Kari, Yes I have done battle with the insurance company before. I don't think it ever ends. My best advice is to tell them that these are preventative measures and remind them how much it costs if...
DEFINATELY have the sweat test done at a lab that is attached to a CF center. CF center labs do this test a lot, most local places don't do it very often, it is more of an "experience" type of thing....
Holly, Unfortuantely there is no "ultimate" CF test. Some gene mutations are known for lower sweat test/negative sweat test scores. Not all of the gene's mutations for CF have been found, so both...
HI, My daughter did not start having "failure to thrive" issues until she was about 6 months old. Up until then, she grew well and was at about the 50-75% all the time. She had really bad reflux but...
Hopey's Mom I am Andrea and my daughter is 5 & 1/2 with CF. She was diagnosed at 9 months. Feel free to visit our family site at http:groups.msn.com/teamRachelJane or contact me at JohnDrea@msn.com...
Hi, I do not have CF but I am the mom of a 5 year old with CF. I am happy to answer questions about what we have gone through so far. johndrea@msn.com is my e-mail--put "?about CF/healingwell" in the...
Jamiey, It is not bad for you to bring your neice to the CF walks, as long as she doesn't culture B. Cepacia. That if the bug that they ask you not to come if you have since they assume that people...
What makes you think that you have CF? do you have many symptoms? Your parents would probably want to know, if you have it and were diagnosed, you would be treated and you would feel better, and they...
Sara http://groups.msn.com/cysticfibrosis2chat should get you there They are one of my favorite groups and the first one I thought of when I read you post. had to laugh when I saw Joe had already...