Hey Redrose! I hear you. I tried lots of things for my back . . . spine doc, pain management, physical thereapy, spinal injections . . . . and that spine doc was talking surgery. eeeeek!!! I was...
Hello Student01, You won't be able to "self-promote" your business here . . . your post will be deleted by the mods. See forum rules. But as far as Lupus and Massage . . . I don't have a slam-dunk...
If you haven't seen a Rheumatologist, you might want to do that. I was bumped around within my GP, spine doc, wrist doc, hip doc, derm, pain management . . . until FINALLY someone here shared that we...
The bad affects on the tummy tend to fade after taking this med for a good while too. . . I hope you feel better soon. You can also ask if you can "taper" onto the full dose, by taking it every other...
Lots of insomnia on this board for sure. I had problems for years with insomnia, but am sleeping very well now. I really wonder if the insomnia is part of the disease activity. Anyway . . . things...
Its nice catching up with so many members. I've been doing relatively well for a couple of years. I know my early warning signs and I'm pretty careful not to overdo and really careful about the sun ....
Hi Redrose, Great topic! When I was spending most of my day with my feet up in a recliner . . . I started crocheting, which led to making lace edging for hand towels. That year (about 4 years ago?)...
Is this what you are looking for???? It is quoted from WAY down the list of posts in Lupus Resources ...
Hey Kimber . . . If no one here knows . . . you might make the same post in the Rheumatoid Arthritis forum and the Crohn's forum. Lots of them use Mtx too. Blessings!...
(((((((((((( Babs ))))))))))))))))) So GREAT to see you posting!! I'm not here much (yeah!) and have been pretty busy and pretty healthy. I'm sorry you need to work . . . but I'm glad that you have a...
((((((((((((((( Redrose ))))))))))))))) Can't imagine your pain. Prayers for you sis. Blessings! (praying you'll find some in unexpected ways)...
Ummmm . . . I'm addicted!! If I waken at night and can't sleep, I eagerly head for my knitting . . . LOL . . . Ravelry was a FANTASTIC recommendation . . . thanks!! Right now, I'm trying to use some...
Hello everyone . . . I've been MIA because I'm feel so good. I've been busy with life and enjoying a huge calm in my symptoms. I am still very careful to pace activity with rest and eating well and...
Hi everyone . . . Just received an email from the Lupus Foundation including some information on a New Lupus Treatment. I thought I'd pass along the link to those who may be interested....
greater than The values given in the in parentheses are the normal range . . . so it appears that your results are within normal values. A good place to look up lab results is LABTESTSONLINE.ORG...
Hi dogs, Sorry you are having such a hard time. Lots of us are in dx limbo. We've been diagnosed and then undiagnosed, etc. We are finding that it is a blessing to NOT have the word Lupus in your...
Hi Mish, I don't have any specific info about UCTD and pregnancy. Blessings!...
LOL . . . Thanks Lynwood. I almost posted an answer when I saw this and thought it would just fall down to the bottom of the page. But I hope that some other readers were helped by seeing the...
I started by walking to the mailbox and back. A girl's gotta do what a girl's gotta do. Even a walk across the kitchen is start. I can't always walk on earth either . . . you had asked for...
Ummmmmm . . . You know your own body . . . but *for me* coming anywhere near "the limit of what I can do w/o causing pain or overdoing" is WAY too much. I tried for years to get back into a walking...
Dear Wife and Mommy, I've been diagnosed and then undiagnosed. They still "treat me" for lupus though. I'm always just as glad it is out of my records. The important issue is if they are giving you...
Judy, Add my prayers to the others. How scary for you and your dad!! Such a difficult time! I'm glad your Uncle is doing better . . . *phewwwww* that's really rough! Blessings!...
Sorry Marji. I can't even comment. I no longer watch television much because we are one of the "old geezers" who still use an antenna and an older TV. The stinkin set up for using those boxes with...
Hi Superloopie, The rice bags (grain bags, corn bags) are used by heating them in microwave or freezing them. I use them both ways and we use them often. There is a post in the "Lupus Resources"...
Hey Marji . . . LOL that was some great 'unearned' credit!! I've heard of a couple different ways to make turkish delight and it sounds like totally different candies. Someone made some and brought...
OH NO!! (((((((((( Desirèe )))))))) I'm SO sorry sis! That's incredibly difficult news. Harder yet with a wee one to think about. I'm so terribly sorry. In one respect, I'm glad the doctor was so...
Thanks Ginny . . . don't work too hard. I know its your busy season!! Take care though, ok? Thanks Judy . . . I hope you are doing ok this summer! Hey Lucy . . . send me an email and we can chat...
Call your doctor right away . . . to swell rapidly and so badly requires medical attention. Let us know how things go, ok? Blessings!...
(((((((((((( Marji )))))))))))) Prayers and blessings sis!...
Hello all!! I'm so sorry I haven't been online much. I'll be peeking in to help watch for spammers and such . . . but I won't be posting much. I've been really busy (and feeling very well!!) and have...
Sorry to Lovethekids for all your heartache. I had to remove the doctor's name. I know you weren't complaining about "that" doctor, but it could be misunderstand and then HealingWell can end up...
Hi mom of 5, So sorry. Oh dear. . . . That really is scary. Has your previous bloodwork included testing for antiphospholipid anti cardiolipin - antibodies that cause thick, sticky blood in lupans. I...
Here are the standings for May!! congrats to our top 10 !!!! Wooo Hoo!!! 1. Lynnwood (235 points, 8 wins) 2. FranW (229 points, 5 wins) 3. peaches (225 points, 6 wins) 4. Butterflake (220 points, 5...
Hi Mom . . .sorry you are having SO much trouble. Sounds really scary. I wonder if the muscle weakness might be polymyositis. The doctor should at least run some bloodwork to help rule out pm. There...
Hi sunshine!! So sorry you are having such a hard time. Has your doctor given you any suggestions on dealing with this pain until your rheumy appointment? Lupus can be very difficult to diagnose...
Welcome to the forum HurtingHeart! I've had the nerve conduction test for my legs/hips and for my wrists. It really wasn't painful . . . but there is an electrical signal that goes from one point to...
Hi jojo, That is often a problem for me too. I sometimes move myself into the guest room where I can get into a really dark room. I read that this makes a big difference in the quality of sleep . . ....
Hey ReeRee . . . Jennifer gave you a good link. Under "Services" they talk about monthly support groups. You can call: In Seattle call 206-546-6785 Outside Seattle call toll free 1-877-774-2992 and...
Hi Jennifer, Is the skin on your hands normal? I think that Scleroderma can cause curled hands, but I thought it was from the skin tightening . . . and yours doesn't really sound like that. But lots...
I love this topic!! Its really interesting (and funny sometimes) to see how we each picked our names!! Keep them coming!!! Haven't heard from everyone yet. Blessings!...
Welcome to the forum Bree, Most of us had a very long wait for diagnosis. Your dx may be swift if you have more obvious symptoms. Lynwood gave you a good link to check out. . . and there are some...
Welcome to the forum Sally, I agree with Patty . . . most of wait a good couple months for a first Rheumy appointment. The first appointment can be an hour or more. The doctor will ask LOTS of...
Trish . . . CALL your doctor and tell him/her that your are going on a 12 day trip and all the info you gave about it above. Tell him/her that you are in a lot of pain (as you described above) let...
OK Patty . . . heading over with my knitting and portable recliner!! Finished that little Grrrrr washcloth for my grandbaby!! Its so cute!!! Blessings!...
Welcome to the forum Dee!! Lynnwood gave you some great advice. I agree with NOT stopping the prednisone w/o doctor's input. Prednisone needs to be tapered very slowly (reduced gradually). I hope...
:idea: I want to come and play at your summer camp too!!! :yeah:...
Hi Nanes, It's hard to know . . . what works for some, doesn't work for others. But it sounds like you have two medical professionals supporting your decision. It feels good to have at least tried...
Keep the updates coming!! EVERYONE! It's great to catch up with everyone. I'm sorry for those of you who are have a hard time of it. But it is still good to catch up and know how everyone is doing. I...
Arghhhhh!!! ((((((((((( Stacie ))))))))))) I do a lot of last minute stuff so I'm not committed to things I won't feel "up to". It really does weigh us down when we have to back out of activities...
Welcome to the forum Santa !! Sorry I can't answer your question. Lupus is a HUGE topic and diagnosis can be elusive for a long, long time. There are some great links at the end of my signature...