I'm sorry I'm not familiar with imraldi. From what I've watched and heard doctors say, you should not make any changes to your medication at this moment. They say we have to take our medication on a...
I was scheduled for an MRI next week amd I cancelled it today. It's not that urgent. A month ago I told my GI that I suspected that my healed perianal fistula reopened and that's why he ordered an...
Last year, an MRI showed that my perianal fistula had healed after being on Remicade for 3 years. A couple of months, I told my GI that I feel that I have the same symptoms I used to have before. His...
Dear all, Thank you so much. I could finally see my GI. He suspected that my stomach is inflamed too that's why I'm throwing up incessantly. So, he decided I will have to eat only custard amd jelo,...
73monte, thank you so much. I'm suspecting I've got C. difficile. Things are becoming worse and I can hardly ever sleep because of the need to rush to the toilet. I think rifaximin has worsened my...
I haven't been here since ages. Happy New year everyone! Since last Thursday I started to have non-stop vomiting and diarrhea. Failed to contact my GI but the GP said I had gastroentritis. She...
Agree with the others that a high intake of fibers could be the culprit. Also, it's normal to flare up when you are on Remicade. I have been for it since 2016 and I can get severe flare ups. You...
I managed finally to see the GI the medicare system has referred me to for a second opinion. When I had my last colonoscopy, it showed that I had mild inflammation but with active disease. As a...
Sounds promising:)...
UB, when I had my perianal fistula for 3 years, I used to take both pentasa and steroid suppositories for proctitis and they didn't cause any issues. Enemas, on the other hand, were a real pain in...
Last March, I underwent an MRI which showed that the perianal fistula healed. This was followed by a colonoscopy where biopsies were taken and they showed some form of clinical remission. Hence,...
Dear all, thank you. Had to postpone my appointment with my GI because of some family issues and will see him next week. The problem still persists ; whenever I try to cook anything no matter how...
Dear all, thank you. Well this has never been the case with my IBD. Something abnormal has happened and I can't figure it out. But more than 10 years ago, when I was first diagnosed with Crohn's, I...
I developed lately a kind of sensitivity of heat. Last Friday, I was cooking food for my family and that included deep frying. I felt sudden severe pain in my terminal ileum, however, I continued...
Lab, 70 days since the last infusion. Hope the antibodies did not get elevated....
73monte, thank you. When the fistula healed, my GI decided to put me off Remicade. Second day and I'm having severe spasm and dizziness. Why did you mention that I should have been tested for...
As you might remember, after the MRI showed that the fistula has healed, my GI decided that I have to stop taking Remicade. However, starting day 63, I started to have severe abdominal pain. I tried...
73monte and Lab, thank you. I'm waiting, too and keeping my fingers crossed hoping that I don't flare up soon. I've followed-up with my current GI for 12 years and know his character very well. So, I...
I'm suffering from this internal conflict now. Given that I'm the sole person at work who has got IBD, and accordingly no one can relate, I do have a problem. I used to be a very hard working person...
73monte, thank you. I've been only 45 days away from Remicade but he doesn't think that the activity of my disease now requires taking an anti-TNF medicine. He said that we will keep an eye and see...
The biopsy results came out finally. It read: Mild chronic non-specific ileocolitis with edemateous lamina propria throughout the obtained ileal and colonic specimens. My GI said that that was OK and...
Lab, thank you. I had a colonoscopy two days ago. My GI said that I have to continue taking my regular meds until the results of the biopsies are out. Then, he will reconsider the plan. Hopefully, he...
Dear all, thank you very much for your pieces of advice. I really appreciate it. @NCOT. I will definitely look for this thread. @iPoop. I'm glad that you could finally got off of pred. I'll try to...
Jake and Juliet, thank you very much. Yes that's totally me. I don't want to let anyone down. I'm trying now to change my perspective of things. When I have to take my nephews and nieces on a picnic,...
Had a colonoscopy two days ago to see if there is mucosal healing or not. Drinking the prep gallons was not easy this time. 4 or 5 hours before the exam, I started to have severe sinusitis headache...
Lab, I don't think that after both the healing of the fistula and my doctor's decision that I'll stop Remicade that I'll have any issues with them....
Lab and NCOT, thank you very much. My GI ordered a colonoscopy to see whether there is mucosal healing or not. However, he decided that I'll stop Remicade and will taper Budesonide. Imuran will be...
Dimtri71, thank you very much....
When I got the results, it read, with comparison with the previous 2 MRIs, no detection of any perianal fistulae. Since 2016, I got a perianal fistula and was put on Remicade, accordingly. Since...
Dear all, thank you very much. I really do appreciate it. I'm very blessed to belong to a family like HW. I'm trying my best to cope. I know I'm under a lot of stress and am trying now to think...
As you know, I"m a college teacher and have a lot of academic and administrative responsibilities. Since my brother passed away last year, I have gotten new responsibilities like taking care of my...
I can't tolerate probiotics. I tried several brands, too. But everytime I took them they exacerbated my diarrhea so I forgot all together about the idea of taking probiotics....
Newmommy26, thank you. That sounds a great idea. I'll give it a try....
73monte, thank you. There's a little of dark yellow discharge. I don't think it's a new fistula. I think it's my old fistula acting up....
I have been absent from this forum for some time and I was trying to cope with life hurdles and with my disease. I tapered budesonide and went down to 6mg. However, since last week, I woke up with a...
For the second time, 10-11 hours after I take Dexilant, I get this horrible rectal pain. I checked the side effects and found proctititis which I already have as a side effect. It's weird that a PPI...
SharonZ and Jump1959, thank you. I gave Dexilant another chance and hope things go on well. I think one dose of Dexilant is not as effective as 2 doses of Nexium. I read some threads in this forum...
RosieinOz, thank you. Well, it seems my Crohn's got jealous or what. After only 1day on Dexilant, I had to return to Nexium because of severe rectal pain. I can't figure out how to control it esp...
I couldn't overcome my panick to undergo the impedance test esp after doctor instructed me to stay in hospital and not to move a lot. I told him that the purpose was to measure reflux while I'm...
Denise, thank you very much. I was instructed to take my meds normally even the PPI, Nexium as my GI wants to assess whether I get reflux on it or not....
Had an upper GI endoscopy which showed GERD LA A and incompetent sphincter. My GI explained to me that I have to undergo a 24-hr impedance test to determine the cause of reflux since I'm on a double...
Dencha and SharonZ, thank you very much for your positive feedback. I upped the Baclofen dose and it does not seem it's going to work. Tbh, I'm thinking of calling my GI to schedule an endoscopy...
Have had GERD for 20 years now. Have been on Nexium 40x2 for 12 years in addition to Zantac, Baclofen and Gaviscon. Saw my GI again because my GERD became worse. My GI discussed with me all options...
Sharon, thank you. My GI changed his mind and decided to perform an endoscopy which is fine with me....
I've been having GERD for 20 years now. Had several endoscopic during this journey. Since 2007, I have been put on Nexium 40 two times/day in addition to Baclofen, famotidine or zantac and Gaviscon...
So sorry that you're not feeling well. Mine too has become worse but I'm on high doses of meds. My advice would be to contact your doctor. Did you have an endoscopy?...
NCOT and Dave, thank you. For some odd reason, my GI refused I get the 1 mg tablet. However, I'll try to convince him again. You made my day when you said it's possible. Yes, I really need to get rid...
I have been on pred for a year and 2 months and then was switched to budesonide (entocort) since November 2011. Since then, I have been on different doses from 3 mg until 9 mg. In 2016, I started...
I'm a Crohn's patient with twenty years of GERD and gastritis. Last month, I lost my voice so my GI put me on Nexium 40 mg x 2, Zantac 300 mg x2, Baclofen and Gaviscon Advance. I had a referral to an...
73monte, thank you so much. I really appreciate it. I texted the blood work results to my doctor and he asked me to do a urine analysis and have an abdominal ultrasound (I informed him previously...