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Djin

HealingWell Forum
>
Member Profile
Display Name
Djin
Profile Created
1/27/2010 10:29 AM
Last Seen
6/10/2020 2:04 PM
Total Posts
269

Last 50 Posts

How many days do you miss work per year (average)?

It`s interesting that even in "remission", we need more days off. Remain guilt free is a hard call....

6/10/2020 2:03 PM

Crohn's Disease
How many days do you miss work per year (average)?

Hey Paul, thanks for sharing. I lost count over the days I went to work in "suboptimal" condition too, but you can`t avoid missing days when you`re inside a hospital or recovering from surgery. :-)...

5/28/2020 11:11 AM

Crohn's Disease
How many days do you miss work per year (average)?

I know that every case is different, but I would like to know... I've been lucky in the last two years (although I broke my hand in a fall and missed 8 weeks), with no absense due to Crohns, before...

5/21/2020 2:42 PM

Crohn's Disease
Coronavirus

Well... if you are in anti-TNF biologics, there is a solid theory (yet to be tested) that you are in LESS risk than the rest. Anti-TNF lessen your imune response to bacteria and fungus, not virus....

5/18/2020 3:30 PM

Crohn's Disease
Crohn's, IBS, and partial blockages

I have had the exact same simptoms you described as partial blockages. And guess what, the image exams didn't show any stricture... (TCs, MRIs, SBT, etc). Four years feeling the same simptoms. Then...

7/30/2015 2:06 PM

Crohn's Disease
Powdery stool

Hi, I'm writing to just let you know that I have had what you call powdery stool for more than a decade. And yes, the GIs usually don't pay attention to it. It is not related directly with any...

7/30/2015 1:58 PM

Crohn's Disease
I did tell this board I was going in for surgery, didn't I?

Hey NCOT, I just checked and happened to read about our 2nd surgery. Now you are an experienced surgery survivor. Another medal in this hard road! You are a great writer (I already said that a book...

7/29/2015 10:43 AM

Crohn's Disease
caveman diet?

Hey Usher! You are absolutely right about those who do NOT have a serious narrowing in the guts. Keep on. But, if it's the first time you're reading "that fiber results in obstruction", also keep on...

7/29/2014 7:39 AM

Crohn's Disease
Majorly hacked off with my hospital

About the off-topic part... It probably won't help your spirits, but (as you possibly know) the autism spectrum is quite large. I have a dear friend who is in this spectrum and is impressively smart...

7/28/2014 10:34 AM

Crohn's Disease
Crohn's is back in full force..

Hummm... that was my loading dose in my first time with humira. But it sounds plausible to me. Maybe I will sugest that to my doc in the next appointment....

3/26/2014 1:56 PM

Crohn's Disease
Not sure what to make of this

It doesn`t sound like a flare. But do you know that you have more neurotransmissors i your gut than in your brains? So stress could explain that symptoms. Most people here would give a kidney to have...

2/9/2014 4:09 PM

Crohn's Disease
Adhesions after surgey

Well, there is already a chance that you have adhesions due to inflamation. Surgery, even a gallblader removal cause adhesions. Tou have to weight the risk of adhesion conplications vs the risk of...

2/4/2014 1:55 PM

Crohn's Disease
hospitalised with an obstruction

What a creepy history! I hope it ends well know that there isn't any sticture anymore. Expect some weeks of noisy D (it strats in 2-3 days) and be patient for it takes some months(3-6) to be back to...

2/4/2014 10:59 AM

Crohn's Disease
question on fruits

Well... There is only one path to uncover the outcome of that apple....

10/1/2013 11:24 AM

Crohn's Disease
I got a job interview!!!

Cool! Pls, keep us informed!...

7/28/2013 12:32 PM

Crohn's Disease
Remicade Immunity... Here we go again Now what?!

My two cents are... When it comes to crohns, surprisingly people around here use to be waaaayyyyy more informed than the average doctor. O.o Just the way the things are. So... Get a second opinion....

7/21/2013 3:51 PM

Crohn's Disease
New baby!!!!

Wohoo! Welcome Elizabeth!...

7/21/2013 3:44 PM

Crohn's Disease
Hard time to put on weight after surgery

Thank you Habs! Today I took tea instead of coffee and it was better. The doc said it may take up to 8 weeks (!!) to get stable. Until there, Questran, tea and potty! But it's worth it. My appetite...

7/17/2013 8:52 AM

Crohn's Disease
Hard time to put on weight after surgery

Thanks folks. Actually, I have some Questran but I'm afraid to take it so soon after surgery. Maybe a call to the doc may fix it... My mornings are very exciting, anything from 2 to 5 times until...

7/16/2013 8:50 AM

Crohn's Disease
Hard time to put on weight after surgery

Thanks folks. Actually, I have some Questran but I'm afraid to take it so soon after surgery. Maybe a call to the doc may fix it... My mornings are very exciting, anything from 2 to 5 times until...

7/16/2013 8:49 AM

Crohn's Disease
Hard time to put on weight after surgery

I had a surgery to overcome a stricture from my 2nd surgery (narrow staple!) and it seems to be going well. It was not 20 days ago. The thing bothering me is that this explosive D is hindering weight...

7/14/2013 8:15 PM

Crohn's Disease
Post Surgery TI Removal Update

I'm just wondering how are you doing and if you did gain weight or still have questions. It was a bright post. A shame that only our caring Gumby answered. Take care!...

7/14/2013 8:07 PM

Crohn's Disease
New! With a question!

To loose stools you would lo need to eat fat. Olive oil is a good go. Mineral oil serves too. There are some stool softners that are not absorbed, using osmosis process (muvinlax in my country). Good...

7/14/2013 1:11 PM

Crohn's Disease
So I'm back from seeing the surgeon

Coin flip? I would suggest collecting your post for the last years, organizing it, and publishing a book with your history, from despair to hope, and crohn, ibd and stoma tips. I could order this...

7/14/2013 1:01 PM

Crohn's Disease
Utterly typical

When you are a famous writer it won't happen again, I'm sure!...

7/10/2013 5:15 AM

Crohn's Disease
New and scared

Hi Curv, Some days it seems that these symptoms will never go, isn`t it? On the other side, you are close to have an oficial diagnosis, and thats great news, that so you have a GOOD hope to be...

7/7/2013 6:20 PM

Crohn's Disease
So my operation hasn't been as transformative as I had hoped

If you start a blog, I'm going to follow your posts! Good luck!...

7/7/2013 5:20 PM

Ostomies
So my operation hasn't been as transformative as I had hoped

Hey NCOT, I know that's a sort of old thread, but I didn't know about your surgery (ok, some time away)! I'm happy for you (although you maybe not always happy for yourself, you did brought...

7/6/2013 2:10 PM

Ostomies
I have 15 pots of modulen, anyone want them ? uk

South America is too far... Thanks!...

7/4/2013 9:34 AM

Crohn's Disease
4th surgery after (2nd surgery) stenosis AND stuck pillcam!

Hi, I'm just giving some news! The resection site of my second surgery was narrow (small round staple), and got narrower... I had a hint, but no confirmation in the exams (emr, sbft). After another...

7/4/2013 9:32 AM

Crohn's Disease
finally....

Wow... So many adventures. With this pain, I (still) cannot relate. But since I'm coming back from another surgery, you example of piece of cake was very colorful!...

7/4/2013 9:13 AM

Crohn's Disease
Recent Bowel Resection

Wow... So many issues. First, I do feel for you. It seems that you are going to face surgery indeed. You should consider taking suplements with high protein (and calories) too, like boost, ensure and...

7/3/2013 8:36 AM

Crohn's Disease
can anybody help me?

Yes, It sounds perfectly common and compatible with CD simptoms. So it's good news to be diagnosed. Hope you start your treatment soon....

7/3/2013 8:23 AM

Crohn's Disease
confused and scared

Usually, pred is the fastest working drug in inflammatory diseases. So it shouldn't take long. GPs and GIs are often not good with pain killers... If you had joint pain too, a neuro or a reumy could...

6/30/2013 8:13 PM

Crohn's Disease
what to eat! Help!

Chicken broth is almost medicine. Very easy on tummy. Bananas, tapioca (manioc powder), almond or rice milk. Apple sauce. Rice. Fish. I like salmon a lot... And usually avoid red meat and beams. Good...

6/30/2013 1:58 PM

Crohn's Disease
Fourth surgery and a question about internal stitches

He actually used staples. The surgery was on Wednesday. I was released today, but I keep worrying... I have some pain in the abdomen, that seems to be gas. Temp: 99.8F or 37,7C Low appetite, but...

6/30/2013 1:24 PM

Crohn's Disease
Fourth surgery and a question about internal stitches

Dear crohnie fellows, I've just gone thru my 4th surgery. Maybe that's makes me a veteran, who knows. So far it's going ok. I'm passing gas on the 3rd day. But there's still pain all around. I took...

6/29/2013 5:44 AM

Crohn's Disease
Cholestyramine users-what time of day do you take it?

I take it with some juice at breakfast. In some emergency situations I have taken it at night too... but in a regular basis - it's at morning for sure (to me)....

1/10/2013 9:55 AM

Crohn's Disease
randynoguts near death again, but pulls out!

I just came back from my forum vacations and thats what I get... I can't think of a rolecoaster more scary than that, maybe because you not obliged to them. I think about you, and the no guts part,...

1/7/2013 9:31 AM

Crohn's Disease
Big hospital bills with "good" insurance

@Pmedic It's good to "hear" that. Pred is so weird... it's like a cursed miracle. Or a cane with a adverse lottery. It's not for weak hearts. Ignorance is bliss here. Right now, I'm off pred and...

11/28/2012 11:01 AM

Crohn's Disease
Big hospital bills with "good" insurance

Ouch! Reading this I consider myself privileged. I have good insurance with copay (10%), and a not so good with no copay, so I have to keep balanced. My copay approved humira fast, buy 10% here can...

11/27/2012 6:47 AM

Crohn's Disease
The stupidest conversation about Crohn's I have ever had

Just my two cents... This suicidal guy, IMO, didn't had "only" crohn issues. We don't know his family history (divorces, affairs, children wars, etc) or depression history - a huge issue for many,...

11/27/2012 5:30 AM

Crohn's Disease
...Tips on Weight Gain

Hey Glundh, thanks for the information! In a side note advise, to receive more responses it's a good idea to start your own thread. Sometimes we can, not in purpose, kidnap other person thread. It's...

10/23/2012 7:08 PM

Crohn's Disease
Aspirin: Immediate reaction?

" could this be from the aspirin so quickly?" Unfortunatly, tha answer is yes, it could. We don't know if it is, but it could. Aspirin is as risky as most anti-inflamatory drugs, and usually is not...

10/5/2012 11:26 AM

Crohn's Disease
Is it time for pred:(

Fissures can hurt a lot. Here (Brazil), most toilets have a little shower just besides our "sitting" place". It cleans all out and I just have to dry the area. In portuguese is "ducha higiênica"...

9/24/2012 2:40 PM

Crohn's Disease
Life Expectancy

The bowells are not critic organs... but they make you miserable :). You can die of a perforation (infection/sepsis) or a hemorragy (bleed to death). But I'm not very creative. But I think most...

9/21/2012 2:43 PM

Crohn's Disease
Prednisone and lack of sleep

Hello, How about some patience :). I just tappered to 15mg and started sleeping well again. Or stop the benadril then start over after a week... Then you can avoid slleping pills. Luck, Daniel...

9/19/2012 3:06 PM

Crohn's Disease
*hugs HW*

Wow. I just got back from a trip and thought you were saying goobye to the forum when I read the topic. I'm really relieved that you are going to be around bothering us with your "pain in the neck,...

9/12/2012 2:21 PM

Crohn's Disease
Haven't been here in awhile...just need, I don't know something.

Hey BU, frustration and lack of energy are tough enemies indeed. But it's good to hear from you. Hang in there!! I have the hope that, if we manage to get going more 3-4 years, there are some good...

9/12/2012 2:03 PM

Crohn's Disease
Weight gain due to humira?

Could it possibly be the healing effect in the mucosa increasing the absorbtion efficiency off our bowels? Make some sense for me....

9/3/2012 3:08 PM

Crohn's Disease
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