Yeah, I've been waiting for this day for a long time and it snuck up on me. I used to think that if only I had a diagnosis the fight would be over. Well, that was foolish. And there isnt even a...
Hi, I'm not sure if there is anyone here that remembers me. I was active on this forum about 15 years ago and then checked in again more recently. I was treated for IBD with pentasa with great...
I understand what you are saying but its dangerous to assume because I had a mammogram that had to be what caused the lump. I am more concerned about the lump than I am the bruise. They dont...
Hello, I had a routine screening mammogram (age 70 yrs) done on 9/2/20. I just recently switched pcp's and had the mammogram done at their facility. I had not established a gyn there yet. About 3...
I learned that the calprotectin test became widely available for screening in 2013. That explains why it was not offered to me. My last colonoscopy was Jan 2012 and since then have not seen the gi...
does anyone recognize the name Keah? "Ides", the only name I recognize here, must....
A complicating factor (there is always one of those) is that I have been on Cimzia since early July and have only had 3 episodes of diarrhea since then. So would the caloprectin test be lower than it...
Ok, I just looked up fecal caloprectin. First, when was this test developed? I dont recall it being discussed back in the days of my attempt at getting diagnosed. The explanation I read now is that...
Does anyone know how Keah is doing these days?...
Contacted the gi NP I see about the possible fistula formation and she wants to see me. She said she also was ready to order blood/stool markers as well as a pelvic MRI. What would the blood/stool...
I had a break between my courses of Remicade. I wonder if I developed antibodies and that's why I had to go off the second time....
Dorri, you have a right to all of your medical records. I would request a copy of all labs and procedure reports, OR notes, etc. Sometimes you have to pay now. I have done that for years and often...
I had to go off Humira, which was working well for whatever I have, when I turned 65 and went on Medicare. Couldnt afford it. I agree with what you said about copay assistance. When I had employer...
My rheumatologist just had me substitute the new biologic when the last one ( that was no longer working) was due again so there was no extended waiting peurnriod. The doctor would normally be the...
The reaction I had from Remicade started about 12 hours after the infusion ended. I felt like I had the flu which lasted for 3 days. I decided not to say anything and waited till the next infusion to...
Another complication to this diagnosis- I feel there is a strong possibility I have sarcoidosis. It also causes granuloma formation. I've read that sarcoidosis of the gi tract is rare but it does...
Thanks 73monte and minnietoty. As long as my rheumatologist is willing to provide treatment that works I dont want to see another gi doctor for this. So far with cimzia I feel good but its early and...
Hello, I havent been around for at least 10 years but thought I would visit again. I dont even know where to begin with my situation but I'm sure some of my experience could help someone. It all...
Many years ago I tried metformin, cant remember the dose but it was not the xl version. I had bad gi issues and stopped after 3 weeks. I think maybe I had a bug this time because today its ok and my...
I thought I would post an update to my situation. I saw the endocrinology NP (I thought I only had an appt for the diabetes educator but it turned out I saw the NP and then the educator in a week)...
Lanie, "vagued out" (love that term) is what I did that led to finding out I had a 60% occuded carotid artery, although they were not connected, according to my caridiologist. So if that hadnt...
Thank you for your input cycling lady I have to admit I am disappointed in my NP (although to be fair, I've had MD's in the past who were clueless) This sudden increase in fasting level is such a...
I also read back in the day when this all started with me is that Type 2 diabetics often develop antibodies to beta cells as well as Type 1's. Maybe those are the type 2's that end up on insulin. I...
LADA is like Type 1 diabetes except that it isnt a sudden as Type 1 usually is. Beta cells are destroyed gradually and the person doesnt need insulin right away. Some doctors will test for antibodies...
I read most of the information in the link. I found it very informative. I notice on the one about drugs it does talk about statins increasing insulin resistance. Well, I don't think that's the whole...
I used to go into my appointments with scrolls of blood pressure readings. Now I rarely take it. I go to doctor's appt's often enough for it to be checked. Its usually acceptable. I know what you are...
I checked out your link. Only have time to read one now, will read the rest later. Very interesting and so easy to understand (although somewhat overwhelming at this point lol) The one I read "Why is...
How do you change the info at the bottom of posts? What is there now is old, havent been on prednisone for over a year...
I envy you in that you have worked out a routine you are satisfied with. I thought I had but now I need to revise that but no way could I do cauliflower the way you describe. I agree with you, I...
Hi, thank you for your response. I'm confused about Crestor though. Several people have told me that it couldnt be responsible yet when I researched it Crestor is known for raising blood sugar...
Hello, I used to be active on these forums but not so much in the last few years. I became aware that I had a blood sugar problem around 2005. My fasting level was always normal . It was post meals...
Hello, I used to visit this forum but haven't been here in several years. I am being treated for spondyloarthropathy which took a very long time to diagose.. My rheumatologist believe it is due to...
Thank you both for your encouragement. Around 2006 I stopped wanting to know the name of my problem and just wanted to feel better. I felt pretty sick but nothing like I read about. I found a gi...
Hi Davis I know the colonoscopy can be negative in CD if the problem is not in the colon or if it is only microscopic and the doctor doesn't hit the right spot. But my current gi must not believe it...
Through blood tests and elimination diets I found out that when I cut out casein (milk protein) from my diet my mouth sores went away completely. After several years of that diet I went back to a...
OMG, tinxabella, how did you figure out what was making the store alarm go off and how do you explain that to the staff in the store? This thread is interesting to me because my gi suggested this...
Thanks, interesting. I don't feel all that great now, humira doesn't seem to be doing much at all anymore. It'll be interesting to see if the major problem I had with mouth ulcers returns when I stop...
I just did my 5th bowel prep (4 colonoscopies and 1 surgery). The last 3 have been miralax and gatorade. I had no problems with that at all until this last time. My advice is do NOT chose green...
Hello: Some of you might remember me. I've been treated for crohns for 5 years with pentasa and 3 years with humira without a definite diagnosis. 100% improvement on bowel symptoms with pentasa, good...
Hi: For the first time ever I have a positive ANA titer of 1:1280, nucleolar diffuse pattern. I also have anti-smooth muscle (SMA) My new gi doc ordered these (probably because he doesn't think I...
Never heard of it. Do you know what the letters stand for?...
I am horrified when I look at pictures taken before treatment compared to now. My cheeks are filled out and no one asks me why I am losing weight....
Recovering from a laparoscopic surgery is usually fairly quick. I don't remember any pain, not like what I had after pelvic/abdominal laps. I think I do remember having an increase in gi symptoms for...
I can't help you with Rifaximin although I have heard of it, as a pharmacy person. I would be a little put off by a doctor who said to me not to ask him what it is for. Is that informed consent?...
I think I remember the posts surrounding this controversy. If I am correct, it occurred when someone started a thread to discuss the possible causes of crohns? I guess it got a little heated and one...
I never had to supply any financial information. I received the copay card in the mail from my doctor's office, I had to activate it and before I knew it, the specialty pharmacy was on the phone with...
I have yet to see a definition of IBS (Irritable bowel syndrome) probably because they can't definite it. It is a catch all diagnosis that I'm sure includes undiagnosed people with inflammatory bowel...
Yes, you can have crohns disease with minimal gi symptoms. With your family history I would be suspicious...
I had the IGG sensitivity tests done and it showed high levels of antibody to wheat, milk protein (casein) egg white and to a lesser degree egg yolk, corn syrup and ginger. My mouth ulcers cleared up...
Where do you live? Not where I live LOL although today is like Spring...