I have been having problems with a sore throat and ulcers and swollen tonsils and glands in my mouth for about 3 months. Many tests and cultures and ct and ultrasounds later there are still no...
Thanks to all. Some days just worse than others and I was having a good ole pity party last night. I do feel better today!...
Omg! You don't know how right on the money your reply is! That is one of my favorite sayings. I told this to my aunt one day and she found a bookmark in a library book the very next day that had that...
unfortunately my exercise consists of running to the bathroom 20x a day, does that count? :)...
I went from remi to humira no problem. Didn't do so well with the remi. Stayed on humira for 6 years and now switched to cimzia after I lost effectivness with the humira. Def like the convenience of...
I recently got the calmoseptine from my doc. Gave me some samples. First use was kinda weird as it has menthol in it but after that initial strangeness I found that it stays on longer than the other...
In addition to what everyone else said, FAMILY SUPPORT has got to be the number 1 best medication out there. Without it this disease can get the better of you emotionally. Stay by her side and always...
Just need to vent. I have been feeling so at a loss these last few months. It is such a struggle to get out of bed or put a smile on my face or even care. I am so tired of feeling like crap. Have had...
I have been on Humira for 5 years and had a fistula that has been operated on 3 times and still has not healed all the way. It just depends on the person and where the fistula is at. Every one is...
Amazing...My mom is in the migratory path also of alot of birds, not just hummingbirds. I have some pics I took at her house. Not as stunning as those in that video but beautiful non the less. Her...
I was told I am not allowed to donate. I had once a long time ago and felt TERRIBLE for weeks afterward so no more for me. Sorry :(...
Thank You!...
You are my new hero. There is nothing worse than being on the receiving end of that kind of crap. It is so liberating to just let it all out and give them a taste of what they have been dishing....
BTW, did to to hystersisters.com and found wonderful information and a wonderful group of women in my same boat. Definitely feel much more confident....
I just want to be pain free or at least less pain. Honestly if this procedure lessens half my pain I would be estatic. And if it makes it easier in the bedroom even if reduced sensation I would be...
Lots to think about. They will be trying to do the daVinci method for my surgery which will be 5 small incisions with a "robotic" device controlled by the doctor but if my scar tissue becomes a...
My dad broke out in rash all over his body after his was done....
I had my baby (she's 9 now OMG) and do not plan anymore. Already had my tubes tied years ago. I have been fearing the consequences of ovaries/no ovaries. I have my pre op next week and will discuss...
I have had so many female issues most my life and recently have been getting steadily worse. I finally decided to talk to a doctor about how bad it is and how much it affects my CD and makes life...
Thanks Vicki. Just more annoyed with it than anything. Just gets frustrating when one thing after another goes wrong. I was just getting better and healing well after a seton before Christmas and now...
Does anyone else get chronic pain in their tailbone for no apparent reason? I have been having this for the last few weeks coupled with frequent migraines. There seems to be no reason (injury) for it...
I just had a partial obstruction the day after Xmas. I still had very watery D but terrible pain in the lower right abdomen and sick to my stomach. Spent 36 hours in the hospital before it passed on...
I know just what you mean. You don't always look sick and it can be literally minutes between feeling fine and feeling crappy. I do get the guilt especially with my daughter. "Sorry, mommy can't...
I had a seton placed almost 3 weeks ago. It was extremely painful but I found that epsom salt sits baths 2-3 times a day were very helpful. I now have minimal pain-mostly with sudden movements- and...
I get super fatigued and nauseous when I get hot and my joints start hurting badly. Everyone gets very frustrated when in the summer I opt out of alot of actvities based on the heat and if they are...
I had a fissure in the same area. If I sat just right or wiped after a bowel movent just right it would split back open. I started using wet wipes to start and then used a dibucane ointment that is...
I had a similar horrible experience with a doctor recently. I sent a 2 page nasty letter to the doctors office. I made 1 final visit to that doctor to tie things up and was horrified to see my letter...
I had just 1/2 my thyroid removed. The nodule was quite large and when they got in there they found it to have grown down into my chest cavity to about the size of a grapefruit. No cancer. I was...
I have been on humira now for a few years and I think it is petering out. I have started having really bad joint pain in my toes, ankles, knees, hips, elbows, wrists and fingers. Also I have a recto...
It has been awhile since I was on but surgery is done, went great and I am healing well. The scar is red but looks pretty darn good. They did freeze biopsies right in the operating room to double...
My liver functions were up/down and all over and I was dx with primary sclerrosing (sp?) cholangitis. It tends to flare with my crohn's flares and right now is pretty under control....
Makes so much sense...Just a sugar coated way of saying what we already knew!...
Thank you...does anyone have advice, stories etc on recovery, scars etc?...
Good news! My tests came back negative for cancer. I had prepared myself and felt confident that if it was malignent (sp?) that it would be fine and all that I read said it would be pretty easy to...
Had nuclear scan few months ago. Finally tog to see my doc this week. My lump is huge! She did needle biopsy and sonograhm and now waiting for results. She thinks possible cancer at this point and...
I have been on Humira for 2 years now and really like it. Ok so the injection is uncomfortable for about 10 seconds but other than that no problems. I do seem to get tired from it and sometimes have...
I get it weekly and have not noticed any reduction in effectivness on the last 2 doses of the month. My insurance put up a big fight and it took a couple weeks for the approval to go thru but...
I use sunny delight, small smoothie blender and a straw the make it drinkable. The combo of the 3 and it is quite tolerable....
My aunt has decided to run in the Vegas 1/2 marathon in my honor to raise money for Crohn's research!! I am so honored to have someone willing to go to such great lengths to support me. Check out her...
My doc put me on questran for my d and after finding the best way to choke it down I am happy to say that I have had "normal" poo's again. (for the most part, some d breakthrough). I went from 7-20...
I have had 1 birth with epidural after couldn't bear it anymore and I found that cd pain is worse purely because birth has an end in sight and cd you never know. I also have had kidney stones (while...
I got upped to 1x per week a couple months ago. I was told that once that became ineffective I would have to switch to a different medication. I was told the life of humira in a person before it...
I was diagnosed 6 years ago but probably had it 10 years prior to that and I have found that may friends quietly go away. I have my couple that stick near by and really care and help alot and the...
Thanks for the replies, feel much better. Found out thay my aunt has cysts that she gets periodically on her thyroid and she is doing great. Good to know that these things don't have to be urgent!...
I have been having trouble with my thyroid being enlarged for a couple years now. Had all the different bloodwork done by multiple doctors and everything always came back in normal range. My last...
I had one while pregnant that was lodged just outside of the kidney. Could't remove due to baby and so had to have stent put in and wait 4 months for delivery before getting it blasted out. I think I...
I have my days. Some where nothing gets done but holding down the couch. other times when I am feeling good I tend to do too much and regret it. I do work full time and have a 6 year old and we just...
My first couple months I had small quarter sized red rash around injection that went away after 2-3 days. But now nothing. I have notice however a few psoriasis spots on my arms and head recently...
Thanks for your replies. I didn't realize you had to be off work for so long before qualifying. Kind of put you in a pickle if you are trying to avoid a gap. I do not hope that I will ever get so bad...
I just wondered how hard/easy it was to get social security with this disease. I am still able to work full time right now but sometimes feel so much pressure to cope and "suck it up" as my boss says...