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mom1760

HealingWell Forum
>
Member Profile
Display Name
mom1760
Profile Created
10/21/2006 10:33 AM
Last Seen
11/1/2012 9:39 PM
Total Posts
87

Last 50 Posts

Been through all drugs except Cimzia and LDN anyone suggest anything else? Also liver sick.

I failed both remicade and humira and started cimzia in april 2010 and it has been my miracle drug.Every once in awhile we have to do another loading dose but it has been great.I also have crohns and...

10/29/2012 6:14 PM

Crohn's Disease
missing work

I am currently off work until oct 15 since sept 14 due to a flare and spent 8 days in the hospital from it. I myself have my FMLA and work has no choice in the matter with it. I am entitled to up to...

10/3/2012 8:28 PM

Crohn's Disease
Any other ideas???

I am going through the same thing everything bloodwork and things look good but i am having pain in the same area. I spent 8 days in the hospital and they did colonoscopy and endoscopy and i have...

10/3/2012 8:24 PM

Crohn's Disease
Cimzia injecting sites

I have been on Cimzia now for over 2 years. I now take 2 shots every other week and I inject either the backs of my arms, my thighs, or my abdomen. It takes a good couple doses to get it into your...

10/3/2012 8:19 PM

Crohn's Disease
Budesinide use on Crohns with Humira.

Im in the hospital as we speak getting iv steroids and antibiotics for crohns disease and Psc. They mentioned also taking 6-mp with the cimzia and i will see what our next plan of action is in the...

9/14/2012 9:25 PM

Crohn's Disease
Budesinide use on Crohns with Humira.

I take Cimzia right now and my crohns became active again and they added entocort and i take 9mg a day.My prescription says to take one tablet 3 x a day. I have failed remicade and humira so now i am...

9/13/2012 1:56 PM

Crohn's Disease
Medical Alert Bracelets

I bought mine from walgreens and it is the kind that plugs into the computer USB and when u plug it in it puts the program on your computer and whenever i need to update anything i plug it back in...

9/12/2012 12:54 PM

Crohn's Disease
Crohns and Life Insurance

i got mine through work and asked for the 100,000 plan because they were doing a special but they told me they could only do 60,000 without asking health questions so i took that and let it be....

9/1/2012 5:07 PM

Crohn's Disease
For those on cimzia..

Cimzia is an oil-based med so inject it slowly and it won't bother you as bad.I have been on it for 2 years and just found out its active again all on my right side both small and large. They have...

9/1/2012 5:02 PM

Crohn's Disease
Elevated liver panel.

It wasn't humira.It is seen with people with inflammatory bowel disease. I take cimzia but i would just keep an eye on it and talk to your doc about it....

11/11/2011 8:27 PM

Crohn's Disease
Elevated liver panel.

My liver panels were high and my bilirubin.They dx'd me with Primary Sclerosing Cholangitis in april of this year my alp are 700+ with high normal being 115.With your bilirubin being up that high i...

11/11/2011 7:37 PM

Crohn's Disease
First week back at work..

It's sad that it takes us going into the hospital to open up our employers eyes to what we are really going through.Last year i only used seven days of my FMLA and they tried to write me up since the...

10/3/2011 7:43 PM

Crohn's Disease
elevated liver enzymes

I have had Crohns disease since 2006 and was dx'd with PSC in april of this year I have had 2 ERCPs and the first one i had a dominant stricture in my CBD they dilated the ducts and started on URSO 9...

10/2/2011 7:36 PM

Ulcerative Colitis
Been through all drugs except Cimzia and LDN anyone suggest anything else? Also liver sick.

I didn't respond to remicade or humira and i decided to go ahead and try cimzia when you dont feel good you will try anything.My gi doc prescribed cimzia with 6-mp until i got the loading dose in. He...

10/2/2011 7:06 PM

Crohn's Disease
Has anyone heard of a GI that is good with crohns in Cincinnati?

There are several doctors in with him. I have seen Dr.Martin and also Dr. Stotz and I really like them. I have also had other docs through their place While mine were on vacation.they really make you...

9/25/2011 7:17 AM

Crohn's Disease
Has anyone heard of a GI that is good with crohns in Cincinnati?

I live inside the Cincinnati area and have Crohns disease since 2006. My GI doc is in Ohio GI and Liver institute they have several office locations but i go to the one by Mercy Hospital in Fairfield...

9/24/2011 6:44 AM

Crohn's Disease
Blood Clots and Crohns

Today it was 4.1 so they are holding my coumadin and would like it checked again thurs before i do my colonoscopy on friday then my surgery on monday....

9/19/2011 2:02 PM

Crohn's Disease
Blood Clots and Crohns

I was in the hospital again in July for another ERCP for the sclerosing cholangitis and they dilated two more areas of my bile ducts as an outpatient procedure and after it was done i was a direct...

9/16/2011 4:44 AM

Crohn's Disease
Bloodclotting Disorders

I actually am going through the same thing to a point. I was in the hospital after having an ERCP for the primary sclerosing cholangitis ( liver disease seen in Crohns patients) and they found I have...

8/26/2011 8:38 PM

Crohn's Disease
Who suffers from PSC

I had an ERCP on Monday 4/4 and they put in a stent and dialated the ducts and cleaned them out and took some biopsies.The following Thursday they did an endoscopic ultrasound because I had a mass on...

4/15/2011 2:00 PM

Ulcerative Colitis
Who suffers from PSC

I have wrote on the crohns forum too.....I was dx'd with crohns in Oct 2006 and just dx'd April 2011 with PSC.I am trying to find a group of people that have it to talk to.I had never heard of it...

4/14/2011 7:57 PM

Ulcerative Colitis
who suffers from PSC????

I just spent a week in hospital where they dx'd me with PSC. They put in a stent and cleaned it out, but i was wondering who else suffers from it and how are they managing it??...

4/13/2011 7:05 PM

Crohn's Disease
Words of advice please

I failed both remicade and humira and my gi doc talked to me about cimzia.I agreed to try it. He put me on cimzia and 6mp together until i did the loading dose.I am doing well on the cimzia i have...

4/13/2011 12:28 PM

Crohn's Disease
Liver enzyme high.

I just got out of the hospital for the same reason my liver enzymes have always been high but this time I became jaundice, my urine turned dark, and my stools almost white.I also had vomitting and...

4/9/2011 7:48 PM

Crohn's Disease
I don't know what's going on....

Ok I went and had a chest X-ray and ct scan with contrast And Sunday my pain go so strong I called the doctor on call and he said ct just called him with my results and he was waiting for the...

4/6/2011 6:31 PM

Crohn's Disease
I don't know what's going on....

Well I went to gi doctor and he scheduled a ct scan with contrast and a chest xray and another tb test. He says if nothing shows up on ct scan we are doing a liver biopsy.He also said he is...

4/3/2011 10:11 AM

Crohn's Disease
I don't know what's going on....

I went to the doctor today andhe said I was jaundice and my urine tested positive for bilirubin and he sent me to the hospital to have bloodwork and an ultrasound done...I should have the results...

3/29/2011 4:12 PM

Crohn's Disease
I don't know what's going on....

I have had my gallbladder out aug of 2006 and was diagnosed with crohns disease in Oct 2006.I have been on Remicade, Humira, and am currently taking Cimzia. Last weekend I started having a bloated...

3/28/2011 4:21 PM

Crohn's Disease
sulfasalazine rash info

I can't take any of these meds for the same reason I broke out in a rash and it would end up in hives.It wouldnt do it all the time and i kept trying to tell the dr i was going to what was going on...

6/15/2010 7:08 PM

Crohn's Disease
Any Cimzia people self-inject?

I have given myself the shots now for almost a year.I have been on remicade,humira , and now cimzia.I have tried all the oral meds and no such luck.The cimzia right now isnt keeping my crohns at bay...

6/15/2010 6:53 PM

Crohn's Disease
Anyone on Humira not seeing any results

I have failed remicade and the doctor told me i am now failing humira.he is going to put me on cimzia with 6-mp so hopefully that will help.I havent had the best of luck.I had a reaction with all the...

3/29/2009 8:16 PM

Crohn's Disease
Work and the fmla

dont mind my signature i cant remember how to change it right now i am on humira and tylenol.I have had a reaction to the oral meds for crohns so i cant take them....

3/26/2009 12:49 PM

Crohn's Disease
Work and the fmla

the person from hr called me back and told me that they couldn't reduce my schedule and if i still needed it that i would have to resign.She wants me to call back and let them know what i have...

3/26/2009 12:45 PM

Crohn's Disease
Work and the fmla

I am trying to figure everything out. I have now called the corporate office and left a message so hopefully they will get back to me about this.I mean I am doing the best I can and every medicine i...

3/26/2009 9:22 AM

Crohn's Disease
Work and the fmla

I have a fmla filled out I have had it since 2006.I am currently on humira ( failed remicade) and now failing humira.I am supposed to start cimzia and 6mp soon once everything is okay.My doctor was...

3/25/2009 5:12 PM

Crohn's Disease
active disease

I had another scope done this morning and he found active disease even though i have been on remicade for 2 years and now switched to humira.He thinks that the tnf blockers just don't do anything for...

3/13/2009 8:30 PM

Crohn's Disease
Crohn's in the throat/esophogus

omeprazole 20 mg they gave me nexium but my insurance doesn't cover it it was 184 dollars so they said they could do this med for 25.My gi doctor never did call me back today it ticks me off because...

11/17/2008 5:49 PM

Crohn's Disease
Crohn's in the throat/esophogus

I am on a medicine for that.I am fine as long as i dont eat anything and liquids arent as painful.I called my gi and left a message and i am waiting for his call....

11/17/2008 2:14 PM

Crohn's Disease
Crohn's in the throat/esophogus

on top of everything else they switched my insurance plan at work and they dont cover my remicade anymore so now i have to start the appoval mess all over again and hope and prey that the humira...

11/16/2008 8:43 PM

Crohn's Disease
Crohn's in the throat/esophogus

I have had a very bad week.....I went to the doctor on monday because saturday i started having chest pain while i ate or drank anything, he wasn't sure what was going on.Well Tuesday i woke up and...

11/15/2008 9:38 PM

Crohn's Disease
Asacol side effects

I took Asacol and had the worst knee pain.I thought at first that maybe i blew my knee out because it hurt so bad.I even had the physical therapist at work wrap it.Then I started having extreme...

4/29/2008 4:54 PM

Crohn's Disease
Crohns and Gall Bladder

i had my gall bladder removed in aug. 06 and they thought thats what was causing my problems but they never got better.My labs and blood work were very bad and they decided to check my bowels and...

4/22/2008 9:25 PM

Crohn's Disease
i'm losing it

Well i dont know whats going on.Recently i have misplaced my car keys and i have no idea where they are i have looked all over.If that wasnt bad enough I couldnt find my camera case and when i did my...

4/18/2008 11:59 PM

Crohn's Disease
OOOOPPPPS!!!

well i am due for my remicade treatment this coming friday and all hell has broken loose.I do Home health and was driving down the road when i got the urge.I pulled into the first place i found and...

4/15/2008 8:38 PM

Crohn's Disease
waiting

well i am now waiting on more blood tests.My alk phos. is staying elevated in my blood and they decided to have it fractionated before going any further.If it is elevated in the blood then i have to...

2/7/2008 3:28 PM

Crohn's Disease
Anybody have itching sideeffects?

i have been itching for awhile from remicade we believe and now my liver functions are abnormal and i have to go have a liver biopsy done since my ultrasound came back good.So i would call your...

2/4/2008 5:47 PM

Crohn's Disease
Elevated Liver Enzymes

Well my liver enzymes remain elevated.They have done an ultrasound,tested me for pbc ,and did blood work.Everything came back good but my blood work.They can't seem to figure out why mine are staying...

1/28/2008 9:00 PM

Crohn's Disease
TODAY CONSULTANT APPOINTMENT

i ended up getting a mirena iud and it is good for 5 years.I love it it takes my periods away and i no longer have my bad periods.Mine were basically lasting 3 weeks and i was off for one week.They...

1/23/2008 10:15 AM

Crohn's Disease
after remicade

i always do my treatment on friday that way i know i have at least the weekend to get over it and sometimes i still have to take off on monday too.I have noticed it helps if i take my pain pills and...

1/22/2008 2:10 PM

Crohn's Disease
pre-meds b4 remicade

I always get 2 xtra strength tylenol and 2 benedryl and sometimes they will give me steroids also.They always ask if i premedicated and if i didn't then they give me some at the office....

1/20/2008 6:29 PM

Crohn's Disease
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