Thank you so much, straydog. I’ll check with my GI....
Does anyone suffer from bruising? Lately, I started to have a lot pf bruises all over my body. Is it mesalamine related? Almost 2 weeks ago, I was prescribed mesalamine enema 4g every other day....
U B Tough, could you please elaborate more on these turmeric suppositories...
I’m a Crohn’s patient on Remicade every 8 weeks and suffered before from a perianal fistula. Since last November I have had rectal problems including rectal pain and soiling. I underwent an MRI...
No unfortunately it doesn’t seem to be IBS related. It has to do with my rectum and my anal sphincter. My GI suggested having biofeedback treatment but I refused. So, he recommended mesalamine enema...
Since last November I have had rectal problems including rectal pain and soiling. I underwent an MRI dynamic which did not show any fistula. Rectal pain has been persistent ever since. My GI...
Yea, I agree with all of you that food is individual. Up till now, what triggers my flare ups is fats and high fibers....
The title of my post might sound weird. I mean the food that I was not allowed to eat in the past when I was first diagnosed. In the last couple of years, I started to add food that was forbidden...
I have been having Crohn’s for 15 years. I started Remicade 6 years ago after I was diagnosed with a perianal fistula and Remicade has been a lifesaver ever since. My problem is that at my workplace,...
Hi Kevin What do you mean that the biopsies were clear? Yes, if you are complaining from symptoms, you should ask your GI to have a CT to find out what is causing these symptoms....
73monte Thank you so much. Yes, your explanation makes sense. Never thought that rectal inflammation could cause weight loss but it has been acting up for some time now and it has really given me...
73monte Hope your daughter’s new extraintestinal symptoms get better during this drug-free phase. Did she have Remicade antibodies measured before taking your daughter off of Remicade? Keeping my...
Thank you so much, Clo. Same here. Remicade was a lifesaver for me and after 3 years of taking it on a monthly basis, my perianal fistula healed. I wished it could put my rectal inflammation under...
I have been posting a lot lately as things don’t seem to be under control. The irony is that my bloodwork indices are +/- the normal range: some are above, some are normal and some are below normal....
Straydog, thank you so much. Well, this year marks the 15th year of my diagnosis. I tried pentasa and pred suppositories before but they did not control the inflammation. Enemas are better for me but...
Since I began Remicade back in 2016, my rectal inflammation has never been under control. I kept complaining to my GI and every time, I would be prescribed a rectal medication whether a suppository...
73monte and Clo, Thank you so much. The last days were really super busy at work. I had my Remicade infusion and as you advised me I saw my GI. It turned out that my rectum is inflamed and he put me...
Yes definitely. Elevated WBCs means inflammation. When I flare up, my WBCs rise up; that’s why I was put on both Imuran and Remicade to reduce inflammation. Pred reduces inflammation too....
Did you try Questran for diarrhea? My GI prescribes it before lunch and he thinks it is ok to take it on a daily basis, while he refuses that I take Imodium every day. Did you try sudocrem for the...
It seems that issue won’t end. December 2021, I underwent an MRI dynamic study to find the cause of the soiling. All the results showed borderline rectal muscle and my GI recommended I have to have...
Straydog Thank you for the info. Yes, I was thinking along these lines. As IBD patients on immunosuppressants, especially infliximab, our reservoir of antibodies is very low. My GI suggested that I...
Read about the new preventive COVID-19 medication for immunocompromised patients or those who do not benefit or cannot tolerate vaccines. These are two monoclonal antibodies given as to successive...
Hi Clo Thank you so much. Saw my GI and he the reason he asked me to me to visit him was to convince me that it is the responsibility of the chest doctor to treat me and not him. He informed the GI...
This is day 17 and I’m still suffering from post-covid symptoms. Saw a chest doctor and he was worried to examine me because of my autoimmune diseases: Crohn’s and HS. He prescribed me a quinolone...
Nicky and Clo Thank you so much. @Nicky I will give zinc tablets a try. @Clo When I asked doctors about the fact that Remicade, could as a biologic, treat COVID, some of them denied it. Out of...
In 2020, I got two documented infections of coronavirus as I got other undocumented ones. 2021 went on well with some suspicions of infections that turned out to be negative. I’m starting 2022 with a...
Straydog and Clo Thank you so much. Well actually, I do take pre-meds like steroids and antihistamine injections prior to my dose. I’m on 400 mg of Remicade. The symptoms I mentioned start a day...
I have been on Remicade since January 2016 until now. My dose was due yesterday but as I have a history of infusion- induced reaction, my GI decided that there is a certain experienced doctor who has...
This is really good news :/ Hope they could find a better alternative for the iron infusion and the biopsy results would be good, too....
Oh, my goodness, Clo. My fistula is supposed to have healed based on last MRI last March. I can’t fancy that my GI would order a test that would throw me into a flare up. I can’t figure out on my own...
Last Thursday, I had an MRI dynamic study to investigate the cause of rectal soiling. When I was on the machine table and after I was given 3 enemas (50 ml) each, I started to feel throbbing pain in...
Clo Thank you so much. Your words are really comforting whether here or on the other post. I really appreciate it. I had my MRI last Thursday and ever sine I have got a flare up. When they injected...
I have been away from HW for some time now. There were the normal ups and downs of Crohn’s and I’m still on Remicade every 8 weeks. Almost 2 months ago, I started to have rectal soiling. At the...
Hello everyone I really miss being around. I’m very much indebted to HW and every member here. Your pieces of advice are invaluable. Things have been going on well with the normal ups and downs until...
73monte and EurditePaul, thank you so much. It has been 6 weeks sine I ate this spicy fish and things do not seem to get better. In 2 weeks, my hemoglobin level went down from 12 to 11.1 and my WBCs...
Sci-fi You don’t have proctitis, right? I can relate to the pain you describe. I normally have it when my rectum is flaring up. Make this test. If it is a fissure as the others suggest, apply...
A friend is going to be traveling to Spain soon and I’m in a bad need of steroid/budesonide rectal foam enema. What is the name of the brand available in Spain? Is it Budenofalk rectal foam enema or...
I have been doing fine lately and I even managed to re-introduce items of food I had stopped eating several years ago. However, five weeks ago, I ate fish that turned out to be spicy. It triggered a...
I have been on this combo for almost 4 years since I started Remicade. When COVID-19 broke out last year, my GI decided I should stop taking Imuran for fear that the combo might weaken my immune...
After 3 years of monthly Remicade infusions, my perianal fistula was declared to have healed in 2019. However, a week ago, I started to have this dull, severe, throbbing pain that nothing eases or...
I was diagnosed with Hidradenitis Suppurativa (HS) 4 years ago. I was told then that this is another autoimmune disease that affects the skin and comes hand in hand with Crohn's. The dermatologist...
Thank you so much, Clo. Well, I couldn't continue the pred course as my heart rate got very fast. I'm getting better but I still get this stabbing pain in my back but I'm coping with it....
73 monte, thank you so much. Could you please explain more what is meant by a daily taper? How can I do this with 20 mgs of pred? Actually, they didn't say it was a short term course. I'm thinking of...
My Coronavirus symptoms deteriorated and though this is day 12 of infection, the chest doctor wants to put me on 20 mg pred. Asked my GI about his opinion esp that I'm now struggling with the...
Did you see a surgeon? Doesn't your GI suspect any perianal fistula? Normally, when I do have pus, this is because of my perianal fistula. See a colorectal surgeon first and if you are really...
Dear all, thank you so much. I really appreciate it. The first time, I think Remicade did its job and it went on well without me noticing I had mild viral pneumonia. This time, the strain is stronger...
I haven't been around in HW for a while as I had a lot of work to do. October 17, I got fever, diarrhea and a sore throat. Saw an ENT for the sore throat who immediately suspected COVID and ordered...
The results of the CT chest scan did not show any abnormalities. I haven't heard form my GI though. I still have this itching sore throat and earache + chest pain. It seems I've caught a bad cold. I...
73monte, thank you. The blood test work came back all negative except for the WBC which was a bit elevated to match the sore throat. My GI said we have to wait for the results of the CT chest and...
On which PPI is she?...