Thanks everyone Ides - it's less of the nasty tasting stuff but equal amount of liquid. And it's as heinous as the lemon-lime golytely that I had the 1st time. *shudder* Only 1.5 liters to go :)...
Hey everyone Well, I'm going in Friday for my 1st colonoscopy in 6 years. I've had 2, but back when I was getting diagnosed. My Crohn's typically isn't in my colon, but my GI wants to check around...
Yep, I get this. Actually long before I was diagnosed I'd go through periods where I could only eat a few bites. I'd be hungry, but then it'd be over really quickly. I'd lose 10-15 lbs during these....
Stories like this were one of the main motivators for the line of research I'm doing....
Thanks Lovepink! I do publish my studies in gastroenterology journals. I hope the docs read them too :) Thanks Randy, though I think you're going to skew my "# of surgeries" average...
This by far is my worst symptom. I can sleep 16 hours a day if you let me :)...
Hi gumby I checked the survey and it seems to be working. It may be that you didn't check off all the questions and it is prompting you to answer all the items. The warning for that isn't all that...
Thanks very much for your help with this! I'm about half way to my online recruitment goal. I appreciate everyone's input and support with this....
Hi Kaycie, Has your doctor tried using pre-treatment with prednisone and benedryl, similar to what they do with Remicade? I had a reaction, though not nearly as severe as yours, and we went this...
*bump* I'm about half way to my goal for online participants. Thanks eveyone who has helped so far!...
pb4 - yep still biking, though the winter here slows that down considerably. I've also started running in the past year. I can do about 4 miles now. I totally agree with you about how exercise...
Oh, what a great question tbw :) Because I'm stubborn and thought hey this stuff has been under control for almost a year now, why not see if I can go without meds? This was discussed with my doc...
Dang, why didn't I think of baby food?? I've been pureeing a banana with my protein shake and that seems to be ok. How are you doing pb4?...
I get the early morning awakening insomnia when I'm entering a flare up usually. There have been studies that show sleep disturbance is common in IBD. Just another fun part of it apparently....
Hey all Was curious what the deal is with not being able to tolerate any solid foods. In my Crohn's tenure (6 years), I've never not been able to eat anything solid. It usually was narrowed down a...
I typically have a bad day here or there, then have several good ones. Sometimes I can go a few weeks. Unfortunately that's not the case right now :) But I kind of brought that on myself....
Thanks bookworm! I'm here if need be :)...
Thank you Dynamo! I will post them once I've finished, though it will take a while since I'm trying to recruit at least 200 people. Most likely I'll have things in the fall....
Thanks everyone :) Good to see you Ides. Hope things are well for you. Bookworm21 - no, you do not have to provide your email address if you don't want to. I am getting my degree in clinical...
Hey Sno! You certainly are eligible :) Just pick the closest category from the list. Thanks for the pass on being off the map for a while. /community/emoticons/scool.gif ...
Hello... I'm from the Crohn's board, so I don't think I know many of you here in UC-land. about a year ago I asked people here to help me with my dissertation research study looking at social...
Hey everyone! Long time no "see" again. Apparently I like to fall off the face of the Earth on a regular basis. I hope everyone is doing well. There are a lot of new people here I don't know, so...
Yes, I had to pack my wound for a few weeks. Then my surgeon told me to just leave it open to the air to heal quicker....
I have joint pain in my hips and knees that comes on pretty bad sometimes. I have a Rx for celebrex. I only take 1 pill as needed. If I'm going to be exercising (I run or ride a bike) I take one...
I had a fistulotomy (where they just cut the dang thing open). It took a good 6-8 weeks to close. It's kind of barbaric since they just slice it open and say to just let the body close it on its own....
At my last GI appt, we discussed the possibility of my going off Humira next year. He mentioned that some new research data are showing that this is feasible. Humira is my only crohn's med, other...
Thanks Sally!...
My now husband (then boyfriend) helped me change the bandages for my post-fistula surgery "canyon-in-my-butt" gaping wound in the middle of the woods. I was determined to still go on my...
Thanks for the info, inflamed, I'll check out that link. Fitzy - LOL @ the spayed/neutered comment. I was thinking that earlier. sr5599 - thanks for the info about the antibiotics. My concern is PID...
Hi there I'm having a conundrum. Long story short, I've been on BCP's for 14 years (since I was 18) and they have all but killed my sex drive. Grant it I have a RVF, which probably contributes some...
Northwestern does these surgeries as well. I used to sit in on the transplant team meetings and they'd have a handful of small bowel transplants on the list. Certainly were dwarfed by the liver...
Ah, the MMPI. There's a reason for the repetition, but yes it's quite tedious. I've done quite a few MMPI administrations, including the adolescent version. My first year of clinical work was doing...
Hey Ivy Good questions and observations. I guess first, the goal of research is to take a representative sample of people and apply what you find to the larger population. So, if I want to understand...
I went through about 10 tests (2 colonoscopies, 2 CT scans, 3 SBFTs, 1 wbc scan, 1 schilling test to test B12 absorption, 1 prometheus IBD panel which was positive but for UC, and a few others I'm...
I'm biased since I'm getting my doctorate in clinical health psychologist, and work with people with chronic illness :) Yes, it can help. I've seen many people with chronic GI problems over the past...
Hi Pibbin I've been on Humira 2.5 years at varying #'s of shots per week (most I had to do was 2 per week for about 2 months). I'm still on the syringe primarily because I can control how slow I...
NP Ivy. I'll be doing a lot of work in this area since it's pretty neglected. I'll let everyone know when I know :) Matthew - I do remember that. And yes, there certainly are docs out there that hold...
MMMMNavy, thanks for your interest :) I'm looking to get it published soon. It won't be the whole thing obviously. Once it's done it does get bound and put on a shelf in my school's library :-P I...
Here are some excerpts from my dissertation on the IBD personality. This is my original writing, so it's not copying and pasting from any source. Since my dissertation was on stigma in IBD, this was...
Yep, I'm in that club. I've had 3 fistulas and get external CD fissure and inflammation. It's awesome. :) 1 fistula required surgery, 1 closed on its own, and 1 is a recto-vaginal fistula that...
GURU - do you have access to a therapist/psychologist? I realize mental health care in China may be different than the U.S. But, the best treatment for anxiety is not medication but therapy. Meds can...
Thanks for posting this C2. This stuff is certainly gaining a lot of attention in the GI community. I'd suspect much more will be coming, especially from the bigger medical centers. Kasper - I'm...
Both CD and the steroids we take can affect bones. I have osteopenia in my hips but haven't had any symptoms like you describe. When they found that, I was never on long term pred or entocort, so in...
Just an FYI, there's an entire branch of psychology called "clinical health psychology" who are psychologists who specialize in working with people with chronic illness (among other things). So if...
Hey Matthew - ok...I'll give you that. But when I'm "intense" I'm doing 65 milers a lot more often to train for the Iowa ride. This was the first one I did all summer. I'm also insane. :-P For the...
Hey Matthew - yep, I fell back onto the face of the Earth. At least for now. :) Glad to see you're back to biking. I'm not as intense with it this year, though I'm heading out to do a 65 miler today...
Yes, you can have EOS disease and IBD. They are two distinct diseases, but similar in symptoms. Elevated eosinophils are not an indicator of IBD, but of the diagnosis they've given you son. EOS is...
There's actually a line of research that looked into this back between like 1930 and 1970 or so. I wrote about it in my dissertation :) Even recently, research still gets published - but not much....
Yeah, I forgot about the vaccine. Thanks for mentioning that. I'm too old to get it unfortunately. I wonder why they cut it off at 26.......
Good point Yogi. Habs - good to see you and that you're doing well. The cookie monster rocks. Did you happen to see him on the Colbert Report the other night? (If you watch the Colbert Report that is)...