Hi Vicky (and everyone), Sorry I haven't been posting, still read sometimes, but just haven't felt up to it. I hope you're feeling better, and hope you do well with the Humira. I'm back on 6MP for...
Hi Vicky, Still feeling about the same. It took a long time to get here so I'm sure it will take a while to find my way back. How are you doing? Have you been able to start the Humira yet? Are you...
Vicky, When you call to ask about your sinus thing, ask them if you can go into the office for your loading dose so you'll feel safer. If not, at least make sure you do it when someone's at home with...
Pain is a symptom of the disease. Using pain meds, while giving you the ability to cope, does not reduce inflammation or the disease process. You should be under a GI's care and on medications of...
I just started counseling, so couldn't say yet. She's not a specialist for chronic illness, but was recommended by a friend. Not sure I'll stick with her, but it was a good place to start. More...
Vicky, I've just started counseling again as I still can't snap out of this funk I've been in since my last flare started. Having my doctor look me in the face and tell me how serious my disease is,...
Hey Vicky, Did you take the 1/2 dose the first week while still smoking? The next week you take the full dose and quit the smoking. The thing to remember is that if you cheat, have a cigarette or 2,...
Princess, My doctors didn't believe me either until I made them do the Infliximab test and saw a specialist in LA that has done research on Remicade. He told me it was a classic case of serum...
Make your doctor do the Prometheus Infliximab (Remicade) HACA test. It will tell you if you've built antibodies, joint pain is one of the many symptoms. I never had joint pain until I went on...
Yes, you can prolong the surgery, but it can be dangerous. This decision has to be personal, depending on your disease and your history. For me, we've prolonged it each time, but probably too long as...
I would go to the Mayo Clinic in the Scottsdale/Phoenix area. Even if it's for a second opinion at this point and then ask for a referral for a GI in her area....
It's certainly worth trying some of the other meds out there, especially if you don't have much in the way of pain or if you haven't had any obstructive episodes. A good surgeon, depending on how bad...
Sorry to hear it. I was in the exact position. I ended up having to have surgery because my doctors couldn't agree on how to treat me after that, my disease got out of control fast. At least your...
Your adhesion strictures are probably causing an obstruction which causes the pain and bloat (which is also probably why you have the fistula). Does your doctor know you're still having these...
I quit with the Chantix this time around as the Wellbutrin made my blood pressure rise (it never did that before, getting old sucks, lol). Anyway, I only took 2 weeks of the Chantix (which is very...