thanks gachon...I kinda see him every month for a check up before I take my IV meds but sometimes there's another GI who does the check up I think I will see him in july but not sure. I thought that...
thanks for the info. gachon- happy to hear from you.I hope you remain in remission for a long time.... I am still not sure what to do.I know i am allowed to take pred with the study .I haven't talked...
hi guys, it's been a long time since the last time I visited this website....I am o.k. I have bad days and good one...since my dx I haven"t been in remission....I am in a research study for the drug...
hey guys after 12 weeks of trying the drug or placibo the research center decided to let me in on the open label....so that means I am taking the drug(orencia) abatacept . I got my first IV...
good luck randy...
I am going to print this out and if I ever see him,I will give him the print out....I feel like going to see him just so I can give him this paper....but I would have to somehow delete this...
ok....I must admit...I payed the guy....the thing is is that he wrote tons of book on hypnosis and quitting smoking....so I figured that he knew is stuff...but when he said that you probably have...
ok I went to see a hypnonis guy and he said that having crohn's meant that you didn't have a good relationship with your father and that you are angry!!!! I don't believe him , but it got me thinking...
thank you for your replies I am cutting a bit of veggies...I try not to eat any junk food and sugar..I just want to be healthier and exercise regularly. I am in alot of pain and I am thinking really...
Hi guys, I've been making apple carrots and beet juice and been eating more raw veggie to try and keep healthy...but I have more bm and now my bum is so sore...I am flaring right now sin late...
my condolence to you and your family...
congrats gail....really happy for you /community/emoticons/smile.gif so have you decided on a treatment for you CD?...
my GP is called Dr.Condon and once I made a mistake and ask for a appt with dr condom .......I was sooooo embarrest...
Hi Gail- I hope your lung test comes back good.keep me posted.... I will keep you guys posted on my new treatment...
thanks guys-Gail I will go every 2 week 3X then every month ....this is my first iv infusion gail- are you doing the cimza study?...
Hi my computer is now working...lots of catching up to do ..... I had my first infusion of abatacept this morning....so far so good /community/emoticons/smile.gif no side effect hope everyone is...
Hi guys miss you guys ...my computer is still broken... just wanted to let you know that my lungs are clear....the #2 xray showed nothing so I am very happy.....I am to start the abatacept on nov 21...
thank you ....my computer is not working and at the doctor's office( psychiatrist) they have computers for the patient so that what I am using. I am still waiting for the chest result....no news is...
well I went to my ENT dr and there's nothing wrong under m y tongue...it disapeared....so that's good news for me thank you so much for your prayers....now I just need to find out about my chest xray...
lol Gail.I know you can quit smoking...if I can you can. good luck ...let it snow! let it snow! let it snow!...here I sang for you....sorry I broke your window with my lovely voice...cath you later I...
Hi Gail....thank you for for asking :-) I am seeing my ENT dr tuesay morning and I am waiting for my second chest xray this week AND I quit smoking since nov 9 with the nicotine patch and nicorette...
I am with judy on that one....there's no inflammation with IBS....
thnak you so much....I was reading the post and started to cry....good cry knowing I have you guys support... I went to the hospital and got another chest xray...at this point the dr doesn't if I...
I am totally freak out!!!!! firts my crohn's then I have a white mass under my tongue ( going to get a biopsy next week) and now my research nurse called because I have acute or crohnic atelectasis(...
hope you feel better soon gail take care...
Hi my research person is a nurse too...I will be taking IV and it will be held at my GI office they have a section for ppl with study case and taking remicade...I know I will be in good hand....she's...
HI piggy ( gail);-) We should definitively keep in thouch....you sound like me I have to quit smoking too :-(...the test I have done was a stoo sample( have to do this at each visit) chest xray,...
I have that often too......
sound interesting Gail...I just look it up....sound like abatacept ( orencia) thats in the phase 111 also...this is the one GI suggested for me...well if you decide to take keep me posted we will be...
thanks...really cool...
well I went to the dentist today to get a cleaning done4 and at my surprise he said that I have 2 white lesion under my tongue and ask me if I was in pain from them and I said nop.....I checked on...
I am like nanner and kandice21 my worst pain is in the morning...then sometimes before I go to bed or in the evening depending if I need to have a BM I will have pain...but the worst is in the...
kasper I don't understand what you mean....what I am a bit worried is that if I take the placibo and feel better does that means its all in my head?...
thank you.....I really exited now.... I will definitly keep you posted..... jACKIE...
Hi kronstoolong Iv'e been just accepted to be in the orencia(abadacept ) trial...I get my first infusion on nov 21 07 just wanted to let you know... Jackie...
I was accepted for the research of abatacept...I am exited about it.... I did all the teste...like chest x ray blood test stool test etc. I start on november 21 my first infusion...hopefully it won't...
thank you I am seeing my GI in a couple of hour..I will let him know thanks guys...
Hi I v'e been have mucus in my stool (mucus mixed in stool) and that's a new symptoms that I have since last friday...my crohn's is active and it's in my terminal ileum ...tonight I had severe...
thank you I will mention it to my GI jackie...
everytime I have a BM and I wipe it's like mushed banana....is that mucus mixed in with stool? I am currently in a flare and that's a new symptom.... thanks...
I am obses I found it interesting too...maybe that's why my gi is treating my crohn's agressively...who knows!...
http://clinicaltrials.gov/ct/show/NCT00488085;jsessionid=A2045885CCEEE5863941C4D405BC45A1?order=8 ...
the taradol is not working for me,,,I am still in alot of pain and a low grade fever I also have the urge to go to the bathroom and only a little BM comes out.....I am not sure what to do at this...
I took them this afternoon and tonight...it's not bad....I m still in pain but alot a lot less then this morning....will tomorrow morning how I feel thank you for yor responce...thanks lady G I feel...
Hi Ides, no I did not get any relief from tynenol and the fam doc doesn't want to give codeine cuz she doesn't want me to get constipated...I never had a GI bleeding .... thank you ides...
well ....I have a appt with the research center on tuesday...I have appt with my GI on thusday and I will walk my daughter across town so I can eat all of her candy.chocolat and then be more sick cuz...
I just came back from my family dr. my GI is away until wednesday so she told be to take the entocort again and she Rx taradol now this is a nsaid you can only take it for 5 days ( checked on the...
thank you gail...I am going to talk to my GI....this morning I am in acrutiating pain and exhausted so I want something to be done...it's when I am not in pain that I think to myself that it's not...
usually 2 weeks...good luck...
thank you so much for your post what I am scarde about is what if I develop a allergic reaction or antibody or something else....then what??? so I will be a candidate for the abatacept ...I am really...