@73Monte - 100% disagree with you on provincial response. If you're on ODSP you're starving to death, told to "get a job" and received no pandemic support. Both the feds and the province are in...
My first year on Stelara was plagued with yeast infections. My second year I had screaming knee pain. Rolling on the floor no relief pain that lasted for days. I could only lay down; sitting put the...
Hi Jane, I had horrible PG (skin disease) that wasn't responding to traditional treatment and I was very close to losing my leg. My very savvy and keen resident dermatologist found a small study (I...
I've been on IVIG for over 10 years. First to treat PG then found it worked for UC; now I have crohns. I believe had they not dramatically cut my dose I wouldn't have evolved to crohns. It's...
Does anyone know if it's safe to take antivirals for treatment of Shingles 10 days post Stelara injection? I'm concerned I may have shingles without rash and am waiting an appointment to get tested....
I've run through them all at Sinai and after a severely traumatic experience I switched and am blessed with 2 GI's. I'm that special:) I'd recommend Dr. Wolman at TGH. Good Luck!...
I will continue to be vigilant even as things open up. Things are less risky for ableds but I’m still in lockdown. I’ve attended one backyard bbq & followed recommended guidelines. I brought my own...
The best way to deal with it especially with a history is to go get some antibiotics ASAP & get a CT scan for fistulas. Do the usual sitz baths etc. Hope this goes away soon....
Sorry, I haven't but have used activated charcoal in the past and it really helped. Also slowed D down too, which was a bonus....
I'm so excited for you and am thrilled that your GI is very forward thinking. I expect that your aches and pains will decrease, if not go away completely. 3 days of treatment was very hard for me to...
Thank you straydog...nice to be remembered:) @ robwise. I’ve been on Ivig for more than 10 years. I was prescribed it for Pyoderma but it also helped my UC & thus was kept on it for years after my PG...
Stelara has done wonders for my fistulating crohns. If I recall it doesn’t work as well for UC. I’d 100% try xeljanz first since it’s a pill & uncomplicated In complicated times. You may not have to...
100mg imuran Stelara Ivig I’m still doing very well & am actually loving the isolation time. Very anxious as we all are but am just heartbroken but the societal effects of corona & would like to give...
Insanely relieved you are home & on the mend. I’m sure these were scary weeks for your daughter & entire family. So glad she’s got her dad back! Wishing you continued strength....
Oh my goodness. Breath in: I heal myself Breath out: I heal others. Thinking of you.......
Haha! Love it Uniform! I hope you’re right. Thanks Ipoop for this info. I emailed my Stelara coordinator this am asking for exactly this type of info. I’m not sure if I should further reduce my...
Thank you for the help and Adriana, I hope I'm in remission forever too. 30 years of IBD is utterly ridiculous...... I can't stop the antidepressant but I honestly feel that Stelara caused the...
Hi All, Lovin' remission so I haven't been around:) I've gained 40lbs over the last 2.5 years on Stelara. I was a sickly skeleton prior to this. As Stelara kicked in I was able to eat things I...
NCOT- I get the mental state. Stelara is not the last drug to try. There are several trails to sign up for, not the least is the MAP vaccine which is recruiting (or soon to be recruiting) phase 2 for...
Hey Sam...I vote Stelara all the way. I get my injection in the clinic. It’s very convenient & painless. I’m sure you heard me screaming all the way to....Scotland with 4 weekly Humira injections,...
Way to go! This is a long time coming. Fingers crossed....
I haven’t asked him. Great that remission means I have no appointments booked! I can email him though. Omg. I’m obsessive about hygiene. Constantly sanitizing everything/hand washing etc. Even detail...
in a period of a year I had 4 colds. Since I’ve re-entered the work force though I’ve had 5 colds in 4 months. I’m in remission on Stelara but am nervous about the constant virus battle. In July I...
Have you not tried pre-meds like steroids & benedryl? I had screaming knee pain about a year into Stelara. Had to stop ballet classes , sometimes crawled...benadryl stopped that for a year. More...
I’m in remission using stelara! 2.5 years. Best I’ve been in 30 years with IBD. Side effects vary but for me it’s mostly yeast infections. Joint pain is now managed with benedryl for 3 days post...
Ugh. The double whammy. As if CD isn't enough. You can get radiation burns anywhere from tip to tail and it's pretty likely to happen in the intestine for those of us already blessed with a...
I find myself so “envious” of you guys who live outside of Canada & can get this surgery. Not that I want surgery.....but this ridiculous rollercoaster of abscess I & D’s is simply unfair. I have yet...
I wish it was only a matter of surgery that has me anxious about rejoining the work force. It’s never that easy with crohns. Regardless, I started working. It has turned out to be extremely...
Thank you! Will do. Sorry for the delay. Yesterday was hospital day....today is zombie day:)...
Thanks Q! That would be appreciated. Does your friend have CD? We tried 2 surgeons in Calgary. They flat out refused because of Crohns. I got a quote from 2 hospitals in the States but it’s just not...
I know you’re going through hell & the last place you want to be is in emerg....but... Sounds like an abscess. It needs to be surgically drained....
Sorry Stray....I wasn’t clear. I’ve had 12 surgeries in 2.5 years. Now I need the 13th. I’m just days away from starting my first job in 7 yrs when this happened. Mark- same area. Perianal...
Lucky me. I'm facing surgery # 13. Ive had 12 surgeries in 2.5 years for perianal abscessing. I've probably had 6-8 MRIs / CT's with contrast during that time as well. I had a horrible experience...
Thanks for the response Delta. I'm hoping others will chime in, otherwise it's crickets here. 2 weeks ago I was ecstatic about returning to work....a challenge for sure but I was looking forward to...
All inflammatory markers are perfect, including my calprotectin which is 15!! Yet I have another abscess. How is this even possible? I'm doing amazingly well other wise. I'd even say perfect. I'm due...
Definitely need biologics/enemas in combination with aza. Remicade is generally the first choice for biologic....
Sounds like you need much more than aZa. It often works in combination. What else have you tried?...
Thanks, from a fellow Canadian🇨🇦...
Hi Matthew, Haven't read the entire thread so I apologize if this has already been answered. Where did you get the plants from? Or seeds? I was using CannTrust but they're no longer around. Although...
amz-- Welcome to the forum. I'm sorry you're going through this. I can "hear" your stress. I can relate to the brain fog, inability to concentrate and having this terrible disease at a young age....
Unless you were threatening suicidal tendencies.....I’m shocked at the outrageous overreaction. I’m still not understanding why your GI isn’t involved. I totally get being burnt out. Can you mom...
You shouldn’t need an appointment to get this sorted. The secretary should pass on the message and help get this seen to ASAP. You could also send him/her an email. My GI & all my docs have email...
Geez. That sounds like a real poop show! I sent u an email earlier in the summer. Unsure if you got it. My 1st Stelara was also an injection & I continue to go to the infusion center 10 min away for...
Hey Q, Nothing new. Monthly Ivig. It takes an hour to get a vein. Puts nurses behind and makes my 6 hr day longer. I’m all scar tissue now with no accessible veins. This year has been brutal....the...
Hi Susie, I had my port inserted last Wed. It went well & the staff were excellent. I did have to educate them on CD as they kept referring to my oncologist; which of course I don’t have. I have...
https://academic.oup.com/ecco-jcc/article-abstract/13/Supplement_1/S450/5301218?redirectedFrom=fulltext P661 Early histological improvement demonstrated with oral ozanimod in patients with moderately...
Some have success with the nicotine patch....
@lamb—-I hear you. There are several drugs in Phase 2-3 trials including TiGenix Cx601 (I think), REstore, filgotinib, MAP vaccine... several more. Any chance of entering a trial or heading to Mayo?...
Exit- thank you. This is another option in my location as well. Very poor results for fistula closure. How disappointing especially for you. So sorry you are going through this. I’m curious as to why...
Thanks Karen, My doc suggested I keep at it for another couple of weeks. I hope these side effects subside soon. Today is only marginally better...but I’ve had days without any side effects so I’m...