it's ok, njmom - sorry if I came off as brusque. I totally hear you on the ain't broke/don't fix mentality. If it was clear in my mind I wouldn't be asking for opinions, hah! I feel very ambivalent...
EMom, "published research" is indexed in PubMed. Anything else is opinion and speculation and case study. I'm different from you in that I don't approach it as "do anything to stay off hard core...
EMom, I don't mean to be harsh, but that website didn't give references to credible research in peer reviewed journals. Self published books, web publications, and poster presentations at conferences...
Funding is available from private philanthropic sources and the NIH, not just the drug companies. If SCD is based on credible science a researcher could seek out and receive funds. Not all research...
Sally - glad you are doing so well on 6MP! I don't mean to say it's a bad drug; I believe it to be a very beneficial drug for people with CD. I'm glad to hear it's helping you. Roni - Thanks for the...
CHOP = Children's Hospital of Philadelphia I work in healthcare quality so I'm a big believer in evidence based treatments. I know there is evidence of benefit of probiotics and fish oil in CD, but...
Thanks Ana - I know of some other moms whose kids have tried, or would like to try, LDN. I don't know much about it, myself. Pampers - I see your point. But going off meds AMA, without understanding...
Thanks for your comments, Mike. How do we "know" that her current levels of 6MP aren't contributing? We don't. But the robust research on the efficacy of this drug indicates there's a range of drug...
Hi - new to the forums but not that new to Crohn's Disease. I'll try to be brief - and if this topic has come up before please let me know where to find it :) My daughter Lucy was symptomatic...