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babybloo

HealingWell Forum
>
Member Profile
Display Name
babybloo
Profile Created
8/19/2005 7:48 PM
Last Seen
7/31/2008 5:02 AM
Total Posts
289

Last 50 Posts

Anyone on Rituximab---MabThera

I am on Rituxan and have had 3 or 4 total rounds I can't remember. I actually have had no "hiccups" as you say. I have totally responded amazingly well to the point of having no active signs in...

7/30/2008 8:03 PM

Rheumatoid Arthritis
Retuxin VS Orencia - Need more information!

Hi there SN, I have RA but not sjogren's. I have had two rounds of Rituxan over the last 5 months. That is 4 total infusions as each infusion is given 2 weeks apart. It was right before or within a...

2/7/2008 9:53 PM

Rheumatoid Arthritis
Was doing so good

Thank you all for your kind words. There has been a lot of rain over the last week so maybe this is a big part of it... Can neck pain and headaches as a result of the neck pain be a part of this RA?...

2/6/2008 6:58 PM

Rheumatoid Arthritis
Was doing so good

Not sure what to think or do here. Just Monday of last week I had my 6 week visit with my rheumy and I thanked him and everyone else in there for helping me to feel so wonderful. Nothing hurt, I was...

2/5/2008 6:38 PM

Rheumatoid Arthritis
Running out of medication options

Does it mean anything to have swelling in your hands and legs while on NSAIDS? I have had this issue with everyone I have tried and no one seemed to care too much about it. Do they give you something...

1/12/2008 6:41 PM

Rheumatoid Arthritis
Me again with more questions

My son is 5 now and was tested in the hospital for CF when he was born because his father and I both carry a different CF gene. The geneticist pretty much said that David should be in the clear but...

12/25/2007 11:52 AM

Cystic Fibrosis
Good Moanin' HealingWell V46

Hello... not moanin so much. Received my second of two Rituxan infusions today. Was pretty nervous given that the side effects had gotten worse after each one. Well, so far so good. No major side...

12/3/2007 9:05 PM

Rheumatoid Arthritis
Joint fusion surgery (feet)

Never had it done but sure would think this would take care of many of my feet issues. I had at once thought about what if they made these bones so they didn't bend or try to bend.... huh... luckily...

11/29/2007 4:35 AM

Rheumatoid Arthritis
Reaction to Remicade, on to something else

I think the last one you are talking about is Rituxan. I am on those infusions. It hasn't been so bad either. But has worked wonders for my RA. 4 months ago I wasn't walking and I am now. I do have...

11/22/2007 7:41 PM

Rheumatoid Arthritis
Here is a question

So, it wouldn't be out of place to suggest an antiinflammatory for the gut commonly used for inflammatory bowel but also will treat the RA? Even though the endo/colo was normal??? I really cannot...

11/3/2007 10:05 AM

Crohn's Disease
Here is a question

Has anyone been diagnosed with inflammatory bowel but had a normal endoscopy/colonoscopy? My thinking here is there must been some sort of inflammation somewhere for me to respond to steroids but not...

11/2/2007 6:11 PM

Crohn's Disease
Biospies are Normal?

Believe me I am thrilled they are normal but I am not and that is the problem. They gave me pamine forte which only caused more symptoms then I presented with. Sure it could be IBS but why do I have...

11/2/2007 1:38 PM

Crohn's Disease
Arava or Avara ???

I have taken Arava in combination with Methotrexate and Rituxan for several months now. I must say that the Arava was a very good addition and I would be afraid to lose it. Right now I think I can...

10/29/2007 7:27 PM

Rheumatoid Arthritis
Had my EGD and colonoscopy

My mom came with me so the doc talked to her but she said that everything looked normal to him.... I was happy to hear that but in a way surprised given the longevity of these symptoms and the fact...

10/25/2007 2:57 PM

Crohn's Disease
Now I am getting nervous

I have my End/Colonospcopy appointment set up for Oct.25. Small bowel follow through on Nov 30 and the pelvic CT isn't set up yet. I have been having minor stomach pains, and diarrhea since. I am...

10/20/2007 3:51 AM

Crohn's Disease
Had my first GI appointment

I have the Endo/colonoscopy set up for the 25th of October. Think I will be getting the Sm. Bowel follow through Nov. 30th. My infusions make it difficult for me to schedule because they don't want...

10/18/2007 2:48 PM

Crohn's Disease
Is everyone with Chron's thin?

I am so glad you all have responded to this. I am definitely overweight have been for many years. I guess you could even call me obese for my height. The weird thing is, and this isn't anything to be...

10/18/2007 2:44 PM

Crohn's Disease
Is everyone with Chron's thin?

I too saw private practice and I know there is weight loss but I am by no means thin. I have always said that with the amount of food I eat I should be much much heavier... like needing a fork lift...

10/17/2007 8:06 PM

Crohn's Disease
Had my first GI appointment

I set up for the Endoscopy and Colonoscopy with biopsy but asked them to hold off on the Pelvic CT and small bowel follow through... you think this is a bad choice? Fiancially it would be better for...

10/17/2007 5:38 PM

Crohn's Disease
Had my first GI appointment

Well, I had my appointment with the GI doc. He didn't do much of anything except listen to my heart and lungs, asked about symptoms and where it hurt. Set me up for Colonoscopy, Endoscopy, and xray...

10/16/2007 4:04 PM

Crohn's Disease
Anyone taking Methotrexate?

I have been taking 25mg of methotrexate or 10 tablets once weekly for a year. Overall, I never really had any side effects. Sure wish there was some hair loss or thinning though. Sure would have...

10/6/2007 8:44 AM

Rheumatoid Arthritis
24 and Arthritis?

Yes, it can happen. I have suffered from RA for well over 10 years and actually only diagnosed 1 year ago. I am 32 now. Actually, I had a lot of issues as a child but was told it was growing pains....

10/3/2007 3:26 AM

Rheumatoid Arthritis
I think I jinxed myself

Rituxan used to be given every six months. It has only very recently been approved for every 4 depending on severity. I am going at the four month mark. I don't think they want to wipe out the whole...

9/27/2007 3:36 PM

Rheumatoid Arthritis
I think I jinxed myself

Thank you all for your kind words. It really means a lot to know that there are so many other people out there suffering from the very same thing. Yet sometimes you feel so alone. It is a struggle...

9/27/2007 3:34 PM

Rheumatoid Arthritis
I think I jinxed myself

Something weird was going on today. I felt feverish. My skin felt hot and I was freezing, my eyes burning for most of the day. Took temp and it wasn't even high enough to be considered a fever (at...

9/26/2007 7:39 PM

Rheumatoid Arthritis
Insomnia..sleep medications anyone? Help NOTHING HELPS!

Do you turn on a light, TV, or computer? When you think do you just lay there in the dark or do you get up? Can you or do you journal or read? Theresa...

9/26/2007 1:58 PM

Rheumatoid Arthritis
Insomnia..sleep medications anyone? Help NOTHING HELPS!

I used to take topamax. It knocked me out in the beginning and did a lot to help me relax but it also screwed with my vision bigtime. I would see trails. Noting tasted right either but I can't say it...

9/25/2007 6:25 PM

Rheumatoid Arthritis
Do I have rheumatoid arthritis?

There is no reason to think that you would have to quit work. If RA or IBD were diagnosed there are so many medications out there that can make life and work more appealing again. I was sure 1 year...

9/25/2007 3:10 PM

Rheumatoid Arthritis
Hello again

No, I have an appointment with a GI doc Oct.16 and then we will go from there. This was more through discussion of things. Basically all I said is I can go like a real person for the first time in...

9/25/2007 1:58 AM

Rheumatoid Arthritis
crohns for 35 years?

daize, I am right there with you girl. Not in the Chron's aspect but with the RA I have had for more than 10 years. Diagnosed only this last year. I was told so many things, from...

9/24/2007 5:37 PM

Crohn's Disease
Insomnia..sleep medications anyone? Help NOTHING HELPS!

babyplace, You mentioned hormones getting in the way. Half the time if not more when I wake I am hot and sweaty, my hands and feet feel swollen too.... What were your symptoms with the lack of...

9/24/2007 3:11 PM

Rheumatoid Arthritis
Insomnia..sleep medications anyone? Help NOTHING HELPS!

I was actually given Trazadone once upon a time. Sometimes depression can keep you awake. I wasn't depressed or at least I didn't think so at the time but I had a lot of stress and did a lot of...

9/23/2007 7:48 PM

Rheumatoid Arthritis
Hello again

It seems once you get a diagnosis of something you can't stay out of a doctor's office for very long. I just contacted my manager to give her a list of days I will either need off, leave early, or be...

9/23/2007 7:39 PM

Rheumatoid Arthritis
I need help finding relief

Thanks you two. I did decide to not chew anything for several days. I helped actually when I was sick and could not eat I noticed it was much better. Hmmm. I will work on the jaw exercises and have...

9/23/2007 9:49 AM

Rheumatoid Arthritis
New to this forum, I think

Thank you all for your responses. I understand about the ibuprofen but when discussing alternatives and trying alternative NSAIDS they all caused issues the ibuprofen less so then all of the other...

9/22/2007 12:48 PM

Crohn's Disease
New to this forum, I think

Hello, I am diagnosed with RA and taking Methotrexate, Arava, Rituxan infusion, and occassionally Pred (I avoid this at all costs), in conjunction with Ibuprofen and Tylenol. My rheumy suspects I may...

9/21/2007 2:14 PM

Crohn's Disease
I am really sick. What do I do?

I am still improving. Still looking at food like it is an alien. Still losing weight and still having some intestinal issues but overall I am doing much better. My poor boy is not well now so there...

9/15/2007 10:07 PM

Rheumatoid Arthritis
I need help finding relief

Since this last bout with illness I seem to have gone into a bit of a flare. My jaws and feet and hands are worst affected. But the jaws are the most annoying and painful. Talking, chewing even just...

9/14/2007 8:31 PM

Rheumatoid Arthritis
I am really sick. What do I do?

Thank you everyone for your responses and concern. I have turned a corner today and am feeling much better. Still have some issues but overall I am function and back to work tomorrow. Thank you...

9/12/2007 7:37 PM

Rheumatoid Arthritis
I am really sick. What do I do?

Ok, I am still sick. My fever is back and I feel weak, flushed, tired and shakey just walking across the room. Not to mention the dozens of trips to the bathroom. I talked to doc who said stay on...

9/10/2007 5:55 PM

Rheumatoid Arthritis
I am really sick. What do I do?

Thanks Ducky. There is pain in about all of my joints that just came on so suddenly today after the start of the GI issues. The fever started about 12 hours later. It was 100.5 and now it is 101 but...

9/8/2007 4:46 PM

Rheumatoid Arthritis
I am really sick. What do I do?

I am not well. Started last night with well this is gross but with less than normal stools (diarrhea). It still continues though now it is greenish or yellow. Sorry to be so graphic. I started going...

9/8/2007 1:06 PM

Rheumatoid Arthritis
There has been lots of discussion regarding pain meds

nevermind it isn't important...

8/5/2007 6:26 PM

Rheumatoid Arthritis
There has been lots of discussion regarding pain meds

I would like to see what everyone thinks about this then. I have never in my life taken anything stronger than ultram. Ultram no longer works so I have never bothered refilling it. I have taken...

8/4/2007 12:58 PM

Rheumatoid Arthritis
Good Moanin' Healing Well V35

So this is a moaning thread. I am having a hard time dealing with everything. Got my Rituxan infusion on Friday and did pretty well. The day of wasn't great but it wasn't so bad either. Had night...

7/14/2007 8:05 PM

Rheumatoid Arthritis
Help with Pain Meds

I am so sorry Erin that you are having such difficulty. One thing you do have is that you can get pain medications. My PCP nor my Rheumy will prescribe them because they say that prednisone will take...

7/14/2007 7:57 PM

Rheumatoid Arthritis
I need help interpreting test results and want to know why I wasn't contacted

Maybe it isn't important but from what I have read it could be. I got my infusion today which went well actually so far. While I was there I asked for a copy of my most recent blood work which was...

7/13/2007 11:27 AM

Rheumatoid Arthritis
Good Moanin' Healing Well V34

Having a rough time of it these last two days. Seems I am having issues now with nausea and other gut stuffs from one of these meds. Lasting for two weeks now. Today is going to be a light day at...

7/12/2007 4:04 AM

Rheumatoid Arthritis
Concerns about Rituxan after research

Well apparently what they are saying is those with a positive RF have excessive Bcells which is what Rituxan attacks......

7/9/2007 2:10 PM

Rheumatoid Arthritis
Concerns about Rituxan after research

I have been on Methotrexate 25mg for about 1year, also on ARAVA, and have tried Enbrel. The rheumatologist says this is the next option but i have read numerous reports that the poeple who respond to...

7/9/2007 1:36 PM

Rheumatoid Arthritis
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