Thanks for the help, I'm going to talk to my GI at my next infusion and see what she thinks....
So I've done some searching and I cannot seem to come up with an answer. I've been on Remicade for almost a year and I've noticed at trend. About 2 weeks before my infuison I get the chills and a...
It's been a while since I've posted anything, I still lurk just don't get around to posting much. A year ago I switched over to Remicade and have so far had very little issues with it and it seems to...
I've been on Cimzia now for about 2 weeks. I have my final loading dose tomorrow. So far I have not notice it helping me but I have noticed that I get a headache after taking it and I'm a little...
You can always go back and try other medications that arn't biologis. Many people use Imuran with great success and there are many others that you can try. I have always seen biologics as the "big...
I ask because I had a interesting day at work the other day. I work for the RailRoad. I just so happens that the freight train I was on coming home the other night broke down. My position requires...
Well took my first two shots today, pretty straight forward but I agree it is a little thicker than most injections. I'm currently on prednisone and it will work out perfectly that I'll be completely...
Thanks for all the input. I'll get it all delivered to my house Thursday morning then spend the rest of the day drving back and forth to my GI's office for them to show me how to use it, lol. Im...
well I just got a call from the pharmacy and Ill be recieving my RX on Thursday. I've done quite a bit of search on here and read many many threads, most of which seem to be dated from quite a while...
Have you had any other test? Colonoscopy, mri, ct scan etc? From what you've put I appears to me your GI is being dismisive and isnt listening to what you are telling them. My first GI was the same...
I drive 2 hours for my GI. When I have an appointment I plan for a all day event, between traffic and the office visit I easy am gone 8 hours....
Well I recieved some dissapointing news today. The last test I needed to come back was my JCV antiboody test before I would have started back on Tysabri. Well my GI called today and I test positive...
The PML test is just used to show any potential risk prior to taking tysabri. It's used to check for antibodies of the JVC virus in your system which will let you know if you have any risk for PML at...
I have a tattoo that I had done while on immunosuppressant medication. It healed up and looks fine, but it did take longer to heal then the one I had done while off of medication....
I don't pretend to understand the science but Vedolizumab, or mln0002, is very similar to tysabri. They both are antibodys that stop specific proteins that cause inflammation. The difference with...
Welcome to the forum. Both of these drugs have been used to treat and maintain crohn's disease in many many people. However they both go about treating it in different ways. 6mp is and immuno...
Well, I did all the preliminary paper work today for Tysabri and had the JVC antibodie test ordered. Doctor has no problem putting me back on it but said she is going to take special percaution on my...
As werid as this may sound, my GI perscibes me a pre natal vitamin to take. Being a guy the pharmacist always looks at me werid when I pick it up. Ive been on these for a few years and never had any...
I was on Tysabri for 2 years and had to stop for insurance reasons. I have a appointment today for a MRI to see the process of my crohns and then a followup with my GI tomorrow where she is going to...
Well I had my appointment yesterday. The hope was that I would be able to get back on Tysabri after stopping it 2 years ago. My GI said that about a year back everyone became scarid of the PML issues...
I have a question for anyone on Entocort. I have a RX for this that I'm starting today until I can get back on Tysabri. The doctor left it up to me to take at 3 at one time or 3 times a day. Has...
I was on tysabri for about two years, and had to stop when my previous employer changed health insurance providers and my new plan would not cover it. I was diagnosed with moderate to severe crohns...
Well just got back from my appointment at the Ohio Gastroentorlogy Group and it looks like I'll be going back to the Cleveland Clinic. The doctor at OGG said that tysabri wasn't something he could...
Doctors name is Dr Bruce Hennesy, any experience?...
Thanks, I've got an appointment with a new GI this coming week....
Tysabri is a biological medicine like remecade. it's given by infusion every 30 days. It's gotten a bad reputation due in part to people who are on multiple immuno suppressant medications and are...
So I was previously on Tysabri, almost 2 years. It turned out to be my wonder drug. Within the first month I felt 99% like myself prior to Crohn's. Flash forward about 2 years after starting it my...
Thanks for the replies. Right now I'm just looking for a new GI a little closer. My hope is that this doctor will put my back on Tysabri. Tysabri was my miracle drug! Unfortunately my previous...
I haven't gotten my paperwork yet, I was just told it was their Dublin office. What don't you like?...
Hi, It's been a while since I've posted on here, still lurk, just haven't posted. My primary care doctor setup a referral with the ohio gastroenterology group in Columbus Ohio. I had been going to...
I guess Im out of the norm here. Mornings are best for me, I attribute it to anything Ive eaten during the day has made its way through and its when Ive got the most energy. As the day goes on I get...
Well I was able to get an appointment yesterday and thankfully was able to talk him into giving me some pred (7day course) so I can at least eat, lost 15 pounds in a little over two weeks. He has...
Is your GI doctor Su?...
Well Monday morning I'm going to call my primary physician and see if I can't get an appointment. I'll see if he can do anything for me and at the same time try to get a referral to a new gi a little...
I appreciate all the advice. I changed jobs to lower stress but in turn it has put my eating schedule all over the place. I'm going to try ensure an see how that works, managed to eat a little bit...
I really haven't eaten anything on my last two days off. Just haven't felt good. I have to work tonight and right now just don't have any strength. What do you guys do to help build or keep up your...
Hi everyone. It's been a while since I've been on here I but I've always gotten help on here.I changed jbs back in Jan of this year and for the most part I,ve been symptom free. I stopped tysabri...
I recently started to flare again. I notice it every so often. For me it's been up high near my shoulder....
This may help http://www.bd.com/us/diabetes/page.aspx?cat=7002&id=10284 ...
Just thought I'd pop back in and see how everyones doing. I've been away for a while and so has my crohns so to speak. My mother was recently diagnosed so I told her about all the help she can find...
A little late but maybe I can still shed some light from my experience. I've been on tysabri for 1 1/2 years for crohns. It has helped me out greatly. One of the big things about being on tyabri was...
Sorry it's been a while since I've been on....all good with me but I thought you might find this interesting....
First off Ellano, welcome to the forums, you should be able to find a ton of information here. I had a similar form of treatment the ended with me on Humira. My GI wanted to try a couple different...
I have been going to the Cleveland Clinic for about two years now and I have nothing but good things to say. When my former gi ran out of options he referred me to them and I have never been better....
http://consumerist.com/5283788/congress-considers-partially-removing-tax-exemption-on-employer-provided-health-benefits Hoping you guys can help me out on this. From what I read it means that the...
I have also been on tysabri for 14 months. I have nothing bad to say about it other than it was scary to think of the possible side effects. Nothing I tried before tysabri allowed me to get off...
Great to me is how I felt before I got sick. I have been lucky enough on tysabri that I can eat whatever I want. Since being on tysabri I have only been reality checked once and reminded that I have...
I have to agree, although I noticed an improvement in around 3 weeks. I have been on it for 12months and I fell great...
Kaycie, sorry to hear about everything that has gone on but I hope that tysabri gets you the same result as the few of us on hear have. My thoughts are with you....
Well I had a horrible reality check this evening. I had been fighting with the insurance company for the last two months to get my tysabri re approved. That being said I missed two infusions. Today I...