to clarify a comment noted above: a diet in low grain based carbohydrates is just fine. a diet low in vegetable based carbohydrates is bad....
interesting article discussing a possible link between IBD and air pollution. thought this may interest some of you......
yeah, i was at a total loss and this reasoning made the only sense. the only change was stopping the 6-mp and then bam! anemai. from a logical cause/reaction process it makes sense to me. but like...
thanks again everyone! your comments have been very helpful and have been comforting to all of those i have shared them with, especially my friend. turns out he had just the descending/sigmoid colon...
this happened to me so i will quickly tell my story. dont know if it will help any.... a few months AFTER stopping 6-mp, which i was on for like 14 years, i became anemic. in two months time i had...
if you can afford it, VSL#3 is fantastic. available only on the internet. other recommendations: mercola udo's primal defense by garden of life some are refrigerated, some are not. from my research,...
awesome! thanks for all the help! keep it coming! you are all super awesome!!! i saw my friend today. it was hard to gauge his spirits considering it was less than 24 hours after surgery and he was...
of course, skip the surgery if you can. but sometimes, getting all the "bad" stuff out of your system is what you need to do to start over and give your body a chance to heal. suggest a long...
i need all of your collective help. my went in for surgery to remove a tumor (colon cancer). apparently the tumor was too low or the cancer too extensive (i dont know the details yet) but when he...
i was on it for like 14 years. all my blood work always came back "good". however, before the time i chose to discontinue it as i always doubted its efficacy for my treatment, i started to become...
took both various times for short and long durations to no avail. like all meds, some people respond, some dont....
those drugs are very powerful for "mild" crohns. iimho, start with diet first. give that a chance. this way you can skip the side effects of medicine that are just evil and cause a whole host of...
the best thing i did was get on the maker's diet/scd about a year after surgery. most of the disease had been removed and it allowed me to truly heal and then get off all my meds. i eat minimal...
i was a talk a few years ago presented by the CCFA where there were two different doctors, who at different talks, both said that 5-ASA drugs are really nothing better than a placebo for crohn's...
prednisone blocks absorption of calcium, hence if you're on it for a while you can develop osteoporosis or osteoppenia. i never had any problems with my teeth until i got on prednisone. then i...
in short - no. most people are lactose intolerant to some degree, which becomes worse with age. like 99% of people with crohn's become lactose intolerant. digestive enzymes help and so does eating...
beer doesnt sit well with me anymore. no more than one. makes me bloated and can do a number on the bowels the next morning. so i have to remember to take probiotics whenever i drink, but especially...
dfdavedf - the scd ones are fine as those are made specific for that diet. for vit D i like carlson labs. vit D is fat soluble so take it with full fat yogurt, fish oil, coconut oil, etc as that will...
ha ha ha - am sipping a russian qualood as i write this.......
any supplement you take you want to be food based, not synthetic, which sadly most are, and since the body does not readily utilize synthetic vitamins, it ends up being a waste of money thus you...
most people are intolerant to gluten and dairy to varying degrees, so eliminating or greatly restricting them in your diet will make a great noticeable improvement. the same with sugar too as it just...
i did the makers diet while facing colostomy surgery. you dont get much of a bigger flare than that. the makers diet, like atkins, at least in phase 1 and 2, has you off ALL grain based foods. this...
i cannot recommend the atkins diet (ie low carb) way of eating as a way of life. it is only good, imho, for short term. this is because it limits your carb intake so much that you miss out on a lot...
it should be... glad you are off the stuff....
for sleep, try Valerian root or melatonin (no more than 3 mg)...
i knew it was no longer working when i had to get doses every 2 months instead of 9-12 months and then needing them sooner than 2 months apart and needing double doses as well. in hindsight, good...
your b-12 or iron may be low. get some blood work. i was experiencing recurrences of this off and on for a year or more until i found this out. so glad i did. i'd get restless leg syndrome at night...
get off fosamax IMMEDIATELY!!!! we've all been lied to about this drug. i say this with wisdom as some one who took this drug for over 10 years and only found all this out AFTER i stopped taking it,...
kudos avocado29. i got into remission by using the makers diet and had a chance to meet jordan rubin, who did some health coaching for me for a few months. it got me to where i am today - med free...
i did the diet thing. it has worked beautifully for me for the last 3 years. no meds. it may not be for everyone nor work as well as it did for me for everyone, but i firmly believe it can enhance...
the only time i have fruit juice is when i am sick with the flu. i make sure it is 100% juice with nothing added then i cut it with water. this way i get some carbs in me cos when i am sick i find...
fairy16 - nutritiously speaking, never eat white bread. it is just calories. eat as much veggies as you can tolerate. raw can be hard, so try cooked veggies and soups. but when in a flare, it is hard...
nanners - i havent been able to really nail it down with digestive enzymes - take it before meals, like right before or 30 min before? during a meal? after a meal? dont know. i am starting to think...
general rule of thumb with supplements, if it is cheap, it is junk. and conversely, just because it is expensive doesnt mean it is good. so you have to do your homework. this is the brand my...
i gained over 60 lbs and stopped weighing myself once i broke 190lbs. this was at the age of 17 during my senior year of high school (so it is safe to say - worst year ever). i wasnt able to lose the...
i just hit the 3 year mark. feeling the best since i cant remember when. so far no regrets....
distilled water should only be used for short periods of time for therapeutic uses only. because it is "pure" water (ie no minerals or impurities), long term use of it actually causes minerals to be...
the stats show that since the lipid hypothesis grabbed the public by storm, like 50 years ago, society has been eating less saturated fat (ie fat from animals - meat, butter, dairy, etc) and more...
i dont know if it helps with crohn's per se, but it is a good fat every one should be using (and butter too). saturated fat is GOOD for you, so eat up. you get fat and become unhealthy on...
like i said earlier, the same thing happened to me early in 2005. the docs told me that if i didnt have surgery it would never heal on its own and i'd die of a bladder infection. after surgery i've...
i had to have surgery to remedy that problem....
roni - still doing the maker's diet and some aspects of the SCD and now for giggles am in the process of doing a slight tweak for a few months and eating according to my blood type. i had blood work...
it's halloween, or what's left of it. anyhoo, today is my 3 year anniversary of treating my crohn's without meds. i posted a bit ago the results of my colonoscopy on October 1, which had favorable...
super cool how your GI wants info on the diet and is actually willing to give it credit! i was stoked when my GI called and asked for info on the maker's diet as a new patient of his asked about diet...
i was told by my first GI that with crohn's you have like a 99% chance of becoming lactose intolerant. of course he never told me - i had to self diagnose myself the hard way after many uncomfortable...
i use a "green drink". these things are great. everyone should take them. i do it first thing in the morning on an empty stomach. i drop in some buffered vitamin C crystals with it and sometimes some...
killer. love the good news. especially when it is diet related success stories!!!!...
did i read this correctly - that you are taking digestive enzymes between meals? if so, why? from my understanding you take digestive enzymes with meals as they contain the enzymes necessary to break...
GNC is HORRIBLE for supplements. go to a health food store or order them on-line. take iron separately in a different supplement. dont count on the iron in your multi. do NOT get a ferrous sulfate...
i guess it is no longer legal on the maker's diet then either. too bad - those were good cookies. good thing they are easy to make yourself as all you need is egg whites, shredded coconut and honey....