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NeefaFeefa

HealingWell Forum
>
Member Profile
Display Name
NeefaFeefa
Profile Created
8/22/2006 10:39 PM
Last Seen
5/24/2018 2:56 PM
Total Posts
75

Last 50 Posts

CF and COPD

[color=#800080>Thanks! Emily[/color]...

10/20/2011 7:52 PM

Cystic Fibrosis
Intestinal blockages

Lifetolove, I am 21, and I have had 2 intestinal blockages, one minor one about 5 years ago and one in December. The one five years ago I have no idea what happened, I think we decided it was a bean...

10/1/2011 8:39 PM

Cystic Fibrosis
Boys and CF

Hey there! I totally know where you're coming from! The guy I am dating now, well, we've been dating on and off for nearly 4 years, and I just now involved him because I was totally nervous. He...

9/24/2010 2:42 PM

Cystic Fibrosis
2 small boys with CF

Hi Jillian! I'm glad to hear your youngest is growing :) As for the older one, I'm sorry to hear he's not eating. I was the same when I was younger, I would hardly eat and never gained weight. So my...

12/21/2009 1:17 PM

Cystic Fibrosis
Could this be true?

I agree! Getting settled into a routine is what's best for now. I've known about my CF for almost 18 years, and I'm just now getting a good solid routine down after an eye- opening infection where my...

8/11/2009 10:27 PM

Cystic Fibrosis
I hide mii feelings about Cf cause I want everyone to think Im strong but deep down I am scared!!

Hey Sheana! My name is Emily, I live in Washington, USA, and I am also 19, (almost 20!). When I was diagnosed at 2, the docs told my parents that I might not make it to my teens. They were wrong...

8/6/2009 10:49 PM

Cystic Fibrosis
I need help from an artist!!

Hey everyone! So I know there are some really good artists out there in the CF world (one of the many ways we can we entertain ourselves in the hospital) but I, unfortunately, am not one of them....

7/29/2009 10:08 PM

Cystic Fibrosis
Cystic Fibrosis and having children...

Kosdancer, I didn't know that if a person has CF and has children with someone who had the gene that that meant all the children would DEFINITELY have the gene at least. My only experience comes from...

7/19/2009 5:13 PM

Cystic Fibrosis
Cystic Fibrosis and having children...

Hey Tara. First off, I think it's great that you're considering having children :) Now, if you are a carrier of the gene, and your husband definitely has CF, then it is not only possible for your...

7/17/2009 11:29 PM

Cystic Fibrosis
CF and Pregnancy.

Hey Pink! I think it's great that you and your husband would like to have kids, and I say go for it! If you get tested and you're not a carrier, then there is no way that your children can be born...

4/30/2009 11:01 AM

Cystic Fibrosis
This is for donnaeil

[color=purple>Let] I don't KNOW for a FACT that there are no groups, I've just never HEARD of any, because groups of CFer's communing together is a big no-no in most places these days....

9/17/2008 11:06 PM

Cystic Fibrosis
This is for donnaeil

[color=purple>I] But I live in Marysville, which is like 3 hours ish from Sequim...I've never heard of any groups because they like to keep us seperate from each other. [b]Just throwing my two-cents...

9/15/2008 8:01 PM

Cystic Fibrosis
I Just get so frustrated!

[color=purple>Are] Haha Well I hope you're happy to know that because of you no one else gets the privilege of using possibly-contaminated envelopes ;) [b][color=#800080>They] open them, they close...

8/18/2008 2:16 PM

Cystic Fibrosis
I Just get so frustrated!

[color=#800080> [color=#800080> [color=#800080> [color=#800080> you? What kind of stuff are you filling your time with right now? [b][color=#800080> [color=#800080> sonnylover@comcast.net (emal...

8/17/2008 6:02 PM

Cystic Fibrosis
I Just get so frustrated!

[color=purple>Thanks] I still live at home though, so It's hard when the parents AND the docs gang up on you.... "doctor knows what's best" and all that stuff... [b][color=#800080>And] Your brother...

8/15/2008 11:43 AM

Cystic Fibrosis
I Just get so frustrated!

[color=purple>Ugh! [color=#800080> [color=#800080>And] [b][color=#800080>It] I just hate being left behind when there's nothing I can do about it. To be all alone and not be able to do the things...

8/14/2008 10:45 PM

Cystic Fibrosis
im new im Andrew

Hey everyone! Just while we all seemed to be making introductions, I just wanted to throw mine out there. My name is Emily, and I live in Washington (not DC), I'm almost 19, and I have CF. I have a...

8/11/2008 7:55 PM

Cystic Fibrosis
Staph

[color=purple>Thanks] I'm just a bit nervous, as all this is new to me [b][color=#800080>My] And I've been coming down with something, like congestion, drainage, and sore throat and I was curious if...

9/30/2007 4:17 AM

Cystic Fibrosis
Staph

[color=purple>Hey] I've always been a very healthy girl since I was diagnosed. But the last 3 cultures I've had, I've had Staph every time, which has never happened before. Do you think this is a...

9/29/2007 9:02 PM

Cystic Fibrosis
How do you view CF?

[color=purple>Hey] [b][color=#800080>My] my CF since I was 2. I was really curious about your life up until you were diagnosed at 16 or 17. If I'm getting too personal then just ignore me. What I...

9/17/2007 3:10 PM

Cystic Fibrosis
Volunteerig - a good therapy

All the things you guys have done sounds wonderful, but helping people is not the only way to make yourself feel better while giving back to the community. I've been volunteering at a local horse...

8/1/2007 10:04 PM

Depression
cf help

[color=purple>well] [b][color=#800080>I] 45 pills a day [b][color=#800080>I] and I can't speak for everyone, but I have never been hung upside down to get the mucus out (that would be quite the...

7/19/2007 8:45 PM

Cystic Fibrosis
GF of 3 years left

[color=purple>Hey] [b][color=#800080>Don't] Talk to her! [/b]...

7/13/2007 11:50 PM

Cystic Fibrosis
How do you view CF?

Fire, I couldn't have said it better myself! Yes, living with an ailment like CF definitely makes you stronger. I have been told before that living with lifelong diseases helps a person to grow...

6/20/2007 12:21 AM

Cystic Fibrosis
How do you view CF?

[color=purple>Different] ." (sorry, I just thought that comment was slightly rude)[/color]...

6/18/2007 11:11 PM

Cystic Fibrosis
I have lost my friends!

[color=purple>Hey] [b][color=#800080>My] [b][color=#800080>After] 8 months now, and even though sometimes the urge is overwhelming, I ignore it and immediately try to do something to take my mind...

6/15/2007 9:35 PM

Depression
Bronchiectasis

Thanks a ton! I looked at that site, and it helped a lot. But man, just what I need, another thing to make me even more sick. ...

6/15/2007 2:45 PM

Cystic Fibrosis
How do you view CF?

[color=purple>I] my CF, mostly last year when I kept getting sick and lost my friends. Now however, I've moved on and am learning to just deal with it. Though I can't really say much, my case isn't...

6/13/2007 6:43 PM

Cystic Fibrosis
Bronchiectasis

Hello everyone! I just had a CF appointment last week, and had to get my yearly chest x-rays, and the doc says that I have very prominent signs of bronchiectasis. I was just wondering if anyone...

6/12/2007 8:22 PM

Cystic Fibrosis
Am I Ruining My Future?

I feel for you, Jess, and your family and I'm wishing her the best!...

6/8/2007 2:19 PM

Cystic Fibrosis
My 13 year old daughter wants to write a book

[color=purple>A] [b][color=#800080>Alex;] [b]But just as a warning, no book or movie has ever made me cry as hard as this one...just so you know... ...

6/7/2007 12:18 AM

Cystic Fibrosis
I am in shock!!! My 11 year old niece was diagnosed with CF !!!

[color=purple>Yes,] [b][color=#800080>I've] [b]Right now, my only advice is to be optimistic! Remember, life always looks better when the glass is half full... ...

6/7/2007 12:14 AM

Cystic Fibrosis
Am I Ruining My Future?

[color=purple>Haha,] those inhale things like Tobi and the Saline solution stuff, Jolly Ranchers work waayyyy better than tic tacs! [b][color=#800080>I] the treatments being boring and stuff. But,...

6/7/2007 12:09 AM

Cystic Fibrosis
depression anxiety panic attacks

[color=purple>I] it, I usually just wait and hope it goes away. I hate leaving my room when I'm feeling like that. [/color]...

6/6/2007 11:53 PM

Cystic Fibrosis
What do you guys and girls do in a normal day?

Lets] [b] an hour [b][color=#800080>Then] 3 hours [b][color=#800080>Then] Then I walk the dogs again [b][color=#800080>and] [b](treatments are sposed to be in there somewhere, I do them once every 2...

6/6/2007 11:50 PM

Cystic Fibrosis
do you ever skip treatments??

[color=purple>I] [b]So, learn from my mistakes, and do your treatments! Otherwise it'll come right back and bite ya in the butt! ...

6/6/2007 11:45 PM

Cystic Fibrosis
Mom in need of advice!

[color=purple>Wow.] [b][color=#800080>Good] [b]Em ...

3/27/2007 12:24 AM

Cystic Fibrosis
How To Tell Friends

Then stop trying so hard, and just live. You'll feel better for it. ...

3/22/2007 3:33 PM

Cystic Fibrosis
New! (16 yr. old)

[color=purple>Most] my CF at age 2. But I'm constantly battling colds and whatever sickness is going around because of my lower immune system. But like I said, it's different for everyone[/color]...

3/11/2007 8:37 PM

Cystic Fibrosis
Searching For Stories...

[color=purple>Okay,] [b][color=#800080>Living] myself because I didn't want to scare them away. I'm only 17, but I have had one relationship that I'd consider as serious just because it lasted 4...

3/9/2007 11:18 PM

Cystic Fibrosis
Searching For Stories...

Hello Hayley! My name is Emily, I am 17 years old, and I've known about my CF since I was 2. I'm probably not a very good story to tell; I mean I've never really had much of a problem with my CF...

3/8/2007 11:00 PM

Cystic Fibrosis
MSN or AIM

Hey Everyone! Emily here, I'm 17, and I really want to meet some new people with CF! So if you would like to, you can add me onto your msn ( sonnylover@comcast.net ) or AIM (sonnylover101) [sorry if...

3/4/2007 11:39 PM

Cystic Fibrosis
How To Tell Friends

I agree with everyone; if the people around you don't accept you for who you are, then they aren't good enough for you. Just remember that. ...

3/4/2007 11:24 PM

Cystic Fibrosis
New! (16 yr. old)

Darnness ...

3/4/2007 11:21 PM

Cystic Fibrosis
New! (16 yr. old)

Well I don't have any of the stuff you mentioned, what about MSN?...

3/1/2007 9:03 PM

Cystic Fibrosis
New! (16 yr. old)

Hey Laura! My name is Emily, and I just turned 17 in January. I've known about my cf since I was abbout 2, and that's the only time I've ever been hospitalized for it (there's been some close calls...

3/1/2007 8:11 PM

Cystic Fibrosis
motorcycle riding

Nope, never. I've only been on a motorcycle twice in my life (and I'm 17)...

Today 10:41 PM

Cystic Fibrosis
How To Tell Friends

[color=purple>Hey!] it, I say I can't digest my food (that is what the enzymes are for), if people ask about treatments or inhalers, I say I have lung problems. It's really no big deal. You...

2/22/2007 5:39 PM

Cystic Fibrosis
Need advice on how to get my daughter to eat

Once again Melissa, congratulations on Tyler and for Michaela's progress! So do you have to do any airway clearance for Michaela right now? Like "pat pats" or some kind of inhalation TOBI or...

12/16/2006 1:16 AM

Cystic Fibrosis
Need advice on how to get my daughter to eat

A boy? That's fantastic! I hope everything goes well for you and your soon-to-be new baby boy! As for what Alan said about the N-G tube, I also had one (at least I think that's what it was. I was fed...

12/11/2006 11:16 PM

Cystic Fibrosis



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