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RanMan

HealingWell Forum
>
Member Profile
Display Name
RanMan
Profile Created
2/16/2003 1:46 PM
Last Seen
1/16/2019 9:34 AM
Total Posts
671

Last 50 Posts

Affects Of Long Term Use Of Dilantin

[b]Update As I mentioned back in 2015, I was on Dilantn fore 40 yrs. I've recently found out that IT SHOULD NOT be used " long term" , b/c it is so harmful to the body. My Neurologist of 40 years has...

1/12/2019 12:29 PM

Epilepsy
Dilantin level and why my Dr. would not reduce my dosage..Opinions needed.

Hi Porkythepig Re: Dilantin, I read in a medical journal that Dilantn should NEVER be taken " long term" because of the damage it causes to the brain (Cerubellum)and the bones. After 40 years on...

1/10/2019 5:58 PM

Epilepsy
Dilantin level and why my Dr. would not reduce my dosage..Opinions needed.

Porkytheplg Sorry to hear of your dilemma with dilantin and your Doctor. I'm in the same situation, (with an old school Neorologist, set in his ways) I've been on dilantin for 39 years. My...

6/2/2018 10:36 AM

Epilepsy
dilantin

Hi machz, This is a side effect of the Dilantin and something you'll have to live with unless it's so bad that it's causing Probs. But then you have to ask yourself, would you rather have seizure...

12/23/2016 8:50 AM

Epilepsy
Vision problem akward situation

Hi Peugeot, It sounds like you are having Paranoia and anxiety as a result of long term use of Dilantin, Paranoia is a known side effect of Dilantin. You may also notice jerry movements and/or...

12/23/2016 8:37 AM

Epilepsy
Questions about EEG and Epilepsy

Hi cake girl and welcome to Healing Well. Yes, other illnesses can be detected through EEG such as Sleep Apnea (which can cause nighttime seizures) Sleep Apnea can also effect headache in the...

12/15/2016 1:41 PM

Epilepsy
Father with big polar son, a parents point of view, SO FRUSTRATING.

UA The MAIN problem is HE REFUSES TO SEEK HELP b/c he doesn't believe he has a problem. Meanwhile, he has destroyed our family, and being caring parents, it's hard to disown your child. (easy to say...

12/3/2016 5:22 PM

Bipolar Disorder
Father with big polar son, a parents point of view, SO FRUSTRATING.

My son was dx'd with BP when he was 12 yrs old. He's now 30 yrs old and living with his girlfriend. But what I find MOST frustrating is when he has an episode (manic) he gets into trouble with the...

12/1/2016 10:49 AM

Bipolar Disorder
Effects UC has on other medical conditions

I have had UC and Epilepsy for 38 yrs. Epilepsy first, then a few months later came the UC in the early stage called "Mucus Colitis" and then, full blown UC. My Neurologist says that both conditions...

9/17/2016 10:51 AM

Ulcerative Colitis
everyone, i need help please read

denalee, Have you gained any weight or have a 15" neck? If you lay down or bend, the added weight will close your airway and causes a lack of oxygen to the brain, hence causing night time seizures as...

4/26/2016 12:18 PM

Epilepsy
U.C. and dairy products

iPoop, Thanx for your reply, however, I take 1 tea spoon of metamucil every nihgt before bed for the laet 5 yrs. and 3 days a week I would have Bran cerial in the morn. I was sure that this would...

4/26/2016 9:57 AM

Ulcerative Colitis
U.C. and dairy products

I've had UC since 1979. I was told by my then G.I. that I should stay away from dairy products. I still have milk in my cerial and cream in my coffee and sometimes I have icecream. I havn't had any...

4/25/2016 12:31 PM

Ulcerative Colitis
Temporal Lobe Epilepsy

Hi Brad, My name is Randy, I've had a "seizure condition" for 36 years so I think I have enough experience to give an opinion. (I prefer to be called a person with a seizure condition rather than an...

12/4/2015 2:20 PM

Epilepsy
Affects Of Long Term Use Of Dilantin

First of all, I've been on Dilantin for 36 years. *** This is just my opinion,you may be different.*** My balance has been effected severely by this drug as well as my gait, short term memory and...

9/11/2015 9:40 AM

Epilepsy
Reasons for seizures?

You may have a form of sleep apnea. Maybe you should speak to your Neurologist about sending you for a sleep study to determine what's causing you to feel this way. Have any of your seizures happened...

6/8/2015 12:02 PM

Epilepsy
(no subject)

Sharsy, You may have a form of sleep apnea. Maybe you should speak to your Neurologist about sending you for a sleep study to determine what's causing you to feel this way. Have any of your seizures...

6/8/2015 11:58 AM

Epilepsy
Snoring bad after anti seizure meds.

Stresshead28: You may have a form of sleep apnea. Maybe you should speak to your Neurologist about sending you for a sleep study to determine what's causing your snoring. Have any of your seizures...

12/5/2014 5:26 PM

Epilepsy
Small jerks that occasionally lead to gran mal

On a related topic; Another bad side affect from long term use of Dilantin. I don't know if this has been posted before but here it goes anyway. I've found out several years ago that I can no longer...

9/20/2014 12:22 PM

Epilepsy
Diet Coke, aspartame causes seizures!

SWEET POISON! A MUST READ! In October of 2001, my sister started getting very sick. She had stomach spasms and she was having a hard time getting around. Walking was a major chore. It took everything...

9/15/2014 11:09 AM

Epilepsy
First time tonic clonic seizures

Meena: Most of the symptoms you've all described in this thread, I've had. Your son may have a form of sleep Apnea. This could explain why all the tests are coming out normal during the day but show...

8/18/2014 10:40 AM

Epilepsy
Balance and Coordination

JungRulz 1) My Neorologist keeps telling me that (as you've suggested) my "balance and coordination" issues are a side effect from long term use of Phenytoin (dilantin). BTW ~ I now take 300mg per...

8/12/2014 9:43 AM

Epilepsy
Balance and Coordination

Is anyone else having these types of problems? I have a "seizure condition" (epilepsy). I've been on dilantin and pheonobarb for 44 yrs and now, as a result of the long term usage of the MEDs I have...

8/8/2014 12:00 PM

Epilepsy
Family Doctors ~ can ruin your life

SunnySkyJan: That is exactly the same dosage of Pheono and Dilantin as I am on since I was 21, I'm 57 now. Also, if I try something new, I also have seizures, more frequent and severe. I'm not sure...

9/1/2013 9:20 PM

Epilepsy
Family Doctors ~ can ruin your life

IMO ~ Don't keep switching Doctors. If you have a seizure condition, Please be sure that you are seen by a NEUROLOGIST or EPILEPTOLOGIST, not just your family doc. who may not be to familiar in this...

8/28/2013 1:22 PM

Epilepsy
department of licensing

I went 34 yrs seizure free and I was of the strong opinion that if I were to have an "aura" or get that feeling just before a grande-mal while I was driving, I would be able to pull over in plenty of...

8/12/2013 12:10 PM

Epilepsy
Has anyone used high-dose mesalamine long term?

quincy, Correct assumption. I have been on a maintenance dose of Asocol for 34 years and in remission with the odd minor flare up (maybe about 6 or7 over 34 yrs. that only last a couple of weeks)...

3/16/2013 10:47 AM

Ulcerative Colitis
Has anyone used high-dose mesalamine long term?

lacaille, Hi, my name is Randy from Canada. I have been taking 3,000/mg of Asacol now for 34 years (with other antiepilectic meds for my epilepsy) with NO or minimal side affects.(for me I get...

3/14/2013 11:51 AM

Ulcerative Colitis
Nocturnal seizures pattern = 10/-12 days why?

To m counihan, I've had Epilepsy now for 34 years and speak from experience. Maybe you should speak to your Neurologist about sending you for a sleep study to determine what's causing your night...

3/13/2013 10:59 AM

Epilepsy
"Emotional Epilepsy"

zdrast, I also have the same symptoms as you and my brain scans all look normal. Hi from Ontario for everybody reading this post. I've had epilepsy since 1979, controlled by meds. I get a form of...

2/26/2013 11:26 AM

Epilepsy
Dilantin Toxicity

DangerDash, I did not quit my seizure medication. I was just responding to "Flowmaster00" post from 2009. I have no issues with dilantin. Randy...

2/1/2013 11:17 PM

Epilepsy
Dilantin Toxicity

Flowmaster00 You have been off the dilantin for over 4 years now. Was it worth quitting? Your quote: "For all of you out there I was taking dilantin for 26 years and dilantin causes so many problems....

1/26/2013 12:37 PM

Epilepsy
Epilepsy late in life

Cardinal33, I've been on dilantin for 34 years now and I've never heard of it causing constipation. Randy...

1/19/2013 12:13 PM

Epilepsy
can someone be misdiagnosed

It could very well be that the Dilantin is what is keeping your seizures at bay. Some medications do work for people with seizures, others do not. The EEG could have shown seizure activity 14 yrs ago...

10/18/2012 12:02 PM

Epilepsy
Might have temporal lobe epilepsy - have fears and questions!

Jimmy Cee, Are you on any medication? because that can bring on all kinds of bad side effects. I'm not a medical person but I think I can answer your questions based on 33 years of Epilepsy. I've...

2/24/2012 1:36 PM

Epilepsy
Looking for some advice and help

I was concerned about long term effects of anti-epileptic drugs and Multiple Sclerosis so I contacted the NMSS of Canada and here's my reply: The risk of epilepsy seems to be three times higher in...

9/23/2011 11:44 AM

Epilepsy
AEDs and Multiple Sclerosisosis

I was concerned about long term effects of anti-epileptic drugs and Multiple Sclerosis so I contacted the NMSS of Canada and here's my reply: The risk of epilepsy seems to be three times higher in...

9/14/2011 8:55 AM

Epilepsy
driving and seizures

Acheybody(Debbie) Maybe you should let your daughter read these posts and then she will see how serious this is, and if you still have a problem with this, as mentioned above, report her, you could...

6/9/2011 1:07 PM

Epilepsy
Can I drive? I only have had 2 seizures and that was at night.

I went 23 yrs seizure free and I was of the strong opinion that if I were to have an "aura" or get that feeling just before a grande-mal while I was driving, I would be able to pull over in plenty of...

4/14/2011 9:15 AM

Epilepsy
Am I really not allowed to drive????

Elijah said... I went seizure free (we think) for 34 years, then out of the blue had a grande mal. The doctor said I couldn't drive for 6 months and it has been absolutely terrible! Usually when a...

3/20/2011 8:46 PM

Epilepsy
driving and seizures

Acheybody, Sorry, One more, O K, so you choose to drive. Now try to get insurance. If the insurance Co. finds out that you have/had a seizure condition, your premiums will sky rocket or if you should...

3/16/2011 12:13 PM

Epilepsy
driving and seizures

Acheybody, You could go several years seizure free, then all of a sudden something could trigger another one without any warning. This happens all too often out of greed and the need to drive....

3/16/2011 12:09 PM

Epilepsy
driving and seizures

Acheybody, This is a topic that REALY BOTHERS ME. Most people are of the opinion that "that will never happen to me." Well it seems to be happening more often than ever. It seems that the Ministry of...

3/16/2011 12:03 PM

Epilepsy
driving and seizures

Acheybody, I went 23 yrs seizure free and I was of the strong opinion that if I were to have an "aura" or get that feeling just before a grande-mal while I was driving, I would be able to pull over...

3/16/2011 12:00 PM

Epilepsy
im an epileptic bt what i dont get is why am i goin to see a psychologist am i goin MAD

litcome, If you've had an EEG and/or MRI and they showed no seizure activity and you are also having nighttime seizures, you could have "pseudoseizures". They are psycilogical seizures that don't...

2/22/2011 10:08 AM

Epilepsy
Seizure's in your sleep

litcome, You should consider having your Dr. refer you to a sleep specialist, where a overmnite sleep study can be performed, an EEG is done on you while you sleep and it shows if/how many seizures...

2/11/2011 12:26 PM

Epilepsy
Am I really not allowed to drive????

O K, so IF you choose to drive. Now try to get insurance. If the insurance Co. finds out that you have/had a seizure condition, your premiums will sky rocket or if you should have a minor mis hap ~...

1/15/2011 11:35 PM

Epilepsy
Am I really not allowed to drive????

jesimae, I went 23 yrs seizure free and I was of the strong opinion that if I were to have an "aura" or get that feeling just before a grande-mal while I was driving, I would be able to pull over in...

1/15/2011 11:24 PM

Epilepsy
newbie with some questions...

Hi Rebecca, I've had epilepsy (seizure disorder) for 31 years. I'm not a professional in this field but I'm speaking from experience and pieces of info. I've gathered along the way. 1) - After a...

12/28/2010 11:18 AM

Epilepsy
Post-seizure questions from wife of epileptic

mktggurl Your husband's actions immediately after a seizure are a normal reaction after a seizure. I t's called the "Post Ictal" state. It usually lasts a few mins. It causes confusion, delerium,...

11/25/2010 1:08 PM

Epilepsy
A lil scared

kat10 I get an "aura" before a seizure comes. This is a warning for me that a seizure is comming. Some ppl just have an aura and no seizure. If you are on meds and just have auras, that's usually a...

9/27/2010 9:19 PM

Epilepsy
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