Hey everyone. Been a long while since I've posted. Having a new issue that I'd like your opinions on, or if you've had any experience with. For the past 3 years I've had my ALP and GGT jump up. I...
That would be nice if it was just my usual, kinda sad when we are hoping it's just our Crohn's making things wacky. But yes Humira was I believe the first one I tried. I'm not sure if it was really...
It's been a few years since I've been here! Live has been crazy for me. But I'm struggling right now with my health and trying to figure out what's going on. Was on Remicade for about 3 years, then I...
Haha beave, interestingly enough there are groups on Facebook that affectionately consider themselves "potheads" but in the foodie kind of way. ;)...
Oh I love mine. Haven't used it much since my life blew up. But it's great for making things like chicken soup. I used to make baked potatoes, mashed potatoes really fast. Like in half the time. Used...
Sorry I haven't been around lately. My life is still completely upside down. I won't go into everything again. The short story, husband of 20 years moves us out of state, 6 months later cheats on me...
So some of you guys know I moved 6 months ago with my family, for my husband's job transfer. I had hopes of getting better care here blah blah. Well a few weeks ago my husband admitted to cheating on...
You sure had a rough go of it scifigal! I was very lucky that my ordeal with Imuran and pancreatitis lasted about a week, and I had to watch how much and what I ate for about a month or so...
I swear, this is the story that many of us have in the beginning. You need a colonoscopy, in addition to those other tests. Drives me batty that they always jump to IBS. Even with a pretty strong...
beave, yes I'd drink the contrast and then they'd put it also in the IV (the good peeing sensation). They'd always come back and say it looked good! No signs of Crohn's disease at all. Then a scope...
CT scans are always negative for me. Then I'll have a scope and my GI doctor will be horrified with how bad it looks in there. It's good for if you have a blockage, and I know some people get lucky...
Do you still have your gallbladder? I know with my Mom she actually had pains more on the left then the right. She swore it was an ulcer in her stomach, but ended up being her gallbladder. Mine was...
I had to do that too. Unfortunately I think I was just on steroids for too long that no matter how slow I went off I still managed to having some withdrawal symptoms. Like my body was having a fit...
Cry. Curl up on a ball on the bed and not move. Yeah I know not helpful. haha I have my bad days with the same problems. My doctor gave me some Celebrex to get through some joint pain I was having...
Well now I want a bacon bagel. Mmmm lol I think A&E would be a good idea since this is continuing. I'd much rather you catch it EARLY rather then wait until that severe pain kicks in (if it's...
Well, going by the time I had it. There was no settling it down for me. I could take a pain pill, I could move positions, the pain remained and was severe. I really don't know if I had fever or not,...
Betty Sue, he's not imagining anything. It does happen even at the lower doses. Maybe not going completely bald like a full dose of chemo. But I started losing a lot more hair after being on...
I had a chest cold back in October. I was pretty sick for almost 2 weeks, and then the darn cough seemed to drag on a good 6 weeks (eventually was just a dry hacking cough). Always a good idea to get...
Thanks dorri, I might have to give that a try. I need to see if I can get a good fish oil pill. I tried it once and was burping up fish all day and that was just gross. lol...
I don't blame you. I was scared to death to take that one, and sure enough a few weeks in I got pancreatitis. Landed me a 4 days hospital stay and that was the most painful thing I've ever had. I had...
I get it sometimes. Especially after a lot of diarrhea, even though I clean up really well it seems I'll still have some oozing afterwards. Sadly usually when I'm in public and can feel the...
I agree with everyone, you've gotta go slower. My docs have given me 1 mg pills before so I could go down all the way that slow. However I won't lie, after being on it for so long sometimes you still...
I think I've only been on it for 10 days at the most....
I actually want to drive him back home the 3 hours to see my old GI doc. Let him get a look at everything. These days I miss that guy. But we do plan on giving the antibiotic a chance for now. I just...
I don't know what to think. I'm more frustrated then I was before. So he says there was active inflammation. A biopsy taken in the terminal ileum (where all of his pain is at) showed a lot of "immune...
Ah, Labradorite I see you are a fan of Doc Vader too. ;) Anyways, those kinds of posts always put me in a cranky pants mood. People that reject science, believe they know better because of internet...
I remember Humira being pretty painful, especially in the thighs for me. I could only tolerate it in the stomach. But yes, switch the sites around each time. Are you using the auto-pens? I was never...
So hard to say, I mean we all know Crohn's can effect the skin. Maybe some kind of inflammatory cause that is helped with the Remicade? We have so many issues don't we!...
Can't say that I've heard of that one. My brother gets those kind of boils (or cysts) under his underarms (he doesn't have Crohn's btw). They kept coming back until the doctor went in and cleaned it...
Never found anything "natural" that helped unfortunately. The longer I didn't get real treatment the worse my insides got. Even if your symptoms improve the damage could still be occurring inside....
My guts hurt and burn just thinking about this honestly....
Our beagle had bouts of colitis over the years. They would give her steroids, antibiotics and a prescription can food that really helped for sensitive tummies. Thankfully she would only need a few...
I don't think I gained any weight on Humira. Hard to tell since I was always seeming to be tapering steroids. Self injecting is a piece of cake, no worries there. It's a little scary the first few...
Thanks you guys, I'd love nothing more for it to be something else. I think he just got me riled when he said it might be "nothing." Almost like it triggered leftover resentment that I've got down...
Oh yes, I've definitely been going the genetic route with the GI doc. Being he's also my GI doctor I thought it would help. Unfortunately he's relatively new to me as well, although he knows how...
It was dejavu for me when our GI doc came out after doing my son's scopes. Took me back 10 years to my first scope. He said there was mild inflammation scattered through out his colon. So we would...
Oh man, that's a lot of work you need done. I'm afraid of going to the dentist, seems like they always find a mouth full of things to do. I had my two top wisdom teeth, two top molars next to them...
Yes, I had a flare up in my throat a few years back. I couldn't figure out why I had such a constant sore throat. My doctor put me on an antibiotic which just made me feel worse. Finally got...
I don't know if you'll have it forever. My doctor was just telling me that the longer I'm off of it I'll start to see the fat go away in places it went to thanks to the steroids. I've only been off...
So sorry this all happened to you! I would say so, that being this weak would be normal after such an ordeal. Take care of yourself and give yourself lots of time to heal up. That's a lot that you've...
My last scope was the same. No way would I go off of medications though. I'd go right back in to a flare....
Sometimes. It's like break out the fat pants!...
Yes, migraines have been a classic sign of withdrawals for me. Same with body aches, joint pain, weakness, exhaustion, messed up sleeping, nausea. Ugh it's so hard. You might need to go up a bit and...
Have you tapered off the entocort recently? I know I'm feeling withdrawals from being on steroids so long, even though it's been a good 6 weeks. Part of it has been feeling dizzy, headaches,...
Well he does have a chronic illness. No he will never be "normal". He will have periods in his life where he's in remission and feeling better (which doesn't mean completely 100%) and he will have...
Oh yes. I can't count how many times that has happened to me. I also get very flushed in the face, all red. Not pleasant....
Low dose birth control pill for me too, have for years and years. I even skip most of my periods, which helps with my Crohn's symptoms as well as headaches and stuff from my periods. No side effects....
I'm so very sorry you are going through this. It's just unacceptable how they treat people now with REAL pain. They are so afraid of addiction that they don't care if we sit and wither away from...
Well 6mp can put you at risk for pancreatitis. I got it from it's sister drug Imuran. However the pain is severe and directly in the upper middle of your abdomen. You'll know it when you have that....
Oh goodness, I would have been mortified when they gave me the gloves too. As if stool samples aren't fun enough, but at least I usually get the hat to sit on with that too! Now they want us fishing...