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Idolwild

HealingWell Forum
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Member Profile
Display Name
Idolwild
Profile Created
9/10/2007 2:38 PM
Last Seen
7/11/2013 3:03 PM
Total Posts
29

Last 50 Posts

Is dry skin above eyelids part of Sjogren's?

This is an old post I ran across, but I figure I'd throw in my $0.02. I have Crohn's Disease and I always get this dry, scaly skin above the eyelid right before a flare, so in my opinion it's clearly...

7/11/2013 3:03 PM

Sjogren's Syndrome
Acute PVT and TIPS

PVT = Portal Vein Thrombosis, a blockage in the vein bringing blood from the bowels to the liver for cleaning. It's a simple blood clot in a very bad place....

9/12/2012 6:42 PM

Hepatitis
Acute PVT and TIPS

My wife had bariatric surgery (sleeve gastrectomy) 2 weeks ago and last week we went to the ER for severe abdominal pain. A CAT scan was performed and a newly-formed PVT was discovered. She was...

9/12/2012 6:12 PM

Hepatitis
prednisone- ugh!!!

Temazepam was the only thing that allowed me to sleep on my 40mg/4 month long stint on prednisone. It works fast and I did not have much groggyness when I woke up. It is habit forming though, so only...

1/9/2008 1:26 PM

Crohn's Disease
Rank Your Top 5 Foods To Eliminate & Top 5 Helpful Dietary Supplements

Just trying to do a sort of informal poll on what people are doing *besides* medications to help control their disease... (I realize the disease affects everyone differently and what may work for...

1/7/2008 8:00 AM

Crohn's Disease
Prednisone and Joint Pain

I was on 40mg a day of Prednisone for four months. I have tapered completely off and have been off for about[b] three weeks. Has anyone had a similar course and experienced severe joint pain in ALL...

1/3/2008 7:56 AM

Crohn's Disease
prednisone withdrawal???

I'm going through the same right now. I finished tapering from 40mg a day for 4 months at a rate of 5mg/week with a final week of 2.5 about one and a half weeks ago. Ever since dropping below 5mg I...

12/20/2007 10:58 AM

Crohn's Disease
Fever always symptom?

I have been in a "flare" since early June, and have not once had a fever. My D has gone away at this point, and stool is normal and regular, but I walk around each and every day feeling as you've...

10/19/2007 12:14 PM

Crohn's Disease
FREAKING OUT PLEASE HELP

A severe GI bleed (where you output basically nothing else but blood) is definitely something that would (and did) prompt me to head in to the local ER....

10/19/2007 12:01 PM

Crohn's Disease
Need your experience with Steroids!!

I've been on 40mg pred a day since early August, and am finally starting to taper at a rate of 5mg a week (now at 30mg). Prednisone worked well for me, but at a cost. Since I'm also taking other...

10/19/2007 11:55 AM

Crohn's Disease
Need Fiber Supplement Recommendation

I think my intestinal transit time is a little slow, don't know if it's all the drugs or the food i'm eating or the lack of fiber (I'm still pretty gun-shy about anything raw since the low-residue...

10/19/2007 11:46 AM

Crohn's Disease
Pred Taper Rate?

I was wondering what all you have experienced in the past as far as taper rate goes. I've been on 40mg for a few months now and my GI Doc is taking me off at a rate of 5mg a week - just trying to get...

10/11/2007 3:56 PM

Crohn's Disease
Advice on Getting Things Moving

I need some natural low-impact solution to moving my digestion along a bit. I'm currently technically in a flare, on pred and 6MP and Asacol, but my only symptom is abdominal soreness and a bit of...

10/7/2007 5:45 AM

Crohn's Disease
VSL #3 -How does it work? Have you had any experience using it?

My GI Doc suggested it too. I'm currently taking a packet a day. It's a mixture of several (8 or so?) kinds of beneficial bacteria. Your gut is colonized with good bacteria and bad bacteria. Some...

10/3/2007 7:23 PM

Crohn's Disease
Avoid Sugar?

Store-bought plain yogurt is bad then?...

10/3/2007 9:47 AM

Crohn's Disease
Avoid Sugar?

I don't (at this time) seem to have a typical bout of Crohn's Disease - I've read from lots of people on here that they will eat certain foods then immediately (even just an hour later) have bouts of...

10/3/2007 8:35 AM

Crohn's Disease
Throat Swell?

I could swear my throat gets a little swollen either after taking Pred or 6MP, I can't tell which is doing it. Not like it's hard to breathe or anything, just a mild (perceptible) annoyance - does...

10/1/2007 1:35 PM

Crohn's Disease
SLEEP DEPRAVATION

I'm on 40mg Prednisone and cannot sleep either. My doc wanted to try Ambien but I've read too many wacky things about that drug - instead he gave me Temazepam. Works very well, I take it shortly...

9/26/2007 11:27 AM

Crohn's Disease
Red throat about an hour after taking 6MP?

Anyone else experience this? Something I should worry about? Seems to fade after a bit, but almost feels like its swelling for a little while, and angry red....

9/25/2007 12:48 PM

Crohn's Disease
Peppermint Tea for Bloating

The bloat is killing me, it feels like my insides want to make a special guest appearance. Right now this is my primary symptom, everything else is pretty normal. So, anyone tried peppermint tea?...

9/19/2007 3:01 PM

Crohn's Disease
Moving GI Docs - won't release some records??

I want to move to this other guy (who I like better) that is closer to my internist. Called the office of the current GI Doc and they told me $1.00 per page and there is no way to make copies of the...

9/18/2007 1:27 PM

Crohn's Disease
Does anyone have that vomit-ty feeling?

I know this is usually related to obstruction but I don't think so in this case. I'm not sure if it's the Prednisone or the Protonix weakening my stomach juices too much but every once and awhile I...

9/14/2007 10:06 AM

Crohn's Disease
Maybe it's our water heaters...

(Amusing warning sign) http://www.darrenbarefoot.com/hall/main.php?g2_itemId=49553 The rest are pretty funny......

9/13/2007 2:35 PM

Crohn's Disease
Side effects and requirements of the medications you take for your Crohn's....

I am currently on 40mg a day Prednisone. I feel it is helping me but the major side effect is jittery insomnia. I have to take a temazepam every night to sleep, which does the trick pretty well....

9/11/2007 9:27 AM

Crohn's Disease
Introducing Myself

MikeB - when did you start on your 6MP course? Do you find yourself getting sick (regular cold, etc) more? Is it harder to recover from the occasional sickness? HabsHockeyFan - man, ya - the bloating...

9/11/2007 9:17 AM

Crohn's Disease
Introducing Myself

dragonfly - excellent idea on the CCFA site and looking for new docs, hadn't thought of that - thanks!...

9/11/2007 7:43 AM

Crohn's Disease
Introducing Myself

Matthew I think his short term goal is to get me out of this flare. According to him, the colonoscopy revealed what he characterized as "moderate to severe" damage to the large colon, including...

9/11/2007 7:42 AM

Crohn's Disease
why 6mp?

Since the leading theory is that CD is the body's auto-immune system attacking and inflaming the body's digestive system, 6MP's (I was prescribed one today, as a matter of fact) works to suppress the...

9/10/2007 3:27 PM

Crohn's Disease
Introducing Myself

Hello all - new to this forum, and officially new to the disease. A little background: About 10 years ago, when I was 22, I got this "mystery illness" - chronic diarrhea and tremendous weight loss...

9/10/2007 3:10 PM

Crohn's Disease
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