Hi Vicky (and everyone), Sorry I haven't been posting, still read sometimes, but just haven't felt up to it. I hope you're feeling better, and hope you do well with the Humira. I'm back on 6MP for...
Hi Vicky, Still feeling about the same. It took a long time to get here so I'm sure it will take a while to find my way back. How are you doing? Have you been able to start the Humira yet? Are you...
Vicky, When you call to ask about your sinus thing, ask them if you can go into the office for your loading dose so you'll feel safer. If not, at least make sure you do it when someone's at home with...
Pain is a symptom of the disease. Using pain meds, while giving you the ability to cope, does not reduce inflammation or the disease process. You should be under a GI's care and on medications of...
I just started counseling, so couldn't say yet. She's not a specialist for chronic illness, but was recommended by a friend. Not sure I'll stick with her, but it was a good place to start. More...
Vicky, I've just started counseling again as I still can't snap out of this funk I've been in since my last flare started. Having my doctor look me in the face and tell me how serious my disease is,...
Hey Vicky, Did you take the 1/2 dose the first week while still smoking? The next week you take the full dose and quit the smoking. The thing to remember is that if you cheat, have a cigarette or 2,...
Princess, My doctors didn't believe me either until I made them do the Infliximab test and saw a specialist in LA that has done research on Remicade. He told me it was a classic case of serum...
Make your doctor do the Prometheus Infliximab (Remicade) HACA test. It will tell you if you've built antibodies, joint pain is one of the many symptoms. I never had joint pain until I went on...
Yes, you can prolong the surgery, but it can be dangerous. This decision has to be personal, depending on your disease and your history. For me, we've prolonged it each time, but probably too long as...
I would go to the Mayo Clinic in the Scottsdale/Phoenix area. Even if it's for a second opinion at this point and then ask for a referral for a GI in her area....
It's certainly worth trying some of the other meds out there, especially if you don't have much in the way of pain or if you haven't had any obstructive episodes. A good surgeon, depending on how bad...
Sorry to hear it. I was in the exact position. I ended up having to have surgery because my doctors couldn't agree on how to treat me after that, my disease got out of control fast. At least your...
Your adhesion strictures are probably causing an obstruction which causes the pain and bloat (which is also probably why you have the fistula). Does your doctor know you're still having these...
I quit with the Chantix this time around as the Wellbutrin made my blood pressure rise (it never did that before, getting old sucks, lol). Anyway, I only took 2 weeks of the Chantix (which is very...
You can get all kinds of aches and pains while you're still healing. Just keep an eye on things, if it gets worse or doesn't go away then a call to your surgeon is in order. Do you have a nurse...
Fixxer, I know it's hard, but you CAN quit again. I quit many times in the past, hopefully this is it for me, it's been 8 months. I know I can't ever have "just one" cigarette, and I struggle with it...
We eat at an Italian restaurant once in a while that is delicious, but I think it's because they add about a pound of butter to all the sauces, lol. I know when I eat it I'm emptying my pouch all...
What about something like a Convatec DuoDerm? It would help heal the wound, cover it, and your flange would stick to it. I know I had a patient years ago who had a wound under his flange and he used...
Wow Habs, you are one great employee, I hope your boss realizes this. My motto is "poor planning on your part does not make for an emergency on my part". Im not as nice as you, and I've also been out...
lol, I just took my 6mp and prednisone, terrible taste in my mouth. Maybe next time I'll take them with a couple M&M's....
So glad you're home. Hope the Humira works for you. Keep us updated as you feel up to it....
Thanks Habs, I'll talk to her and try to figure out how much she knows about this disease and the other issues I'm having. I'll wait and see what she says and/or offers....
If you look it up, the urge to swallow is sometimes attributed to tonsilitis, but I'm not sure that would have anything to do with your son or putting food into his mouth, however I know some people...
Have you used one, or do you know one? I'm really curious, not sure how they can help me....
They don't know what the rash is so they sent you home? Nice. I hope you get some answers at the dermatologists. Keep us updated....
I hope you're right ;0) I'm not sure what to expect. I've only heard of case managers for certain hospitals or clinics, not for insurance, I guess I'll find out tomorrow when she calls....
What is the surgery for? Removing part of a diseased intestine? An Abscess? There's lots of meds, but only you and your doctor can make this decision depending on how serious your disease is and...
Does anyone use one? I had a call last week from a nurse that says she's a case manager from my insurance company. She didn't say why she was calling, but I guess that's obvious. I called her back...
You can have pain right after you start eating because just smelling and/or chewing can start the digestive process. That means your intestines are moving around (peristalsis), and it may be painful...
Let us know what they say. The prednisone and 6mp should help prevent a reaction like that, but I guess it's not impossible. Have you ever had the chicken pox?...
Bsime, Wondering what your problems were with the Imuran. I'm trying to figure out my latest round of joint pains and I swear it's related to the 6MP (sister drug to Imuran). My Rheumy is having me...
Anyone here from Vicky yet? Just thinking about her....
Good luck, and be careful driving. Let us know what happens....
There is no set limit. A flare is just another name for having symptoms of active disease. If you don't or can't get it under control it can last for years. If you're able to get it under control it...
Yes, it's possible, you could also have viral pneumonia that the antibiotics won't touch. I would go get a chest x-ray, it could turn out to be bronchitis or something you need a different antibiotic...
You said you were on Remicade in a previous post, how long have you been on it? If they feel the Remicade can still work for you, they may give you steroids for a short time to get you through this....
Yes it's possible to get a blockage or any of the usual symptoms of this disease while on Remicade, or any drug for that matter. Sometimes they just don't work for some people, or sometimes they work...
Okay, now that I've read the old posts, there were a few of you that had just started taking Cymbalta. I was wondering if any of you are still around and if you could tell me how it's working for...
Thanks Shy, sometimes it's hard to find things with the search on this forum....
I'm looking for info on Cymbalta, have just started it. Can someone tell me what the name of the old thread was? My doctor told me Cymbalta will help me lose weight, I sure don't need to gain any...
Have you tried dark chocolate? I don't tolerate milk chocolate, but dark chocolate seems to be fine in small amounts....
Doesn't the production of ketones also realease endorphins? You should be feeling wonderful right now, lol. Seriously, I hope you get over this slump, dehydration is nothing to mess with. Let us know...
2 Kids, 27 and 29, no sign of IBD, but boy I sweated out every tummy ache when they were kids....
Wow, glad you went to the ER, things could have been ugly. Do you know if the Gastritis and infection are related at all to the CD? Hope you're feeling better now....
I think the pain meds take the edge off, never truly get rid of the pain. They make it manageable so you can have some semblance of a life....
I'll be thinking of you, hope the meds help....
Why don't you try the Imuran for six months, and maybe it will work on its own? Personally, I know lots of people on here have been on the biologics without being on an immunosuppressant, but with...
I'm so sorry about the lack of coverage from the VA. Also, all VA's are not created equal. Where are you located? My father-in-law was treated here in San Diego at the VA, and I have nothing but...
I don't know anything about agent orange and crohns, but where is your husband getting treatment? 10 years is a long time to be on Prednisone (which I'm sure you're aware of), have they tried other...