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Malibu05

HealingWell Forum
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Member Profile
Display Name
Malibu05
Profile Created
9/24/2007 8:49 AM
Last Seen
10/26/2009 9:49 PM
Total Posts
98

Last 50 Posts

Really confused and scared. 19yo female with first Abscess/Fistula

I just wanted to add that I was afraid I would be wearing depends forever too. I'm not sure on the exact location of your wound so I don't know how well this would work for you, but I would use 4x4's...

10/24/2009 10:17 PM

Crohn's Disease
Really confused and scared. 19yo female with first Abscess/Fistula

I was 19 when they discovered my first fistula (I'm now 22). Shortly after they discovered the fistula, I developed an abscess. I had the abscess drained surgically and had to pack the wound for...

10/24/2009 7:15 PM

Crohn's Disease
Klonopin?

I've been having a rough time with some personal issues here lately and it is giving me big problems with my Crohn's Disease. My GP gave me Klonopin to help me. Have any of you ever taken this...

5/12/2009 1:20 PM

Crohn's Disease
When were you diagnosed?

Hi all : ) I'm 21, I was diagnosed when I was 20. So not a whole lot of time living with disease but it doesn't take much time for it to change your whole life as I'm sure you all know! I'm a...

10/13/2008 7:43 PM

Crohn's Disease
How Many College Students are on Here?

I'll be a Junior! Only two more years...thank goodness!...

8/3/2008 3:44 AM

Crohn's Disease
How Many College Students are on Here?

I'm a college student too! Trying to keep a 4.0 and manage a chronic illness is my full-time job : )...

7/31/2008 7:28 PM

Crohn's Disease
Take that Crohn's Disease!!!

This was my first semester back to college since I was finally diagnosed. I still had to have one surgery half-way through the semester to remove an abscess and I still made all A's and have a 4.0...

5/13/2008 9:44 PM

Crohn's Disease
Anyone w/ TMJ?

I've got really bad TMJ in my left jaw and all my doctors have ever given me for it is Naproxen(pre-crohn's diagnosis) and obviously I can't take that! For those of you have this problem or know...

5/7/2008 9:01 AM

Crohn's Disease
colorectal surgeon

I go to a wonderful colorectal surgeon in Louisville, his name is Michael McCafferty. He has done surgery on me and I have never been dissapointed in him! It takes him a while to warm up to you, but...

4/29/2008 1:01 PM

Crohn's Disease
I lost some weight! : )

I know there have been a lot of posts on here about how to lose weight and I too have been trying to lose some of my steriod weight and so I thought I would share what I have found that has...

4/23/2008 8:44 PM

Crohn's Disease
Totally OT student whine

I have a term paper due Monday too! I'm sure it hasn't as bad as all that you have to do but I've definitely procrastinated and now I had 2 days to get it done! It sucks!...

4/11/2008 9:12 PM

Crohn's Disease
Update on School Situation and A New Question!

I got so many helpful responses to my situation with my professor who was giving me grief over my disability papers. I went to the head of the disability department and when I told him what had...

4/6/2008 8:05 PM

Crohn's Disease
Too wrangled for my wedding dress!

I work at a Bridal store and I've learned that ANYTHING can be altered! It shouldn't be a problem to have the dress taken in at the seams!...

4/4/2008 8:06 AM

Crohn's Disease
Experiences with side effects after Remicade infusion?

I usually get REALLY tired after my infusion but after I sleep it off I feel comepletely fine!...

4/2/2008 3:08 PM

Crohn's Disease
what can a CT scan really show?

Right before I was diagnosed with Crohn's I had a CT scan and the dumb thing came back NORMAL!!! I had a colonoscopy the next day that showed a lot of inflammation so for me the CT scan was pretty...

3/25/2008 10:31 PM

Crohn's Disease
Employers - Anyone harassed because of their Crohn's Disease?

I had to have a surgery around Christmas one year and I missed work during the holidays. I worked at a hospital so obviously some of my coworkers had to work extra around the holidays because of my...

3/20/2008 9:38 PM

Crohn's Disease
Anyone here with a port?

My veins are getting to be terrible to find! My GI mentioned that if they continue to get worse that I may need to get a port. He wasn't really crazy about the idea because of the risk of infection...

3/18/2008 9:59 PM

Crohn's Disease
Trouble finding fistulas?

I've had 3 abscesses in the past year and my colo-rectal surgeon seems to believe that I do have a fistula, he just can't find it. I've had 3 exams under anesthesia and he can never find one but he...

3/16/2008 2:57 PM

Crohn's Disease
Help! How do they test for Crohn's? what's a small bowel follow through?

Just a piece of advice, to avoid having to change clothes at the hospital, wear a wireless bra(sports bra) and pants without a metal button/zipper! I always hated having to change clothes just to get...

3/11/2008 9:09 PM

Crohn's Disease
Serious question

Thanks for all the amazing advice! I really appreciate it all! I'm on spring break for the rest of the week so all the university offices are closed so I won't be able to talk to anyone til atleast...

3/10/2008 7:40 PM

Crohn's Disease
Serious question

Guys, I have a pretty serious question and it has really been bothering me. I attend a major university and before the semester began I filed with my university's office for student disability. I...

3/9/2008 10:25 AM

Crohn's Disease
Remicade and weight gain!!! Need info

I gained a few pounds after I first started because I felt so much better and was eating more! : ) I started exercising again though and I lost it again! Since then I haven't had any weight gain with...

3/8/2008 4:53 PM

Crohn's Disease
your own toilet paper, for public bathrooms

Cottonelle makes these really small packages of wipes that fit right into my purse...I think they have like 10 wipes in them....

3/6/2008 11:45 PM

Crohn's Disease
Mexican Parasite, cause of Chron's???

My first fistula showed up in Mexico...who knows?...

3/6/2008 4:31 PM

Crohn's Disease
Recovering..

I posted a while ago about having trouble getting my surgeon to believe I had an abscess. He got a look at my actual films from my ct scan and saw what I had been feeling. So, I had surgery to remove...

3/5/2008 8:55 AM

Crohn's Disease
Entocort - help!

When I was first diagnosed I was put on Asacol and Entocort and the combination helped me greatly. It put a stop to my D and helped with a lot of my pain...although it took a few days for it to start...

3/3/2008 11:41 PM

Crohn's Disease
Do you ever feel fine then all of a sudden SICK?!

This happened to me the other day at work. I work at a bridal store so here I was with trying to get this girl in a wedding dress and it hit me. Like you said, really nauseous stomach cramping...all...

3/3/2008 4:48 PM

Crohn's Disease
being tired all the time

Everybody always asks me what the worse part of my disease is I always tell them that its my constant fatigue. Its always there. I take B12 injections that help a little but it sucks so bad....

3/2/2008 9:51 PM

Crohn's Disease
Seton Questions

My doctor is talking about putting a seton in and I'm REALLY not crazy about the idea. I'm still in school and it's really unimaginable for me to have tubes in my butt and sit through 3 hour classes....

3/2/2008 10:20 AM

Crohn's Disease
Dark stool?

I also forgot to mention I've just done a round of anti-biotics and I think I read somewhere that they could cause that too...?...

2/28/2008 11:47 PM

Crohn's Disease
Dark stool?

Dark as in almost black!...

2/28/2008 9:22 PM

Crohn's Disease
Dark stool?

I've been have less frequent bowel movements here lately. They have also started to be really dark. Why or what causes this? Is something wrong? I thought maybe the change in frequency was because...

2/28/2008 8:22 PM

Crohn's Disease
My poor veins are so scarred up

My veins are starting to get this way. Last Remicade infusion it took 6 tries to get one going. I don't know what will eventually end up happening! Good luck with everything!...

2/23/2008 7:13 PM

Crohn's Disease
Oh boy, do I need help!

I'm having some problems. This may get long but please bear with me, I'm in desperate need of help. In Dec. 06 I had a rectal abscess come up that had to removed. The left it open to drain but it has...

2/22/2008 7:27 PM

Crohn's Disease
Finally made an appointment with disability services

I just started back to school and did the same thing! I asked for excused absences due to doctors appointments, remicade infusions and sick days. My campus' disability services have been wonderful!...

1/28/2008 3:40 PM

Crohn's Disease
What does this sound like?

I'm really asking this for a friend that I am concerned about . Me myself have been diagnosed with Crohn's so when she told me this it sort of sparked my curiousity. My friend said she has been...

1/22/2008 9:27 PM

Crohn's Disease
X-Ray Films

I used to work in xray and when we made copies for patients we usually let them keep the copies, free of charge. The only thing that we needed back were the original films. Now we have started...

1/16/2008 2:21 PM

Crohn's Disease
IBD caused by a previous illness??

I've seriously considered the possibility! I was diagnosed with a SEVERE case of mono in March 06. Symptoms of Crohns appeared in July 06. Since mono effects the immune system and Crohns is a disease...

1/11/2008 7:42 PM

Crohn's Disease
does the size of poop mean anything ?

I've often wondered if the pain of pushing out a big hard turd was similar to giving birth because that's often what I feel like I'm doing : ) Haha! I take stool softners every day to keep that from...

12/26/2007 9:10 AM

Crohn's Disease
KUB?

I used to work in Radiology at the local hospital here and a KUB is really really simple. It will consist of making one or two pictures. They may have you lay on the table for one of them. Advice,...

12/21/2007 7:06 PM

Crohn's Disease
charlie horse anyone??

I had leg cramps from the Entocort but eating bananas will help!...

12/17/2007 9:20 AM

Crohn's Disease
What I REALLY want for Christmas : )

Me and my mom were talking about Christmas and she asked what I really wanted. My answer....A NEW BUTT! The past year has been awful with peri-anal disease and if there were seriously one thing that...

12/16/2007 8:26 PM

Crohn's Disease
entocort dosage

When I took 3 pills I took one at each meal. I could have been wrong though?...

12/5/2007 2:35 PM

Crohn's Disease
Worried Sister In-Law??

That's weird, I started developing symptoms when I was in Mexico last summer. I would definitely go back though. Now that I'm on meds and have it under control it really wouldn't be much different....

12/5/2007 9:02 AM

Crohn's Disease
hi...I'm new here..entocort worries

About a week after I started entocort I started having awful leg,ankle, and foot pain. Also swelling in those areas. It was painful to even get out of bed and walk to the bathroom. It eventually went...

12/4/2007 10:21 PM

Crohn's Disease
Entocort - how long are you on it for?

I've been on it since September. Started on 9 mg and I've been taking 3mg for about a week now....

12/1/2007 5:27 PM

Crohn's Disease
Scared and annoyed

Sometimes I just get so scared and annoyed and I just feel like nobody understands. It's like I have this disease, and right now, I feel okay. But I worry. I worry about 5 years from now what it's...

11/29/2007 10:40 PM

Crohn's Disease
Doctor name humor

There was a surgeon here named Dr. Butt......

11/29/2007 12:45 PM

Crohn's Disease
fistulotomy surgery questions

A lot of times when I had to use the bathroom the packing would fall out on its own and I would have to wait for the nurse to come and pack it again. If it didn't fall out, I would pull it out...

11/21/2007 10:31 PM

Crohn's Disease
fistulotomy surgery questions

I didn't have fistulotomy but I had an abscess drained that left an open wound and I had to use to packing gauze. It was very very VERY painful when the removed it the first time. It would be safe to...

11/21/2007 7:01 PM

Crohn's Disease
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