I should have also mentioned that I was on Ativan for the first week as well. It did help with some of the side effects....
I've been taking Celexa now for about 3 weeks. For the first 2 weeks I had increased anxiety, agitation, shaking, etc. Now on week 3, I only have mild anxiety and agitation. My doctor said that most...
I think that despite the fact that your baby has CF, he/she will be able to lead a for the most part "normal" life. I'm 25 years old, and was diagnosed with CF at the age of 6 weeks. I too have the...
I know that plenty of CFers do have sinus problems, so that may be it. I'm not completly familiar with symptoms of teething though, so I suppose its best to always call your doctor and confirm....
I'm not sure if this is what you're talking about, but it is a breathing technique that you can do in place of the vest: Autogenic Drainage Autogenic drainage (AD) means self-drainage. It uses...
I'm 25, and at the moment sitting at 105lbs. My healthy weight when I'm not sick though is 135lbs....
You just need extra protein then. Eggs, you could get protein powder, cheese, etc....
From the mouth of my own CF specialist, alcohol is only good for stimulating appetites. The downside is that it dehydrates you, and lowers your levels of GSH levels, which is not beneficial to us. I...
You should try eating a lot of peanut butter, peanuts, or anything with protien. That helps with weight gain....
In regards to alcohol and GSH levels, I found my information in this article: http://www.chestjournal.org/cgi/content/full/127/1/12 This is an excerpt: "It is also known that the levels of...
I would also suggest maybe getting your enzymes changed. It could be that they are too strong for you, or maybe you're taking too many? As for alcohol, drinking once and a while isn't too bad, but...
From what I've read, levels of glutathione (GSH) in the epithelial lining fluid of the lungs are diminished in a number of lung disorders and environmental exposures including ARDS, idiopathic lung...
GSH levels are low in CFers to begin with due to the CFTR channel. Having higher levels of GSH is actually beneficial to us because it is an oxident and lowers inflammation in our lungs. There are...
I've been to a genetic counselor before. My boyfriend (at the time) and I went because we were talking of having kids, and wanted to see if he was a carrier of the gene (I myself have CF). We had to...
Hmm...I haven't read any articles on the effects of drinking and CF, but my CF doc informed me that having a bit of alcohol with your meals is an appetite stimulant, like a small glass of Sherry or...
Some people have high sugars from the meds they are on. I was in hospital last may on IV cipro, and my sugars would always run high while on it. That alone doesn't mean that I'm diabetic you know...
Have you actually had tests done to see if you're diabetic? Sometimes CFRDers go through what is called a "honeymoon" stage, where their sugars tend to run lower for a period of time. It could also...
I'm sometimes up till 2 or 3 in the morning. I've always been more of a night owl and always have trouble falling asleep. I'm not sure if it has anything to do with the meds I'm on or CF, but I find...
It helps me a lot, although it does make me sleepy at first. I'm only on it temporarily until I can get something else that will work better for me. If you're going to an accredited CF centre, where...
Yes, CFers do get their spouses tested to see if they are a gene carrier. I haven't heard of a CF not doing this, as we don't want to pass CF on to our child....
A lot of CFers suffer from Anxiety. I myself do. I see a counselor every two weeks to talk, and I'm also on Adavan 2x a day. You should speak to your doc about your anxiety, and see what he/she...
I've been told the very same as what Melissa says. CFers usually do not have artery problems from high fat as well....
Is she getting these sweat tests done at an accredited CF centre? I would suggest the Ambry test. They do an extensive panel testing....
abnormal CF level, does that mean he has CF? could be inactive? , what are the steps we should take? AT THIS POINT I'M NOT TOO SURE WHAT ABNORMAL MEANS, BUT ALL I CAN SAY IS GO AND GET A SWEAT TEST...
I am currently on Adivan as well for my panic. I take it twice a day, because if not then I have at least 1 panic attack a day, and I can't stand having them anymore. I also talk to someone once a...
Pregnancy (too many times to count) Allergic Aspergillus HIV TB...
First of all, I'm sorry to hear that you are going through this. This must be very shocking, and hard to deal with. Secondly, welcome to the site. I have CF. I also have double delta f508 (which...
There is no such thing as "adult onset" CF. "Adult onset" is something you would get with diabetes, because you would develop it later on in life, whereas CF is genetic, and you HAVE to be born with...
Coal fire can be just as bad on the lungs of a CFer. I'm not sure if its as bad as regular fire, but I would still be concerned....
There is a such thing as a false negative, but not a false positive. If you've had 2 positive tests, then your child has CF. Make sure that you are going to an accredited CF centre. And also demand a...
I've been taking Zithro for about 5 months now, and I've noticed a difference. Zithro is used as an anti-inflammatory long term use. You take it 3x a week. I've noticed that my breathing is better,...
You should still be boiling your nebs or putting them in the dishwasher or microwave, or some other means of cleaning them as well that I mentioned above. There is a wealth of bacteria in tap water....
If you're into natural supplements, you should try oil of oregano tablets (this helps with inflammation), and garlic - good for sinuses, colds, immune system, etc....
I know that sore muscles can be related to dehydration sometimes, and it can also be growing pains. Have you talked to his doc about the pains?...
I'm 24 and live in Canada. My lung function is 69%, but I've noticed that my health has declined slightly since transfering to adult care....
Water, water, water!! I can't stress that enough! Also Gatorade is really great as well, as it replaces the electrolytes that he will lose when being active....
According to the CFF guidelines, vinegar is not strong enough to kill all of the bacteria that collects on your nebds. Your neb cups should also be cleaned after every once. PA will stay on a wet...
I would definitly schedule a sweat test at an accredited CF centre. I would also push for a dna blood test as well. There have been known cases, where results came back negative, but a blood test...
Chronic Sinunitis occures quite frequently in CFers. What this is is a sometimes painful persistant inflammation of the mucus membranes in and around the nose and eyes. This can be caused by...
I've taken both. I started on Prevacid and it didn't work for me, so I switched right to Pantoloc. I would say that you can take both, but I found that with the Prevacid I had to go to the washroom...
CF isn't a formation in your lungs that can be taken out. It is a genetic disease that for many affects the lungs, kidneys, pancreas, liver, etc. Does he have a history of allergies, asthma,...
If you're sick, then that usually causes inflammation in your small airways. That might have been why your PFTs were lower. I go for PFTs every 6 months because I have asthma and Cystic Fibrosis, and...
Anxiety can cause pain in the chest or a discomfort. Not sure if its acid reflux, but it will feel similar. Acid reflux doesn't go away. If the pain in your chest goes away with the attack, then you...
I've been diabetic now for 10 years. For the longest time now, my diabetes control has been very good (good for he first 6 years now I think). For the past few years though, I have gone through...
Thrush is usually caused by inhaled meds. If you're taking a puffer or any kind of inhaler, gargle with water and salt, and then drink a glass of water afterwards. This will get rid of thrush. We...
You're talking about Hypertonic Saline right? I've mentioned it to my doc and he's against it for whatever reason. He keeps saying that its not approved by the Canadian CF foundation, but I know it...
I'm not sure if I can help you with this. I'm from Manitoba. Has her son had a sweat test or DNA test? Does the mother know for sure that this is CF? If so, then she needs to get a referral to an...
Hi Jen. Welcome to the site. I'm 24 with CF - diagnosed with CFRD at 14. In regards to treatment for Pseudo other then Cipro or inhalled TOBI, there is also Colistin (otherwise known as Colymycin)....
This link is from the CFF website regarding CFRD. If you read up on the causes of CFRD its because we have a hard time producing insulin due to scarring of the pancrease. If you eat less sugar, then...
Too much sugar consumption can lead to CFRD (CF related Diabetes). Your daughter should be on a high carb, high protein, high fat diet. Not high sugar intake. I'm not saying that cutting out sugar...