth the scleritis diagnoses after coming off LDN. Understant that since I have had two hard years of Prednisone, Remicade, and Humira. I have had numerous transfusions and...
Three years ago I was doing okay on Imuan and Entocort but I thought I would give it a try. By the end of the first month I was off the Entocort. By the end of month two I was off the Imuran and...
I have an appointment with Cleveland Clinic-Weston,FL today. One more time of many I will have to explain to a Dr. (Colo Rectal) why I tried LDN three years ago. If it was so good, why don't more...
"Dave D, as I understand it, the steroid meds you had been on were more likely to have contributed to your problems, particularly eye issues, than LDN." Sorry. I had been off Pred for several years,...