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want_2_be_well

HealingWell Forum
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Member Profile
Display Name
want_2_be_well
Profile Created
9/30/2006 9:10 PM
Last Seen
11/20/2014 3:25 PM
Total Posts
181

Last 50 Posts

Pain meds and bowels

No one remembers what was prescribed after my last surgery that worked so well. The dr's that treated me didn't have the records, the prescriptions are in the hospital records that won't arrive in...

11/19/2014 7:46 AM

Crohn's Disease
Thinking about Changing from Remicaide to Humira

Ditto, enroll in remistart it covers my 6k out of pocket co-insurance amounts....

11/18/2014 7:38 PM

Crohn's Disease
Deciding on Remicade w methotrexate for possible Crohn's disease

Remicade has been amazing at keeping my perianal crohns under control. I was not a fan of methotrexate i had it in a pill form and stopped taking it due to side effects, but I don't remember what...

11/18/2014 7:34 PM

Crohn's Disease
Pain meds and bowels

I have surgery on broken foot scheduled and with crohns i have had bad expierences with a pain meds stopping my bowels after surgery in the past. The pain from not being able to pass a bm was worse...

11/18/2014 7:27 PM

Crohn's Disease
suggestions for psoriasis inversa

I was prescribed a compound that had to be mixed at a compounding pharmacy. It ruins clothes and really only can be applied when i plan to stay home. It took me forever to even get the correct...

5/12/2013 10:28 PM

Psoriasis
crohn's anal skin tags and pregnant

I too have active perianal crohns, my GI sent me to the colorectal surgeon for a consult before I got pregnant, she determined that I should only deliver via c section due the skin tags, large...

2/27/2013 9:30 PM

Crohn's Disease
Ostomy Reversal Post Op Questions

Thanks all, he is much better now. They have him on 3 anti nausea meds and he is doing less fatty food and smaller portions and is holding down food now, also having BMs so that is great. Appreciate...

2/27/2013 9:21 PM

Ostomies
Who has got Crohn's and proctitis?

I also am on remicade and it is the only thing that calms the proctitis. I get Remicade every 6 weeks and the proctitis flares about week 5, so I use Cortifoam for the 1 week until Remicade to...

2/25/2013 1:07 PM

Crohn's Disease
Ostomy Reversal Post Op Questions

Hoping you all can help me out, as my father is 9 days post op from his ostomy reversal. What are the expectations about eating this many days out? The hosptial sent him home after he held down broth...

2/25/2013 12:53 PM

Ostomies
Skin Problems Associated with Crohn's? Itchy, dry skin?

Mimi81 We have the exact same symptoms and after many Dr's a determogist finally determined i have inverse psoriasis, and ruled out Metastatic Crohn's. Inverse psoriasis on me presents in the folds...

11/20/2012 12:30 AM

Crohn's Disease
Rheumatory Arthritis?

Post pregnancy and now have joint pain and RA factor came back high, anyone have expierence with higher than normal RA factor while on remicade? Have to call the rheumatogist tomorrow and try to get...

11/19/2012 11:52 PM

Crohn's Disease
Does anyone else have issues with their teeth?

Yes, my teeth are terrible! Interesting enough i was similar to you in one year when i first was ill and not yet diagonsed i got 10 cavities in a year and many of those teeth broke, reqired root...

11/9/2012 11:26 AM

Crohn's Disease
Will predisone tappering cause back pain?

I always get back, leg, and neck pain when tapering off predisone. Some more solid aches, the nek pain is more of a shootin pain. Good luck!...

9/1/2012 9:02 PM

Crohn's Disease
Birth with Crohn's

October girl, one more here with perianal crohns that was advised c-section was the way to go, i had a colorectal surgeon weigh in on the decision and she felt natural child birth could leave me in...

2/10/2012 10:30 PM

Crohn's Disease
Has anyone else had this issue, as its baffled my gastro doctor and dermatologist!?!?!

Your issues similar to mine with your skin, I had a cracked butt crack for over a year that bleed on a regular basis. I didn't soak clothes with blood but the discomfort was insane, along with all...

8/24/2011 9:04 PM

Crohn's Disease
5 weeks pregnant...am I gonna be ok?

I was on Remicade my entire pregnancy and had no issues. I would just make sure your GI reaches out to your OB to make sure they understand the importance of keeping you healthy and on your meds. My...

8/1/2011 9:04 PM

Crohn's Disease
Constipation to diarrhea in one bm?

Well they are just tweaking my miralax dosage and taking a wait and see approach, and didn't seem very alarmed. No major concerns, so that is good....

7/15/2011 1:48 PM

Crohn's Disease
Constipation to diarrhea in one bm?

Has anyone dealt with constipation for days and then go to fighting to get the constipation out because diarrhea is forcing it's way out? Sorry to be graphic. This crap (pun intended) has become my...

7/10/2011 9:51 PM

Crohn's Disease
Pregnancy Questions

I worked with my GI for the permission to start trying as well. I was not in a flare when I became pregnant and had a wonderful pregnancy. I was considered high risk due to age and my crohns history....

6/16/2011 3:14 PM

Crohn's Disease
"Burning" Question

I had burning and the GI prescibed some med that was like orange tang powder you drank mixed in juice to reduce the acid in the bile or something. It didn't work for me, so for the life of me I can't...

5/22/2011 8:50 PM

Crohn's Disease
Remicade infusions during pregnancy

You should have had your infusion now, I hope it went well. I delivered a healthy baby boy 14 months ago and had Remicade my entire pregnancy. There were no issues during pregnancy for my son and...

5/16/2011 2:11 PM

Crohn's Disease
metastatic Crohn's disease Bioposy?

Well I got lucky they didn't do a biopsy after all as the Dr is thinking it is inverse psoriasis. This might also solve the multi-year mystery of why my crack always cracks too! Guess we see how this...

2/25/2011 2:03 PM

Crohn's Disease
metastatic Crohn's disease Bioposy?

Bluegrass thanks for the information, I assume the bioposy took a week or so to find out results? I wonder if it always manifest as boils as my issues are more like cuts/fissure looking. Although no...

2/16/2011 2:00 PM

Crohn's Disease
metastatic Crohn's disease Bioposy?

Ides yes a skin biopsy that is being done by a dermatologist. How painful was that? Since my issues are near my butt and female parts I am nervous. I will call the office but was hoping to get some...

2/15/2011 8:14 PM

Crohn's Disease
metastatic Crohn's disease Bioposy?

I know a couple people out here have Metastatic Crohns. Can you tell me what the bioposy process consisted of, as I go later this month?...

2/15/2011 3:34 PM

Crohn's Disease
*UPDATE* Found out I am pregnant and I just started Remicaid and was feeling better

Mia, I responded on your other message the other day, I am the one that had a baby on Remicade last year at 36. My advice to you is get your GI to suggest and OB that has some knowledge of Crohns....

2/15/2011 3:26 PM

Crohn's Disease
Just Started Remicaid and MIGHT be Pregnant, I have a question......

You can get remicade while pregnant, I am not sure all infusion centers accept pregnant patients. I received infusion throught out my pregnancy and have a healthly little guy who is almost 1 years...

2/14/2011 12:39 PM

Crohn's Disease
miralax users

I can't answer your questions on the differences between Miralax and stool softners but I can say my GI says it can be used daily and that it is the safest product to use long term....

11/16/2010 9:44 PM

Crohn's Disease
Lactose Test

Dragonfly did you see my post on your other posting about lactose intorlance, if I were you I would have them check you for cow's milk allergy as well....

11/4/2010 12:57 PM

Crohn's Disease
Flu shot time again/immunosuppressants?

For remicade my dr says the flu shot is fine they just request that it not be the live virus (the nose one I guess)....

11/3/2010 9:38 PM

Crohn's Disease
Any good barium flavors?? Tips?

Sorry I am too late, but I went to one clinic that had blueberry flavor in it, no idea how they did it but it helped. Although anything blueberry has never been the same since. I know my hospital...

11/2/2010 11:22 PM

Crohn's Disease
possible lactose issue and questions

I had cows milk allergy as an infant and then outgrew it, until later in life when I was diagnosed with it again. I started off thinking I was lactose intolerant and turns out I am but I also have...

11/2/2010 10:58 PM

Crohn's Disease
Remicade (Infliximab)

Remicade gave me my life back, until Remicade made me healthy again I never realized how much pain I had become use to living in. So for me I am a huge fan of remicade....

10/7/2010 9:05 PM

Crohn's Disease
A matching set

For your sake I hope you all have more than one bathroom!...

7/21/2010 12:40 PM

Crohn's Disease
Internal Bleeding or wing sauce?

Little of topic but your screen name made me die laughing, you win for the best name I have seen on healing well to date :)...

7/21/2010 12:37 PM

Crohn's Disease
Need some female advice

jenngrl81 said... viv1123 said...I recommend the remicade and your Chron's will get better while you are pregnant. I got pregnant on 2008 and my Chron's was under control the entire time :). I was...

7/15/2010 8:34 PM

Crohn's Disease
Remicade while pregnant

I was on remicade my entire pregnancy have a healthy little guy. I can say in my case the Dr's opted to give me remicade in week 37 due to symptoms I was having as the OB wanted me to deliver at week...

7/11/2010 7:15 AM

Crohn's Disease
Breast Feeding on Remicade?

I didn't make my decesion until they handed me my hungry child ;) I kept flip flopping back and forth between I should and I don't feel comfortable with the idea. When it came time for him to eat the...

6/15/2010 9:03 PM

Crohn's Disease
Breast Feeding on Remicade?

I opted not to breatfeed while on remicade, however the peditriation, GI, and OB all thought it would be fine based on what they researched. There are others on here that will come along and chose to...

6/14/2010 8:41 PM

Crohn's Disease
Swollen Anus

ashworth and sheep they both sound like Skin tags, your GI or a colorectal surgeon can confirm. I have had more than one dr not familar with crohns think my skin tags were hemmorids so becareful, if...

4/28/2010 5:24 PM

Crohn's Disease
Hey pregnant mommas -- how ya doing?

Hey cool girl, I just delivered six weeks ago and was on Remicade. I believe they did increase my dosage as I gained weight. I don't think it increased at the normal rate but the number of viles of...

4/26/2010 4:56 PM

Crohn's Disease
pregnancy and crohns

I have a six week old and was healthy through out the pregnancy. I was on Remicade the entire time and delivered a healthy baby. My GI highly recommended being in pretty stable health when getting...

4/26/2010 4:49 PM

Crohn's Disease
remicade and pregnancy

JAS, I am currently 38 weeks pregnant and have been on remicade thoughout the pregnancy with no problems to date. I would mention that my OB tried to prevent me from getting Remicade during the first...

2/26/2010 4:56 PM

Crohn's Disease
Husband has osteopenia from steroid use :-(

I too have Oste openia at 35 from the steriod use. I believe they discovered it at 33, I get bone density scans yearly now, exercise, and take calicum with vitamin D and have seen improvement. The...

2/26/2010 4:46 PM

Crohn's Disease
Remicade and pregnancy

I am currently pregnant and was on remicade at the time of conception, and still on remicade. I was told that Crohns patients sometimes have a harder time conceiving then a non-crohn's patient, but I...

10/29/2009 3:17 PM

Crohn's Disease
Getting Pregnant

Let me clarify, my goal was to be on the least meds possible. For me being without Remicade was too much of a risk, so they opted to remove the Imuran to try and minimize what all I am on....

10/15/2009 12:46 PM

Crohn's Disease
Pregnancy & Crohn's

My nausau didn't stop until week 12, ahh what we go though for little ones. Just keep trying until you can find something you can stomach. For me it was spaghettios of all things. On a normal day I...

10/14/2009 2:41 PM

Crohn's Disease
Remicade: low blood pressure & gittery feeling

I get low blood pressure during my infusions (I don't know blood pressure numbers, but I know my goes down to 80 and they won't let me leave the office until it is back in the 90's). They make me...

10/14/2009 2:33 PM

Crohn's Disease
Getting Pregnant

I consulted with my OB, GI, and family doc before trying to get pregant and they all agreed Imuran was not to be taken during conception or pregnancy. It was a class D drug I believe and I think...

10/14/2009 2:30 PM

Crohn's Disease
Hair loss, sweating, frequent urination, pupils are larger than usual...

Prednisone will cause the sweating not sure about the others, but when I am on Predisone I go though multiple t-shirts each night even if it is only 10 or 20mg....

9/3/2009 7:11 PM

Crohn's Disease
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