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randynoguts

HealingWell Forum
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Member Profile
Display Name
randynoguts
Profile Created
1/31/2003 2:57 AM
Last Seen
9/4/2020 2:41 AM
Total Posts
6196

Last 50 Posts

just stopping by.!

monte, yes we are holding the Humira till the bug juice is done. got 8 boxes in my mini-med fridge. i have not heard fro VV or sniper for maybe a year, but yet i have not contacted them either. as...

8/24/2020 5:45 PM

Crohn's Disease
just stopping by.!

hey everybody, seeing a few of the more recent post, i can say when i had a reaction to remicade trying to start it for the 3rd time years ago i had an immediate reaction as you did. i switched to...

8/17/2020 12:14 AM

Crohn's Disease
Where did your crohns joint pain begin?

right hip and then right knee. for me...

3/15/2020 3:46 PM

Crohn's Disease
happy bday IDES!

sorry im a half day late Ides! but happy bday from me! havent been here in a long while so hope you are doing well. randy...

3/15/2020 3:39 PM

Crohn's Disease
GI's in LA

no i dont debbie i live in washington. she used to work at the seattle VA and the university of washington hospital...

3/24/2019 10:44 AM

Crohn's Disease
can probiotics make you worse

my Gi dr told me never to take probiotics as my gut (whats left) is very leaky and they are afraid to have something transfer into my blood stream and kill me. with all the central line stuff and...

3/15/2019 12:37 AM

Crohn's Disease
GI's in LA

my longtime GI dr went to cedar-sinai 1.5 years ago.. dr. Paski. tell her randynoguts said hello!...

3/8/2019 2:51 AM

Crohn's Disease
Flat stools

yes. a stricture. we used to call it 'playdoh poop' here ! maybe do a search for playdoh poop and see what comes up. quite common....

12/27/2018 3:11 AM

Crohn's Disease
hey everyone!

hey guys, all is well here at the new house, and with all family members! ides, stay off roller coasters! ncot, maybe they new year will bring good news, merry xmas. randy...

12/24/2018 1:24 AM

Crohn's Disease
hey everyone!

hi all. just checking in. as usual i post each year with an update on my TPN near the anniversary of starting it. so on the 17th of december i finished my 19th full year! now of course in my 20th!...

12/22/2018 5:27 PM

Crohn's Disease
piece of intestine came out after surgery?

yes fistulas can drain lots of things. i had staples, some lost gauze, popcorn hulls, disolving stitches, etc.. in the past. i also had a fibrin glue plug and thats what i was leaning for for you....

10/6/2018 4:08 PM

Crohn's Disease
piece of intestine came out after surgery?

id be showing that to the dr , first thing in the morning. could be lots of things but most likely not intestine. if it was id be sueing the surgeon for not properly clearing the surgery site. it may...

10/6/2018 2:26 AM

Crohn's Disease
Reocurring kidney stones

depends on what the stones are made of really. talk with you stone dr and see if any have been lab tested. if not you may have to 'catch ' the next one and have it tested. they have tools for that if...

10/4/2018 12:43 AM

Crohn's Disease
Military and Crohn's

ex USAF. be VERY wary. now im going way back to the mid 80's mind you. had and have bad CD. didnt have all the treatments we have now. only steroids and sulfa drugs. was allergic to sulfa. had my 1st...

10/4/2018 12:37 AM

Crohn's Disease
Resection and awakening to an ileostomy

when ya gotta go- ya gotta go. i mean to la! ;0)...

8/22/2018 1:53 AM

Crohn's Disease
Resection and awakening to an ileostomy

gee ides, you remind me of so many things. more than once, mucus pooping, draining bag into garbage can while vomiting. ah , the good ole days... ;o) hang in there....

8/3/2018 12:40 AM

Crohn's Disease
hemorrhoids anyone?

or a build up of bile salts that is irritating after you go. as for your question, hemorrhoids anyone? i say, no thank you!...

7/29/2018 12:00 AM

Crohn's Disease
Resection and awakening to an ileostomy

hey Ides. glad your making the best of it. thats how i woke up , had all kinds of extra bandages and felt my belly and started to have a fit. my stoma was right on a fold of belly fat. leaked very...

7/28/2018 11:57 PM

Crohn's Disease
Humira every week opposed to every two wks

maggie, this thread is more than 7 years old. some of these posters may not be here any longer. everyone is different . you will get 4 shots as a loading dose and then do one very other week if your...

6/24/2018 12:46 AM

Crohn's Disease
Going under the knife in a couple weeks; pre-surgery prep question

ides. glad i saw this.. as you may remember i had that stricture due to thickening a couple years ago...and since i cant have any more remove, we did the very other week stretch. mine was also in the...

6/24/2018 12:38 AM

Crohn's Disease
Hard lump outside anus. Thrombosed pile?

well lets hope for an ingrown hair or something. my crohns first reared its ugly on me with a lump in the same area. when it eventually popped, that was my first fistula.. you got anyone to take a...

6/17/2018 1:28 AM

Crohn's Disease
Chicken pox?

dont forget to sue the kids parents for not vaccinating the little creep if she gets it. willful negligence can be brought by a good attorney. purposeful infliction of disease, and any number of...

5/30/2018 1:44 AM

Crohn's Disease
MY issues, living with spouse who has Crohn's

alphabet, you said it has been an issue since the beginning of your relationship. that means it will be an issue for the remainder of your relationship.. ill play the uncaring support person for a...

5/21/2018 7:05 PM

Crohn's Disease
High blood pressure? Prednisone?

gutsy, well when i first was diagnosed with crohn's i was allergic to sulfasalizine. that and prednisone was about the only meds for it at the time. i was taking 60mg a day for about 3 1/2 years....

5/15/2018 2:34 AM

Crohn's Disease
High blood pressure? Prednisone?

gutsy, i was just like you. high doses of prednisone at a young age. my BP was even higher and i was put on BP meds at 21. unfortunately my BP remained high throughout my life and now at 54 im still...

5/11/2018 12:23 AM

Crohn's Disease
A rare bit of good news

i was gonna ask about the puppy too! ;op...

4/27/2018 2:49 PM

Crohn's Disease
A rare bit of good news

wait.. you have summer in britain?! prove it. ;o) my eyes have been like sandpaper for a couple of weeks due to a pollen explosion! our cars are yellow in the mornings. birch,aspens and firs all...

4/26/2018 10:34 PM

Crohn's Disease
Humira pen malfunction

have had malfunctions before also. always check to see that the needle is more or less centered in the tube before injecting. if it is off toward the side of the tube it will cut you and be much more...

4/21/2018 5:22 PM

Crohn's Disease
in deep do-do

ides, remember when i had to have stretches every 2 weeks for a year or so? maybe you can do that. if its in your sigmoid, you should be able to do it without prep, just liquid the day before and...

3/26/2018 2:17 AM

Crohn's Disease
Humira side effect

have had the same but only on my scalp. seems to come and go at several week intervals. we have suspected mine in the past to be a latent infection as in the past i would get a very high fever and...

3/26/2018 2:11 AM

Crohn's Disease
post-laparoscopic surgery shoulder pain

gutsy, not the type of pain being asked about me thinks. when you have some types of surgery they inflate your abdomen with co2 or some other inert gas. to blow you up so they can se things and get...

3/19/2018 12:49 AM

Crohn's Disease
Flat stool

go to the site search area and look for 'ribbon poop' or 'playdoh poop' or ghost poop. there were quite a number of topics of that sort way back when. personally i would not worry. many of us have...

3/13/2018 10:13 PM

Crohn's Disease
Lost my brother

me too. sad for you. randy....

3/9/2018 1:25 AM

Crohn's Disease
Dating Someone With Crohn's Disease

irmf. i met my wife on a blind date. i had already had half a dozen surgeries etc.. since we were going to be driving to the date, i quickly explained that i had a digestive condition that may become...

Yesterday 12:02 AM

Crohn's Disease
How to deal with flatulence related to Crohn's?

my wife says i could go into the paint removal business or power a light plant . i have a micro cassette recording of my gas i played for my GI dr once. unedited went for more than 1 min + ! she...

2/24/2018 11:44 PM

Crohn's Disease
Newly diagnosed

mak 37, what are you talking about with your humira, not hurting? ive been doing it for years and every single one hurts like he ll. whether warm or cold. especially the last 3-4 months of 2 at a...

2/24/2018 11:41 PM

Crohn's Disease
Pain and vomiting

ever had your appendix out? terminal ileum is right where it is and can be affected by the inflamation. lots of crohns patients get diagnosed because the dr thinks its appendicitis, goes in its fine...

2/24/2018 11:23 PM

Crohn's Disease
have to live with stoma hole

i would not let that go on! it is totally irrational to say, well ya just gotta live with it. i realize you NHS restricts the type of care you can get but i would fight to have it corrected. you have...

2/22/2018 11:21 PM

Crohn's Disease
Positive pregnancy test!!!

well heck, thats gonna make a bigger bump... ;0p...

2/22/2018 11:12 PM

Crohn's Disease
Trying not to freak out.

my crohns was diagnosed after a hard lump in that area. it burst and was a fistula... hope yours is not....

2/21/2018 1:33 AM

Crohn's Disease
best way to prepare veggies?

my best method is to leave them at the store.... :0)...

2/21/2018 1:31 AM

Crohn's Disease
can you go off Humira and then restart it?

have done it like you for infection clear up. most recently last june. was off for 2 months or so. more than once. but just today, dr and i were discussing maybe entyvio since the twice a week humira...

2/15/2018 11:50 PM

Crohn's Disease
How long will seton stay in for?

hey Kgal. have no clue as im a guy. but hello anyway! and welcome aboard the board....

2/15/2018 2:19 AM

Crohn's Disease
Bottle or breastfed.

bottle. mom had bad nips. couldnt do anything for that back in the early 60's...

2/15/2018 2:16 AM

Crohn's Disease
I am losing my hair..

or since CD is a type of auto- immune disease, it could be alopecia, also a auto immune disease. best to check with the dr as we are not... ;0P...

2/6/2018 3:32 AM

Crohn's Disease
Fistulagram results FINALLY

lamb. anterior means rear. ano-rectal junction is maybe 2-4 inches inside, depending on how your put together. sinus tract i think means back and forth like a heart beat graph, you know up and down.....

1/29/2018 3:26 AM

Crohn's Disease
Humira - Upper Respiratory Infection

if your still in seattle area and you get no answers ask them for a referal to UW medicine. your GI & RA drs should be setting you up for blood tests or cultures of any snot or lung phlegm. or just...

1/29/2018 3:15 AM

Crohn's Disease
What else don't I know about Crohn's?

hey minnie, congrats on the Phd. i have 2 myself in the garage (post hole diggers!) ;o) what country are you in if you said long time ago i don't remember. if the remicade and imuran did not work for...

1/15/2018 9:15 PM

Crohn's Disease
fistulagram

hey guys. no it is not the same scifi. i was lucky as my large fistula exited on my abdomen. what was done is a large syringe with contrast in it is attached to a rubber line. the dr sticks it in the...

1/15/2018 9:08 PM

Crohn's Disease
Humira side effects and skin problems

dont know what it could be. been taking Humira for years. never anything like your describng. i have been doing 2 at a time each week for a while now and still have not had anything like that. Mak37....

1/9/2018 5:12 PM

Crohn's Disease
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