I am going to have to check the FB sites! So wonderful to hear from you "Nanners"....
Nanners was a wonderful person to chat with! I still try to finish with Take Care like she did in her posts. I miss her greatly. I am fairly certain she won't be lurking...wish she did. Keah was a...
Since straydog asked...I was wondering if you heard from Sniper or VV too....
Hi Randy! Sounds like you are dealing with the latest challenge pretty well. Glad you got diagnosed and care quickly, but sorry you have the side effects. Hoping they go away for you! You have always...
Everything Monte said...plus check your magnesium levels ( I add baby food bananas or lots of potatoes when I ache). I have back and joint issues. I notice when I have muscle cramping from low...
While I don't necessarily agree with the study, I agree that everyone should have savings of some sort built up in case they cannot work. I'm 541/2 and expect to work to my mid 60s at least despite...
Thanks Monte...I was thinking about that as an option for the end of the finger. Now if I can figure out the odd middle knuckle! Ouch today! Maybe it's the humidity making it worse....
Hey haven't been around much. Trying to stay really focused on day-to-day life lately. I don't want to try and check this out via a telehealth appointment (it's not going to show on video and what...
Just an FYI....there is also a regular cold that has been going around too. My SIL has a horrible head cold with coughing I suspect due to post nasal drip. Apparently, it is pretty common in our...
Hi RobLee. Pretty much the same as what Straydog said. I had a resection in 1990. I had total C before then. Since the resection I have always had D, sometimes worse than others. I also had my...
They offered to do the appointment via teleheath or move the appointment out 3 months. I'm not sure what a GI could do via telephone...would I press my gut for him heehee. I elected to move it out 3...
Mine was the knees, but knuckles and elbows were right behind it---, but I also work on a keyboard A LOT! I don't count my back pain as that seems to be more degenerative disc related. I've found my...
NCOT---yeah I have done the med in Tang, iced tea, water....like drinking sandy water but would do what I had to. Mostly trying to lighten things up a little. Oh and applesauce works too...I add a...
Conundrum only fellow Crohnies would understand.... Store out of OJ. I take my cholestyramine in OJ every morning or I am going potty every 10 minutes. If I don't take the med, then I need more TP...
Oldcrohnie Im in Rochester area. They are just now announcing a suburban school employee had it in the school. It is our second case. Buffalo (where I am supposed to be hosting a wedding shower in2...
Oldchronie...are you US or Canada? Thinking you may be near me if you're near S. Ontario CA. I'm in western NY. I work from home currently so I am fortunate. Hope things calm down for you....
Well...I am coming at it from the perspective I gained while stuck at home with my husband when he had swine flu. To quote him "he would not wish that on his worst enemy" He had huge fever swings,...
Hey Susie. The "new" patient was more a way to say how they would have to bill based on requirements for procedure codes,,,it really was just saying we can bill a smaller $ code. Yeah 3 years has...
I haven't seen my GI in about 3 years...frankly I have been doing pretty well, all he ever says is "you have a narrowing at your surgery site, take your meds, I don't think you have anything else" It...
Hi...just in case you need it for the future, I recommend doing what I do for barium swallows. Use paper towels to wipe off you tongue after each swallow. I even dampen them a little. It makes the...
Ides...just saw your notes on keeping the CD in control...I really think that might be why my nerve symptoms have eased too. Although I am not taking any major CD meds, my symptoms are much more in...
Hi. I was diagnosed with small fiber sensory neuropathy several years ago. The only thing I was offered was a pain relief med (not gabapentin) that had a high risk of suicidal ideations. I never took...
I have drug research tools and the closest name I could find was Prodium, but that appears to be something different. I use prevalite (aka cholestyramine) to control my D. I could not use Metamucil...
It just keeps saying Login....despite shutting my computer down for the night. Thoughts?...
Hi. I don't know your gender, but I had a quick thought when I saw this....if you are female (and older) I shed a lot of head hair, but I have always had very hairy arms and legs (luckily it blends...
Have a GI. I know we have very few GIs here in the area and it is getting very difficult to get into someone as a new patient....but I am looking to see if there are other options. Also, would like...
I would say whether you have gb surgery or not depends on your symptoms and if it impacts your daily life. I had no choice but to have mine removed as stones moved to the bile duct, were large, and...
My sig line is actually a little old. Humira was in the picture, but I still stick it out with my limited meds and doing well. The "big guys" may come into play only due to the RA and possible new...
My job involves medical analysis of claims for future cost risk. I spend a lot of time looking at treatments and diagnosis. I just looked up a rare condition I have not seen in my 25+ years doing...
So my CD tends to impact my skin a lot (whole body inflammed with a CMV, multiple pityriasis incidents, many staph, Fifth disease several times et al). Or maybe it's some of the other dx I have?...
How wonderful...take care of you and the new baby as we celebrate for you!...
Hi. I tend to see the gums inflame when I flare or min-flare like said above. Fortunately, or unfortunately, my dentist has a daughter who was diagnosed with CD after I started seeing my dentist. He...
I have always had skin issues and my skin is a quick indicator when something is up with my CD (or if I have been in the sun more than 2 minutes :-) ). I think I have had every CD skin side effect...
Hi Huckleberry. Yes, those cautionary tales...I totally get it. I am a long term Pentasa only patient and have gone on "medication vacations". When I did, I suffered for it. I have been really good...
When I had to have my gallbladder out, the surgeon said he would try lap, but if my scar tissue from my resection was too bad he would have to open me up. I had emergent resection with sepsis with...
Hey...I am in love with having saline with me for clean up---it is very soothing for my tags/fissures. Sitz soaking is always recommended. Makes me think that I am always on the dehydrated side and...
Yup walking away has been my weapon of choice in protecting my sanity the last few years. But....still just not happy with the bad press. Told my husband I may opt for the quiet whisper in her ear...
My husband wasn't going to tell me because he knew it would make my guts boil. This lady was sick for a long time...she had at least 15 different diagnosis that she swore to (along with lots of...
Thanks guys...I actually do quite well with Ensure/Glucerna (not their high protein one though blech). Going "camping" in a bit and wanted to bring a food protein substitute along just in case. Guess...
I've liked Ensure for my past use. I tried to cut back sugar so I went to Glucerna and I like that too (ps I drink only the milk choc version). Problem is Glucerna has 4g fiber and I notice some...
I see they are testing both an IV and a subcu option for this. If they could advance the subcu, I would be more interested. I also hope now that there are more continuing advancements, that prices...
Lamb...wishing you better...I always say I am one of the very lucky crohnnies. Pretty much post resection, I have been very well. I would say 3 flareups that required steroids and the fistula were my...
Hey looking for an opinion. Why? Because I have lost faith in my GI deciding on scope frequency and treatment due to $ versus need. I have been told you don't need one except every 10 yrs,3 yrs,...
Hi Paul...first thing that jumped out to me is you had a good visit with this CR surgeon based on your summary. Second thing is...a second opinion is not a bad thing. You are really thinking about...
Hi! I was mostly constipated my whole life with Crohns....but it was before I was diagnosed & before a resection & before having my gallbladder out. I did not have D until I was post surgery. People...
Hi Vitaka. The feeling was like when the tip of a hair just touches your skin or tiny ants crawling. It was most annoying on my back because I kept thinking my hair was doing it. I shed a lot (unless...
Only been a short time, but I am THRILLED!!! the skin crawly feeling I had is gone! I had some issues with restlessness and hard to sleep, but testing to see if that was if I had more iced tea than...
Hmmm. Cynicism reigns in my world here....
This is interesting both from a personal perspective (I am biologic-naive and have been "pushed" to try one despite being mild to moderate in dx) & from my work prospective (I work in the health...
Hi! Well I can't help much on the fistula side. To quote my colorectal nurse "If you're going to have a fistula, you have it in the best place you can." Mine was rectal only and no muscle involvement...