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cbk

HealingWell Forum
>
Member Profile
Display Name
cbk
Profile Created
4/4/2007 6:16 PM
Last Seen
2/28/2010 4:41 PM
Total Posts
134

Last 50 Posts

Boosting immune system?

Just a clarification about the newer research dispelling if we have "overactive" immune systems....these studies are not indicating that our systems are underactive, but more so that they are not...

2/28/2010 11:57 AM

Crohn's Disease
Urinary Complications from Crohn's Disease

Several times, usually during Crohn's flares or when sick with the flu, I've had hematuria. Over the past year, I've also had more issues with needing to go to the bathroom more frequently even if my...

2/28/2010 11:50 AM

Crohn's Disease
I can't have Remicade, Humira or Cemzia because of the *RARE* side effects of all 3

I also can't take the TNF blockers. That 95% chance of not regaining your motor function is a load of crap, excuse my language. I regained function in my legs again. What happened to be is that my...

12/28/2009 4:33 AM

Crohn's Disease
Methotrexate injections

My personal opinion, just get the surgery. The amount of days you will need to recooperate will be less than the amount of days you will periodically take off because you'll flare. Assuming you won't...

12/28/2009 4:30 AM

Crohn's Disease
Question about doing injections...

i do them in my thigh area, i'm not coordinated enough to do the arm. this happened only once. how do you like mtx? how long have you been on it?...

12/27/2009 6:13 PM

Crohn's Disease
Question about doing injections...

I sometimes get what they call "Crohn's arthritis", but the MTX keeps that in check. MTX is used for Crohn's when other drugs aren't effective anymore. I didn't have a temporary ileostomy. I only...

12/27/2009 5:42 PM

Crohn's Disease
Question about doing injections...

I don't have an ileostomy. The vast majority of surgeries, especially for removal of the ileum, do not require an ileostomy. Cases that might involve removing part of the large intestine or if you're...

12/27/2009 5:32 PM

Crohn's Disease
is my pain from a partial obstruction/strictures?

I thought about a hernia...but it's so unlikely given that I have Crohn's. I can also pinpoint a spot that hurts, I don't think that's noticeable with a hernia. It's always the Crohn's, always. Ha...

12/27/2009 5:26 PM

Crohn's Disease
Question about doing injections...

Hi- Imuran and Pentasa worked well for me for about a year before I additionally needed Remicade. At that point, I dropped the Pentasa. I had surgery a few years ago after the Remicade stopped its...

12/27/2009 5:20 PM

Crohn's Disease
Darned if I Eat Darned if I Don't!

During my first bout of symptoms, the incompetent doctors told me I just had IBS and/or a stomach virus. I call them incompetent because they didn't see anything during the scope. A year later with...

12/27/2009 4:57 PM

Crohn's Disease
is my pain from a partial obstruction/strictures?

Basically, my only symptoms are lower pain on the right side and intermittent diarreah. The pain is constant, and feels a bit like having charlie horse in your abdomen. At times its palpable and I...

12/27/2009 4:51 PM

Crohn's Disease
What should I feed my flaring 12 year old daughter? Desperate Mom!

When I was your daughter's age and was flaring, I used to calm down a little when I ate a motherload of protein (probably because I was also anemic). My recommendation is to just keep it simple, no...

9/22/2009 2:41 PM

Crohn's Disease
Question about doing injections...

After I injected my methotrexate and pulled the needle out, a lot of blood came out. I hit a blood vessel, but didn't realize it until I pulled the needle out. Is this dangerous? I'm afraid the...

9/22/2009 1:55 PM

Crohn's Disease
Possible kidney disease?

Thank you for your responses. There is a history of kidney issues in my family. My dad has kidney stone problems, my mother has cysts (but they didn't diagnose her with a chronic disease), and my...

6/29/2009 11:44 AM

Crohn's Disease
Methotrexate or Tysabri (I have Crohn's and MS)

I don't have MS, but after an incident with Remicade I can't take TNF blockers either. I'm on MTX, and yes I often worry about some of the side effects. But Tysabri is far more...risky. Do the...

6/29/2009 6:09 AM

Crohn's Disease
Possible kidney disease?

Hi everyone, Since I've been diagnosed with Crohn's, several urine tests came back indicating there was blood in my urine. Once I was told it was normal, but yesterday while I was in the hosp for the...

6/29/2009 6:01 AM

Crohn's Disease
how do you feel after methotrexate injections?

Methotrexate is an anti-folate so it is not like 6-MP or Imuran (both of which I tried and eventually they became less effective). Although it is metabolized differently, I would imagine that as an...

2/22/2009 5:00 PM

Crohn's Disease
how do you feel after methotrexate injections?

All Crohn's medications are for SEVERE diseases. I can definately say (from personal experience as well) that MTX is safer than the biologics. MTX has almost zero chance of causing a neurological...

2/22/2009 4:25 PM

Crohn's Disease
how do you feel after methotrexate injections?

Past few injections I've gotten pretty nauseous within two hours and a bad headache the day after. I know people who take the pill form experience these side effects, but I thought the injection form...

2/22/2009 3:45 PM

Crohn's Disease
trouble losing weight?

Oddly enough, I have trouble losing weight with this disease and I'm not on steroids. Does anyone know if immunosuppressants slow down your metabolism? I really am not a huge eater and have problems...

2/18/2009 5:35 PM

Crohn's Disease
sex, relationships and crohns

i feel your pain, i once had a guy point out a few things (one being my scar) during an intimate moment. ive gotten past the wrong guy phase and am now in the no guy phase because im just so insecure...

2/10/2009 3:36 PM

Crohn's Disease
My NEW drug choices now are... (and just feeling defeated).

I agree with spooky about Tsyabri, and I would say the same about Cimzia. I myself am choosing to wait (maybe even a few years) before I opt for those drugs. I also failed Remicade but can't take...

2/5/2009 3:59 AM

Crohn's Disease
Cramps in hands & feet, unable to balance properly

it's the remicade....

1/31/2009 8:44 AM

Crohn's Disease
How many times do you normally have a BM each day?

I'm around 4 or 5 even with medication....

1/26/2009 1:10 PM

Crohn's Disease
what do you take for arthritis

for a while the immunosuppressants have eased my arthritis, but for a few months my shoulder and hand have been in some pain to the point that im not doing things. is tylenol the only option?...

1/25/2009 7:06 PM

Crohn's Disease
Dealing with strictures... Any tips??

This is going to sound weird, but massaging the area actually helps me. I can manipulate the area enough to help things pass through. Just lay flat on your back, breath in, and work it in a circular...

1/23/2009 3:29 PM

Crohn's Disease
Not sure if I had a reaction to Remicade yesterday or anxiety.... Didn't finish the whole treatment.

Do they monitor your BP and temp every 15 minutes? They are supposed to in order to prevent incidents like this......

1/22/2009 7:05 PM

Crohn's Disease
life after resection

I also had Crohn's for roughly four years before my resection. My hospital stay was either three or four days (can't remember exactly), but I had it done laprascopically which shortens the length of...

1/22/2009 1:30 PM

Crohn's Disease
So my doctor says I might have Crohn's...

trust me, ive beaten plenty of colds in my lifetime and actually, i haven't had the flu in a few years. being that you are newly diagnosed, you are not a candidate for stem cell therapies. its also...

1/22/2009 1:22 PM

Crohn's Disease
possibly crohn's in a 2 yr old? any ideas?

just found this...you might want to take a look. http://www.childrenshospital.org/az/Site1662/mainpageS1662P0.html...

1/22/2009 12:51 PM

Crohn's Disease
possibly crohn's in a 2 yr old? any ideas?

the light sensitivity stands out....have they considered lupus or herpes? sounds bizzare, but sometimes people (usually young children or the elderly) can't fight a simple herpes virus...leading to a...

1/22/2009 12:42 PM

Crohn's Disease
So my doctor says I might have Crohn's...

My first colonoscopy also said that there was nothing that would indicate Crohn's. Mine also disappeared for a while, then would come back suddenly. Your symptoms do sound like its Crohn's, but don't...

1/22/2009 12:39 PM

Crohn's Disease
Could this be diabetes?

I'm experiencing some symptoms that may not be connected to an autoimmune disease I have. Basically, I'm hungry allllllll the time, I'm always thirsty and go to the bathroom frequently. I've always...

1/22/2009 9:02 AM

Diabetes
increased appetite

Just curious if anyone else (with the exception of those on steriods) has increased appetite when they flare or if the Crohn's is generally not in remission. Even when I've been in serious pain, my...

1/22/2009 8:42 AM

Crohn's Disease
Ustekinumab

It sounds promising, mostly because it might be a great option for people who cannot do the anti-TNF drugs. I read that eventually you might be able to get down to one infusion every 3 months...nice...

1/21/2009 5:47 PM

Crohn's Disease
Has anyone here just "stopped" getting Remicade??

And a note to the original poster, if you are experiencing issues with Remicade, I wouldn't even recommend that you consider Humira or any other TNF blocker...you will respond similarly....

1/21/2009 5:40 PM

Crohn's Disease
Has anyone here just "stopped" getting Remicade??

While you might not have developed antibodies to the Remicade components, your increased symptoms might be a response to developing other antibodies - specifically lupus antibodies. The symptoms you...

1/21/2009 5:38 PM

Crohn's Disease
Could I have chrons?

this sounds nothing like crohn's, i recommend that you see an infectious disease specialist....

1/20/2009 4:12 PM

Crohn's Disease
Cookbook for people with strictures?

I've never heard of a book of a diet specifically designed for strictures...its discussed for Crohn's in general. In regard to strictures, its best to avoid foods that take a while to break...

1/20/2009 12:37 PM

Crohn's Disease
update, Marie- 15 years old. 6mp versus methotrexate !!!!!Help

I don't want to be a Debbie Downer, but if the doctor suggested that your daughter consider taking either of these two medicines, her disease is serious. Natural "remedies" and "therapies" are a nice...

1/18/2009 12:38 PM

Crohn's Disease
Blood in Urine

orange urine is not automatically from blood. medicines can do this and so can something going on with your liver...

1/17/2009 10:16 AM

Crohn's Disease
flair

its rarely appendicitis tho. right sided pain, and in the back, is classic crohn's in the ileum. im not sure why people think diarreah is the only symptom of crohn's, the breakdown is more like 50/50...

1/17/2009 8:28 AM

Crohn's Disease
hospital?

extreme pain and/or a fever are the two main reasons to go to the ER...other things can usually wait for a regular doctor visit. if its a total obstruction, you need to go in....

1/17/2009 8:24 AM

Crohn's Disease
Gastro Dr in NYC area?

anyone at Mt. Sinai......

1/16/2009 1:16 PM

Crohn's Disease
Humira/Remicade and MS (Multiple Sclerosis)

And don't panic about the time it takes to go away, the tingling resolved in about a month and the one sided weakness I had in a few months. If you have any questions let me know...

1/15/2009 7:00 PM

Crohn's Disease
Humira/Remicade and MS (Multiple Sclerosis)

Hi, Sorry to hear what has happened to your wife. I had the same issue with Remicade..tingling, weakness, and some random facial pain.. I did the whole MRI thing and nothing came up, but it was...

1/15/2009 6:56 PM

Crohn's Disease
Having a tough time lately ...

well in regard to that sudden urge, bananas slow things down and so does iron and b12. i know how you feel..its constantly on my mind, even more so in social situations when i cant drink like...

1/15/2009 5:17 PM

Crohn's Disease
update, Marie- 15 years old. 6mp versus methotrexate !!!!!Help

and one last thing.. a lot of the current research states that using more aggressive treatment from the start of the illness prevents surgeries and leads to a better long term prognosis...this makes...

1/15/2009 5:05 PM

Crohn's Disease
update, Marie- 15 years old. 6mp versus methotrexate !!!!!Help

well the choice is difficult, mostly because of her age. i've been on both..and there are differences to take into consideration. i would begin with the 6MP because its less "toxic" than MTX. also,...

1/15/2009 5:01 PM

Crohn's Disease
RRRR

Seems like a few of us are in a bit of a rut. This is going to sound ridiculous, but I have just fully accepted that this is a life-long, incurable disease. I always thought that if I take my...

1/13/2009 7:03 AM

Crohn's Disease
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