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minnietoty

HealingWell Forum
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Member Profile
Display Name
minnietoty
Profile Created
12/26/2010 8:37 AM
Last Seen
5/7/2022 5:10 AM
Total Posts
2997

Last 50 Posts

Bruising

Thank you so much, straydog. I’ll check with my GI....

5/5/2022 10:04 AM

Crohn's Disease
Bruising

Does anyone suffer from bruising? Lately, I started to have a lot pf bruises all over my body. Is it mesalamine related? Almost 2 weeks ago, I was prescribed mesalamine enema 4g every other day....

5/5/2022 7:24 AM

Crohn's Disease
Pentasa enema for rectal narrowing

U B Tough, could you please elaborate more on these turmeric suppositories...

5/4/2022 2:51 PM

Crohn's Disease
Rectal narrowing and spasm

I’m a Crohn’s patient on Remicade every 8 weeks and suffered before from a perianal fistula. Since last November I have had rectal problems including rectal pain and soiling. I underwent an MRI...

4/25/2022 4:31 AM

Ulcerative Colitis
Pentasa enema for rectal narrowing

No unfortunately it doesn’t seem to be IBS related. It has to do with my rectum and my anal sphincter. My GI suggested having biofeedback treatment but I refused. So, he recommended mesalamine enema...

4/24/2022 5:43 PM

Crohn's Disease
Pentasa enema for rectal narrowing

Since last November I have had rectal problems including rectal pain and soiling. I underwent an MRI dynamic which did not show any fistula. Rectal pain has been persistent ever since. My GI...

4/24/2022 9:52 AM

Crohn's Disease
Does eating “forbidden food” harm the colon

Yea, I agree with all of you that food is individual. Up till now, what triggers my flare ups is fats and high fibers....

4/24/2022 9:39 AM

Crohn's Disease
Does eating “forbidden food” harm the colon

The title of my post might sound weird. I mean the food that I was not allowed to eat in the past when I was first diagnosed. In the last couple of years, I started to add food that was forbidden...

4/3/2022 3:46 PM

Crohn's Disease
Can we exert extra effort like normal people

I have been having Crohn’s for 15 years. I started Remicade 6 years ago after I was diagnosed with a perianal fistula and Remicade has been a lifesaver ever since. My problem is that at my workplace,...

3/5/2022 1:57 PM

Crohn's Disease
lurking inflammation

Hi Kevin What do you mean that the biopsies were clear? Yes, if you are complaining from symptoms, you should ask your GI to have a CT to find out what is causing these symptoms....

2/18/2022 6:48 PM

Crohn's Disease
Weight loss

73monte Thank you so much. Yes, your explanation makes sense. Never thought that rectal inflammation could cause weight loss but it has been acting up for some time now and it has really given me...

2/18/2022 6:43 PM

Crohn's Disease
My Daughters ongoing saga.

73monte Hope your daughter’s new extraintestinal symptoms get better during this drug-free phase. Did she have Remicade antibodies measured before taking your daughter off of Remicade? Keeping my...

2/18/2022 6:41 PM

Crohn's Disease
Is Remicade ineffective for rectal inflammation

Thank you so much, Clo. Same here. Remicade was a lifesaver for me and after 3 years of taking it on a monthly basis, my perianal fistula healed. I wished it could put my rectal inflammation under...

2/18/2022 6:29 PM

Crohn's Disease
Weight loss

I have been posting a lot lately as things don’t seem to be under control. The irony is that my bloodwork indices are +/- the normal range: some are above, some are normal and some are below normal....

2/16/2022 3:10 PM

Crohn's Disease
Is Remicade ineffective for rectal inflammation

Straydog, thank you so much. Well, this year marks the 15th year of my diagnosis. I tried pentasa and pred suppositories before but they did not control the inflammation. Enemas are better for me but...

2/16/2022 2:25 PM

Crohn's Disease
Is Remicade ineffective for rectal inflammation

Since I began Remicade back in 2016, my rectal inflammation has never been under control. I kept complaining to my GI and every time, I would be prescribed a rectal medication whether a suppository...

2/15/2022 11:57 PM

Crohn's Disease
Rectal soiling

73monte and Clo, Thank you so much. The last days were really super busy at work. I had my Remicade infusion and as you advised me I saw my GI. It turned out that my rectum is inflamed and he put me...

2/15/2022 11:44 PM

Crohn's Disease
Blood counts

Yes definitely. Elevated WBCs means inflammation. When I flare up, my WBCs rise up; that’s why I was put on both Imuran and Remicade to reduce inflammation. Pred reduces inflammation too....

2/9/2022 10:49 AM

Crohn's Disease
Just diagnosed

Did you try Questran for diarrhea? My GI prescribes it before lunch and he thinks it is ok to take it on a daily basis, while he refuses that I take Imodium every day. Did you try sudocrem for the...

2/8/2022 3:22 PM

Crohn's Disease
Rectal soiling

It seems that issue won’t end. December 2021, I underwent an MRI dynamic study to find the cause of the soiling. All the results showed borderline rectal muscle and my GI recommended I have to have...

2/8/2022 3:16 PM

Crohn's Disease
Evusheld

Straydog Thank you for the info. Yes, I was thinking along these lines. As IBD patients on immunosuppressants, especially infliximab, our reservoir of antibodies is very low. My GI suggested that I...

1/25/2022 3:34 PM

Crohn's Disease
Evusheld

Read about the new preventive COVID-19 medication for immunocompromised patients or those who do not benefit or cannot tolerate vaccines. These are two monoclonal antibodies given as to successive...

1/25/2022 12:56 PM

Crohn's Disease
My COVID infection. Update.

Hi Clo Thank you so much. Saw my GI and he the reason he asked me to me to visit him was to convince me that it is the responsibility of the chest doctor to treat me and not him. He informed the GI...

1/25/2022 12:51 PM

Crohn's Disease
My COVID infection. Update.

This is day 17 and I’m still suffering from post-covid symptoms. Saw a chest doctor and he was worried to examine me because of my autoimmune diseases: Crohn’s and HS. He prescribed me a quinolone...

1/22/2022 4:17 PM

Crohn's Disease
Omicron? Anyone?

Nicky and Clo Thank you so much. @Nicky I will give zinc tablets a try. @Clo When I asked doctors about the fact that Remicade, could as a biologic, treat COVID, some of them denied it. Out of...

1/11/2022 5:16 AM

Crohn's Disease
Omicron? Anyone?

In 2020, I got two documented infections of coronavirus as I got other undocumented ones. 2021 went on well with some suspicions of infections that turned out to be negative. I’m starting 2022 with a...

1/10/2022 3:11 AM

Crohn's Disease
Is there a way to reduce Remicade post-infusion side effects?

Straydog and Clo Thank you so much. Well actually, I do take pre-meds like steroids and antihistamine injections prior to my dose. I’m on 400 mg of Remicade. The symptoms I mentioned start a day...

12/17/2021 3:01 AM

Crohn's Disease
Is there a way to reduce Remicade post-infusion side effects?

I have been on Remicade since January 2016 until now. My dose was due yesterday but as I have a history of infusion- induced reaction, my GI decided that there is a certain experienced doctor who has...

12/16/2021 11:55 AM

Crohn's Disease
My Daughters update and new issues?

This is really good news :/ Hope they could find a better alternative for the iron infusion and the biopsy results would be good, too....

12/13/2021 11:40 PM

Crohn's Disease
Does MRI contrast cause/trigger a flare up?

Oh, my goodness, Clo. My fistula is supposed to have healed based on last MRI last March. I can’t fancy that my GI would order a test that would throw me into a flare up. I can’t figure out on my own...

12/7/2021 12:17 AM

Crohn's Disease
Does MRI contrast cause/trigger a flare up?

Last Thursday, I had an MRI dynamic study to investigate the cause of rectal soiling. When I was on the machine table and after I was given 3 enemas (50 ml) each, I started to feel throbbing pain in...

12/6/2021 4:52 PM

Crohn's Disease
MRI pelvis dynamic. Need advice

Clo Thank you so much. Your words are really comforting whether here or on the other post. I really appreciate it. I had my MRI last Thursday and ever sine I have got a flare up. When they injected...

12/6/2021 4:37 PM

Crohn's Disease
MRI pelvis dynamic. Need advice

I have been away from HW for some time now. There were the normal ups and downs of Crohn’s and I’m still on Remicade every 8 weeks. Almost 2 months ago, I started to have rectal soiling. At the...

11/29/2021 1:58 PM

Crohn's Disease
Where is Minnietoty, UB Tough, NCOT?

Hello everyone I really miss being around. I’m very much indebted to HW and every member here. Your pieces of advice are invaluable. Things have been going on well with the normal ups and downs until...

11/28/2021 5:05 PM

Crohn's Disease
An uncontrollable flare up

73monte and EurditePaul, thank you so much. It has been 6 weeks sine I ate this spicy fish and things do not seem to get better. In 2 weeks, my hemoglobin level went down from 12 to 11.1 and my WBCs...

7/30/2021 11:29 AM

Crohn's Disease
Radiating pain

Sci-fi You don’t have proctitis, right? I can relate to the pain you describe. I normally have it when my rectum is flaring up. Make this test. If it is a fissure as the others suggest, apply...

7/23/2021 8:48 PM

Crohn's Disease
Anyone from Spain

A friend is going to be traveling to Spain soon and I’m in a bad need of steroid/budesonide rectal foam enema. What is the name of the brand available in Spain? Is it Budenofalk rectal foam enema or...

7/23/2021 8:36 PM

Crohn's Disease
An uncontrollable flare up

I have been doing fine lately and I even managed to re-introduce items of food I had stopped eating several years ago. However, five weeks ago, I ate fish that turned out to be spicy. It triggered a...

7/23/2021 8:32 PM

Crohn's Disease
Is combination therapy still relevant?

I have been on this combo for almost 4 years since I started Remicade. When COVID-19 broke out last year, my GI decided I should stop taking Imuran for fear that the combo might weaken my immune...

7/23/2021 8:19 PM

Crohn's Disease
Suggestions for easing fistula pain

After 3 years of monthly Remicade infusions, my perianal fistula was declared to have healed in 2019. However, a week ago, I started to have this dull, severe, throbbing pain that nothing eases or...

4/8/2021 5:26 AM

Crohn's Disease
Does anyone have HS along with Crohn's

I was diagnosed with Hidradenitis Suppurativa (HS) 4 years ago. I was told then that this is another autoimmune disease that affects the skin and comes hand in hand with Crohn's. The dermatologist...

1/14/2021 6:28 PM

Crohn's Disease
COVID-19 infection for the second time in a row

Thank you so much, Clo. Well, I couldn't continue the pred course as my heart rate got very fast. I'm getting better but I still get this stabbing pain in my back but I'm coping with it....

1/14/2021 6:14 PM

Crohn's Disease
A short term course of prednisolone

73 monte, thank you so much. Could you please explain more what is meant by a daily taper? How can I do this with 20 mgs of pred? Actually, they didn't say it was a short term course. I'm thinking of...

12/30/2020 5:47 AM

Crohn's Disease
A short term course of prednisolone

My Coronavirus symptoms deteriorated and though this is day 12 of infection, the chest doctor wants to put me on 20 mg pred. Asked my GI about his opinion esp that I'm now struggling with the...

12/30/2020 2:46 AM

Crohn's Disease
Anus pus

Did you see a surgeon? Doesn't your GI suspect any perianal fistula? Normally, when I do have pus, this is because of my perianal fistula. See a colorectal surgeon first and if you are really...

12/30/2020 2:37 AM

Crohn's Disease
COVID-19 infection for the second time in a row

Dear all, thank you so much. I really appreciate it. The first time, I think Remicade did its job and it went on well without me noticing I had mild viral pneumonia. This time, the strain is stronger...

12/30/2020 2:34 AM

Crohn's Disease
COVID-19 infection for the second time in a row

I haven't been around in HW for a while as I had a lot of work to do. October 17, I got fever, diarrhea and a sore throat. Saw an ENT for the sore throat who immediately suspected COVID and ordered...

12/21/2020 3:55 PM

Crohn's Disease
Update: I don't have corona

The results of the CT chest scan did not show any abnormalities. I haven't heard form my GI though. I still have this itching sore throat and earache + chest pain. It seems I've caught a bad cold. I...

10/19/2020 6:21 PM

Crohn's Disease
Suspected COVID 19

73monte, thank you. The blood test work came back all negative except for the WBC which was a bit elevated to match the sore throat. My GI said we have to wait for the results of the CT chest and...

10/19/2020 4:44 AM

Crohn's Disease
Crohn's and reflux?

On which PPI is she?...

10/18/2020 4:50 PM

Crohn's Disease
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