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franny19

HealingWell Forum
>
Member Profile
Display Name
franny19
Profile Created
3/3/2012 3:31 AM
Last Seen
1/19/2021 2:29 AM
Total Posts
260

Last 50 Posts

Covid and antibodies and humira?

Had covid before Xmas. Had it pretty mildly really. Presumably, i now have antibodies that will protect me a bit but does the humira destroy the antibodies or stop them developing? Any thoughts on...

1/18/2021 11:38 AM

Crohn's Disease
Newest RCT D vs Covid, plus C

I had covid before Xmas - I supplemented as suggested by Patrick Holford - 1 gram of powdered vitamin c and zinc every hour for the first 2 days and continued less frequently into the third day as...

1/9/2021 3:11 PM

Prostate Cancer
Covid antibodies?

Thankyou Susie for your thoughts. I will try and sort an antibody test. Hopefully I will get the vaccine soon as am in the UK....

1/9/2021 3:00 PM

Crohn's Disease
Covid antibodies?

I recently had covid - before Xmas - I am fine apart from a very mild cough which started before. I stopped my humira - and have been told to restart it now by my consultant. 4 weeks off humira. My...

1/8/2021 10:20 AM

Crohn's Disease
Humira and vaccines?

Hearing conflicting information re vaccines and being able to have one if on humira. Here in the UK the Oxford vaccine has been announced today. Are there any vaccines that we can have? Thankyou...

11/23/2020 1:02 PM

Crohn's Disease
Imraldi - sore tongue and mild sore throat.

Thankyou so much....

4/13/2020 12:31 PM

Crohn's Disease
Imraldi - sore tongue and mild sore throat.

Just wondering - i have suddenly had a sore tongue for about a week now and a mild sore throat too for longer. About 10 weeks ago my injections were increased to once a week as my body was too...

4/12/2020 2:35 PM

Crohn's Disease
Coronavirus and imraldi dose

Thanks all. Just one thing: we hear mainly about those with cardiovascular problems, liver and kidney disease etc but not auto immune. Do we have any idea yet about crohns, humira (imraldi) and...

3/21/2020 12:31 AM

Crohn's Disease
Coronavirus and imraldi dose

I am worried as I had my imraldi dose raised to one injection every week as tests showed my body was a bit resilient to the drug. I have been doing this for about 8 weeks now. I have silent crohns...

3/20/2020 5:30 PM

Crohn's Disease
Advice needed

Hi - l have crohns - have had it for 25 years - no symptoms except some days I get the runs worse than others. 16 months ago I had my first small intestine mri and a colonoscopy. The results said a...

5/9/2018 3:49 PM

Crohn's Disease
Worried about humira - thoughts please

Thankyou ontheflipside - so pleased to hear you are doing so well. And you are young like him. He has been cleared for humira and will start in about two weeks. Like you, steroids don't work now -...

10/24/2016 11:33 PM

Ulcerative Colitis
Worried about humira - thoughts please

Sorry I poop I didn't answer you - he took the removable at a time when he nearly lost his bowel so we would have tried anything rather than that and it did work while he was on azathiaprin and...

10/23/2016 12:41 PM

Ulcerative Colitis
Worried about humira - thoughts please

Thankyou all - keep posting - really appreciate the comments and the links and your understanding... Things are good in Blighty thanks Richard......

10/23/2016 11:55 AM

Ulcerative Colitis
Worried about humira - thoughts please

What about, though, the people you read about who say they felt so ill on it, made their lives worse etc - you can't help listening to them?...

10/23/2016 8:31 AM

Ulcerative Colitis
Worried about humira - thoughts please

Ok I appreciate your straightforward reply! It's his decision - he's 24 - we are just trying to gather opinions. Thanks so much....

10/23/2016 8:18 AM

Ulcerative Colitis
Worried about humira - thoughts please

Thanks for your reply. Am worried 1)Risk of lymphoma and t-cell cancer 2) how long will it work for? He's young and don't want to use up all drug possibilities though know there are others. 3) long...

10/23/2016 7:11 AM

Ulcerative Colitis
Worried about humira - thoughts please

My son is 24 - has ankylosing spondylitis and UC. Have kept the UC under control for over a year now through Chinese herbs but they don't work on his back. Also now got over confident and hasn't...

10/23/2016 12:32 AM

Ulcerative Colitis
Ankylosing spondylitis - advice please

Hi all - my 24 year old son has ulcerative colitis and AS. We finally have the colitis under control having seen an amazing Chinese Medecine dr but having got a permanently bad back with constant...

4/10/2016 10:24 AM

Chronic Pain
BAD STOMACH CRAMPS

He's 23. He finds enemas really hard....

3/12/2015 3:46 PM

Ulcerative Colitis
BAD STOMACH CRAMPS

30mg for 5 days and then went to 40mg 3 days ago - so not long and I suppose slower to work the more times you have it. Last dose was ended last May....

3/12/2015 3:43 PM

Ulcerative Colitis
BAD STOMACH CRAMPS

Has been on salofalk granules and some amazing chinese herbs through a very eminent chinese consultant. Christmas to now is definitely his danger time. Have tried so much and nothing really helps -...

3/12/2015 5:48 AM

Ulcerative Colitis
BAD STOMACH CRAMPS

My son's having a bad flare - now on 40mg of pred. (should I get him gastro-resistant as been given normal tablets?) Stomach cramps are nasty -make him feel like he needs the loo all the time. Any...

3/12/2015 12:32 AM

Ulcerative Colitis
Is it just a matter of time for all of us?

What about trying chinese medecine? We went to a top man in the UK and he got my son off prednisolone (he couldn't reduce from 40mg without flaring) - that was 10 months ago - and although flaring a...

3/6/2015 12:24 AM

Ulcerative Colitis
Is it just a matter of time for all of us?

I think most people come on here when they need help or advice ie when things aren't going well... we've not been on for ages but now my son's in a flare I've been back on for advice which has been...

3/5/2015 3:50 PM

Ulcerative Colitis
UCERIS - how long to work?

Thanks - I know you're right - actually he has been on remicade. He was on it for 5 months and it stopped working that's why humira is the next choice. Seeing our GI in London next week so can...

3/3/2015 8:09 AM

Ulcerative Colitis
UCERIS - how long to work?

Will add a medication to the chinese herbs too. I am so worried about him going on humira - that's the next move really as he has AS too - an inflammatory back problem - which always flares at the...

3/3/2015 7:11 AM

Ulcerative Colitis
UCERIS - how long to work?

At the moment he is not on any other meds - amazingly he has been doing brilliantly on chinese medecine for the last year but he is always vulnerable this time of year and he can get really ill - he...

3/3/2015 12:50 AM

Ulcerative Colitis
UCERIS - how long to work?

Thanks for the advice - don't think we will be able to give it too long to work as he will get iller without something stronger....

3/3/2015 12:02 AM

Ulcerative Colitis
UCERIS - how long to work?

Disappointing then - I have read that some people do well on it but I wonder if not when it's severe....

3/2/2015 4:34 PM

Ulcerative Colitis
UCERIS - how long to work?

My son is having a flare - going to the toilet loads. Our GI has agreed to let him try uceris first before prednisolone as there are a few less side effects. But how long do we give it? Is there a...

3/2/2015 4:26 PM

Ulcerative Colitis
for aguywithuc (qing dai)

My son's on a whole regimen of chinese herbs - 2 absolutely vile drinks per day, specially made for him and 2 qing dai tablets per day. Plus an enema at night. So we will see how it goes - the doctor...

4/1/2014 3:30 PM

Ulcerative Colitis
AS flare - any ideas?

PS: can't take nsaids as think they caused the UC....

3/31/2014 3:45 PM

Rheumatoid Arthritis
AS flare - any ideas?

My son (22) has ulcerative colitis and AS. At the moment his back is painful and stiff. He is tapering off a course of pred and got to 12.5mg and the pain has started. Any ideas of anything he could...

3/31/2014 3:35 PM

Rheumatoid Arthritis
Enema problems!

Going to order from amazon - thanks so much - will update you.... thanks so much...

3/31/2014 3:12 PM

Ulcerative Colitis
Enema problems!

Thanks, Soystud, we have tried different heights - got it hanging off chairs, pictures - all sorts!! How could I get an empty one of what you have - that looks more sensible! We are in the UK....

3/31/2014 3:33 AM

Ulcerative Colitis
Enema problems!

Yes, Soystud that's exactly it. The amount he has to use probably fills the tube....

3/30/2014 11:48 PM

Ulcerative Colitis
Enema problems!

Exactly! At least that what it seems....

3/30/2014 3:20 PM

Ulcerative Colitis
Enema problems!

Thanks for the reply. - the enema's set up in a bag and a long tube - like the old fashioned ones as it's a liquid....

3/30/2014 2:18 PM

Ulcerative Colitis
Enema problems!

Ok - trying chinese herbal enema with eminent doctor but my son just can't get the enema to work! It's all set up - he lies on his left side, he checks for air locks, inserts the nozzle bit. But he...

3/30/2014 1:13 PM

Ulcerative Colitis
LDN is working! :)

Have been gluten free all the time on ldn. No haven't tried the transdermal so perhaps this is the way to go. Will see if we can get it in the UK. Thanks for advice. Sometimes I think th uc is...

3/13/2014 8:40 AM

Ulcerative Colitis
LDN is working! :)

Hi Laughingduck, stayed on it so long trying different amounts - did 2,3 and 4mls. Just wondering whether to try it sublingually as some have had success with that. Also really wanted it to help as...

3/13/2014 12:49 AM

Ulcerative Colitis
LDN is working! :)

Been on ldn for nearly 2 years - so wanted it to help but don't really think it has so just come off it as have been flaring badly. Good luck though, it does benefit many....

3/11/2014 3:54 PM

Ulcerative Colitis
CCHerbal... Is this a scam and if it is... why?

I've posted on it and I'm not new. My son tried it, thought it helped for a bit but now stopped it....

3/7/2014 5:10 PM

Ulcerative Colitis
REALLY Need Advice On This One About My Career

At least if you work for yourself and you are ill you don't have to answer to anyone except yourself........

3/5/2014 12:05 AM

Ulcerative Colitis
Autoimmune Diseases

My son got ankylosing spondylitis first at 16 then the UC at 18....

3/3/2014 4:07 PM

Ulcerative Colitis
I just did ?aire to sign up for SSI trial in Vancouver

Really interesting - keep us updated....

2/28/2014 3:39 PM

Ulcerative Colitis
longest hospital stay for flare???

4 weeks for my son - tried everything during that time - eventually iv ciclosporin and iv steroids calmed everything down. Was back in hospital 4 months later when the ciclosporin made him ill and...

2/26/2014 4:54 PM

Ulcerative Colitis
Uceris - Anyone Try It

Is Uceris available in the UK?...

Today 4:32 PM

Ulcerative Colitis
UC and Ankylosing Spondylitis

Hi - my son (21) has both too. The UC is severe, the AS can be too and when one flares the other does. So it's tough. He was on remicade for about 5 months and it worked well for both then slowly...

2/19/2014 4:10 PM

Ulcerative Colitis
For those who are ill all the time is your crp raised too?

His highest was a crp of 300 - he was so ill in hospital, nearly had his bowel removed - remicade saved it then stopped working after 4 months. We are happy if below 20 though the lower the better....

2/13/2014 4:25 PM

Ulcerative Colitis



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