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Sugarmarie

HealingWell Forum
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Member Profile
Display Name
Sugarmarie
Profile Created
7/6/2003 9:11 AM
Last Seen
12/20/2017 4:34 PM
Total Posts
1267

Last 50 Posts

OSTOMY SUPPLIES SUCK !!!!

No they don't . You just have to find what works for you . It takes trail and error . Is your stoma flat or inverted ? If so then you need Convex wafers . Please describe your stoma so we can help...

12/20/2017 8:00 AM

Ostomies
Diarrhea

Lettuce ? No way . I would stay off of raw veggies. Cook them well for now. It takes months to heal a operated gut . You might have Pouchitis...

12/20/2017 7:57 AM

Ostomies
Please Help: Am I missing Something?

Yes I think you are at the stage where an Ileostomy will greatly improve your situation . You got 20 years from that pouch , that's amazing. Go for it after a few months you will question yourself...

12/11/2017 6:08 PM

Ostomies
Skin Barriers, new to all this

Dinkley, I have never heard of the running hot theory. Usually that would help things to stick . Once you get the Brava Protective seal/ rings I think you will see a big difference in the " melting "...

12/9/2017 7:12 PM

Ostomies
green liquid stool ??

Stella , Relax it's going to take time for his bowels to get to normal. Everything has to be re- trainned . Just eat tiny meals often . You can even put stuff in the blender . It took me two months...

12/5/2017 8:31 PM

Ostomies
Hard Lumps Passing Through Stoma

If you just had a CAT scan maybe that will show if you have a gaulbladder or not ....

12/5/2017 8:14 PM

Ostomies
Skin Barriers, new to all this

Dinkley , I found this info . Granulomas are a type of skin problem that can develop around a stoma. In many cases, these raised, red bumps develop because the ostomy bag is not properly fitted or...

12/5/2017 12:14 AM

Ostomies
Skin Barriers, new to all this

Dinkley , If you use Convex wafer order the thin ring not the 4.2 can't remember the thickness but there are only 2 available so not 4.2 thick get thin one . Use this trick . Instead of trying to...

12/4/2017 11:56 PM

Ostomies
Skin Barriers, new to all this

Use the new Brava Protective seal / rings they don't swell much at all. I use the 4.2 mil thick. Then pick a seal closest to your stoma size. For example I order the 18 and I stretch it to fit my 22...

12/4/2017 11:51 AM

Ostomies
I'm going for IT

Go for it best thing I ever did . My baggie gave me my life back . Not chained to a toilet anymore form CD. I am happy again ....

12/4/2017 9:48 AM

Ostomies
Tough night

Sounds like Pouchitis to me . You need some Flagyl . Google it ....

12/1/2017 8:54 PM

Ostomies
Colon and Rectum removal - need to talk to someone

I have Crohns still have rectum my entire Colon was removed . I have an Ileostomy. 65 is young you speak of him like an old man . He is still very young and this surgery is not bad . Do your homework...

11/14/2017 4:23 PM

Ostomies
Colon and Rectum removal - need to talk to someone

Acctually a Ostomy is not the " unthinkable " it's a life saver for many . For me it not only changed my life it gave me a better life back. Sure no one goes around wanting one . But in the end its...

11/14/2017 2:00 PM

Ostomies
Painful bottom, worse than just butt burn

https://www.amazon.com/dp/B00AN2FYHY/ref=asc_df_B00AN2FYHY5263968/?tag=hyprod-20&creative=394997&creativeASIN=B00AN2FYHY&linkCode=df0&hvadid=222320517270&hvpos=1o5&hvnetw=g&hvrand=2449371644313695977&...

11/13/2017 8:47 PM

Ostomies
Poop on Stoma

What kind of place is she in . Once a month is disgusting. Doesn't her insurance cover her supplies ?. Most do. If not can you buy her supplies for her to have . Me I would get her out of a place...

11/13/2017 8:34 PM

Ostomies
Successful surgery today!

When my staples started doing that it meant I was opening up . After three weeks when doc took out staples I had open wound in half of my incesion . Had to have it packed daily by would nurse . She...

11/11/2017 2:00 PM

Ostomies
Jpouch vs bag struggle

I believe the first step is a Temp Loop Ileostomy.They are natoriously problematic and tend to leak because it's hard to fit a wafer on properly . So if you decide to stay with a bag then your stoma...

11/8/2017 11:33 PM

Ostomies
Successful surgery today!

Did you have Laproscopic ? I heard the gas pain is horrible. The body has to also absorb the gas they pump you up with . Beside the gas your bowels are making . It just takes time . Sorry ....

11/5/2017 11:31 PM

Ostomies
Successful surgery today!

So glad all went well . Just AWESOME 👏. NOW you have to start a name your J Pouch thread . ( giggles) 😝😝😝😝😝...

11/3/2017 6:56 PM

Ostomies
Partners Depressed 6weeks after temporary stoma operation

It going to take at least 2-3 months before he starts turning the corner then by six months he will start to feel better almost forget he has a bag . Then by 1 year his bowel will finally be healed ....

11/3/2017 6:52 PM

Ostomies
Could air filling the ostomy bag be a sign that the bag is too tight?

It's just air . Take the small circle measurement and trace it onto wafer . Then cut between the small measurement and the next larger one . It's a easy way to custom cut when you are in between...

10/27/2017 8:43 AM

Ostomies
Thick output with new ileostomy

I love the Ostomy Secrets undies . They have a built in pouch that supports bag . I like the cotton ones ....

10/24/2017 4:51 PM

Ostomies
Convatec vs other brands

Try adding an Ekin seal . It's like a gasket around your stoma ....

10/24/2017 4:47 PM

Ostomies
Name of your stoma?

My ileo is named Bubbles . Cause she makes cute bubble sounds . I love her . She saved my life ....

10/23/2017 5:48 PM

Ostomies
Any suggestions for my mom? Help needed.

She can take liquid Imodium ask her doctor about it ....

10/13/2017 7:47 PM

Ostomies
Ten years post total colectom

Glad you are happy with your surgery and doing better . So do you have an Ileostomy ? Thanks for the update ....

3/9/2017 7:14 AM

Ostomies
How can I rest my bowel? Diet suggestions?

Studies show that the BRAT diet is outdated and not really used anymore . I usually make a very simple soup of chicken thighs ( no skin ) water , salt and 1 table spoon of olive or coconut oil .Boil...

3/7/2017 6:17 AM

Crohn's Disease
Upper abdominal pain has come back

Wow so sorry I hear it's terriblely painful. Would cold compresses help ? Feel better soon ....

3/6/2017 6:38 PM

Crohn's Disease
Fistula post-proctocolectomy

Yeah I was originally diagnosed with UC then changed to Crohns . Seems to be pretty common . One doc even told me I have both . Sigh :(...

3/6/2017 8:40 AM

Crohn's Disease
HELP!!!

PLEASE taper slowly do not rush it or you will suffer horrible effects . Be patient and find a doctor to guide you properly . The weight will come off but going off Predict too fast will put you in...

3/6/2017 8:34 AM

Crohn's Disease
Pale stools

Bile will cause pale stool....

3/5/2017 1:16 PM

Crohn's Disease
Biologics List

Why are you taking so much Miralax ? Its a strong laxative ....

3/5/2017 1:14 PM

Crohn's Disease
Post-op recovery (permanent ileostomy/completion proctectomy/jpouch removal)

I don't have an Ostomie ( Yet) but do have Crohns . When my digestion is bad I stick to home made soups and put in blender make smooth . Also rely on shakes made with Kiefer for probiotics . Make...

3/5/2017 7:29 AM

Ostomies
Remember that titanium cup for colectomy?

Great point ! Expanding the bowel like that . No good....

3/2/2017 6:44 PM

Crohn's Disease
Your Humira experience ?

Please tell me about your Humira experience . Doc wants me to start it . Thanks gang . :wink:...

3/2/2017 6:23 AM

Crohn's Disease
Ileostomy Pressure feeling!

I hear drinking lots of water helps things move better less painful ....

2/28/2017 7:37 PM

Crohn's Disease
Abscess/Fistula EUA Surgery ~ what to expect?

Let us know how you do tmro. Good luck and feel better ....

2/21/2017 8:54 PM

Crohn's Disease
Abscess/Fistula EUA Surgery ~ what to expect?

Abscesses and possible fistula are common in Crohns...

2/20/2017 6:30 PM

Crohn's Disease
What more can I do?

You may need b-12 shots they make a huge difference energy wise . Our diseased bowels do not allow us to absorb b-12 from foods . Meanwhile get a b-12 vitamin that is sublingual at least 5,000 high...

2/20/2017 5:28 PM

Ostomies
Fed Up- looking at getting an ostomy

I agree a 6 yr old colonoscopy is not valid for diagnosis TODAY you need a new one done ASAP...

2/20/2017 4:45 PM

Ostomies
Diagnosing Crohn's

Your sever hip pain should be checked for Ankylosing Spondylitis . X-rays of hips and spine first then blood test should be done ....

2/20/2017 4:22 PM

Crohn's Disease
Abscess/Fistula EUA Surgery ~ what to expect?

How do you know it's not Crohns ? You need a full colonoscopy ....

2/20/2017 4:19 PM

Crohn's Disease
My weight-lifting ostomates, can you share your routine?

See if this guy has a work out plan http://www.dailymail.co.uk/health/article-2710549/Bodybuilder-forced-career-devastating-bowel-disease-fitness-model-colostomy-bag.html...

2/19/2017 7:40 PM

Ostomies
Fed Up- looking at getting an ostomy

Have you been tested for Celiac disease ....

2/19/2017 1:48 PM

Ostomies
How likely is this to be pancreatitis out of ten, folks?

Could it be Gallbladder ? I know its wrong side but shoulder pain can be Gallbladder ....

2/19/2017 1:43 PM

Crohn's Disease
Diagnostics for crohns

Colonoscopy is a great test to find out...

2/19/2017 1:39 PM

Crohn's Disease
Crohn's and Social Security Disability?

I think at your age and medical history you should do fine . The younger the harder . I got it in my very late 40's . My attorney said they figure they will roll you over to Medicare within a few...

2/19/2017 1:26 PM

Crohn's Disease
So frustrated - chronic perianal abscess

Welcome to the club . Wow can not believe you have never had a colonoscopy . You need to be under the care of a Gastroenterologist . I would go nuts having had so many . You are one tuff cookie. Keep...

2/18/2017 5:03 PM

Crohn's Disease
Fed Up- looking at getting an ostomy

For sure go to a big city for surgery get the best doc you can you only have one first shot at this . Get the BEST . I am in USA so not sure if your GI has to refer you to surgeon over there...

2/18/2017 2:24 PM

Ostomies
What more can I do?

Thank you, for the Whey protein isolate tip, can it be bought at GN or Vita Health Stores? It doesn't have artificial sweeteners does it? Is it totally bland to taste? I would prefer to add a little...

2/18/2017 2:16 PM

Ostomies
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