monte, yes we are holding the Humira till the bug juice is done. got 8 boxes in my mini-med fridge. i have not heard fro VV or sniper for maybe a year, but yet i have not contacted them either. as...
hey everybody, seeing a few of the more recent post, i can say when i had a reaction to remicade trying to start it for the 3rd time years ago i had an immediate reaction as you did. i switched to...
right hip and then right knee. for me...
sorry im a half day late Ides! but happy bday from me! havent been here in a long while so hope you are doing well. randy...
no i dont debbie i live in washington. she used to work at the seattle VA and the university of washington hospital...
my Gi dr told me never to take probiotics as my gut (whats left) is very leaky and they are afraid to have something transfer into my blood stream and kill me. with all the central line stuff and...
my longtime GI dr went to cedar-sinai 1.5 years ago.. dr. Paski. tell her randynoguts said hello!...
yes. a stricture. we used to call it 'playdoh poop' here ! maybe do a search for playdoh poop and see what comes up. quite common....
hey guys, all is well here at the new house, and with all family members! ides, stay off roller coasters! ncot, maybe they new year will bring good news, merry xmas. randy...
hi all. just checking in. as usual i post each year with an update on my TPN near the anniversary of starting it. so on the 17th of december i finished my 19th full year! now of course in my 20th!...
yes fistulas can drain lots of things. i had staples, some lost gauze, popcorn hulls, disolving stitches, etc.. in the past. i also had a fibrin glue plug and thats what i was leaning for for you....
id be showing that to the dr , first thing in the morning. could be lots of things but most likely not intestine. if it was id be sueing the surgeon for not properly clearing the surgery site. it may...
depends on what the stones are made of really. talk with you stone dr and see if any have been lab tested. if not you may have to 'catch ' the next one and have it tested. they have tools for that if...
ex USAF. be VERY wary. now im going way back to the mid 80's mind you. had and have bad CD. didnt have all the treatments we have now. only steroids and sulfa drugs. was allergic to sulfa. had my 1st...
when ya gotta go- ya gotta go. i mean to la! ;0)...
gee ides, you remind me of so many things. more than once, mucus pooping, draining bag into garbage can while vomiting. ah , the good ole days... ;o) hang in there....
or a build up of bile salts that is irritating after you go. as for your question, hemorrhoids anyone? i say, no thank you!...
hey Ides. glad your making the best of it. thats how i woke up , had all kinds of extra bandages and felt my belly and started to have a fit. my stoma was right on a fold of belly fat. leaked very...
maggie, this thread is more than 7 years old. some of these posters may not be here any longer. everyone is different . you will get 4 shots as a loading dose and then do one very other week if your...
ides. glad i saw this.. as you may remember i had that stricture due to thickening a couple years ago...and since i cant have any more remove, we did the very other week stretch. mine was also in the...
well lets hope for an ingrown hair or something. my crohns first reared its ugly on me with a lump in the same area. when it eventually popped, that was my first fistula.. you got anyone to take a...
dont forget to sue the kids parents for not vaccinating the little creep if she gets it. willful negligence can be brought by a good attorney. purposeful infliction of disease, and any number of...
alphabet, you said it has been an issue since the beginning of your relationship. that means it will be an issue for the remainder of your relationship.. ill play the uncaring support person for a...
gutsy, well when i first was diagnosed with crohn's i was allergic to sulfasalizine. that and prednisone was about the only meds for it at the time. i was taking 60mg a day for about 3 1/2 years....
gutsy, i was just like you. high doses of prednisone at a young age. my BP was even higher and i was put on BP meds at 21. unfortunately my BP remained high throughout my life and now at 54 im still...
i was gonna ask about the puppy too! ;op...
wait.. you have summer in britain?! prove it. ;o) my eyes have been like sandpaper for a couple of weeks due to a pollen explosion! our cars are yellow in the mornings. birch,aspens and firs all...
have had malfunctions before also. always check to see that the needle is more or less centered in the tube before injecting. if it is off toward the side of the tube it will cut you and be much more...
ides, remember when i had to have stretches every 2 weeks for a year or so? maybe you can do that. if its in your sigmoid, you should be able to do it without prep, just liquid the day before and...
have had the same but only on my scalp. seems to come and go at several week intervals. we have suspected mine in the past to be a latent infection as in the past i would get a very high fever and...
gutsy, not the type of pain being asked about me thinks. when you have some types of surgery they inflate your abdomen with co2 or some other inert gas. to blow you up so they can se things and get...
go to the site search area and look for 'ribbon poop' or 'playdoh poop' or ghost poop. there were quite a number of topics of that sort way back when. personally i would not worry. many of us have...
me too. sad for you. randy....
irmf. i met my wife on a blind date. i had already had half a dozen surgeries etc.. since we were going to be driving to the date, i quickly explained that i had a digestive condition that may become...
my wife says i could go into the paint removal business or power a light plant . i have a micro cassette recording of my gas i played for my GI dr once. unedited went for more than 1 min + ! she...
mak 37, what are you talking about with your humira, not hurting? ive been doing it for years and every single one hurts like he ll. whether warm or cold. especially the last 3-4 months of 2 at a...
ever had your appendix out? terminal ileum is right where it is and can be affected by the inflamation. lots of crohns patients get diagnosed because the dr thinks its appendicitis, goes in its fine...
i would not let that go on! it is totally irrational to say, well ya just gotta live with it. i realize you NHS restricts the type of care you can get but i would fight to have it corrected. you have...
well heck, thats gonna make a bigger bump... ;0p...
my crohns was diagnosed after a hard lump in that area. it burst and was a fistula... hope yours is not....
my best method is to leave them at the store.... :0)...
have done it like you for infection clear up. most recently last june. was off for 2 months or so. more than once. but just today, dr and i were discussing maybe entyvio since the twice a week humira...
hey Kgal. have no clue as im a guy. but hello anyway! and welcome aboard the board....
bottle. mom had bad nips. couldnt do anything for that back in the early 60's...
or since CD is a type of auto- immune disease, it could be alopecia, also a auto immune disease. best to check with the dr as we are not... ;0P...
lamb. anterior means rear. ano-rectal junction is maybe 2-4 inches inside, depending on how your put together. sinus tract i think means back and forth like a heart beat graph, you know up and down.....
if your still in seattle area and you get no answers ask them for a referal to UW medicine. your GI & RA drs should be setting you up for blood tests or cultures of any snot or lung phlegm. or just...
hey minnie, congrats on the Phd. i have 2 myself in the garage (post hole diggers!) ;o) what country are you in if you said long time ago i don't remember. if the remicade and imuran did not work for...
hey guys. no it is not the same scifi. i was lucky as my large fistula exited on my abdomen. what was done is a large syringe with contrast in it is attached to a rubber line. the dr sticks it in the...
dont know what it could be. been taking Humira for years. never anything like your describng. i have been doing 2 at a time each week for a while now and still have not had anything like that. Mak37....