i sure do love this site. i come here quit often to read and learn. Thanks everyone for the knowledge you have given me. I have had this dd for 10 yrs. I had my large intestine removed in 02 and part...
Prenisone. What a god send. i have been on it quite a few time in the last 10 yrs. My symptoms very, this last time it was accidents and urgency. Started me on 60mgs daily, then tappered me by 5mgs a...
as to the doctor, i would write a letter to the clinic or wherever she works and tell them what happened. So unprofessional. as to the person in the b/r i would just let it rip and not care what they...
fighting this dd. A little about me. no large intestine about 1 foot of my small removed. On Humira every 2 weeks. Taking lots of over the counter supplements. I have been getting lots of stomach...
We are all different. Give it some time. I take humira and i still use the r/r about 5-10 times a day. sgirl. talk to your doctor about companys out there, that help with the remicade cost. my doc...
I have been on Pred. a dozen times. starting with 60mgs. It makes me wired. Then i also have a hard time sleeping, so my doc gave me a sleeping pill perscription. I wean down by 5mgs a week. Good...
I am one of the lucky ones. My family,friends, and coworks are great. never no grief....
i have had chrohns since 02. I am the kinda guy that can eat and eat without gaining a pound. i have been on a high dosage of pred for about 2 months. I lost 20 lbs prior. put on 15 since i have been...
I have had a J-pouch now for 7yrs. The question i have for you Warren, is what drugs have you tried. I would talk to a doctor about Humira and Remicade first. My opinion. My experience with the...
One of my concerns is showering. I remember when i had my bag, back in 05. THey do not seem to stand up to water. Let me know how to prevent them from working away from your skin while showering?...
Thanks for all the comments. It is a big decission. I am now trying to weigh out all the pros and cons. The way i see it their are more pros then cons. Only thing bad is the surgery and time off of...
I have had chrohns for like 10 yrs. I have been having lots of problems with my chrohn's. I am on humira right now with lots of over the counter vitamins. I just got out of the hospital where they...
i have had this dd for 10 yrs now. i also have another disease called CMT, which is a deteration of the nerves, in the hands and feet. the older i get the more pain i have in them. So i started...
so far so good. the flare is under control. No t/p. No accidents. Wow the stuff works fast. Yes energy energy. Legal speed. I talked to my co workers and explained the side effects. They have no...
It has been a looong time since i have posted on here. I have had my large intestine removed in 05, 1foot of my small in 09, due to this dd. I have been having lots of stomach pains, lack of control...
I can feel your pain. I cannot eat corn either. No veggies for me. Everything that is good for you, you can't eat. I really want to eat some corn on the cob, but i know what to expect. So i WILL NOT...
Nanners. I just got of a 2 week coarse of Flagyl. Did not stop the Gurgling. I feel your pain, Sofee. Like someone said it always makes the loudest noises when someone is around. Doesn't bother me...
ask them if you can get in and out. tell them you are on a tight budget. they worked with me. you might have to sit for a waiting app. it was worth the wait for me. they said it could be 2-8 hr wait....
i am looking for ppl that had there colon,large intestine and part of the their small intestine removed. WHat kinda problems are you having. My problems are frequent trips to the b/r some accidents....
Ok. I am one of the lucky ones. I have been taking the shot for over a year now. I am a thin guy. I take mine out for 1/2 hour prior to the injection. I use my alcohol swipes and try to pinch my...
I am soon to be divoriced. Never had to date with this dd. Scared to how the women are going to react with a guy that has to wear depends on somedays and have a pad underneath him incase of an...
My first Humira treatment was with 4 shots. second one was 2 shots. Now on 1 shot every other week. Seemed to me that it worked great after a month. Used to be on Remicade until my body said no more...
Been there done that. I am sure i will again. what i do is take some tp and put it under my butt. works great. don't be afraid to use extra. /community/emoticons/yeah.gif ...
My opinion. keep a diary of your diet. i had pain on my right side that sent me to Mayo. had partial blockage in small intestine. Us chrohnies, or should i say myself cannot have any...
some history first. no large intestine, humira, 17cm's of small intestine just removed due to blockage. been out of the hospital since June 8th. was doing great until last night. stomach pains again....
Thank-you for the encouraging words, Gail. I am one step ahead of you.......I was able to visit with one of the people on his medical team about his problem with chewing. She was very surprised to...
OK........this reply is from "'THE WIFE' of CHICO 41. The news today is that he had to have the NG tube placed again this morning. He is going to continue chewing because he thinks I am trying to...
poor me.my life has not been easy. i have numerous problems. one is cmt diesease, which is a deteration of the nerves in hands and feet. My diet stinks, there are lots of foods i cannot eat due to...
i know chewing is not good just like to much grease,coffee, etc... when i am at home a can of chew last me about[b] 3-4 days. now in the hospital it last me about 10-15 days. so i have cut down...
here is a good one. I have been in the hospital now for 26 days for a blockage to the small intestine. when i was addmitted the first thing they say ask is, do u smoke or chew. and i say yes to...
i posted a letter about a week ago on here not saying much because of pain. tonight i am going to try again. a little about me. in 02 had my large intestine removed, due to full of ulcers and they...
here i am sitting in the hospital, with another big decission., been haveing problems with strictures in my jpouch small intestine. was in the hospital 2 months ago for the same lproblem. now am...
I have been on Humira now for 3 months. I take it out of the fridge about a 1/2 hour before i use it. I inject myself in the stomach. The reason i use the stomach is, i am a thin guy. I have no...
have they considered trying Remicade or Humira before doing the surgery? /community/emoticons/yeah.gif ...
I'll try and make this short. I was on Remicade for 2 yrs because of this dd. Started having stomach pains, went to doc and had blood work done, found out i am ammune to it. so he puts me on pred...
My opinion. Try Remicade or humira before the surgery. I wish i would have. i was diagnosed with u.c. in 1995. in 2002 i had my colon removed due to full of ulcers, had a bag for 3 months, after the...
Beulah North Dakota. about 80 miles north west of Bismarck....
My hat is off to you HSspencer. newbies need to hear what we have been threrw and what works and what does not work for us. we are all different, so they should keep a diary as what goes on in there...
Hi ya yellowfin. I have been where you are right now. WHat really helps me is this. Only one person can judge me and that is GOD. yes there are some days i could allow myself feel crappy about being...
I have been on Remicade now, for over 2 yrs. I can understand u being nervous. Don't be. Look at it is a Miracle Drug. Was and is for me so far. I too have reactions during the infushion, almost...
Happy New Year to you Michelle. I too have found lots of comfort on this website. It is full of good people and Great advice. What really works great for me is i live my life one day at a time. Also...
I have had a J-Pouch, now for over 2 yrs. and i have had a bag for 3 months. It really has its ups and downs. I think if i was to do it all again i would consider using the bag. Pros and cons for...
Very good topic. /community/emoticons/yeah.gif I have had CD/u.c. for over 12 yrs. Have had the bag for roughly 3 months . somedays i would rather have the bag. Heck, when u have the bag, there is no...
It started in 93 roughly, with bathroom visits, 10-20 per day,mucus,blood and weight loss. was diagnosed with u.c. took every drug out there, seemed to work somewhat but i did not lead a normal life,...
i sure can relate to the anxiety,depression all that comes with this dumb disease. I went down to rochester minnesota a couple of times due to this disease. And i found out that disease is not all...
Went to arthritis doc about a month ago for joint pain, after about 1-3weeks, prior to next infushoin. . he took blood from me and sent it to two different clinicis. found it that, i do not have...
I too, feel your pain Navy. with this disease i have grown alot. I myself would have told them, that i have a disease, Called Chrohns, that i hope to God they do not get. be tough Navy. Just let it...
I am sorry for your loss. There is a bright side to her death though. no more stupid disease. now she can live in eternity without in illnesses, not worry about if she can make it to the b/r. She can...
Good day to you all. I live in North Dakota and found a program that helps with $$ for Remicade. I went to my last infushion and they want me to start taking it every 6 weeks, for the simple reason i...
I have been on remicade now for a year in a half. Take it every other month. I had my large intestine removed 6 yrs ago due to ulcers. I am due for my next infushion July 9th. I have been...