I have about 22 sample bottles of Entocort that I am no longer in need of. My doc gave them to me when I was on it for help, which was super nice of her, but I am no longer on it and don't think I...
i totally wish i could help you out! i haven't been on remicade so i don't know what the symptoms are like. however, i have had major joint pain. to the point of me crying and not being able to move....
I know exactly what you're going through. I was diagnosed with CD right when I turned 19...conviniently the same time I was dropped from my parent's insurance...because of my age. Now, no insuance...
my hair is totally falling out. it has gotten a little better, but it's been falling out for about a month now. i was told to use the strongest kind of nioxin. that's what i have been doing. my hair...
im on the makers diet and it says to cook everything w/cocanut oil. : )...
The Maker's Diet is great. I was very skeptical at first, but it's been helping alot. I have never had a problem w/consistant diareah. The only time I have D is when I eat something bad. It hasn't...
I totally had irritations on the corners of my mouth. It was almost like chapped lips..but not neccesarily on the lips..more of the corners. My dentist was actually the one whole informed me that it...
I want to know about alternative therapies as well! I am thinking about going to an acupunturist really soon. Let me know if you hear of anything or have any luck w/anything and I'll do the same....
Thanks,...
I had super bad problems with Entocort as well. Joint pain in my knees, ankles and in my lower back. There were a few days where all I could do was curl up in a ball and cry till it went away. I...
I just started on the Maker's Diet almost two weeks ago. For me, it seems to be working. I don't believe it will cure me, although that sure would be neat, I believe it will help control the disease....
you should totally find a new doctor!...
i have three fissures. and the pain sucks. mine isn't quite as bad as yours. when i was on my medication (entocort and cipro) the pain down there instantly went away. as soon as i stopped taking...
i'll keep your family in my prayers. good luck and keep us posted! m....
so sorry to hear your in a lot of pain. i totally feel you. im going to get a second opinion from what i think is a better doctor. specializes in crohns. he is more on the holistic side of things....
Before I got diagnosed, I went to a surgon to look at my fissures. I have three in 'odd places.' They are quite painful when I use the bathroom. Most of my pain is from my fissures. When I have a...
I just found out mine is located in the terminal ileum, right colon and perianal. I've heard most people have it in the ti...anyone in the right colon or perianal? Thanks,...
Doctor Mom, My GI, who is a Crohn's specialist as well thinks I'm crazy for stopping my medication and going on the natural route. She thinks I need to be on 6MP as well. Good luck to your son! m....
i have pain before bms...all the time. sometimes its to the point where i have to lie on the floor because it hurts so bad. luckily it doesnt last that long!...
thats neat!...
I'm medication free..but that is because I chose to be. My doc wants me on 6MP but I don't want to go on a heavy medication. So I just stopped taking my meds and am currently on the Maker's Diet. I...
I have not tried the SCD however I am just now trying the Maker's Diet. I just started so I can't tell you if it has been working for me however I have heard some really good things about it. The guy...
Hello all, I'm still new on here and don't post much. I love reading everyone's posts though. Helps alot. So I just got back from my doctors. I've been taking Entocort and Cipro for about 7 months. I...
When I was first diagnosed, my doctor put me on Entocort. I was on it for about 6 months or so and just now got off it. I got bad side effects...bad acne, moon face, a little weight gain (not too...
pb4, perianal crohns skin tags...what are those? sounds like something i have but im not sure.... thanks, m....
I'm on the same boat. Would love to know more about surgeries and operations. It may be a possibility in the future for me. What are some symptoms of a complication that will end up in surgery? m....
MissCris, I totally know how you feel. CD can be very frustrating at times. And I know EXACTLY how you feel about all this medication. I HATE medication. Ever since I can remember, I used to HATE...
I have mouth sores all the time! Have had them since 12 or so. I think it's def related to CD....
I don't have any health insurance. I was dropped from my parents when I turned 19 in January. Unfortunatly for me, that is when I was diagnosed w/Crohns. So now that I have a pre-existing condition,...
Princesa, Where can I find more about Custom Probiotics or Natren? Thanks for all your help!! m....
thanks much! i'll ask my doctor about it. she just told me it was because i needed more iron. but im not anemic. ugh...doctors. m....
I have a B12 deficiency. My dentist actually informed me. The ends of my mouth gets really dry and chapped. I take a B12 supplement. m....
I'm just about to start the Maker's Diet and I'm wondering which probiotics to go on...Or which pills off of Garden of Life to choose. There are so many and I don't know what the differences are....
My doctor keeps insisting I take 6MP but I'm totally hesitating. I'm interested in seeing these questions answered by those who have expirience w/the drug. There are local CCFA meetings?! Wonder if...
about a week ago, I started noticing that I'm losing my hair! Lots of it! Everytime I run my hand through my hair I get a ton that falls out! I'm not on any medication now except for Cipro. I just...
Thank you all very much. I'll let you know how things go once I start the supplements you all recommended....
Hello All... I'm new to the forum. I just wanted to ask if anyone has found any kind of diet or natural medicine that has worked w/relieving any CD symptoms. I have heard of the Maker's Diet and am...
Sorry to hear about your situation. You never had symptoms before you wound up in the hospital? Strange.. As far as dealing w/people freaking out about the size of the portions you eat...it sucks....
My name is Maya and I was just diagnosed w/CD in January 07. I believe I've had symptoms since I was 12. I'm 19 now. My doctor has me on Cipro and Entocort. The Entocort is giving me really terrible...