I have been on entocort and pentasa for about a year now. I have gained so much weight after losing weight initially. I stepped on the scale this morning and am so sad now! What can I do to lose this...
I know we had this tread before that we all have awful teeth...why??? I just came back and need 3 root canals just when I am flaring and suppose to start 6mp. Has anyone found anything that helps...
Wait what tubes??? I didn't have to swallow tubes for my first test???...
Since my disease is in terminal ileum I am trying to figure out why the covering doctor wants me to have a small bowel follow through and not a CT Enterography. Anyone know the difference for us...
Yes your liver enzymes need to be monitored because if there is an elevation then could see what was wrong. Side effect of 6mp could be pancreatitis...so that is why they check liver enzymes. Wbc is...
Sboulardii is the main ingredient in Florastor a probiotic used to combat c.difficile. I have taken it many times and it really doesn't agree with me causes alot of rumbling in my stomach and mucus...
Sounds like it is working great!!! Why reduce it. My doctor is considering the humira for me...did you notice a difference right away? Also have you caught alot of colds, gotten sicker, etc. since...
Wait Gail...when did I get pregnant??? LOL!! I guess there's 2 Christines...LOL!!! I sure wish my guts loved pasta...it seems they get angry with wheat. I am trying today wheat free...went to GI's...
I have never had a flare like this in the past. This is just lots of watery diarrhea, many times a day, cramping and lots of noisy stomach sounds. I have an appointment next week with my doctor's...
Has anyone had root canals while on entocort? Wondering if it makes you more susceptible to infection? My teeth are awful!!! Not looking forward to this!!! Thanks Christine...
My symptoms have gotten worse (diarrhea and pain) so Gi says he wants me to come in and get tests done. He wants me to go on Humira for about 3 months and azasan and go off of the entocort. Then...
I have been on VSL#3 for a year now. First I made the mistake of trying the sachets. For me the added corn starch just worsened my condition. I didn't figure it out until 6 months later though. I...
For those of you on entocort and pentasa maybe you can share your experience. I have been on this combo for a yearnow since diagnosis and although it has reduced the diarrhea I still had symptoms....
What type of a report did you receive when you had your capsule done. Mine said normal but I was hoping for a more descript ive report about exactly what parts it looked at, etc... and when it...
pb4 You had mentioned what helped you was your fiber supplement. Did you get very bloated with it? How long did it take to kick in to where you noticed a huge difference? I don't understand I just...
Shelley How did you know you had narrowings? I have the narrowing at the terminal ileum. Last April I felt like I was only going to the bathroom a little bit (diarrhea back then) and had a pain and...
So there isn't any way to really tell other than testing I guess. It certainly feels the same! I am not sure what to do and don't understand why this always happens when I am suppose to travel!!!...
My GI emailed me about my symptoms of constipation and very small thin stool output a few times a day. The output seems very little compared to usual and the amount of food I am eating lately. I have...
I have mild narrowing at the terminal ileum and have been managing since last summer with the entocort and pentasa. I am very bloated now because of my period as well. I have a call into the Gi doc...
For about a year now since diagnosis I have had mostly diarrhea. The last week I have had the thin, pencil like stools and it is very small bowel movements. I feel like I have to go but nothing comes...
Same here. My wbc is always elevated though. What helped me alot is taking wheat out of my diet. I also started on a strong probiotic called VSL#3 at night and that has made the diarrhea go away....
Since last Friday I have been so nauseau. I saw my GI on Thurs and ofcourse everything was fine then. Today I popped a zofran and am still battling. The big diarrhea started yesterday and continues...
Hi all I am going to the gi doctor tomorrow. I will be starting azasan hopefully. I have been having a problem with herpes virus since my crohn's diagnosis. Unfotunately I found out I had the herpes...
I wish there was something that would magically heal it. I have a large one that just opens whenever it feels like. I was thinking the pain is comparable to when I had a baby and didn't get a chance...
I have been following all the info on LDN because it sounds so promising. I am cheering for you that it will work! One thing I didn't understand in your post is why do they need to get rid of...
Emom Which yogurt machine did you purchase? Is it difficult to make the homemade stuff? Thanks Chris...
I do take VSL#3 now but the pill form as the sachets with corn starch did the rumbling thing. It is interesting the yeast connection you mention. As I still try to figure out what I can and can't...
Does anyone know of another probiotic that contains saccharomyces boulardii other than florastor. For some reason the florastor gives me the stomach rumbles and mucus too. I wanted to have something...
I recently went to the dermatologist due to some irritation that would clear on my legs. He said it was severe dry skin and then I asked about all the veins making road maps on my legs since I have...
I hope you start to feel better soon. Stay strong!! You are doing an amazing job!! Christine...
This infection is so very scary for us crohn's patients. The virulent form they are talking about seems to be all over and very difficult to get rid of. I think all we can do is educate ourselves,...
I second what Darlene said. Be very vigilant of hand washing. Also, I used rolls of paper towels to wash my hands instead of towels and threw them away in a large trash bag. Make sure you use hot...
If they lance it I read 2/3's of the time they come back and also have fistulas...what is the key to avoiding this ?? Remicade??? Humira? Can these biologics cure the abscess without lancing it??...
Can this boil thing go away on its own without lancing, antibiotics, etc...I know it sounds crazy but I am hoping for hemmorids. LOL! I do not want it to be an abscess. I guess I will find out either...
Ok now I am freaking out this is an abscess...do you always need antibiotics w/ an absciess and if so what do they usually prescribe for this? With my c.diff history I am very concerned about an...
I do not have a fever and feel fine. I thought it was a fissure and looked and it looks like a 1 1/2 inch boil.Nothing else. It hurts a bit only when I sit--it burns a bit. It is close to my anal...
I have been having burning near my anus and I thought it was a fissure. I have been putting preparation h on it. It has only been going on for 2 days now. I looked tonight and looks like a round,...
Funny you mention this. I was on florastor for a while and recently tried to take it again and a had a bunch of rumbling in my stomach and then the mucus began in my stools. I was on it for a few...
Some antibiotics can give you a greater chance of getting c.diff. There is a c.diff support group that talks about all this. They call them the biggest offenders and least offenders and have a list...
Hi all, I am left w/more questions than answers following my test results. Capsule showed normal, endoscopy-normal, colonoscopy showed chronic inactive inflammation. So now we are left with what...
Sending healing thoughts for a speedy recovery from your surgery!! Hugs Christine...
I never had an endoscopy until a few weeks ago. Much easier than colonoscopy and didn't feel a thing. Don't worry...it will be ok. Chris...
Your husband's story sounds so much like mine with both the crohn's disease and c.difficile. The high dose vanco will definitely put the cdiff in remission but getting rid of the spores is the...
I am so sorry your husband has both going on. I can tell you from personal experience that it is extremely hard to figure out if the c.diff is causing the diarrhea or the crohns. Usually if the...
I understand crohns is related to arthritis, but lately I feel like I am 90 years old. I notice on the list some people hold jobs, work out, marathons ... Wow!!! How do you all do this?? I am not on...
Zanne, Is it like what I had the intussusception where one intestine telescopes into the other? If so, they are still trying to figure out why that happened and what to do. I just had the capsule...
Have you tried the EB ice machine for the swelling? It looks like a little cooler attached to tubing and you put it on top of the surgical site (on top of the dressings). Great to reduce the surgical...
GeeBee Don't know where you live but there are docs here in the US that do this. Also Sharon from Dr. Borody's office can send the info on the procedure to your doc. It is not difficult to do once...
Gail They have new paint by Pittsburg and Benjamin Moore that has no voc's, which is a chemical thought to cause alot of problems. I thought I'dmention it to you since you were doing some painting....
Diflucan needs to be taken at different time than the probiotic, because diflucan is systematic and will kill all the good and bad fungus If you can avoid diflucan by using vaginal creams you may be...