So, I am a firm believer, that just because this disease tries to make our lifes miserable, we shouldn't have to sacrafice anything.....just have to do some work arounds. I was put on night o2 in...
Why can't the swab their cheeks and do a dna test? It is simple and painless. It can also tell if you are a carrier of the disease or not, so if you and your husband/or father of your children to be...
For 4 years I have been a payroll administrator, before that I was a DBA, Programmer, Systems Analyst, data entry/customer service agent (all four was for the same company for a span of 2 years, I...
Hi Haven't been on for awhile. 29 in 38 days with CF that in the past 8 months has progressed a LOT. Lung functions down from 90% to 60% and oxygen at night with some during the day. 3 times I had to...
I was diagnosed at 3 days old due to crystalization in my intestines. They started me on breathing treatments to prolong issues with lungs, but except for asthma during P.E., I didn't not have the...
Thanks!!!! I was quite pleased with myself. Now, 3 years later, I want to go back and get a bachelors. Scary thought. Just have to get the medical debt more in line and find a scholorship or a...
Hi. 27/F/CF Has anyone else had issues with finding people who believe in you? Even family wise? All through college, people kept asking me why? Why bother, you are just going to die or end up on SSI...
Hello So, I started to get ill the sunday before Thanksgiving. My home health care nurse heard fluid in my lungs (98% of the time sound clear), but it was a rush week at work and with family and...
Timmy1985 Probably because her name is Samantha :)...
Well, I got another two week trip to the hospital. First time I went with my partially collapsed lung, yes, after waiting the 4 hours of excrutiating pain, it didn't reinflate, so Off I went. They...
Hi. I've had 12 picc lines and I'm on my 2nd port. :D Being scared is natural. As long as you keep the area clean, and watch out for the first signs of it going bad (redness or red streak going up...
HI. My name is Catherine 24 cf. The period thing, all I can recommend is that you go see your gynocologist about it. I have had mine since I was 12, and it has always been EXTREMELY painful and very...
Thank you! Although I have heard some contradictory things too, doing some research. SO not sure what to believe. There was a case study in humans and it showed that it was not helpful to people with...
Hi, So, My mom and I went to the big annual CF meeting, with all the other parents, spouses, Doctors, and those with CF that sneak in....we asked about the Curcumin, and NO ONE has heard anything...
I have not heard of this..... Is there an article website that I could read about it?...
HI!!!!! Welcome to the wonderful world of WHAT YOU GOT? And how can we help you? 24 with Cf and diabeties. Citty purr ing is my AOLIM. Feel free to im anytime :D...
Sorry, it took so long to reply. System issues. Normally when I go to the hospital I go to the same hospital that I was born in. I know just about everyone on the 2nd, 8th, and 10th floors and they...
Hi. /community/emoticons/nono.gif You don't "just get it" as you get older. You are born with it. It is a genetic disease and part of your genetic makeup, where both parents have to be carriers of...
testing 123 testing. Everytime I post I get an error..... 4th attempt. Sorry HI! 24 with CF. I asked my mom the same questions and I still sometimes ask myself the questions. To the question "Why did...
That's because I goofed and left a letter out heehee, sorry. cittyscrochet@hotmail.com. If you click on it on this site it won't work either. Don't know why. but manually typed in will :-) My Aim is...
If you go to the cf website. www.cff.org, they have e-mail address of where you can talk to doctors and nurses and all sorts of people :-) Phoenix Children's Hospital (which is not just in Phoenix)...
/community/emoticons/tongue.gif WELCOME!!!! /community/emoticons/tongue.gif ...
Which yes, if you have cf or have a child with cf, may be alot. Well, I tried to go on vacation. First one in over a year....Made it one daym before I ended up in the ER with 3 partial blockages....
Hi. 24 wCF I have heard of people taking silver suppliments. I take sulfer to help reduce the inflamation in my joints and muscles. Aloe Vera is a wonderful healing agent and unless your little...
PARI TREK!!!!!!! top reccommended and under $220 :-) I bought mine for $176, but a few places quoted me up to $220. Little (around a pound in weight), has the ac, dc, and battery pack (6 month...
Well, this person is supposedly the best in her field and has worked especially with people with our issues. And she has been wonderful, except this one issue.... I am going to talk to the top doc...
I have had the same worries, and still have the worries. That is one of the reasons I am trying to join CF groups. To help find answers and how other people have coped with every day "normal" life...
I live in Arizona and go through the Phoenix Children's Hospital (also rated by the CF FOundation). We have a wonderful team of 4 (soon to be 5) CF specialists only. They all care deeply about the...
HI! I hope you are recovering well :-) I am 5'2 113 lbs and I eat like a piggy, yet hardly gain over 115 lbs. May I ask why you are afraid to eat? Is it because you think that you will just keep...
Okay, for those that believe no meds is the answer, if it works for you cool beans, but it does not work for everyone and eventually it will turn around and bite you on the you know what. tried it...
Hi! I was diagnosed the day I was born when I had two strokes and crystalization in my intestines. I had surgery when I was three days old and had another stroke on the operating table. I wasn't...
Hi. My name is Citty. I am 24 and I'm having womanly issues and would liek any feedback from someone that is having the same issues. Besides having cf, I am also diabetic and have about 15 other...